Author |
Topic: quick hello and thank you... (Read 731 times) |
|
verin
New Board Newbie
Gender: 
Posts: 3
|
 |
quick hello and thank you...
« on: Mar 3rd, 2005, 5:49am » |
 Quote  Modify
|
Hi All~
Recently met the most wonderful, intelligent, witty Man in the world and found out tonight that He is a Clusterhead...actually He's the One that directed me to this site. Just finished reading everything including a bunch of the past messages. Would like to thank DJ and all of you for getting this information out here so clearly. i can see -- as a natural nurturer -- that the hardest part is going to be that there is likely nothing i can do to help except be there, both during and after. i'm astounded at the levels of strength i see in both sufferers and supporters. Thank you all for providing the site and the forum. i already had one of my questions answered by reading through the medical posts. Again, thank you!
~verin
|
|
 IP Logged |
...and the ones who danced were thought insane by those who refused to hear the music...
|
|
|
Margi
CH.com Moderator
CH.com Alumnus
New Board Hall of Famer
Nuthin like a good neck rub!
Gender:
Posts: 3757
|
|
Re: quick hello and thank you...
« Reply #1 on: Mar 3rd, 2005, 10:55am » |
Quote Modify
|
Hi Verin,
welcome - yes, it's a tough but very rewarding job being a supporter. Please feel free to ask any questions you might have. There are those of us here who have lots of years of experience from this side of the fence and we've got a few tricks up our sleeves!
Pull up a chair.
|
| « Last Edit: Mar 4th, 2005, 9:33am by Margi » |
IP Logged |
http://askusaboutourgrandkids.photosite.com/
And, on the Eighth Day...God created Beer (to stop the Canadians from taking over the world)
source unknown
IMHO (which in my universe is correct)
kathy copelin, ch.com 8/8/06
|
|
|
Jonny
CH.com Alumnus
New Board Hall of Famer
Give me a shovel Ill dig my own grave!
Gender: 
Posts: 26213
|
|
Re: quick hello and thank you...
« Reply #2 on: Mar 3rd, 2005, 6:50pm » |
Quote Modify
|
Hey Verin,
If you need to bounce some questions off a sufferer I be your guy......30 years tells me I can answer 
In case you have seen my posts on the other board....thats just me goofing, down here its all serious.
Shoot me an email if you like.
..................................jonny
|
|
IP Logged |
It is up to YOU to educate yourself and then help your doctor plan your treatment. If you just sit down in front of your doctor and say "make me better" you are setting yourself up for a great deal of pain.
- Guiseppi
|
|
|
Ree
New Board Hall of Famer
2008's my year to shine~SUN IS OUT!!!YAY
    
Gender:
Posts: 5236
|
|
Re: quick hello and thank you...
« Reply #3 on: Mar 3rd, 2005, 7:31pm » |
Quote Modify
|
whooooooohoooooo jonnys hanging in the supporters corner... hey thanks bud... takin over for me while I am away HOW SWEET.........LOVE YA REE
HI MARGI... HEY MARGI... MY KID IS HOME.........LOLOL
|
|
IP Logged |
Proud Mom to US ARMY Kiowa OH58 PILOT~CWO2 SCOTT Hawaii, & USMC Vet~Now POLICE OFFICER SEAN, Citizen of the Month~ Breezy~ Nana 4 Matt/Mike&Aya, MIL To Shino Wife to Dave HI BILL!http://www.myspace.com/dungareespocket http://www.prohawaiian.com
|
|
|
verin
New Board Newbie
Gender:
Posts: 3
|
|
Re: quick hello and thank you...
« Reply #4 on: Mar 3rd, 2005, 7:40pm » |
Quote Modify
|
Thank you all so much. i really appreciate the offer Jonny. i'm strongly suspecting that by the end of next week i'll be popping you more questions than you'll ever expect  since it's possible He's going into a cycle this week.
~verin
|
|
IP Logged |
...and the ones who danced were thought insane by those who refused to hear the music...
|
|
|
Missy_Donna
New Board Junior
See correct e-mail address under post.
Gender:
Posts: 59
|
|
Re: quick hello and thank you...
« Reply #5 on: Mar 3rd, 2005, 8:00pm » |
Quote Modify
|
When you really stop and think about support, you realize that there are so many ways to support that you could go on and on adding.
There's the monitary supporter.....big and kind heart .
Then, there's the possession supporter......the sharer that is kind, and willing to be giving of personal things.
There's the "chef" who will cook all day and love it and get the warmest of hearts watching you enjoy the fruits of their labor.
But there's a tremendous difference in the support of a cluster headache supporter. They care so much about "their person" that they will suffer one of the most painful "supports" known to man. They feel, they cry, they pray, they pace, they stifle their own voices so as not to disturb their sufferer, but most of all, they love with all their hearts. Over and over again. It's a cycle....either episodic or chronic...and possible forever.
They wouldn't trade thier role for anything in the whole wide world tho. When you love someone, this is what you do. There isn't any question in the supporters mind about how, why or anything else.
My son has clusters and I would really like to always be in a corner of the room he's in when he's having a ch. I want to be near him.....I want to be there to give him whatever it is that closeness emits.
That's a little sampling of why supporters need supporters. We need each others' support, calming words of advice, bits of wisdom, past experience and sometimes just stupid, lopsided humor.
Without us, we might not make it.
So....here's a toast to all supporters. They might have normal sized hypothalamuses, but their hearts are enlarged. No doubt.
Love you all.
Donna H.
|
|
IP Logged |
E-mail addy is dmh114@lycos.com
Charter Member..joined over 6 years ago.
Sufferer for 28 years.....now a supporter to my 33 year old son.
|
|
|
Margi
CH.com Moderator
CH.com Alumnus
New Board Hall of Famer
Nuthin like a good neck rub!
Gender:
Posts: 3757
|
|
Re: quick hello and thank you...
« Reply #6 on: Mar 4th, 2005, 4:03pm » |
Quote Modify
|
wow, Donna - you really nailed it. Thank you. 
|
|
IP Logged |
http://askusaboutourgrandkids.photosite.com/
And, on the Eighth Day...God created Beer (to stop the Canadians from taking over the world)
source unknown
IMHO (which in my universe is correct)
kathy copelin, ch.com 8/8/06
|
|
|
|
|
|
Home
Help
Search
Members
Member Map
Login
Register
Reply
Notify of replies
Send Topic
Print
test rss