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Topic: Episodic over and out. (Read 430 times) |
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Ellick
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Episodic over and out.
« on: Mar 26th, 2005, 3:57pm » |
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I was all set up two weeeks ago to take the clusterbuster route when I had the first signs of an end to the cycle.
I have to say that this has been on one of the worst cycles I have experienced. At it's worst hits every hour though the night.
Co incidentally it's also the first time I've used suma triptans and verapamil.
I got onto 02 and got myself off all meds in preparation and then the first paragraph.
However, the cycle did not really end. I continued to have Horners every morning although it did not develop into a full hit and I had one long continuous headache
(which was the same as last year). This just would not go and so Tuesday just gone I took a very mild infusion.
It was a pleasant experience. Far better than any of the other meds I have taken. After 4 hours the long headache had gone. I have a slight niggle in the right maxillary which is a little like mild toothache.
I have been out and had a couple of beers.
I look in the mirror now and see me again instead of the hagard thing I had become. My energy has returned. I am back in to my work properly again. My wife tells me I am back again.
Thankyou so much, all of you who gave me information and support when I was crawling through each day.
I am reading lots now and I hope to be able to give back something in the future.
ET.x
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E-Double
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Re: Episodic over and out.
« Reply #1 on: Mar 26th, 2005, 4:35pm » |
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So damn happy for ya!
Keep it up and continue to support.........
Best to ya and a LONG reprieve 
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SusieWong
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Re: Episodic over and out.
« Reply #2 on: Mar 26th, 2005, 4:35pm » |
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Hi Ellick,
Really pleased that you are at the end of this bout. My husband is just coming to the end of his. After help from OUCH he now has the O2 and meds he needs for the next time. Remission is supposed to get longer the older you get. ??? His last one was three years-so fingers crossed for even longer this time.
Wishing you PFDAN for years.
SusieWong
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nani
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Re: Episodic over and out.
« Reply #3 on: Mar 26th, 2005, 6:41pm » |
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I'm so happy for you ET! Stick around and keep encouraging others. Hope it's a permanent remission!
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Jeepgun
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Re: Episodic over and out.
« Reply #4 on: Mar 26th, 2005, 6:57pm » |
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Wonderful! Glad to hear that this cycle has come to an end. It sounds like it was hellish. My last cycle, (the first one where I actually had medication; Verapamil and Imitrex), was the most hellish of any I've ever had. I am firmly convinced that, in my experience, the medications not only prolonged the cycle, but intensified the individual hits, as well. Glad to hear that you are pain-free. May you never suffer another bout with cluster headaches ever again.
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TonyG1
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Re: Episodic over and out.
« Reply #5 on: Mar 27th, 2005, 8:51pm » |
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Glad to hear the cycle is at a close ET !!! Enjoy the PF time off !!! 
Tony
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Pinkfloyd
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Re: Episodic over and out.
« Reply #6 on: Mar 28th, 2005, 10:43am » |
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on Mar 26th, 2005, 3:57pm, Ellick wrote:This just would not go and so Tuesday just gone I took a very mild infusion.
It was a pleasant experience. Far better than any of the other meds I have taken. After 4 hours the long headache had gone.ET.x
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Congrats E.
I suggest you keep a little "infusion" around and go that route before starting the trex, if you ever feel another cycle beginning.
Maintain the gain!!
Best of luck in the future,
Bobw
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godsjoy777
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Re: Episodic over and out.
« Reply #7 on: Mar 28th, 2005, 8:55pm » |
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Yes congrats to you too.....a little infusion huh? I was reading about the clusterbusters.....wondering if I would have to go that route....Hopeing not......not the best memories as a crazy college kid doing the drugs....soooooooo.......
Bless you and stick around for encouragement.
Karen
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LeeS
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Re: Episodic over and out.
« Reply #8 on: Mar 29th, 2005, 4:00am » |
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Great news Ellick and long may it continue 
That beer still on?
-Lee
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seasonalboomer
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Re: Episodic over and out.
« Reply #9 on: Mar 31st, 2005, 12:21pm » |
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congrats on the cycle ending, mate!
so my question, as my cycle also ended a few weeks ago, is what to do now? I can't moan anymore about my heads. I feel funny lurking around on the site, trying to give support occasionally when seems fit, but mostly being a wise-acre waiting for the next sham to be exposed.
Also start to feel like, na-na-na-nah-nah-na, my cycle's over, your's isn't. any philosophical input on the "in-between cycle" role for sufferer's on the website?
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LeeS
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Re: Episodic over and out.
« Reply #10 on: Mar 31st, 2005, 12:27pm » |
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on Mar 31st, 2005, 12:21pm, seasonalboomer wrote:| so my question, as my cycle also ended a few weeks ago, is what to do now? |
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Congrats too Seasonal - don't gloat, spread the word - nicely 
-Lee
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seasonalboomer
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Re: Episodic over and out.
« Reply #11 on: Mar 31st, 2005, 12:32pm » |
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That's no problem. Will never gloat about that, just looking at the bigger question. What role do we play. At a certain point between cycles I almost hate to even think about CH's -- but have found the "community" really enjoyable to participate in on the boards. But then begin to wonder whether I am defining myself to myself by the malady.
Or maybe it's just a gray rainy day here in NC and I need to chill.......
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vig
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Re: Episodic over and out.
« Reply #12 on: Mar 31st, 2005, 2:36pm » |
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My stance on that SB is that you need to go and live BIG.
Come here when you have energy/support to give to pay forward to help the next poor bast person that stumbles in...
my $.02
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never, Never, NEVER quit. -Winston Churchill
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TonyG1
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Re: Episodic over and out.
« Reply #13 on: Apr 3rd, 2005, 1:20pm » |
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on Mar 31st, 2005, 12:32pm, seasonalboomer wrote:That's no problem. Will never gloat about that, just looking at the bigger question. What role do we play. At a certain point between cycles I almost hate to even think about CH's -- but have found the "community" really enjoyable to participate in on the boards. But then begin to wonder whether I am defining myself to myself by the malady.
Or maybe it's just a gray rainy day here in NC and I need to chill....... |
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SB .. I too am out of cycle and have thought those very same questions. Been a lot a grey, rainy days in NC lately ... I'm in NC as well.
I agree with what Vig said .... although out of cycle ... certainly the time and experience you've had with CH can benefit at least one other person who shares our beloved beast .. When out of cycle, I mostly don't want to think about it -- fooled myself from time to time thinking ... ok maybe I've outgrown CH, etc. Then it happens and a new cycle begins. This board has helped me realize that this is the way it is.... the beast will continue to come and go and that sucks but it can be managed (therein lies some hope!)
Plus, we would miss you sense of humor ... can't tell you how many times I've LMAO at some of your posts 
T.
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Ellick
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Re: Episodic over and out.
« Reply #14 on: Apr 4th, 2005, 4:16pm » |
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on Mar 31st, 2005, 12:21pm, seasonalboomer wrote:congrats on the cycle ending, mate!
so my question, as my cycle also ended a few weeks ago, is what to do now? I can't moan anymore about my heads. I feel funny lurking around on the site, trying to give support occasionally when seems fit, but mostly being a wise-acre waiting for the next sham to be exposed.
Also start to feel like, na-na-na-nah-nah-na, my cycle's over, your's isn't. any philosophical input on the "in-between cycle" role for sufferer's on the website?
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I suggest becoming a a philosophical researcher. Then when the cure is fully found head on out to the garden.
ET. x
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sandie99
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Re: Episodic over and out.
« Reply #15 on: Apr 6th, 2005, 1:13am » |
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That's just great!
Hoping you a permanent remission,
Sandie
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"Do what you can and let God take care of the rest. Leave your heart wide open and always wish for the best" (Sanna Hillu)
"No matter how far out your dreams are, it's possible" (Marketa Irglova)
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