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Clusterheadaches.com Message Board MINOR VICTORY & MANY THANKS TO YOU ALL!!!


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   Author  Topic: MINOR VICTORY & MANY THANKS TO YOU ALL!!!  (Read 243 times)
annar
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MINOR VICTORY & MANY THANKS TO YOU ALL!!!
« on: Oct 26th, 2007, 4:39pm »
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So I'm doing a victory dance today, literally!!! After calling my husbands neurologist every day for a week I finally got my husband an Rx for 10 O2 lpm, an Rx for a good re-breather mask with bag, an Rx for more imitrex injections, upped his dose of Topamax, a new steroid drug AND a note for his work so they will semi-understand the magnitude of what he suffers from and will aid him as much as possible should he get hit while at work. So I'm posting here, cause you are the only ones who know what kind of effort this takes.  
 
My husband has suffered from clusters for over 20 years. He is episodic and this is only my second cycle with him. He's currently at about 5 CH's a day right now, but I know it may get worse. If it weren't for all of you I wouldn't even know what to ask the doctors for or how to help him wrestle with the demon. So many many many thanks to everyone that contributes to this amazing board. I'd be lost were it not for you. Not to mention the sanity that is offered by all of your stories. It's so wonderful to know we're not alone. THANK YOU!!! THANK YOU!!! THANK YOU!!!
 
Wishing everyone PFDAN!
-Anna  Grin
 
P.S. My husband uses my login also, as setting up his own right now is just too much to handle, so if you see the tag "rrr" at the bottom, it's him and not me.   Cheesy
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Annette
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Re: MINOR VICTORY & MANY THANKS TO YOU ALL!!!
« Reply #1 on: Oct 26th, 2007, 6:26pm »
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Dear Anna
 
You are most welcome and I am so glad to hear that things are getting better for both of you.
 
You and your husband will never be alone again. This is family and we mean it with all our hearts.
 
Whatever you need, just give a holler, there will be someone who can help.
 
In the mean time, continue to fight the good fight and ENJOY LIFE TO THE MAX !! Kiss
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Ree
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Re: MINOR VICTORY & MANY THANKS TO YOU ALL!!!
« Reply #2 on: Oct 26th, 2007, 9:21pm »
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Hey Anna I am in the same sad place with you right now... watching my husband do the dance daily... its not easy at all... good for you that you are fighting the fight for him...  
 
thinking about you Ree
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Annette
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Re: MINOR VICTORY & MANY THANKS TO YOU ALL!!!
« Reply #3 on: Oct 26th, 2007, 9:27pm »
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Hugs and prayers and painfree vibes to Anna and Ree and all the other supporters and their CHers.
 
Hang tough brothers and sisters !
 
Love ya all
 
HUGS
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Angie
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Re: MINOR VICTORY & MANY THANKS TO YOU ALL!!!
« Reply #4 on: Oct 30th, 2007, 8:44am »
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You are a trooper Anna
 
Good for you, I love this place for all the support.
 
Keeps us all sane, we are not alone in this fight.
 
Angie
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