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Topic: Want to experiance cluster headaches? (Read 1577 times) |
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Think
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Re: Want to experiance cluster headaches?
« Reply #25 on: Feb 3rd, 2006, 1:56pm » |
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That's my first posting here - I too am the partner of a person who has been suffering from CH for almost two decades. It's been very tough at times, as you all know. I am feeling sorry for the person I live with, yet, by the same token, I feel resentment, because of the violent and uncontrollable anger outbursts due to sleep deprivation and the meds. It, occasionally, gets really scary to the point that I have to fear for my life.
I can only imagine how CH-sufferers feel - yet, that horrible pain does not, imho, give them the right, to destroy everybody around them. Forgive my naivety, but, instead of blaming one another or giving in to what the neurologists tell you, why can't we all work together (how many CH-sufferers are there all over the world?) and force both the pharmaceutical companies and the medical society to have a closer look at, and invest more in CH-research?
Think (and act)!
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Margi
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Re: Want to experiance cluster headaches?
« Reply #26 on: Feb 3rd, 2006, 2:11pm » |
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on Feb 3rd, 2006, 1:56pm, Think wrote:It, occasionally, gets really scary to the point that I have to fear for my life.
I can only imagine how CH-sufferers feel - yet, that horrible pain does not, imho, give them the right, to destroy everybody around them. |
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No, it does not give them the right to destroy ANYBODY around them, Think!! If you're fearing for your life, you need to take positive action to ensure your own safety. Your partner needs to take responsibility for their actions and should NEVER cause you to feel fear, especially because of cluster headaches. That's just not right. 
Hugs to you, Think - please stay safe.
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| « Last Edit: Feb 3rd, 2006, 2:12pm by Margi » |
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kathy copelin, ch.com 8/8/06
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minnie
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Re: Want to experiance cluster headaches?
« Reply #27 on: Feb 3rd, 2006, 2:14pm » |
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Think,
I just want to let you know about a great organization called OUCH. It's the Organization for Understanding Cluster Headaches.It's is worldwde and Started by many sufferers right here on this board.They have many projects going to educate Sufferes,Doctors and pharmacutical companies.Please visit the site become a member and if you have can provide one of the many volunteer services needed that would be great.heres the link to the U.S. site ......
http://www.ouch-us.org/
and a link to their newsletter
http://www.ouch-us.org/newsletters/newsletters.shtml
Minnie
P.S. OUCH membership free
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Richr8
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Think, Does your sufferer soend time here
« Reply #28 on: Feb 3rd, 2006, 2:28pm » |
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...and do you spend time interacting on the supporters board? It sounds like you both need a lot of help and support and it is all here for you, as are we.
Wishing you find what you need and the both of you many pain free days and nights (PFDAN)
Rich
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pf wishes,
Rich
...because yesterday is history and you never know what tomorrow will bring.
"Med free"- A few seeds and lots of O2-LG but not great.
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thomas
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Re: Want to experiance cluster headaches?
« Reply #29 on: Feb 7th, 2006, 1:56pm » |
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I will take suffering over the pain of watching a loved one go through this any day. I know both sides. 
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Religion and sex are powerplays. Manipulate the people for the money they pay. Selling skin, selling God, the numbers look the same on their credit cards. Triptans cause rebounds. Learn it, believe it, live it. I use triptans as the absolute LAST RESORT when treating my CH.
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Margi
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Re: Want to experiance cluster headaches?
« Reply #30 on: Feb 7th, 2006, 3:24pm » |
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Yes, you do. Hugs to you, Thomas. You're a star - you and Gena both are.
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http://askusaboutourgrandkids.photosite.com/
And, on the Eighth Day...God created Beer (to stop the Canadians from taking over the world)
source unknown
IMHO (which in my universe is correct)
kathy copelin, ch.com 8/8/06
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thomas
CH.com Alumnus
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"Hit like a phillips head into my brain."
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Re: Want to experiance cluster headaches?
« Reply #31 on: Feb 7th, 2006, 5:42pm » |
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on Feb 7th, 2006, 3:24pm, Margi wrote:| Yes, you do. Hugs to you, Thomas. You're a star - you and Gena both are. |
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No, not me. I'm just in a supporting role. You're a star, dear. 
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Religion and sex are powerplays. Manipulate the people for the money they pay. Selling skin, selling God, the numbers look the same on their credit cards. Triptans cause rebounds. Learn it, believe it, live it. I use triptans as the absolute LAST RESORT when treating my CH.
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