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   Author  Topic: clusterheads from ga. and fla..  (Read 1615 times)
survivor13
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clusterheads from ga. and fla..
« on: Nov 14th, 2004, 3:21pm »
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one of the worst things about being chronic (beside the pain) is the fact you seem to withdrawl from any kind of social life. would like to meet and correspond w/ people who understand what i'm going thru.. NORMAL people just don't understand. sometimes they act like their embarrassed to be around you (affraid you'll have one of those WEIRD attacks again). Embarassed
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notseinfeld
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Re: clusterheads from ga. and fla.
« Reply #1 on: Nov 22nd, 2004, 10:28pm »
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I'm down.  
 
Out of Atlanta. Can pull JHALL around the corner from me (chronic) and probably AlleyOop out of Peachtree City (also chronic, I believe.  
 
Anyone else?
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marlinsfan
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Re: clusterheads from ga. and fla..
« Reply #2 on: May 30th, 2005, 7:52pm »
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I'm up for it too. The only one that seems to understand what I go thru is my wife....., but sometimes it feels she doesn't.
 
I'm in hollywoof, fl.
 
marlinsfan_88@hotmail.com
 
Episodic since 1982. Aware of what I have since last night!
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sassy_lady
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Re: clusterheads from ga. and fla..
« Reply #3 on: Aug 8th, 2005, 2:26pm »
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we are up for it too, we live in Bradenton Fla., would love to get together some time soon, we feel like you all, no one wants to get together for fear of him having one!! So we stay to ourself most of the time, besides Family, & they really don't understand.. keep telling us we need to find a better dr. who has answers to fix this !! we let us know.
PFDANS TO ALL !!
Lots of Love & Prayers to all !!
Jolene & Charlie
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DonnaHar
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Re: clusterheads from ga. and fla..
« Reply #4 on: Aug 22nd, 2005, 8:46pm »
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About three years ago, a gang of us met in my neck of the woods (actually two years in a row) and at that time organized a real chapter.  I filed the papers and we are official......except that the new bylaws for OUCH are being rewritten and we have to wait for that to get done.
 
Are any of you interested in belonging to a Florida Chapter?
 
Informal get-togethers are great too if you're not interested in the chapter thing.
 
When and where do you want to meet?
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sassy_lady
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Re: clusterheads from ga. and fla..
« Reply #5 on: Aug 28th, 2005, 1:18pm »
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on Aug 22nd, 2005, 8:46pm, DonnaHar wrote:
About three years ago, a gang of us met in my neck of the woods (actually two years in a row) and at that time organized a real chapter.  I filed the papers and we are official......except that the new bylaws for OUCH are being rewritten and we have to wait for that to get done.
 
Are any of you interested in belonging to a Florida Chapter?
 
Informal get-togethers are great too if you're not interested in the chapter thing.
 
When and where do you want to meet?

 
My Husband & I would like to get together & Be in the Fla. chapter, would love to meet & greet people!! just let me know if you need help in anything or want me to do anything to get things going on it! would love to help out in any way I can!!
Thanks Jolene
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owk
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Re: clusterheads from ga. and fla..
« Reply #6 on: Nov 11th, 2005, 10:09pm »
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I'm in the Atlanta suburbs, periodic. Early stages, but it hurts enough to understand.
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Jonny
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Re: clusterheads from ga. and fla..
« Reply #7 on: Nov 26th, 2005, 7:21pm »
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Is this thread going anywhere?
 
Just thought id ask Grin
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chewy
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Re: clusterheads from ga. and fla..
« Reply #8 on: Nov 26th, 2005, 11:12pm »
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Yeah. It's going South.  Grin
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sassy_lady
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Re: clusterheads from ga. and fla..
« Reply #9 on: Nov 30th, 2005, 8:40am »
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yes it is, I'm working on things slowly!!! very busy this time of year, I'll get it together!!!  Roll Eyes Grin
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CHAIN
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Re: clusterheads from ga. and fla..
« Reply #10 on: Sep 6th, 2006, 7:47pm »
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YEAH!. DAVIE, FL
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alleyoop
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Re: clusterheads from ga. and fla..
« Reply #11 on: Oct 8th, 2006, 1:40pm »
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Name the time and place.
 
....alley (primary refractive chronic - Peachtree City, GA)
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« Reply #12 on: Oct 23rd, 2006, 11:21pm »
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Hi I'm fairly new to the site but not to the clusters. I'd be willing to try to make a meeting. I know what you mean about staying out of social situations. The dance doesn't look as good from the outside as the electric slide.
 
peace
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Re: clusterheads from ga. and fla..
« Reply #13 on: Oct 23rd, 2006, 11:31pm »
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Oops sorry - episodic but the cycle I'm in now won't quit shadows keep coming at night sometimes more than shadows. Episode seems to have ended three weeks ago (10 attacks a day) but the shadows won't quit. Hope I'm not becoming cronic  Huh I would love to attend!
 
Andre
Conyers, Ga.
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SouthBronxSupreme
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Re: clusterheads from ga. and fla..
« Reply #14 on: Oct 4th, 2007, 3:55pm »
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I just moved to the Saint Petersburg area of FL
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