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        New Message Board Archives >> Medications, Treatments, Therapies 2005 >> Running works for me
        
(Message started by: stevema on Sep 25th, 2005, 9:11am)
Title: Running works for me
Post by stevema on Sep 25th, 2005, 9:11am
But at first I feel like upchucking...and must force myself to keep running.  After about a half mile, I can feel the burp, the fart, the slight relief, the panic fades.  But the devil is still there, just lurking...so you have to still keep going...another few hundred feet, maybe another 1/4 or 1/2 mile, and by this time breathing super hard, lungs on fire, heart fit to burst (yeah, maybe this method is not for everyone) and voila, that monster is backing off big time.  I stress that one must keep going even when it seems the exercise is not working after all, this is the point when you are almost there !
Sprint! Get the lungs working hard, maybe choke up some sputum (unusually white or clear glue like), heave, and then....that sucker is going going gone.
Title: Re: Running works for me
Post by Jonny on Sep 25th, 2005, 9:26am
Its great that you know what works for you, others have posted that running works for them.
Title: Re: Running works for me
Post by seasonalboomer on Sep 26th, 2005, 3:02pm

on 09/25/05 at 09:11:24, stevema wrote:
But at first I feel like upchucking...and must force myself to keep running.  After about a half mile, I can feel the burp, the fart, the slight relief, the panic fades.  But the devil is still there, just lurking...so you have to still keep going...another few hundred feet, maybe another 1/4 or 1/2 mile, and by this time breathing super hard, lungs on fire, heart fit to burst (yeah, maybe this method is not for everyone) and voila, that monster is backing off big time.  I stress that one must keep going even when it seems the exercise is not working after all, this is the point when you are almost there !
Sprint! Get the lungs working hard, maybe choke up some sputum (unusually white or clear glue like), heave, and then....that sucker is going going gone.


all that upchucking and spitting of "sputum" sounds like you may actually need an exorcism..... :-X

glad running works for you -- for me it is my most prominent trigger. within 10 minutes of a heavy run, while in cycle, boom, there it is. (maybe I should try cycling while I've got the runs....huh? oh that's another problem.)

scott
Title: Re: Running works for me
Post by rextangle on Sep 26th, 2005, 3:05pm

on 09/26/05 at 15:02:36, seasonalboomer wrote:
(maybe I should try cycling while I've got the runs....huh? oh that's another problem.)

scott

LMAO ;;D

Stevema, glad you found something that works for you.
We all experience the same pain, yet we all have different things that work to make them stop, that's the nature of the f*****g beast!

Keep up the good work,
Rex ;)
Title: Re: Running works for me
Post by Mike_E on Sep 26th, 2005, 6:12pm

on 09/26/05 at 15:02:36, seasonalboomer wrote:
all that upchucking and spitting of "sputum" sounds like you may actually need an exorcism..... :-X

glad running works for you -- for me it is my most prominent trigger. within 10 minutes of a heavy run, while in cycle, boom, there it is. (maybe I should try cycling while I've got the runs....huh? oh that's another problem.)

scott


Just proves this disease has neither rhyme nor reason.  In the 8 years I've had clusters, the one time I can be certain I won't get one is while running or swimming laps.  Not only that, but I seem to have immunity to them for at least a couple of hours following.

I've always speculated this may have something to do with pumping oxygen into my bloodstream.

What I'd like to hear from Scott is whether his clusters respond to oxygen (mine do within 5-10 minutes.)

Mike
Title: Re: Running works for me
Post by stevema on Sep 26th, 2005, 7:08pm
Oxygen worked for me the one time I had it.
A friend points out that when one runs hard,  the body requests the heart for blood (and hurry please) and perhaps this causes similar constriction action like imitrex...
all just thoughts and conjectures, anyway, if my lungs are heaving, the beast stays at bay.  I really hope this works for all, exercise has always been effective for me, wonder why it causes attack in some?  Sounds related, the two opposite effects from the same cause.
Title: Re: Running works for me
Post by Bob P on Sep 27th, 2005, 8:45am
Steve,
Exercise works for me too.  I do squats at the start of an attack until my legs are burning and I'm huffing and puffing.  Then I sit down with an ice pack and deep breath and the attack is gone in less than 10 minutes.

Years ago I would almost always get nauseated during an attack (pain and cafergot).  The exertion of barfing would end the attack every time.

Now I'm old and lazy so I just suck the O2.
Title: Re: Running works for me
Post by Marc on Sep 27th, 2005, 8:51am

Quote:
Now I'm old and lazy so I just suck the O2


Yep, that's the down side to O2 working so well for me - getting fat  ;;D
Title: Re: Running works for me
Post by stevema on Sep 27th, 2005, 9:19am
I have run off about 20 attacks in the past 4 days.  About 4 in sleep (2 in one night about 3 hours apart), the rest during the day.  The earlier in the attack I start, the shorter I have to run to abort it totally.   This afternoon I could feel one coming, just the start where my neck gets muddy thick, and I took off running down the road.  People looking at me funny, but the joke has a beautiful punch line cause 10 minutes of vigorous jogging and sprinting and I was feeling no pain.  The ones that come in sleep are already banging by the time I hit the street and so I have to go a bit further.  Again, I want to stress that you just have to keep going even when it seems it is not working.  Just keep going until you can't go anymore and remember to occasionally run as hard as you can, sprinting interspersed with jogging (hopefully you are fit enough to get some speed up).  In my case I have had 100% success with stopping pain.  Yes, I am spent, my muscles are sore as hell, but as long as I never have to sit through the hell again, I will run to Timbuktu.  Which is a lot closer from here than from where most of you guys are.  I just gotta say thanks, I think it have been Bob P who gave me this idea way back when you wrote about doing exercise.  I used it intermittently but never persisted because I thought it only worked some of the time.  This is why I stress KEEP GOING until it does work, don't stop running until you just can't go anymore.  If I am heaving and sweating, relief is on the way.  I only hope this is something that continues to work, and you can get relief too.  Good luck !
Title: Re: Running works for me
Post by seasonalboomer on Sep 27th, 2005, 11:00am

on 09/26/05 at 18:12:21, Mike_E wrote:
What I'd like to hear from Scott is whether his clusters respond to oxygen (mine do within 5-10 minutes.)
Mike


Yes they do -- in a similar time frame (most of the time).

I've actually run in three different marathons with CH's. All hit me at betwen miles 6-9. Ended up outrunning 2 of them but one stuck with me all the way to the finish for 20 miles after onset. Determined I didn't  like the Chicago Marathon anymore after that. ......


scott


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