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   Author  Topic: Has anyone had experience BOTOX?  (Read 1936 times)
KandyKane
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Has anyone had experience BOTOX?
« on: Dec 9th, 2003, 2:53pm »
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I happened to have an Attack at a party I was giving the other night and there happened to be a plastic surgeon there.  He just called and said he believes that Botox will help.  He's willing to do at N/C, so I don't think he's just drumming up business, just trying to be helpful.  Or maybe he noticed all the wrinkles, who knows.  
Has anyone had any experience or info on this?  I tried to do a search, but it wouldn't let me open what it found!?  Anything anyone can tell me before I jump into this?
Thanks for all I've learned by reading this site, and thanks for being here.
KK
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floridian
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Re: Has anyone had experience BOTOX?
« Reply #1 on: Dec 9th, 2003, 2:59pm »
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I think the general concensus here is that botox may help with tension headaches and migraines, but doesn't help with cluster headaches.  But I am not 100% sure.  Anybody??
« Last Edit: Dec 9th, 2003, 3:17pm by floridian » IP Logged
Karla
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Re: Has anyone had experience BOTOX?
« Reply #2 on: Dec 9th, 2003, 4:39pm »
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I have botox injections done and it helps wonderfully with my migraines but does nothing for my clusters.  I would go ahead and try it if your insurance will cover it.  My neuro said that it usually takes a few weeks to kick in and then you may need another round of injections every 4 months or so for it to really be in your system and be most effective. So basically I was told not to write it off if it didn't work the first time.  
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Karla
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Re: Has anyone had experience BOTOX?
« Reply #3 on: Dec 9th, 2003, 6:15pm »
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You may find this article interesting (about Botox use for Ch sufferers)
 
http://12.42.224.226/healthnews/reuters/NewsStory112820025.htm
 
 
Wendy
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Re: Has anyone had experience BOTOX?
« Reply #4 on: Dec 9th, 2003, 6:17pm »
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If anyone has trouble accessing it it says:
 
NEW YORK (Reuters Health) - Injections of Botox, the wrinkle-smoothing toxin, may provide relief to some people with cluster headaches that do not respond to conventional treatment, according to a Chicago headache specialist.  
 
Seven out of 10 people with cluster headache experienced at least some relief after receiving Botox injections, Dr. Lawrence Robbins of the Robbins Headache Clinic in Northbrook, Illinois, and Rush Medical College in Chicago, Illinois reports in a recent issue of the American Journal of Pain Management.  
 
Although Robbins points out that larger studies are needed to confirm the benefits of Botox for cluster headaches, he said that the treatment may be helpful for some patients.
 
"Botox is only occasionally useful for cluster headache, but, for those who obtain relief, it is very welcome," Robbins told Reuters Health. He noted that cluster headaches can be severe, and the patients in the study had not responded well to other sorts of treatments.
 
Cluster headaches--which are more common in men--cause sudden, severe pain, often centered in one eye. Though the headaches tend to be short, they run in cycles, which may cause several headaches in one day or every few days. Most people with cluster headaches experience pain-free periods of several weeks or more between each headache cycle. About 10% of sufferers, however, experience chronic cycles, which can last a year or more.  
 
Several medications, including the blood-pressure drug verapamil, lithium and cortisone, are used to prevent cluster headaches, and other drugs, including ones used to treat normal migraine headaches, can relieve the pain once a cycle starts. Many people who experience cluster headaches do not get much relief from conventional therapies, though.  
 
According to several reports, Botox, which is the brand name for a purified form of the botulinum toxin, has reportedly been useful in relieving migraine headache, so Robbins set out to test it in people with cluster headache who did not respond well to conventional treatment. The study included eight men and two women aged 28 to 63 who received at least one Botox injection in the face or temple.  
 
Among the seven patients with chronic headaches, one experienced "dramatic" relief that lasted for 3 months, while another three experienced moderate relief, according to the report. The treatment had no effect in three patients. In the case of patients with episodic cluster headaches, relief was complete in one and moderate in another. In the third patient, relief was complete after the first round of injections, but a year later, after a second set of injections, symptoms improved only moderately.  
 
In the report, Robbins notes that larger studies that include "control" groups of people who do not receive Botox are needed to confirm the benefits of the treatment.  
 
In the meantime, he told Reuters Health that even though Botox did not help everyone in the study, it did significantly improve the quality of life of several patients. One drawback of Botox, however, is its high cost, Robbins said.
 
The Chicago physician said that Botox is safe, although he noted that the long-term safety of its use as a headache treatment has not been tested. So far, he said, "we have had very few side effects from Botox, so that the worst that happens is nothing at all." In the study, one patient experienced a droopy eyelid for 12 days, and another had a burning sensation in both eyes that cleared up after 6 days.  
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thomas
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Re: Has anyone had experience BOTOX?
« Reply #5 on: Dec 9th, 2003, 6:22pm »
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on Dec 9th, 2003, 6:17pm, pubgirl wrote:

Cluster headaches--which are more common in men--  
Just how sick and tired of hearing/seeing this are you getting girls?
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pubgirl
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Re: Has anyone had experience BOTOX?
« Reply #6 on: Dec 9th, 2003, 6:27pm »
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VERY
 
 mad
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thomas
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Re: Has anyone had experience BOTOX?
« Reply #7 on: Dec 9th, 2003, 6:31pm »
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I thought so.  Every time I see how many girls there are here, I get so pissed when I see that quote.  I'm like come on people - your missing the boat.
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pubgirl
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Re: Has anyone had experience BOTOX?
« Reply #8 on: Dec 9th, 2003, 6:37pm »
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I think the general consensus is that historically women were even more likely to have Ch misdiagnosed as migraine. the ratio is changing now the diagnosis is improving.
 
 
W
 
P.S. It don't take much reading of the above Botox article to find some pretty huge holes in the reporting of the results.
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KandyKane
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Re: Has anyone had experience BOTOX?
« Reply #9 on: Dec 9th, 2003, 6:51pm »
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Yea, glad to hear I don't have these darn things since they're a man thing.  Anyway, sounds like it can't hurt, and even if my eye is crossed in pain, I'll have a very smooth forehead for a couple of months.   Grin Grin Grin
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KandyKane
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Re: Has anyone had experience BOTOX?
« Reply #10 on: Dec 9th, 2003, 6:54pm »
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Oh yea, the droopy eyelid result?  Can't get much droopier!
« Last Edit: Dec 9th, 2003, 6:57pm by KandyKane » IP Logged
pubgirl
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Re: Has anyone had experience BOTOX?
« Reply #11 on: Dec 9th, 2003, 7:17pm »
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Only trouble is there is absolutely no long or even medium term evidence of what Botox does to a human as it is such a new way of using it (i.e. deliberately injecting the body with this toxin)
 
Thinks I'll stick with my Imigran and wrinkles until more is known
 
Wendy
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Prense
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Re: Has anyone had experience BOTOX?
« Reply #12 on: Dec 9th, 2003, 7:40pm »
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What ever you decide, keep us updated please!
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