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Topic: CPAP Machines? (Read 466 times) |
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Margi
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CPAP Machines?
« on: Feb 2nd, 2005, 12:03pm » |
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Anyone out there using a CPAP machine for sleep apnea?
Does it make a difference for your clusters?
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kathy copelin, ch.com 8/8/06
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miapet
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Re: CPAP Machines?
« Reply #1 on: Feb 2nd, 2005, 3:10pm » |
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I asked about a CPAP and was told that it didn't give a high enough flow of o2.
*positive light and energy*
miapet
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Margi
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Re: CPAP Machines?
« Reply #2 on: Feb 2nd, 2005, 3:25pm » |
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thanks, Mia - yes, I'm thinking it's not going to do a ch sufferer much good either. But the question was asked of me, so I passed it on.
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And, on the Eighth Day...God created Beer (to stop the Canadians from taking over the world)
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IMHO (which in my universe is correct)
kathy copelin, ch.com 8/8/06
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Gator
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Re: CPAP Machines?
« Reply #3 on: Feb 2nd, 2005, 3:28pm » |
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I've seen people on this website say that it helped with the night time attacks, but did nothing for daytime hits. I've also seen people here say it didn't help at all. If sleep apnea is an issue, it couldn't hurt to try the CPAP. The worst that could happen is it wouldn't work. I've seen testimonials, that had nothing to do with headache, say that the CPAP helped them sleep better and feel more rested and resulted in more energy and mental sharpness the next day.
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BikerBob
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Re: CPAP Machines?
« Reply #4 on: Feb 2nd, 2005, 3:28pm » |
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I used a CPAP for sleep apnea several years ago. It got a lot more air into me throughout the night. I stopped using it after a couple weeks because it was uncomfortable.
I wasn't in cycle so I don't know its effect on CH.
However, I was told that you can get equipment to attach O2 to the CPAP and vary the O2 content from 28% to 100%.
Bob
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nani
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Re: CPAP Machines?
« Reply #5 on: Feb 2nd, 2005, 3:35pm » |
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on Feb 2nd, 2005, 3:28pm, BikerBob wrote: I stopped using it after a couple weeks because it was uncomfortable.
Bob |
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The mask can be a trigger for me. It's very uncomfortable.
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Redneck
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I had to quit the cpap during this cycle, didnt help, night attacks came like clockwork. Not sure if it triggered attacks, think it may have. This cycle has wound down some so back on the cpap. I was told originally that apnea could contribute to clusters, but never heard anything about it preventing cycles and it damn sure dont work in place of 02.
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Brew
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Re: CPAP Machines?
« Reply #7 on: Feb 5th, 2005, 12:00pm » |
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I've been on CPAP therapy for 2 years now, and it has made a positive difference in treating my apnea. Unfortunately, it has made no difference in the frequency or intensity of CH. I was hoping it would, in that there are theories linking the onset of CH to disruptions in sleep patterns, but alas, no dice.
It sure is nice to feel rested when I wake up, though (when I'm not in CH cycle, that is).
One other thing - there are two little nozzles on the front of my CPAP mask that are normally covered which can be used to attach an oxygen feed. (I guess some really severe cases of apnea require extra oxygen as it's the drop in blood oxygen levels that cause the patient to awaken sometimes hundreds of times a night.)
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ex_pat_asia
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Re: CPAP Machines?
« Reply #8 on: Feb 5th, 2005, 7:37pm » |
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There is clearly some misunderstanding on the board about the role of CPAP and the probable role of sleep apnea as a concomitant disorder that can aggravate cluster in a cluster patient. First you have to accept that If you are a clusterhead, then there are going to be things that aggravate your condition. These include the well known (to us) triggers like alcohol, chocolate, changes in barometric pressure, and so on. These are pretty widely accepted on the boards here as known triggers of an attack and each of us have our personal list. Not as widely understood is the role of seasonal changes, sunlight, time zone changes, and smells. You can add to the list sleep apnea.
CPAP is the preferred treatment for sleep apnea. Prevention of apneas from occurring, may very well reduce or eliminate cluster attacks altogether. The connection is well established in the literature if not in your Neuroligist's oeuvre of knowledge about cluster.
For a start here is an article link: http://www.talkaboutsleep.com/sleepdisorders/Snoring_apnea_cluster.htm
And still another reference to the same study:
http://www.respiratoryreviews.com/sep00/rr_sep00_clusterheadaches.html
Finally, here is a link to an earlier study performed by the neurologist (Kudrow), who referred me to the sleep clinic to confirm the apnea diagnosis. This page has the abstract but also has a link to the full text of the study.
http://www.ncbi.nlm.nih.gov/entrez/query.fcgi?cmd=Retrieve&db=PubMed &list_uids=6713522&dopt=Abstract
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| « Last Edit: Feb 5th, 2005, 7:49pm by ex_pat_asia » |
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ex_pat_asia
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