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        Supporter's Corner >> Supporter's Corner >> Hi new to the support group (M)
        
(Message started by: WifeofCHSuffer on Jan 27^th, 2005, 12:48pm)

Title: Hi new to the support group (M)
Post by WifeofCHSuffer on Jan 27^th, 2005, 12:48pm

My husband was diagnosed with CH last March and had one bad cycle that lasted 4 months. Finally it broke and up until now he has suffered with on again off again migraines.

I am looking for answers and being his advocate because he just can't think for himself with the migraines that come and go. He is not the type to ask a million questions either, I am the planner he is jut the go with the flow dude! I have been on the site for three days now and have found so much useful information, wonderful supportive people I dont' feel so overwhelmed anymore I have a place to get help or just a sympathic ear to listen to me.

In the long run does anyone know what this does to one's body? I can't image this severe of pain can be good for the heart or brain. I can't image that it does a body good at all. Is CH something he will suffer from for the rest of his life or do they go away just like they came in, uninvited?

I look forward to being here and getting more help and helping others as I become more and more aware of what works and what does not.

Cathy

Title: Re: Hi new to the support group (M)
Post by Margi on Jan 27^th, 2005, 1:08pm

Hi Cathy,
no long term damage from clusters unless it's self-inflicted or from long-term med use.

Sadly, these cycles are exactly that: cycles. If it turns out that he is episodic (as opposed to chronic), he'll have periods of pain free remission but then will go back into cycle. You won't know if he's chronic until 12 months has passed and he's had no more than 30 days of unmedicated pain freedom. For episodics, cycles can last anywhere from 2 - 8 months (on average). We have chronics here who have not had pain freedom for more than 20 years.

Cluster is horrible.

Title: Re: Hi new to the support group (M)
Post by Jackie on Jan 27^th, 2005, 5:41pm

Welcome to the site, Cathy. I'm very sorry you have to be here but since you're the partner of a CH sufferer it's the best place you can land.

There is always a ton of support here for you too.

Let us know how we can help.....we'll surely try..

Be well, Sweetie....

Jacks 8)

Title: Re: Hi new to the support group (M)
Post by miapet on Jan 27^th, 2005, 8:27pm

Welcome.
You truly are your husbands best advocate!
The supporters (and the sufferers) have always been here for me . . .and a year ago, I think I very well would have went crazy if it had not been for all of the people giving their time, words, and comfort when I needed it most . . .every question I asked, every statement I made, was heard and responded to. I know you will find the same reality *smiles*
*positive light and energy*
miapet

Title: Re: Hi new to the support group (M)
Post by jillybean on Jan 28^th, 2005, 8:11pm

Hi Cathy,

Your husband sounds very much like mine!

I have been here a couple of months and the education has help me cope with all the medical merry-go-round mess.

Hang in there. I'm here for you.

Jill