Author |
Topic: how bad does yours hurt? (Read 502 times) |
|
sleepy2
New Board Newbie
i'm new...be easy on me
Gender: 
Posts: 8
|
 |
how bad does yours hurt?
« on: Nov 3rd, 2003, 10:00pm » |
 Quote  Modify
|
Just wanted to take a quick pole to see the average severity of of fellow sufferers attacks. use the kip scale (I'm new, i think thats what you call it). How many 10's have you had? Is it normal to have 9's all the time? Just interested in some feedback.....
Thanks to all who respond
|
|
 IP Logged |
I really am missing the freedom of leaving my house without having to drag an oxygen tank with me
|
|
|
Yos
New Board Newbie
Gender:
Posts: 21
|
|
Re: how bad does yours hurt?
« Reply #1 on: Nov 3rd, 2003, 11:02pm » |
Quote Modify
|
Mine are all over the place. They usually start out at the beginning of a cycle with 2's and 3's. Within a week they are up to 4's and 5's. Then I have a few weeks where 6's to 8's are the norm. Then I usualy have 2 to 4 days where 9's are hitting every few hours.
Then the cycle starts back down, and its a few 4's and 5's and ends with a few 2's and 3's, which is thankfully, where I am now.
Yos
|
|
IP Logged |
|
|
|
Prense
CH.com Alumnus
New Board Hall of Famer
Kerry is an idiot!
Gender:
Posts: 1607
|
|
Re: how bad does yours hurt?
« Reply #2 on: Nov 3rd, 2003, 11:40pm » |
Quote Modify
|
About 4 "10's" and 6 or so "9's" a month...chronically.
What is your impression of a 10? I cannot describe anything similar, but a bruised rib sits about a 4 and a "brain freeze" HA is roughly a 5 on the pain scale. When I get to 6, I start to become debilitated.
Chris
|
|
IP Logged |
Where does the white go in a snowman when the snow melts?
|
|
|
Unsolved
CH.com Alumnus
New Board Veteran
I'm still alive ?
Gender:
Posts: 185
|
|
Re: how bad does yours hurt?
« Reply #3 on: Nov 4th, 2003, 12:50am » |
Quote Modify
|
Unfortunately, the norm for me are "Kip 9's". Each and everyone feels 'devestating' at the time and last for 15-20 minutes providing I get the Imitrex injection quickly.
Bob described it nicely on his news video that's on his website. "Two Red-Hot Screwdrivers" sounds pretty accurate to me 
~ Unsolved ~
|
|
IP Logged |
I need a fully automatic Imitrex injector
|
|
|
jflynn
New Board Junior
I love YaBB 1G - SP1!
Posts: 61
|
|
Re: how bad does yours hurt?
« Reply #4 on: Nov 4th, 2003, 10:57am » |
Quote Modify
|
Generally 5-7 with an occasional 8. I guess I'm lucky (haha). Only went to hospital once with a 10 not knowing what it was, I thought it was a bad sinus infection. They also were clueless.
My 1:30am wakeup call tends to be a 6 or 7 and hot showers help.
|
|
IP Logged |
|
|
|
Cooked Brain
New Board Old Timer
a.k.a. Max Payne, YOUCH this hurts...
Gender:
Posts: 411
|
|
Re: how bad does yours hurt?
« Reply #5 on: Nov 4th, 2003, 11:02am » |
Quote Modify
|
at the top of the cycle 5 or 6 a day all 9's and 10's and between 1,5 and 2,5 hours.
|
|
IP Logged |
"We can NOT solve our problems with the same kind of thinking that got us IN to the problem in the first place" Albert Einstein
|
|
|
thomas
Guest
|
|
Re: how bad does yours hurt?
« Reply #6 on: Nov 4th, 2003, 12:13pm » |
Quote Modify
 Remove
|
When in cycle 2 9-10's per day with lots of 2-5's 
|
|
IP Logged |
|
|
|
Karla
CH.com Alumnus
New Board Hall of Famer
One of Many and Never Alone - Join OUCH
 
Gender: 
Posts: 3090
|
|
Re: how bad does yours hurt?
« Reply #7 on: Nov 4th, 2003, 12:32pm » |
Quote Modify
|
Before I found a preventative that worked I would get hit with kip 10's all day long. That is 8 ha a day each 1 1/2 hours long. It sucks being chronic.
|
|
IP Logged |
Karla
suffer chronic ch
ch.com groupie since 1999
Proud Mom of Chris USMC Semper Fi
|
|
|
Cooked Brain
New Board Old Timer
a.k.a. Max Payne, YOUCH this hurts...
Gender:
Posts: 411
|
|
Re: how bad does yours hurt?
« Reply #8 on: Nov 4th, 2003, 4:28pm » |
Quote Modify
|
on Nov 4th, 2003, 12:13pm, thomas wrote:| with lots of 2-5's |
|
were we counting those too? ;D
|
|
IP Logged |
"We can NOT solve our problems with the same kind of thinking that got us IN to the problem in the first place" Albert Einstein
|
|
|
thomas
Guest
|
|
Re: how bad does yours hurt?
« Reply #9 on: Nov 4th, 2003, 5:15pm » |
Quote Modify
Remove
|
Just trying to give as much info as possible. 
|
|
IP Logged |
|
|
|
Tiannia
New Board Hall of Famer
Life does not apologies......
Gender:
Posts: 3241
|
|
Re: how bad does yours hurt?
« Reply #10 on: Nov 4th, 2003, 6:16pm » |
Quote Modify
|
This cycle - I pretty much when they start it is 3-4 and if I do not get to it right then, It goes to an 9 really quick. (I still have not talked my doctor into getting me on O2, plan on handing him a ream of paper showing that there HAVE BEEN CLINICAL STUDIES that PROVE it is EFFECTIVE) but if I can get to the imitrex I normall hit a 6-7 about 2-3 times a day.
|
|
IP Logged |
The curious paradox is that when I accept myself just as I am, then I can change. - Carl Rogers
|
|
|
tsayswhy
New Board Old Timer
Gender:
Posts: 279
|
|
Re: how bad does yours hurt?
« Reply #11 on: Nov 4th, 2003, 6:45pm » |
Quote Modify
|
first week a 2-3 kip
second week a 4-6
third week a 8-9 this
then taper back down
only had 10's the first 2 years started cluster and i say that because they were behind the eye now they are in the tempo area nothing beats behind the eye pain 
|
|
IP Logged |
if you are going my way---i will walk with you
|
|
|
sandie99
New Board Hall of Famer
Wish it, dream it, do it - inspite the pain!
Gender:
Posts: 10429
|
|
Re: how bad does yours hurt?
« Reply #12 on: Nov 5th, 2003, 7:31am » |
Quote Modify
|
Good poll...
in my case, the pain varies a lot during a day.
My attacks are usually from 5 to 9.
Luckily for me, I haven't had a 10 in a long time... 
Best wishes & PFdays,
sandie99
|
|
IP Logged |
CH happends, Live anyway! PF days to us all!
"Do what you can and let God take care of the rest. Leave your heart wide open and always wish for the best" (Sanna Hillu)
"No matter how far out your dreams are, it's possible" (Marketa Irglova)
|
|
|
M.Laun
New Board Newbie
Gender:
Posts: 12
|
|
Re: how bad does yours hurt?
« Reply #13 on: Nov 6th, 2003, 10:30am » |
Quote Modify
|
my CH's are rare but hefty. I can't recall any attack being less then KIP 8. usualy i get 9-10's.
|
|
IP Logged |
|
|
|
ckelly181
New Board Old Timer
To err is human; To forgive, canine.
Gender:
Posts: 364
|
|
Re: how bad does yours hurt?
« Reply #14 on: Nov 10th, 2003, 10:18pm » |
Quote Modify
|
Very first one is usually a 10 - sends me to the ER, makes me puke from pain and slam my head against something.
week 1-3: Two 5-6's during day, one 7-9 at night.
week 4- 6: all over the board, 2 - a few 10s.
week 7 and on: one 6-8 during the AM, one at night.
I'm on my 3rd month of this cycle. Longest one I've ever had. I get one 6-8 between 10-11 AM, and one 6-8 at about 1:30 AM.
sigh...
Chris
|
|
IP Logged |
Dogs are not our whole life, but they make our lives whole.
|
|
|
BUBBADOG
Guest
|
|
Re: how bad does yours hurt?
« Reply #15 on: Nov 11th, 2003, 7:45am » |
Quote Modify
Remove
|
first week of my cycle 4-6 on kip scale
second week 8
third week 9 mostly 10
my wake up call with these starts at 4am write now i am in a BADDDD CYCLE 4-8 CH A DAY I WANT TO PUT MY HEAD RIGHT THROUGH THE WALL OR FLOOR
I AM A CHRONIC ALSO .....
|
|
IP Logged |
|
|
|
Lampropeltis
Guest
|
|
Re: how bad does yours hurt?
« Reply #16 on: Nov 13th, 2003, 3:34pm » |
Quote Modify
Remove
|
Before I began serious preventive meds, I started getting bad clusters (kip 9 and 10) daily for about 10 - 11 months out of the year about 6 months after I turned 27. Fortunately, by the time I turned 29 I had some decent meds. It was the worst thing; I couldn't even go to sleep with a cluster - in fact, if I was in a deep sleep and a cluster came on it WOKE me up!! 
Those are the worst because your brain is trying to give you the warning signs, but by the time you wake up you have about 5 minutes before your on the floor screaming and flailing like a little kid. I had to begin setting my alarm clock to go off every 4 hours so I could wake up and take aspirin.
One other time I tried to take two valiums in an effort to knock myself out; no luck there - I was just drowsy - but still in pain and couldn't go to sleep. That one was bad. Of course after the things were over I would be so wiped out that I couldn't move for about a half hour or so - my body was physically tired after dealing with the pain. That was very surprising given that I am a 180 lb. guy with a decent build and a fairly healthy body. Cluster headaches are nuts - I would rather break my wrist or nose again over and over than deal with those damn things! 
|
|
IP Logged |
|
|
|
|
|
|
Home
Help
Search
Members
Member Map
Login
Register
Reply
Notify of replies
Send Topic
Print
test rss