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New Message Board Archives >> Medications, Treatments, Therapies 2004 >> Alternative Therapy
(Message started by: Mark C on Oct 24th, 2003, 5:44pm)

Title: Alternative Therapy
Post by Mark C on Oct 24th, 2003, 5:44pm
After researching the prospect of using mushrooms to help control my CH I finally gathered the courage to try it the other night. I had pretty high hopes from all of the reading I have done on the various sites concering shroom use. I wish I had a positive review but at this stage all I can report is the following.

Using a well known receipe for tea I made my batch and dosed accordingly. I had no undesriable effects from the dose, just a slightly hightend sense of color, as a matter of fact I was able to go to sleep an hour or so after dosing.

About two hours into my sleep I was awakened with a monster...about a K-9......rough. I rarely vomit during an attack but this time I did. I do not think the shrooms had anything to do with that because the night before was so intense I vomited then too and was not dosing. Hell, maybe I just had a touch of stomach flu. It may also be a reaction to all of the meds I have been taking because of the sinus surgery. Took a shot of Trex to survive that one. Finally settled back down and went back to sleep, it was about 4 am by then.

The next day someting really strange happened, I got hit that afternoon, but on the OTHER ( left) side. Never in 27 years has an attack changed sides in cycle. I have had cycles on on side, usually the right, but also on the left a few times.....but never both in the same cycle.

I am not giving up on this therapy yet.....I will give it several days and try a dose again.....I still hope for some relief....I am getting hit 3-5 times a day right now.

I thought I would throw that out and see what yall have to say, if anything about this turn of events.

PFDAN's
Mark

Title: Re: Alternative Therapy
Post by forgetfulnot on Oct 24th, 2003, 10:19pm
Mark, all of that sounds strange to me, not a typical reaction at all. Who knows what might happen in any given circumstance. Who knows if you got the right stuff?

??????

If ya read the site! (clusterbusters.com) and follow the directions, you shoudn't have these problems, but we all know that anything is possible, even relief from clusterhache if your lucky.

Sorry you had such weird experience, Lee.


Title: Re: Alternative Therapy
Post by Pinkfloyd on Oct 24th, 2003, 10:39pm
Mark,
Just a couple things...
Had you detoxed off any medications you'd been on? Were/are you still on anything? Some will block, some may enhance, some will not effect the efficacy.

Using the trex the next day most likely, based upon our gathered information, may very well have been the reason you had less than hoped for success.

You may need to up the dose slightly, although I wouldn't up the dose until some questions are answered. The fact that you were able to go to sleep so soon after dosing leads me to believe that you either, didn't take a large enough dose, the dose was blocked by other meds in your system, or the "materials" had deteriorated either from age, exposure to heat or oxygen, or during the brewing process.

If you'd like to write to discuss this further, please feel free.

PF

Title: Re: Alternative Therapy
Post by Unsolved on Oct 24th, 2003, 10:39pm
Just thought I'd add my 2 cents (Nothing bout shrooms)
First 12 years...ALWAYS right sided CH's...the last 3 years (chronic now)...Alternating attacks. Mostly left sided, but I can have an attack on the left and then 6 hours later, and attack on the right. :(
CH does suck !!

Title: Re: Alternative Therapy
Post by tommyD on Oct 25th, 2003, 8:11am
Mark -

There are many reports of attacks hitting soon after dosing with shrooms. It's as if the treatment disrupts and aggravates the beast before sending him packing. Many see odd effects such as a change in schedule, attacks that hit then fizzle, pain-free attacks, etc. in the first days after shrooming.

Like PinkFloyd  says, Imitrex does seem to interfere with the treatment, even when taken after shrooming.

If you can, hang in there, avoid the trex and try another shroom dose in a few days. My own opinion would be to use the same-sized dose again. Try your favorite non-med abortives to cope 'til then: high-flow O2 thru non-rebreather mask, water, heat, cold, exercise, etc.  Easy for out-of-cycle me to say, eh?

Thanks for the report and keep us posted, whatever happens.

-tommyD

Title: Re: Alternative Therapy
Post by pinksharkmark on Oct 25th, 2003, 11:58am
Mark --

Tommy is right. The reaction you describe is a GOOD sign. The psilocybin is having a disruptive effect on the normal pattern of your CH.

Quite a few people have described phenomena similar to what you experienced. It is not uncommon for the first 24 to 48 hours after the initial dose to be a period of unusual CH -- occasionally (unfortunately) even stronger or more frequent than usual, and I know we have had a report from at least one other experimenter about the CH switching sides temporarily after a dose. My most recent experience in July was similar -- twelve hours after dosing I got hit with the strongest CH I had experienced in over a year, and for the next few days I was having many more shadows and precursor symptoms than I had experienced before the dose. I was fully prepared to take a second dose, but each day after that the symptoms lessened until ten days later it was as if I had never had a CH in my life. In your case, however, you may still require further doses -- I was at the very beginning of a new cycle when I did this, so a single dose was all it took. Also, my dose produced a "Level 2" experience -- noticeably stronger than the psychoactive effects you describe. If you are in the middle of a cycle you will almost certainly require more than one very weak dose.

The point to focus on is that the dose had a very noticeable effect on The Beast. What would have been more worrisome is if there had been no change whatsoever.

Tommy is also correct in thinking the first dose was too small. From your description, it was barely a "Level 1" experience. What you need is to take enough to reach a solid "Level 2" next time. This does NOT necessarily mean doubling the amount of mushrooms you took -- it is not a linear relationship -- instead increase the dosage by 50%.

His advice to stay away from the imitrex for AT LEAST 24 hours after dosing (48 hours would be better) is also good advice. The idea is to let your brain settle into a "post-psilocybin" state rather than just the standard "post-imitrex" state.

In my opinion, the results of your first dose, while not as beneficial as they might have been, are VERY encouraging. It is definitely correct to try a second dose 4 or 5 days after the first  -- just increase this dose by 50% if it is from the same batch of mushrooms.

pinky  

Title: Re: Alternative Therapy
Post by Mark C on Oct 25th, 2003, 7:55pm
Thank you all for the replys,
I considered many of the points you all bring up, such as my Trex use. I wish I had been able to de-tox from the Trex but I am in the middle of cycle, another negative. I been getting hammered 3 to 5 times a day for the last month or so....however.....today I have only shadowed, and not too heavy at that. If I go another 3 or 4 hours it will be the first 24 hour PF time this month. Sounds like progress to me.

Having done a sizeable amount of Hallucinogenic's in my earlier days I can say I hit the level 5 in the past recreationally....a long time ago. I am pretty confident I came close to the correct dose. I did not mean to imply I had no effect, on the contrary is was a nice old comfortable feeling. I was about a 1.5 to a 2 on the Erowid scale.

My dose was about 2.5 grams and I will repeat the same dose in about 5 days after the initial dose.

Thanks for the info guys....I will try my best to stay off the Triptans before the next dose cause I finally got some O2.....more will be revealed.

PS- A spoon full of Tang at the end and I killed the whole thing in about 15 seconds...try it!

PFDAN's
Mark

Title: Re: Alternative Therapy
Post by Mastifflvr28 on Oct 25th, 2003, 9:24pm
whooo hoooo Mark,
Sounds promising!!!

Umm, just curious, what does this mean?


Quote:
PS- A spoon full of Tang at the end and I killed the whole thing in about 15 seconds...try it!


Thanks for the updates and reports :)
Mast

Title: Re: Alternative Therapy
Post by Mark C on Oct 25th, 2003, 9:37pm
I used PinkSharkMark's recipie....he uses instant coffee as a flavoring agent and to add some caffiene to the mix to speed  up absorbstion. I just threw in a spoonfull of Tang right before drinking it ( I hope you don't mind PSM  ;;D) and it was not bad tasting at all.....I killed it right away. My understanding was to get the dose in the bloodstream as soon as possible. I figured 10 or 12 seconds was better than 10 or 12 minutes.

Still PF.....all day.....hmmmmmmmm! Shadows have even just about gone.......hmmmmm  ;;D

I may be on to something! I cant wait to get the oxygen flowing, I would love to stop needing so much Triptans.

Onward through the fog!
http://www.drfeller.com/Mark/mark.gif

Title: Re: Alternative Therapy
Post by Mastifflvr28 on Oct 25th, 2003, 11:04pm
OHHHHH you meant killed a headache, OK!  LOL
Didn't know you dosed in the midst of a headache.  Thanks for clearing that up :)

Wishing you the BEST of luck Mark!!

Mast

Title: Re: Alternative Therapy
Post by pinksharkmark on Oct 26th, 2003, 1:39am

on 10/25/03 at 21:37:28, Mark C wrote:
Still PF.....all day.....hmmmmmmmm! Shadows have even just about gone.......hmmmmm ;;D


Very encouraging news indeed!

I know exactly what you mean about reaching for the imitrex, though -- it's incredibly difficult not to grab for something that you know will work in the hopes that something untried might work better without it.

I have been doing a lot of reading lately on one of the "recreational" mushroom boards about tolerance, and I believe I may modify my stance on the "5 days between doses" rule of thumb. It seems that for many -- even most -- people it is possible to dose as soon as three or even two days after an initial dose and still achieve nearly the same psychoactive effect from an equal dose -- if and only if it has been several months since any hallucinogens have been done. Some recreational users report that they can repeat this three or even four times before they have to start stretching out the "down time" to a week or even more (or massively increasing the dose, which is risky and not recommended).

I mention this because I believe it may make more sense to do another dose if you get hit again in the next day or two rather than reach for the imitrex. If you achieve no psychoactive effect, you will then know that you are one of the people who must wait 4 or more days between doses, but it just might buy you another 24 to 48 hours painfree time.

This strategy will work best if you have enough on hand that it is not a serious setback to have "wasted" 2 or 3 grams. If your supply is limited, best to wait 4 days just in case. Of course, if you continue to get nothing but shadows for the next 4 days, hold off on the second dose.

My other advice (though I know Flash will disagree with me) is to "tweak" that next dose upwards a bit. If it is the same batch of shrooms, go for 3.0 grams this time -- both to adjust for "tolerance" and to get closer to the solid Level 2 experience. From my own personal experience and reports from others I believe a Level 2 or maybe even Level 2.5 is best for breaking a well-established cycle, and as you are an experienced psychedelic voyageur (even if it was in your wild and crazy youth), it doesn't seem that a Level 2 ride holds any terrors for you.

I do agree with Flash that doses as high as Level 2.5 seem not be required if taken right at the beginning of a cycle, before The Beast has dug himself in.

pinky

Title: Re: Alternative Therapy
Post by Mark C on Oct 27th, 2003, 2:56am
Day two plus and not even shadows today.....48 hours PF, from one dose! Holy cow, it works! I intend on another dose at or slightly greater within the next 48 hours to see if the remission holds but for now I am really impressed. It is much easier to stop the triptans when I ain't hurting. Never in 27 years has anything affected my cycle, in mid cycle, like this. I bet if I would have started before the cycle had such a good foothold I may have even skipped this cycle entirely..... and that has only happened once in 27 years.

PF and not even shadows in the middle of a cycle....what is this world coming to!  ;;D

A great big thank you to Clusterbusters, Erowid, PinkSharkMark, PinkFloyd and Flash. I have read just about ever word you guys have written on the subject and the results are nothing short of amazing, at least for now.

I will keep you informed as to how the therapy progresses.

PFDAN's
Mark

Title: Re: Alternative Therapy
Post by vig on Oct 27th, 2003, 11:09am
The first time I was administered psilocybin, the pain was as intense as a cluster.  It HURT.  But then it stopped.  It's been almost two months since I got above a K5.  and it's almost HALLOWEEN!  I should be on the floor rolling and moaning.

Title: Re: Alternative Therapy
Post by Pinkfloyd on Oct 27th, 2003, 12:13pm
Holy Cow. indeed! Hope things continue to improve Mark. You may be tempted to change your icon soon!

Happy to hear you're still PF Vig...

Holy Fungus Batman!!

PF

Title: Re: Alternative Therapy
Post by Flash on Oct 27th, 2003, 2:09pm
Going to sleep is a symptom of the mildest hallucinogenic effect.  I get this also when I get the dose right.  I find that between episodes this level of dose works perfectly.  During an episode I find it takes  2 goes 5 days apart and even then things are likely to get A LOT worse before they SUDDENLY cease.

So bottom line is yes, it sounds like you took the right shrooms (please take note fellow Cluster Busters).  It also sounds like they are having an effect on the episode.

Now here's the rub...  this piddly little 2.5g of dried shrooms contained only a few mcgs of psilocybin.  Even if the episode were to resume at this point, NOTHING else will ever have an effect like that from a single tiny dose.  NOTHING.  This means that even if the episode were to resume, then continue with the shrooms and you have a very good chance of killing it, or at least minimising it to the point where it becomes an irrelevance.  WORST CASE SCENARIO this means a mild weekly dose.  Pinky is right that I disagree about increasing the dose.  In my opinion it is easier to live with ongoing weekly doses if there are very mild.  We've seen people take big weekly doses to no apparent advantage over the milder dose.

But please try and detox at all costs.  Your system needs to settle down (another reason to keep the doses low - even a low dose is a fair old shock compared to an aspirin!).  You must avoid the trex!  The only thing you can risk with shrooms is O2.

In my opinion things will now proceed thus:

A) The episode may remain terminated.

OR

B) The episode might reconvene in the near future.

If B) happens then another dose will probably dispatch it.  Although you might endure a max of 5 days of hell immediately afterwards :(  This has happened to me on 2 occasions.  However I'd settle for 5 days over a month.  The bad news is those 5 days are the peak ones!

For future reference it is much easier to avoid the episode in the first place and the success rate (unbelievably) is even better.  So assuming you've broke it then take another mild dose every 3 months.  Once you've skipped a couple of episodes you can reduce the frequency to biannually, and evetually annually like me.

A word of warning - the CH doesn't go away.  If you cease the maitenance doses the fucker will eventually come back for more, and because you'll have forgotten what it feel like, it'll hurt like a bastard.  So best advice is keep taking the maintenace doses.  In other words do as I say, not as I do.  Don't wait for the shadows to start, even then it's much harder to kill, and usually gives you a good weeks worth of reminder.

Hope this advice is useful.


Flash






Title: Re: Alternative Therapy
Post by Mark C on Oct 29th, 2003, 8:49pm
It is working! PF for several days now. Dosed again Monday....quite a bit more, maybe 3.5 grams and hit a level 2.5 or maybe a 3. Still not an un-pleasant experience, brought back old memories  8). Back to the CH....I upped the dosage at the same time and I had no Triptans for several days before.  I figured since I was in the middle of a cycle it may take a bigger hit to stop the cycle, and it seems to have worked. It appears this cycle is stopped.  The only HA I had was the next day and it felt like a good old fashioned hangover. Still no Triptans and O2 should be avaliable by the end of the week, I hope.

I wonder now about the next dose.....when and what symptoms, if any, should I wait for...another hit or just shadows or just a maintence dose for good measure....what say you folks.

I am so grateful for all of the help from you all....this is nothing short of amazing. I have had CH for 27 years and NOTHING has ever stopped a cycle dead in it's tracks before.....far out!  [smiley=bow.gif]

Enjoying a PF day, thanks to CH.com and you people. Never have I been so prepared for an attack both medically and mentally....my attitude has been completely different this year.....I am actually winning some of the fight...FUCKENEH!!

I know this ain't for everyone, but don't cut off your nose to spite your face if you know what I mean. I have always said I would piss on a sparkplug if it would help...I am glad it did'nt get that far!

Living life a little, PF!
Mark

Title: Re: Alternative Therapy
Post by Pinkfloyd on Oct 30th, 2003, 3:37am

on 10/29/03 at 20:49:24, Mark C wrote:
I wonder now about the next dose.....when and what symptoms, if any, should I wait for...another hit or just shadows or just a maintence dose for good measure....what say you folks.

Mark


I think the prevailing wisdom is to not dose again, at this point. Let the receptors settle back into the state in which they now reside, where they should be. Let your body and mind begin the healing process from the beating the clusters dealt.
The next day, hangover headache is common, BTW.
I myself wouldn't consider dosing again this soon unless shadows started increasing in frequency, duration or intensity.

I'm very happy for you Mark. I hope things continue as well for you.

PF

Title: Re: Alternative Therapy
Post by Flash on Oct 30th, 2003, 3:45am
Mark - sit tight for at least 5-7 days and see what happens after that.  Only take another dose if things are getting worse after that time.  I fear that over doing it can actually make things go the other way.


Flash

Title: Re: Alternative Therapy
Post by vig on Oct 30th, 2003, 10:02am
I started stretching out the doses too, also found that the doses could be SMALLER as well.

Very cool Mark

Title: Re: Alternative Therapy
Post by Mark C on Oct 30th, 2003, 10:29am
I am all ears (PF ears!)......thanks guys, I will keep you all advised as to how it goes...so far...GREAT!


[smiley=sayyes.gif]


Title: Re: Alternative Therapy
Post by hdbngr on Oct 30th, 2003, 11:22am
Wow. Yet another positive success story. Mark, I forgot, are you chronic or episodic?

Guess this means you won't have to pursue the surgery in AZ...which is great.

Vanasa

Title: Re: Alternative Therapy
Post by Mark C on Oct 30th, 2003, 12:27pm

on 10/30/03 at 11:22:02, hdbngr wrote:
Wow. Yet another positive success story. Mark, I forgot, are you chronic or episodic?

Guess this means you won't have to pursue the surgery in AZ...which is great.

Vanasa


Good question Vanasa.....ECH for 27 years...I missed one cycle back in the 80's is the only year I remember missing. Right now I am on top of the world...this is great! I can finally enjoy the changing of the leaves in Tennessee!

http://a3.cpimg.com/image/3B/65/14224443-f2e9-0200017F-.jpg


PFDAN's
Mark

Title: Re: Alternative Therapy
Post by floridian on Oct 30th, 2003, 12:36pm
Beautiful photo of autumn - wish I had an excuse to drive back to St. Louis via Tennessee and Kentucky this weekend.  Glad to hear you are PF.  

Title: Re: Alternative Therapy
Post by ave on Oct 30th, 2003, 4:53pm
Glad to hear about the improvement. It IS a weird feeling, hm?

Now if only you could stop banging your head on your desk, you may get out off headaches all together, lol

Title: Re: Alternative Therapy
Post by Roxy on Oct 30th, 2003, 5:30pm
;;D ;;D ;;D ;;D ;;D ;;D ;;D ;;D ;;D ;;D ;;D ;;D ;;D

Wonderful news,
T

Title: Re: Alternative Therapy
Post by pinksharkmark on Nov 2nd, 2003, 11:17pm
Great news, Mark. Sure is a tremendous feeling, huh? A lot less expensive (and less risky) than surgery, too.

As for when (or if) to dose again --

This is a situation where you really need to try to be as "in tune" as you possibly can be with what your body is trying to tell you.

You may get the occasional shadow or even low level Kip over the next week or so. If you don't, the decision is easy -- don't dose again.

But what if you do?

I am a firm believer in the idea of whacking The Beast hard and then whacking him again the minute he puts his head out of his cave -- keep him off balance and don't let him get back on his feet -- but you need to be sure he is really putting his head out of the cave and not just twitching on the mat before going back into hibernation.

In my opinion, if you get increasing symptoms over three consecutive days -- to the point where you can no longer call them shadows but must objectively classify them as actual CH (even if they are relatively mild ones) -- it is time to dose again. I agree that at this point it is possible to cut back the dosage level to around Level 1.5 to 2. You must be fairly certain that things are consistently getting worse, though. Often while killing a cycle in the middle, you will have some completely PF days, then some rougher days, then more completely PF days as the cycle finally ends.

It's a balancing act. On the one hand you don't want to let The Beast re-establish himself, yet you don't want to overmedicate either. We have as yet no firm proof that dosing too frequently will lessen the effectiveness of the treatment, but it is definitely a possibility. Maybe ten years down the road we'll know one way or the other.

Congratulations again on your victory.

pinky

Title: Re: Alternative Therapy
Post by Roxy on Nov 4th, 2003, 5:36pm
Hey Mark......how about an update?

:)

Title: Re: Alternative Therapy
Post by Mark C on Nov 5th, 2003, 7:43pm
Close to two weeks PF.....the beast is hiding if not gone. I have had some small, ie K-2 shadows, maybe once a day. O2 knocks em right out.....fucking amazing. Last year I was hit 3-6 times a day for the whole month of Oct...one of the worst cycles ever....this year I started the end of August, right on time, and progressed to 3-4 really nice one's (K-9) every day....until two weeks ago.

Damn Fungus has cured me!  ;;D   ;;D   ;;D
O2 is keeping what few shadows I am having at bay, no problem.

I plan on following the above advice about waiting
till I am sure the beast is back before dosing again but for now I am PAIN FREE!!!! I still can't believe it, 27 years of hell and a stupid mushroom stops in it it's tracks......FUCKENEH!

No Triptans for two weeks now, but I am still stocking up as best I can, just in case. It is still a constant battle with the insurance company but my Doctors nurse is like a bulldog...she just keeps at them for me. She is now on my Christmas card list! Thanks Rebecca!

I want to thank all of you who have helped me with this is...I am so humbled and grateful all I know to do is pass it along, share it I mean, the knowledge and stuff. I would have never have imagined it would have worked so well.

I am taking the kids fishing this weekend without worry for the first time in a very long time.

God Bless you people!
PFDAN's
Mark

Title: Re: Alternative Therapy
Post by Pinkfloyd on Nov 6th, 2003, 12:52am

on 11/05/03 at 19:43:50, Mark C wrote:
I am taking the kids fishing this weekend without worry for the first time in a very long time.

God Bless you people!
PFDAN's
Mark


;;D
May the Bass be with you Mark...
Be sure to release one as a thank you to Mother Nature and fillet the rest!!!

PF

Title: Re: Alternative Therapy
Post by Henk on Nov 6th, 2003, 3:12pm

on 11/05/03 at 19:43:50, Mark C wrote:
Close to two weeks PF.....the beast is hiding if not gone.


Congratulations Mark! I know the feeling.

Wanted to throw my 2 cents in. After being chronic for 6 years, i'm pain free for 25 months on a row now. and it's 19 months ago since I shroomed.

During the 6 months in wich I dosed bi weekly, there were still shadows. To me they were the trigger to redose. Til I decided to find out what would happen without redosing again.

The beast was put at even a larger distance: shadows cleared up and stayed away. As to how and why this works: dunno. Maybe it's me that's strange  ;;D

The only explanation I can come up with is: Shrooms are to CH like a stick to a beast. If you keep poking with the stick, the beast will defend itself and thus hurt you. If you give it time to think things over, it might decide it's best to simply leave you alone.

Another metafore might be: CH is like a rusty scale. If you tilt the balance, it won't come back in the middle position. Shrooms are able to tilt the balance so the scale moves. That's why you can have *more* attacks after a dose. The scale will move back and forth a few times and then stop. You've won the lottery if it happens to end up in the balanced position! But if it does so it's NOT good to hit it again!
It needs time to settle down, and one needs time to assess the outcome.


Though not very scientific, (grin) this is as close as I can get to describe how I felt things in my case. But hey: everybody is different. I simply follow my instinct after being led to Shrooms by some brave guru's on this board. Once again: Thanks guys!!

PFDAN's to you all!


Greetz,

Henk

Title: Re: Alternative Therapy
Post by vig on Nov 6th, 2003, 3:21pm
"Though not very scientific, (grin)"


Unfortunately, because of laws, the scientists are not here to help us.





Title: Re: Alternative Therapy
Post by Pinkfloyd on Nov 6th, 2003, 7:04pm

on 11/06/03 at 15:21:03, vig wrote:
"Though not very scientific, (grin)"

Unfortunately, because of laws, the scientists are not here to help us.


Consider this our version of "Weird Science."
If Kelly LeBrock pops out of my monitor....I may be MIA for a few days!!!  ;;D

PF

Title: Re: Alternative Therapy
Post by Roxy on Nov 6th, 2003, 7:22pm
How many chronics have tried, or are trying the fungal therapy?

Just curious......... :)

Kick ass, Mark... ;;D

Title: Re: Alternative Therapy
Post by Mark C on Nov 23rd, 2003, 11:55pm
One month....pain free....can I get a FUCKENEH!!!



[smiley=headbanger.gif]

Title: Re: Alternative Therapy
Post by Flounder on Nov 24th, 2003, 12:05am
[smiley=laugh.gif]

FUCKENEH!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!

Congrats Mark, good news indeed.

Title: Re: Alternative Therapy
Post by HannahFroukje on Nov 24th, 2003, 3:31pm
What on earth is a "FUCKENEH" ....  [smiley=laugh.gif] [smiley=laugh.gif] [smiley=laugh.gif].

Never heard of that in Holland
I can translate the first four ... will that do?  ;;D

For the rest: waytogo. Hope we'll be next.

Title: Re: Alternative Therapy
Post by thomas on Nov 24th, 2003, 3:34pm
Totally North American slang Hanna.  Check your pm.  FUCKINEH!!!!!!!!! Mark C.  [smiley=headbanger.gif]

Title: Re: Alternative Therapy
Post by Mark C on Dec 24th, 2003, 9:01pm
Two months Pain Free today.
[smiley=headbanger.gif]

What I can say but thank you for all of the help and encouragemant I have received form Roxy, PinkSharkMark, PinkFloyd, Flash, and so many others. I will have a PF Christmas thanks to you all and this MB. How can one say "Thank You" enough. What a miracle. Thank you all, and DJ, and all my Clusterbuds, you know who you are.
;;D


Title: Re: Alternative Therapy
Post by Flash on Dec 26th, 2003, 12:41pm
please feel free to grovel some more ;0

Title: Re: Alternative Therapy
Post by DONNY/LORI on Dec 26th, 2003, 10:55pm
Anyone have info on scullcap or other herbal treatments?

Donny

Title: Re: Alternative Therapy
Post by Pinkfloyd on Dec 27th, 2003, 1:50am

on 12/26/03 at 22:55:58, DONNY/LORI wrote:
Anyone have info on scullcap or other herbal treatments?

Donny


I don't know of anyone trying to use it alone to try to treat clusters but it has been suggested to use along with shrooms to improve their effectiveness. Don't know if anyone has tried them together yet in this treatment though.

Pf

Title: Re: Alternative Therapy
Post by HannahFroukje on Dec 27th, 2003, 5:33am

on 12/26/03 at 22:55:58, DONNY/LORI wrote:
Anyone have info on scullcap or other herbal treatments?

Donny


I remember someone mentioning skull cap and clusters, forgot who. It was in combination with the shrooms thing. If you type it in in google.com I suppose it will come up with something.

About herbs: we tried a lot of herbs on cluster, unfortunately without any noticable succes. I think it will be very difficult to find a herb that will actually do something on acute attacks. Perhaps they can work preventative or a bit palliative, but acute? Hmm, difficult.

Anyway, we tried Chinese and Ayur Vedic herbs. Be careful using herbs that contain harmine and harmaline (for instance in passion flower tea), of what I've been told, these substances work like MAO-inhibitors, and you should watch out with any other medication combined with them. It could turn out fine, but could also turn out the opposite (we never tried it). Also be careful on the St John's worth because it's very powerful and works as an anti-depressant, might interfere with other meds.

Title: Re: Alternative Therapy
Post by Mark C on Dec 28th, 2003, 3:44pm

on 12/26/03 at 12:41:30, Flash wrote:
please feel free to grovel some more ;0


[smiley=bow.gif] [smiley=headbanger.gif] [smiley=sayyes.gif] [smiley=beer.gif] [smiley=thumbsup.gif]  

and finally!

[smiley=girlflash.gif]


The really cool thing is my cycle is over so it may be next fall before I need to do it again.
I am still in awe as to how well this worked...amazing.

Thanks

Title: Re: Alternative Therapy
Post by Pinkfloyd on Dec 28th, 2003, 4:12pm

on 12/28/03 at 15:44:04, Mark C wrote:


The really cool thing is my cycle is over so it may be next fall before I need to do it again.
I am still in awe as to how well this worked...amazing.

Thanks


Happy New Year Mark.  ;;D

PF

Title: Re: Alternative Therapy
Post by HannahFroukje on Dec 29th, 2003, 1:58am

on 12/28/03 at 15:44:04, Mark C wrote:


[smiley=bow.gif] [smiley=headbanger.gif] [smiley=sayyes.gif] [smiley=beer.gif] [smiley=thumbsup.gif]

and finally!

[smiley=girlflash.gif]




Congratulations and Celebrations
WE KNOW HOW GOOD THAT FEELS SO ENJOY, ENJOY ENJOY AND BE HAPPY!


Title: Re: Alternative Therapy
Post by ave on Dec 29th, 2003, 5:16am
Put on that Handel record: Rejoice, Rejoice, REJOICE GREATLY!

Welcome to the fold of cluster escapees, Mark

Title: Re: Alternative Therapy
Post by Flash on Dec 29th, 2003, 6:32am
Remember to do a periodic maintenance dose - that way you will not have to experience another episode.  I recommend 1 every 3 months, then after the first year increase to 1 every 6 months, then after another year you can probably get away with annually thereafter.


Flash

Title: Re: Alternative Therapy
Post by Mark C on Jan 25th, 2004, 6:07pm
Three Months Free!

http://www.drfeller.com/Mark/FA.gif



Title: Re: Alternative Therapy
Post by notseinfeld on Jan 25th, 2004, 7:20pm
Nahright---you guys are giving me a woody! I'm chronic and trying again this upcoming month (february) .
If someone has a moment, please mail me with *exactly* your procedure of amount, type, time between, etc. I want to get it right this time around!

sincerely,
david.


fuckenA is that cool!

Title: Re: Alternative Therapy
Post by Flash on Jan 26th, 2004, 4:01am
We're currently seeing significant successes with people brewing up batches of tea, keeping it in the fridge, and sipping relatively small quantities every day, and ESPECIALLY before bedtime.

This method involves brewing up a 2g batch, and ingesting that over 3-4 days.  There are NO, none, nada, zip, zero side effects.

People doing this have reported quite incredible results, and these are from people that were struggling to get anywhere with the single weekly 1-2g dose.

I personally am waiting till my next episode onset as opposed to taking an M dose, and I'm going to test this out in the name of science... and partially because I don't really like the hallucinogenic effects much.


Flash

Title: Re: Alternative Therapy
Post by Mastifflvr28 on Jan 26th, 2004, 11:22am
I'm going to start this treatment tonite.  I'm ramping up to 2 ha's a nite and I DREAD dosing!!  So, I'm going to try the sippy tea thing, and will keep a journal.
Of course since I decided to do this treatment sunday evening...no hits.
Stupid beast!

Oh, and CONGRATS MARK!!!:)
Mast

Title: Re: Alternative Therapy
Post by Pinkfloyd on Jan 27th, 2004, 12:35am

on 01/26/04 at 11:22:14, Mastifflvr28 wrote:
Of course since I decided to do this treatment sunday evening...no hits.
Stupid beast!

Mast


Nothing wrong with catching her while she's sleeping.

(The beast is female right? It just seems the beast acts like she's holding a grudge and any male beast would have given up by now and moved on)

PF



Title: Re: Alternative Therapy
Post by clavers on Jan 27th, 2004, 9:07am
Flash, could you give some more information about the sipping method?  Do you start with a big dose and then begin to sip, or do you start by taking the small amounts?  How many sips a day?  Could you mix it with orange juice rather than making tea?  This really sounds great, I would just like to know some more about it.  Thanks.

Title: Re: Alternative Therapy
Post by Flash on Jan 27th, 2004, 12:15pm
we don't know all the answers yet, but I would hazard a guess that it's possible to start by sipping and not have an intial dose.  you will require tea in order to do the sipping thing as you require even distribution of shrooms.  don't boil it though, just bring to the boil, let it coll down till the bubbling stops, then add shrooms and leave them to steep in the hot water for around 20 mins.


Flash

Title: Re: Alternative Therapy
Post by Pinkfloyd on Jan 28th, 2004, 1:06am

on 01/27/04 at 09:07:10, clavers wrote:
Do you start with a big dose and then begin to sip, or do you start by taking the small amounts? How many sips a day? Could you mix it with orange juice rather than making tea? This really sounds great, I would just like to know some more about it. Thanks.


The "sip" method has evolved from clusterbusters method of SPUT-NIK. (Small_Piece_Under_Tongue)
Its been used by several people now. It's been used by people that have been in the middle of very bad cycles and have found it nearly impossible to live without Imitrex or Prednisone. Its been used to replace those medications. Instead of taking a shot on Imitrex, people have been taking a sip of "tea" to get them through the attack and wean themselves off the trex.
Once they have been off the trex long enough to clear receptors for a larger psilocybin treatment, most have then broken the cycle with larger doses. One used LSA instead of shrooms to break the cycle after using this method to clear out the trex and other meds.

If you're (anyone) wants to take two shots of imitrex and one sip of tea per day, this isn't going to work. The tea just won't work (based upon many reports) unless you start getting that out of your system. The further away from it you get (in time, not distance ;-) the better the tea works.

Whether or not just sips will break a cycle, I don't know if we know that yet. Some people though HAVE broken cycles with very small amounts of psilocybin.

I mix my tea, for my maintenance doses, with cranberry juice. Pour the hot tea over ice, add some sugar and cranberry juice.
For hot consumption, I add a strong teabag to the mix and that will take over the flavor.

The tea recipe includes some lemon juice so I assume that orange juice would be ok but I'm not positive about that.

PF

Title: Re: Alternative Therapy
Post by Pinkfloyd on Jan 28th, 2004, 1:14am
One more reminder....
Psilocybin works MUCh better as a preventive treatment than it does as a cycle breaker. It will (and does) break most cycles but it is more difficult and takes longer.

IF you (anyone) have decided to try this method and are currently in remission, PLEASE do not wait until your next cycle starts to begin asking questions and beginning to grow shrooms. Begin your research now...ask questions, NOW.

You can wait until you begin seeing signs that your cycle is about to begin, but you should be ready to treat it at that time. There is no reason to wait through 5 or 6 weeks of pain, getting back on Imitrex, and then trying to break a cycle in full bloom.

PF

Title: Re: Alternative Therapy
Post by Mark C on Feb 23rd, 2004, 2:44am
4 Months Pain Free.

This cycle is over.
Maintence dose due in July about a month before my cycle starts.
Nuff said!


;;D

Title: Re: Alternative Therapy
Post by Mark C on May 24th, 2004, 1:39am
Seven Months PF TODAY!

;;D

Title: Re: Alternative Therapy
Post by Giovanni on May 24th, 2004, 6:43am

Quote:
Pinkfloyd said:
IF you (anyone) have decided to try this method and are currently in remission, PLEASE do not wait until your next cycle starts to begin asking questions and beginning to grow shrooms. Begin your research now...ask questions, NOW.


Pain free since June 14, 2003 by PRIOR dosing to my 5 month normal cycle.

John

Title: Re: Alternative Therapy
Post by miapet on May 24th, 2004, 2:28pm
WOOHOO Mark and John!!!
*positive light and energy*
miapet

Title: Re: Alternative Therapy
Post by Flounder on May 25th, 2004, 3:03pm
Kick Ass Mark. I love to see your updates.

Good to see you're still doing good John!

I'm six months PF since breaking my last cycle. That
makes three broken cycles and one prevented cycle
since 2000. I haven't taken any meds or seen my Neuro
in Four years because of this treatment. I no longer fear
the Beast.  

Title: Re: Alternative Therapy
Post by Mark C on Oct 24th, 2004, 11:35pm
1 YEAR PAIN FREE!

FUKUNEH!

Title: Re: Alternative Therapy
Post by 1MajorPain on Oct 25th, 2004, 5:12pm
I'll second that,

FUKUNEH!


Major

Title: Re: Alternative Therapy
Post by LeeS on Oct 26th, 2004, 7:39am
A big FUKUNEH! from me too Mark.

-Lee

Title: Re: Alternative Therapy
Post by Magman on Oct 26th, 2004, 4:24pm

on 10/24/04 at 23:35:01, Mark C wrote:
1 YEAR PAIN FREE!

FUKUNEH!

http://kdlltd.com/fuckeneh/C-fam-F.jpg

Title: Re: Alternative Therapy
Post by vig on Oct 26th, 2004, 10:30pm
is that THE PORCH?

Title: Re: Alternative Therapy
Post by Flash on Nov 1st, 2004, 6:35pm
Fuck me is that a year already LOL!

Told you it would work heh heh.

Title: Re: Alternative Therapy
Post by miapet on Nov 1st, 2004, 10:53pm
*YAY*
Congratulations Mark!!!

We couldn't be happier for you . . .may your p/f days and nights continue forever!!!

*positive light and energy*
D & miapet

Title: Re: Alternative Therapy
Post by Mark C on Feb 24th, 2005, 4:22pm
479 DAYS PF !

Title: Re: Alternative Therapy
Post by Mark C on Jun 2nd, 2007, 3:22pm
Update...............

I went almost three years PF on this treatment.
I have been in cycle for the last month or so.
Dosed two days ago.
PF since.

What I can I say but thank you........... [smiley=bow.gif]



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