Author |
Topic: Clusters and Epilepsy (Read 533 times) |
|
Pinkfloyd
New Board Hall of Famer
comfortably numb
  
 
Gender: 
Posts: 1406
|
 |
Clusters and Epilepsy
« on: Nov 14th, 2004, 9:04pm » |
 Quote  Modify
|
If there are any cluster sufferers here, that also suffer from epilepsy, could you please contact me. I am in particular looking for someone that may have had a VNS implanted. If you have, or know of someone that has, please send me an email or IM.
Don't worry, I'm not trying to sell anything. It has to do with a cluster treatment and possible research. 
Thanks
BobW
|
|
 IP Logged |
"Nothing is so firmly believed as what we least know."
"There is no passion so contagious as that of fear."
[Michel de Montaigne
www.clusterbusters.com
www.obscuredview.blogspot.com
|
|
|
nani
CH.com Alumnus
New Board Hall of Famer
Got kudzu?
Gender: 
Posts: 7953
|
|
Re: Clusters and Epilepsy
« Reply #1 on: Nov 14th, 2004, 9:18pm » |
Quote Modify
|
Yoo hoo.... Charlie.....
|
|
IP Logged |
Others may come and go, but MY power is MINE.
|
|
|
Charlie
CH.com Alumnus
New Board Hall of Famer
Happy to be here
  
Gender:
Posts: 14968
|
|
Re: Clusters and Epilepsy
« Reply #2 on: Nov 14th, 2004, 11:20pm » |
Quote Modify
|
Thanks Nani.
I've already been through this however. The VNS thing is pretty new. My CH and epilepsy are not related.
Good luck Pinky
Charlie
|
|
IP Logged |
There is nothing more satisfying than being shot at without result---Winston Churchill
|
|
|
Pinkfloyd
New Board Hall of Famer
comfortably numb
Gender:
Posts: 1406
|
|
Re: Clusters and Epilepsy
« Reply #3 on: Nov 15th, 2004, 12:31am » |
Quote Modify
|
Yes, I've already run Charlie's data through the computer (a modified wayback machine) and he seems to fall into the high end of the "enigma" classification.
I'm searching for someone that is closer to a "medical marvel"
but thanks anyway 
bobW
|
|
IP Logged |
"Nothing is so firmly believed as what we least know."
"There is no passion so contagious as that of fear."
[Michel de Montaigne
www.clusterbusters.com
www.obscuredview.blogspot.com
|
|
|
radioflyer72
New Board Newbie
"It's like uh..well...you know..nevermind !"
Posts: 3
|
|
Re: Clusters and Epilepsy
« Reply #4 on: Nov 15th, 2004, 7:23pm » |
Quote Modify
|
Hi Floyd
A newbie here....CH episodic also dealing with General Tonic Clonic seizures (controlled with Tegritol)......No VNS implant, but I'm willing to share whatever might help our fellow man.
My only advice. Lose the head...it's WAY overrated :-P
David
|
|
IP Logged |
|
|
|
Pinkfloyd
New Board Hall of Famer
comfortably numb
Gender:
Posts: 1406
|
|
Re: Clusters and Epilepsy
« Reply #5 on: Nov 16th, 2004, 1:38am » |
Quote Modify
|
on Nov 15th, 2004, 7:23pm, radioflyer72 wrote:Hi Floyd
A newbie here....CH episodic also dealing with General Tonic Clonic seizures (controlled with Tegritol)......No VNS implant, but I'm willing to share whatever might help our fellow man.
My only advice. Lose the head...it's WAY overrated :-P
David |
|
Thanks David very much. i do need to speak with someone that has both clusters and a VNS. If you happen to even run into such an unlucky (or lucky I guess if it works) person, please let me know.
BTW, welcome. Hope the folks here can be of some assistance.
PF
|
|
IP Logged |
"Nothing is so firmly believed as what we least know."
"There is no passion so contagious as that of fear."
[Michel de Montaigne
www.clusterbusters.com
www.obscuredview.blogspot.com
|
|
|
|
|
|
Home
Help
Search
Members
Member Map
Login
Register
Reply
Notify of replies
Send Topic
Print
test rss