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		<title>50 most Recent Topics - New CH.com Forum</title>
		<link>http://www.clusterheadaches.com/cgi-bin/yabb2/YaBB.pl</link>
		<description>New CH.com Forum</description>
		<language>en-us</language>

		<copyright>New CH.com Forum</copyright>
		<lastBuildDate>Thu, 17 May 2012 07:54:02 GMT</lastBuildDate>
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		<ttl>30</ttl>
		<item>
			<title>Medications,  Treatments,  Therapies - Anti-Inflammatory Regimen Survey</title>
			<link>http://www.clusterheadaches.com/cgi-bin/yabb2/YaBB.pl?num=1324046404/19#19</link>
			<category>New CH.com Forum/Medications,  Treatments,  Therapies</category>
			<guid>http://www.clusterheadaches.com/cgi-bin/yabb2/YaBB.pl?num=1324046404/19#19</guid>
			<pubDate>Thu, 17 May 2012 05:32:00 GMT</pubDate>
			<description>Ba-da-bump!  Just took the survey, even if it was to say that so far, no go on the vitamins for me, 2 months in.  I&#39;m still taking them though, because dammit I wanna be cutting wood with a chainsaw when I get old(er)!   &#60;img src=&#34;http://www.clusterheadaches.com/yabbfiles/Templates/Forum/default/grin.gif&#34; border=&#34;0&#34; alt=&#34;Grin&#34; title=&#34;Grin&#34; /&#62;</description>
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			<title>Medications,  Treatments,  Therapies - Failing my prevents... ideas welcome.</title>
			<link>http://www.clusterheadaches.com/cgi-bin/yabb2/YaBB.pl?num=1337230917/0#0</link>
			<category>New CH.com Forum/Medications,  Treatments,  Therapies</category>
			<guid>http://www.clusterheadaches.com/cgi-bin/yabb2/YaBB.pl?num=1337230917/0#0</guid>
			<pubDate>Thu, 17 May 2012 05:01:57 GMT</pubDate>
			<description>First, to get this outta the way:  yes, I use 02!  Lots of it, bless the stuff.  &#39;Trex as an abortive as well, plus Batch&#39;s regimen and Redbull.  That being said, I really need a preventative that works.  Haven&#39;t tried lithium yet so yes, that&#39;s on the radar.  (Doc and I are both concerned with the side effects on that one, given my history.)&#60;br /&#62;&#60;br /&#62;So.  I have tried, and spectacularly failed, Topamax.  It reduced my CH by about 50% at 100-200 mg/day, but I lost 60 lbs in 30 days.  Literally.  Docs won&#39;t let me try it again based on that, and the interminable nausea and diarrhea it caused.&#60;br /&#62;&#60;br /&#62;Once I heard about verapamil, I was trying that.  First try, I got to about 25% CH reduction at 360 mg/day (IR)... and my lower body swelled so badly my doc freaked.  (No EKG was performed.)  So okay, this time around I&#39;m on verapamil ER and at 360 mg/day and again... severe edema, heart palps, constant nausea.  Only this time I&#39;m tempted to just hide these symptoms from the doc so he&#39;ll keep me on it.  I mean damn, I&#39;ve got compression stockings, a no-salt diet, etc. and my poor body just seems to hate the verap.&#60;br /&#62;&#60;br /&#62;Next visit with the doc is in a couple weeks.  He&#39;s not a neuro but bless him, he listens to my ideas.  So lay it on me.&#60;br /&#62;&#60;br /&#62;Oh yeah, and I have a packet of geniuine Hawaiian Baby Woodrose, organic-style, that I just lucked into.  Just too scared to take &#39;em yet, based on side effects I read.  Plus the whole detoxing from Western meds bit...&#60;br /&#62;&#60;br /&#62;So yeah, insights welcome.  And once again, am on the vitamins and 02.  But it&#39;s hella time for a good prevent.  I&#39;m now 6 months into a cycle that only previously ever lasted 2.   &#60;img src=&#34;http://www.clusterheadaches.com/yabbfiles/Templates/Forum/default/undecided.gif&#34; border=&#34;0&#34; alt=&#34;Undecided&#34; title=&#34;Undecided&#34; /&#62;  So, lithium?  If so, how to convince my now-skittish doc to give it a go?  (Sorry for the ramble.)</description>
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			<title>Medications,  Treatments,  Therapies - Key: alter the brain chemistry fast!</title>
			<link>http://www.clusterheadaches.com/cgi-bin/yabb2/YaBB.pl?num=1335509905/13#13</link>
			<category>New CH.com Forum/Medications,  Treatments,  Therapies</category>
			<guid>http://www.clusterheadaches.com/cgi-bin/yabb2/YaBB.pl?num=1335509905/13#13</guid>
			<pubDate>Thu, 17 May 2012 03:59:59 GMT</pubDate>
			<description>And for some people, sleep isn&#39;t an issue. Out of several hundred CHs I&#39;ve had so far only a couple or so were when I was asleep.&#60;br /&#62;&#60;br /&#62;We&#39;re all different in how CH affects us.</description>
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			<title>Medications,  Treatments,  Therapies - Welding O2 and Demand Valve</title>
			<link>http://www.clusterheadaches.com/cgi-bin/yabb2/YaBB.pl?num=1337175880/2#2</link>
			<category>New CH.com Forum/Medications,  Treatments,  Therapies</category>
			<guid>http://www.clusterheadaches.com/cgi-bin/yabb2/YaBB.pl?num=1337175880/2#2</guid>
			<pubDate>Thu, 17 May 2012 03:34:43 GMT</pubDate>
			<description>I have the very same regulator you have pictured. All you have to do is unscrew the nipple (where your O&#60;sub&#62;2&#60;/sub&#62;ptimask is connected), attach the demand hose to it, and turn the flow up to a level that will give you as much O2 as you need for each breath. No need for a new regulator.&#60;br /&#62;&#60;br /&#62;Multimedia File Viewing and Clickable Links are available for Registered Members only!! &#160;You need to &#60;a href=&#34;http://www.clusterheadaches.com/cgi-bin/yabb2/YaBB.pl?action=login;sesredir=num~1337175880&#34;&#62;&#60;img src=&#34;http://www.clusterheadaches.com/yabbfiles/Buttons/English/login.png&#34; alt=&#34;Login&#34; title=&#34;Login&#34; border=&#34;0&#34; /&#62;&#60;/a&#62; or &#60;a href=&#34;http://www.clusterheadaches.com/cgi-bin/yabb2/YaBB.pl?action=register&#34;&#62;&#60;img src=&#34;http://www.clusterheadaches.com/yabbfiles/Buttons/English/register.png&#34; alt=&#34;Register&#34; title=&#34;Register&#34; border=&#34;0&#34; /&#62;&#60;/a&#62;</description>
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			<title>Getting to Know Ya - Hi I&#39;m new and long winded....</title>
			<link>http://www.clusterheadaches.com/cgi-bin/yabb2/YaBB.pl?num=1336336910/21#21</link>
			<category>New CH.com Forum/Getting to Know Ya</category>
			<guid>http://www.clusterheadaches.com/cgi-bin/yabb2/YaBB.pl?num=1336336910/21#21</guid>
			<pubDate>Thu, 17 May 2012 02:52:48 GMT</pubDate>
			<description>Have you taken our &#34;cluster quiz&#34;? It may help YOU decide if you have CH.&#60;br /&#62;&#60;br /&#62;Multimedia File Viewing and Clickable Links are available for Registered Members only!! &#160;You need to &#60;a href=&#34;http://www.clusterheadaches.com/cgi-bin/yabb2/YaBB.pl?action=login;sesredir=num~1336336910&#34;&#62;&#60;img src=&#34;http://www.clusterheadaches.com/yabbfiles/Buttons/English/login.png&#34; alt=&#34;Login&#34; title=&#34;Login&#34; border=&#34;0&#34; /&#62;&#60;/a&#62; or &#60;a href=&#34;http://www.clusterheadaches.com/cgi-bin/yabb2/YaBB.pl?action=register&#34;&#62;&#60;img src=&#34;http://www.clusterheadaches.com/yabbfiles/Buttons/English/register.png&#34; alt=&#34;Register&#34; title=&#34;Register&#34; border=&#34;0&#34; /&#62;&#60;/a&#62;&#60;br /&#62;&#60;br /&#62;Don</description>
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			<title>Cluster Headache Specific - Some help....maybe??</title>
			<link>http://www.clusterheadaches.com/cgi-bin/yabb2/YaBB.pl?num=1337097201/9#9</link>
			<category>New CH.com Forum/Cluster Headache Specific</category>
			<guid>http://www.clusterheadaches.com/cgi-bin/yabb2/YaBB.pl?num=1337097201/9#9</guid>
			<pubDate>Thu, 17 May 2012 02:45:29 GMT</pubDate>
			<description> &#60;b&#62;Quote:&#60;/b&#62;&#60;br /&#62;&#60;div&#62;I&#39;ve also looked into the oxygen tank, according to my doctor, it&#39;s a no-go in Canada. &#60;/div&#62;&#60;br /&#62;Find a new doctor. That&#39;s complete bullshit.</description>
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			<title>Cluster Headache Specific - Loss of eyesight</title>
			<link>http://www.clusterheadaches.com/cgi-bin/yabb2/YaBB.pl?num=1337215777/1#1</link>
			<category>New CH.com Forum/Cluster Headache Specific</category>
			<guid>http://www.clusterheadaches.com/cgi-bin/yabb2/YaBB.pl?num=1337215777/1#1</guid>
			<pubDate>Thu, 17 May 2012 01:27:55 GMT</pubDate>
			<description>I&#39;ve had some pretty funky shit happen to my eyesight - figured it came from pressing hard on my eyeball / eye socket for an extended period.&#60;br /&#62;&#60;br /&#62;Never lasted too very long.</description>
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			<title>Cluster Headache Specific - Can clusters headaches kill you?</title>
			<link>http://www.clusterheadaches.com/cgi-bin/yabb2/YaBB.pl?num=1337161425/6#6</link>
			<category>New CH.com Forum/Cluster Headache Specific</category>
			<guid>http://www.clusterheadaches.com/cgi-bin/yabb2/YaBB.pl?num=1337161425/6#6</guid>
			<pubDate>Thu, 17 May 2012 00:39:05 GMT</pubDate>
			<description>Was told by the doctor that cluster headaches themselves cannot actually kill you but the pain can cause people to kill themselves.</description>
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			<title>Medications,  Treatments,  Therapies - 123 Days PF And I Think I know Why</title>
			<link>http://www.clusterheadaches.com/cgi-bin/yabb2/YaBB.pl?num=1291969416/784#784</link>
			<category>New CH.com Forum/Medications,  Treatments,  Therapies</category>
			<guid>http://www.clusterheadaches.com/cgi-bin/yabb2/YaBB.pl?num=1291969416/784#784</guid>
			<pubDate>Wed, 16 May 2012 21:20:48 GMT</pubDate>
			<description>&#60;div&#62;bhb,&#60;br /&#62;&#60;br /&#62;Thank you for the fascinating response...  It appears you&#39;ve come up with a perfectly logical and very effective year-round vitamin D3 dosing strategy to control your cluster headaches...&#60;br /&#62;&#60;br /&#62;Fellow episodic CH&#39;ers would do well to see their doctors about using this dosing strategy to prevent their CH instead of resorting to the very invasive prescription medications with all their onerous side effects...&#60;br /&#62;&#60;br /&#62;That your neurologist called for the lab test for 25(OH)D and prescribed 50,000 IU/day vitamin D3 for your RRMS is also very encouraging...   My guess is he prescribed the 50,000 IU/day vitamin D3 for four months based on his prerogative as a board certified neurologist...  and the fact that there have been some gold standard studies linking vitamin D3 deficiency and RRMS...&#60;br /&#62;&#60;br /&#62;Treating RRMS with vitamin D3 was unheard of a few years ago...   If neurologists have connected the dots between a vitamin D3 deficiency and RRMS...  there&#39;s hope they&#39;ll do the same for a vitamin D3 deficiency and cluster headache...&#60;br /&#62;&#60;br /&#62;BTW...  I&#39;ve a friend and fellow shipmate I&#39;ve known for nearly 40 years who&#39;s wife has RRMS...  They were exited that she was starting on copaxone (glatiramer)...  Unfortunately, the results were minimal and disappointing...  &#60;br /&#62;&#60;br /&#62;I told them about the anti-inflammatory regimen and sent them a copy of a study of RRMS patients taking vitamin D3 to control this disorder...  His wife has been taking 20 to 30 IU/day vitamin D3 since March of 2011.  She walks just fine, has only an occasional ache and pain... and no major relapses...&#60;br /&#62;&#60;br /&#62;A major gold standard study of RRMS patients using vitamin D3 in Finland concluded the relapse-free zone was a serum 25(OH)D concentration above 50 ng/mL...  Sound familiar?&#60;br /&#62;&#60;br /&#62;I&#39;ve spent the last five months trying to interest some of the world&#39;s leading neurologists who specialize in treating patients suffering from cluster headache on the safety and efficacy of this regimen in preventing the terrible pain of our disorder...&#60;br /&#62;&#60;br /&#62;I&#39;ve done this in an attempt to elevate this method of treating cluster headaches into the current thinking among the leading neurologists treating patients with our disorder in the hope that one or more of them would take the challenge and start a clinical study on it.&#60;br /&#62;&#60;br /&#62;Unfortunately, their response so far has been underwhelming to say the least...  &#60;br /&#62;&#60;br /&#62;Most want to see the results of a gold standard double-blind, placebo-controlled, randomized clinical trial showing statistically and clinically meaningful improvements in cluster headache episodes associated with the active treatment... instead of conducting such a study  &#60;br /&#62;&#60;br /&#62;It appears they want to see this kind of medical evidence before suggesting the lab test for 25(OH)D and followup vitamin D3 therapy to their patients should the results of this lab test come back indicating a vitamin D3 deficiency...&#60;br /&#62;&#60;br /&#62;In short... we&#39;re stuck in a &#34;do loop...&#34;  Which comes first... chicken or the egg?&#60;br /&#62;&#60;br /&#62;Meanwhile, forward thinking CH&#39;ers like all of you who&#39;ve responded with posts to this thread because you&#39;ve taken the bull by the horns and given this regimen a try...  most with very exciting results...&#60;br /&#62;&#60;br /&#62;Given the very encouraging results reported so far here at CH.com and ClusterBusters...  I think the CH&#39;er community of sufferers in general is starting to get the word... that this regimen really works to prevent cluster headaches... for an average of 20 cents a day no less...  and it&#39;s the neurologists who are at the steep end of the learning curve... &#60;br /&#62;&#60;br /&#62;If we continue to ask for the lab test for 25(OH)D to determine if we&#39;re vitamin D3 deficient and take information on the effectiveness of this regimen to the neurologists and primary care physicians who treat us, they might just start catching up with us...  &#60;br /&#62;&#60;br /&#62;One or two enterprising types might also take pen in hand and publish a clinical evaluation...  When that happens... Katey bar the door...  There&#39;ll be a flood of new studies on this topic registered on clinicaltrials.com&#60;br /&#62;&#60;br /&#62;Most of all we need CH&#39;ers who have either had a favorable response to this regimen or tried it for at least 6 to 8 weeks with increased vitamin D3 doses above 10,000 IU/day take the &#60;b&#62;Anti-Inflammatory Survey&#60;/b&#62;...  Even if you didn&#39;t experience a favorable response after 6-8 weeks or had to stop this regimen for some reason...  Take the survey...&#60;br /&#62;&#60;br /&#62;Results from this survey will carry far more weight than a claim of effectiveness any one of us can make.&#60;br /&#62;&#60;br /&#62;Take care bhb...  and thanks again for the wonderful replies.&#60;br /&#62;&#60;br /&#62;Hey Malcom...  Welcome to the club...  Chronic CH&#39;ers respond to this regimen with better than acceptable efficacy...  The odds are in your favor.&#60;br /&#62;&#60;br /&#62;Ask your doctor for the 25(OH)D lab test.  With the results in hand, you&#39;ll have a better idea how long it might take to have a favorable response to this regimen.&#60;br /&#62;&#60;br /&#62;Take care and please keep us posted on your progress.&#60;br /&#62;&#60;br /&#62;&#60;br /&#62;V/R, Batch &#60;br /&#62;&#60;br /&#62;&#60;/div&#62;</description>
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			<title>Medications,  Treatments,  Therapies - First Neurologist Visit</title>
			<link>http://www.clusterheadaches.com/cgi-bin/yabb2/YaBB.pl?num=1337152877/5#5</link>
			<category>New CH.com Forum/Medications,  Treatments,  Therapies</category>
			<guid>http://www.clusterheadaches.com/cgi-bin/yabb2/YaBB.pl?num=1337152877/5#5</guid>
			<pubDate>Wed, 16 May 2012 21:04:12 GMT</pubDate>
			<description>&#60;b&#62;&#60;a href=&#34;http://www.clusterheadaches.com/cgi-bin/yabb2/YaBB.pl?num=1337152877/4#4&#34;&#62;Mikey85 wrote&#60;/a&#62; on &#60;b&#62;Yesterday&#60;/b&#62; at 1:36pm:&#60;/b&#62;&#60;br /&#62;&#60;div&#62;Thanks all, I&#39;m really leaning towards the oxygen.  I was just unsure as the shadows come so much during the day I wasn&#39;t sure if hitting the O2 4-5 times a day was normal, but sounds about right now.  &#60;/div&#62;&#60;br /&#62;&#60;br /&#62;Don&#39;t worry about what is &#34;normal&#34;. Once you get oxygen and find how well it works for you, you&#39;ll soon be singing it&#39;s praises.&#60;br /&#62;&#60;br /&#62;Do read the oxygen info via the link on the left as there is some great material there to get the best from using it.</description>
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			<title>General Posts - Ha!</title>
			<link>http://www.clusterheadaches.com/cgi-bin/yabb2/YaBB.pl?num=1337043508/4#4</link>
			<category>New CH.com Forum/General Posts</category>
			<guid>http://www.clusterheadaches.com/cgi-bin/yabb2/YaBB.pl?num=1337043508/4#4</guid>
			<pubDate>Wed, 16 May 2012 21:03:14 GMT</pubDate>
			<description>You are truly a gentleman among gentleman sir! &#60;img src=&#34;http://www.clusterheadaches.com/yabbfiles/Templates/Forum/default/grin.gif&#34; border=&#34;0&#34; alt=&#34;Grin&#34; title=&#34;Grin&#34; /&#62;&#60;br /&#62;&#60;br /&#62;Joe</description>
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			<title>Getting to Know Ya - Who is who here to the newcommers</title>
			<link>http://www.clusterheadaches.com/cgi-bin/yabb2/YaBB.pl?num=1118870900/717#717</link>
			<category>New CH.com Forum/Getting to Know Ya</category>
			<guid>http://www.clusterheadaches.com/cgi-bin/yabb2/YaBB.pl?num=1118870900/717#717</guid>
			<pubDate>Wed, 16 May 2012 19:44:13 GMT</pubDate>
			<description>Hang in there Tammy. Maybe ask Batch about upping the D3 in the 123 Days PF thread....I know my cycle went a bit haywire the first few days with D3 (more frequent, less severe, shorter duration)...&#60;br /&#62;&#60;br /&#62;And I hope the doc and ins. will come through on the O2 for you soon.</description>
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			<title>Cluster Headache Specific - Another Scarey One!!</title>
			<link>http://www.clusterheadaches.com/cgi-bin/yabb2/YaBB.pl?num=1337148085/3#3</link>
			<category>New CH.com Forum/Cluster Headache Specific</category>
			<guid>http://www.clusterheadaches.com/cgi-bin/yabb2/YaBB.pl?num=1337148085/3#3</guid>
			<pubDate>Wed, 16 May 2012 13:48:23 GMT</pubDate>
			<description>Bob makes a great point. When you&#39;re &#34;lucky&#34; enough to suffer from something as dramatic and rare as CH, there is a tendency to assign the blame for all of your ailments as just another side effect of the beast. Anytime something this dramatic occurs, it&#39;s worth at least a call to your doc to touch base.&#60;br /&#62;&#60;br /&#62;Take a second to read this link and make sure you&#39;re getting the maximum benefit from your oxygen:&#60;br /&#62;&#60;br /&#62;Multimedia File Viewing and Clickable Links are available for Registered Members only!! &#160;You need to &#60;a href=&#34;http://www.clusterheadaches.com/cgi-bin/yabb2/YaBB.pl?action=login;sesredir=num~1337148085&#34;&#62;&#60;img src=&#34;http://www.clusterheadaches.com/yabbfiles/Buttons/English/login.png&#34; alt=&#34;Login&#34; title=&#34;Login&#34; border=&#34;0&#34; /&#62;&#60;/a&#62; or &#60;a href=&#34;http://www.clusterheadaches.com/cgi-bin/yabb2/YaBB.pl?action=register&#34;&#62;&#60;img src=&#34;http://www.clusterheadaches.com/yabbfiles/Buttons/English/register.png&#34; alt=&#34;Register&#34; title=&#34;Register&#34; border=&#34;0&#34; /&#62;&#60;/a&#62;&#60;br /&#62;&#60;br /&#62;The keys are a high flow rate, minimum of 15 LPM with some having to go up to 45 LPM to abort their attacks. A Non Re Breather Mask, and get on it as soon as you get &#34;that feeling&#34; beasty is on his way. Many who said oxygen did not work for them have found success just by tweaking HOW they used it. Hoping you catch a break soon.&#60;br /&#62;&#60;br /&#62;Joe</description>
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			<title>Cluster Headache Specific - Hiya everyone.</title>
			<link>http://www.clusterheadaches.com/cgi-bin/yabb2/YaBB.pl?num=1337146239/3#3</link>
			<category>New CH.com Forum/Cluster Headache Specific</category>
			<guid>http://www.clusterheadaches.com/cgi-bin/yabb2/YaBB.pl?num=1337146239/3#3</guid>
			<pubDate>Wed, 16 May 2012 13:13:55 GMT</pubDate>
			<description>AWESOME news on the 02, shows we are making progress, as slow as it seems at times! Hope it proves the magic bullet for you that it&#39;s been for me.&#60;br /&#62;&#60;br /&#62;Joe</description>
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			<title>Getting to Know Ya - Hello all!</title>
			<link>http://www.clusterheadaches.com/cgi-bin/yabb2/YaBB.pl?num=1336438354/4#4</link>
			<category>New CH.com Forum/Getting to Know Ya</category>
			<guid>http://www.clusterheadaches.com/cgi-bin/yabb2/YaBB.pl?num=1336438354/4#4</guid>
			<pubDate>Wed, 16 May 2012 12:45:07 GMT</pubDate>
			<description>Hi Drew&#60;br /&#62;&#60;br /&#62;As per Lance&#39;s comment, your symptoms don&#39;t sound stereotypical, but then none of our symptoms are the same.... we&#39;re all just that bit different! &#60;br /&#62;You do need to read all you can and get as much information as possible. Go back to your doctors and insist on an urgent referal to a headache specialist. You need to do this if its CH or something different, your obviously suffering badly and these things are best not left!!&#60;br /&#62;If your current doc won&#39;t play ball, ask to see a different doc in the practice. Even change to a different practice, if that is what it takes.&#60;br /&#62;The problem here in the UK is that some of our doctors think the money they manage is theirs!! They don&#39;t seem to appreciate that it comes from us, the tax payer. They also don&#39;t appreciate just how painful CH is.&#60;br /&#62;On a positive note, I&#39;ve had some good support from doctors and specialists alike, for most of my CH career. But not always!!!&#60;br /&#62;&#60;br /&#62;Best regards&#60;br /&#62;&#60;br /&#62;Andrew</description>
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			<title>Getting to Know Ya - Hello</title>
			<link>http://www.clusterheadaches.com/cgi-bin/yabb2/YaBB.pl?num=1336574179/5#5</link>
			<category>New CH.com Forum/Getting to Know Ya</category>
			<guid>http://www.clusterheadaches.com/cgi-bin/yabb2/YaBB.pl?num=1336574179/5#5</guid>
			<pubDate>Wed, 16 May 2012 11:32:12 GMT</pubDate>
			<description>The beast morphs, usually in the worst possible way at the worst possible time...and so do cycles. When it comes to dealig with CHs you must be prepared for things to change...occasionally for the good, but not necessarily so. No matter the change, however, it is the same old beast...attack and defeat! Blessings. lance</description>
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			<title>Getting to Know Ya - &#160;Newbies. Help us...help you</title>
			<link>http://www.clusterheadaches.com/cgi-bin/yabb2/YaBB.pl?num=1295553550/142#142</link>
			<category>New CH.com Forum/Getting to Know Ya</category>
			<guid>http://www.clusterheadaches.com/cgi-bin/yabb2/YaBB.pl?num=1295553550/142#142</guid>
			<pubDate>Wed, 16 May 2012 09:18:12 GMT</pubDate>
			<description>Okay, okay, okay.... where to start??? I just found this site. Heck 12 hours ago i thought I had Migraines. I didnt know CHs existed. I didnt know anyone else on planet earth experienced what I go through. Now I know better. Because:&#60;br /&#62;&#60;br /&#62;1.My headaches are suicidally painfull (although I tend to regret these thoughts when I feel better)&#60;br /&#62;&#60;br /&#62;2. 40%-50% of the pain is behind my left eyeball&#60;br /&#62;&#60;br /&#62;3.No family history of migraines&#60;br /&#62;&#60;br /&#62;4. I look exactly like those disturbing YouTube vids of ppl with CH during an attck&#60;br /&#62;&#60;br /&#62;5. These headaches have taken over my life &#60;br /&#62;&#60;br /&#62;6. I get &#34;shadows&#34; which ruin my mood/demeanor and are like a constant horrifying threat&#60;br /&#62;&#60;br /&#62;7.Headaches always on the left side (except maybe 1 or 2 episodes several years back)&#60;br /&#62;&#60;br /&#62;8.Left eye tears up and eyelid droops down&#60;br /&#62;&#60;br /&#62;9. I can probably find 10 more reasons of the top of my head. Tired of typing this part of my post. SERIOUSLY I&#39;m a textbook case.&#60;br /&#62;&#60;br /&#62;I&#39;m 26. Been getting them about once a year since the age of 11. My cycles are 2 weeks long. Approx 4 CH/day. I&#39;m in a cycle now and I&#39;m sort of scared because usually I can &#34;feel&#34; that the cycle is almost over at this point (10 days in). It doesnt feel like that this time. Also a first: it has been 2.5 years since my last episode. &#60;br /&#62;&#60;br /&#62;The only meds I&#39;ve ever tried are worth squat. Advil, tylenol, tylenol with codeine, aspirin, naproxen, diclofenac potassium (voltaren), chamomille tea (lol),  etc... I&#39;ve even tried tripling the &#34;safe&#34; dose. Doesn&#39;t make a dent on my headache. Like candy.&#60;br /&#62;&#60;br /&#62;Yes. I&#39;m a Soldier. I&#39;ve toughed every headache for the past 15 years without any effective meds or treatment. Nobody except you guys will ever understand the significance of this.&#60;br /&#62;&#60;br /&#62;MY QUESTION: Anyone know the fastest way for me to get a proper diagnosis in the Canadian Healthcare system? Preferably in Quebec? More preferably in Montreal? I want some Imitrex! I want some O2! I dont wanna go to sleep or face my next CH!!! HELP!! &#60;br /&#62;&#60;br /&#62;for tonight I&#39;m gonna try a freezing cold shower in case of an attack!! (in case right? lol) I read that on this site. I also read working out during an attack. Dont think Ill try that one. Really working out?? It&#39;ll make all the blood rush to your head. That cant be good. During an attack my pain spikes with every breath. I hold my breath sometimes dreading the moment when I&#39;ll have to breathe.&#60;br /&#62;&#60;br /&#62;Anyways.... I have to sleep at some point right? I think Im ready to fight the beast one more time.&#60;br /&#62;&#60;br /&#62;Once more into the fray&#60;br /&#62;Into the last good fight I&#39;ll ever know&#60;br /&#62;Live and die on this day&#60;br /&#62;Live and die on this day&#60;br /&#62;----From movie &#34;The Grey&#34;</description>
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			<title>Getting to Know Ya - Classic Cluster Except Late Onset</title>
			<link>http://www.clusterheadaches.com/cgi-bin/yabb2/YaBB.pl?num=1336954723/6#6</link>
			<category>New CH.com Forum/Getting to Know Ya</category>
			<guid>http://www.clusterheadaches.com/cgi-bin/yabb2/YaBB.pl?num=1336954723/6#6</guid>
			<pubDate>Wed, 16 May 2012 01:31:40 GMT</pubDate>
			<description>Multimedia File Viewing and Clickable Links are available for Registered Members only!! &#160;You need to &#60;a href=&#34;http://www.clusterheadaches.com/cgi-bin/yabb2/YaBB.pl?action=login;sesredir=num~1336954723&#34;&#62;&#60;img src=&#34;http://www.clusterheadaches.com/yabbfiles/Buttons/English/login.png&#34; alt=&#34;Login&#34; title=&#34;Login&#34; border=&#34;0&#34; /&#62;&#60;/a&#62; or &#60;a href=&#34;http://www.clusterheadaches.com/cgi-bin/yabb2/YaBB.pl?action=register&#34;&#62;&#60;img src=&#34;http://www.clusterheadaches.com/yabbfiles/Buttons/English/register.png&#34; alt=&#34;Register&#34; title=&#34;Register&#34; border=&#34;0&#34; /&#62;&#60;/a&#62;&#60;br /&#62;&#60;br /&#62;This is a link to doc&#39;s other sufferers have recommended, might startw ith one of them as they are at least familiar with treating CH.&#60;br /&#62;&#60;br /&#62;Joe</description>
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			<title>General Posts - i got a pretty one!</title>
			<link>http://www.clusterheadaches.com/cgi-bin/yabb2/YaBB.pl?num=1337049519/4#4</link>
			<category>New CH.com Forum/General Posts</category>
			<guid>http://www.clusterheadaches.com/cgi-bin/yabb2/YaBB.pl?num=1337049519/4#4</guid>
			<pubDate>Tue, 15 May 2012 22:29:04 GMT</pubDate>
			<description>um...&#60;br /&#62;&#60;br /&#62;i am most certainly NOT going to eat this little guy. &#160;he is in my fish tank, where he will live a (hopefully) long and happy life. &#160;he isn&#39;t even close to showing his full colors yet. &#160;when he doubles in size, he will REALLY be pretty.&#60;br /&#62;&#60;br /&#62;i got lucky to snag him. &#160;that is about as small a fish i can manage to hook. &#160;perfect size to put in a fish tank.&#60;br /&#62;&#60;br /&#62;yeah, i&#39;m all about the native fish.</description>
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			<title>Meetings and Gatherings - Carolina&#39;s Meet and Greet</title>
			<link>http://www.clusterheadaches.com/cgi-bin/yabb2/YaBB.pl?num=1333455651/37#37</link>
			<category>New CH.com Forum/Meetings and Gatherings</category>
			<guid>http://www.clusterheadaches.com/cgi-bin/yabb2/YaBB.pl?num=1333455651/37#37</guid>
			<pubDate>Tue, 15 May 2012 19:23:58 GMT</pubDate>
			<description>Darn - did we just miss it? See my Intro post - tell PFunk we&#39;re in Goose Creek SC if u &#34;see&#34; him!&#60;br /&#62;sue &#38; hubby (CH sufferer) &#60;br /&#62;</description>
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			<title>Medications,  Treatments,  Therapies - Seed questions</title>
			<link>http://www.clusterheadaches.com/cgi-bin/yabb2/YaBB.pl?num=1336852003/11#11</link>
			<category>New CH.com Forum/Medications,  Treatments,  Therapies</category>
			<guid>http://www.clusterheadaches.com/cgi-bin/yabb2/YaBB.pl?num=1336852003/11#11</guid>
			<pubDate>Tue, 15 May 2012 17:18:56 GMT</pubDate>
			<description>&#60;b&#62;&#60;a href=&#34;http://www.clusterheadaches.com/cgi-bin/yabb2/YaBB.pl?num=1336852003/8#8&#34;&#62;Louise Barham wrote&#60;/a&#62; on May 13&#60;sup&#62;th&#60;/sup&#62;, 2012 at 8:01pm:&#60;/b&#62;&#60;br /&#62;&#60;div&#62;Thanks!!  Order has been placed.  As soon as we get them, I will post an update.  Feel free to call me if you want.  At this point you have answered my question, but we can certainly chat.&#60;br /&#62;&#60;br /&#62;Love ya lots. &#60;/div&#62;&#60;br /&#62;Plant a few along a fence or trellis, and you&#39;ll have plenty from now on!&#60;br /&#62;&#60;br /&#62;Regards,&#60;br /&#62;Jim&#60;br /&#62;</description>
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			<title>General Posts - Goodbye little Buddy</title>
			<link>http://www.clusterheadaches.com/cgi-bin/yabb2/YaBB.pl?num=1336313787/19#19</link>
			<category>New CH.com Forum/General Posts</category>
			<guid>http://www.clusterheadaches.com/cgi-bin/yabb2/YaBB.pl?num=1336313787/19#19</guid>
			<pubDate>Tue, 15 May 2012 14:49:38 GMT</pubDate>
			<description>Don...i am very sorry for your loss.....Lenny</description>
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			<title>General Posts - This place....</title>
			<link>http://www.clusterheadaches.com/cgi-bin/yabb2/YaBB.pl?num=1336839671/15#15</link>
			<category>New CH.com Forum/General Posts</category>
			<guid>http://www.clusterheadaches.com/cgi-bin/yabb2/YaBB.pl?num=1336839671/15#15</guid>
			<pubDate>Tue, 15 May 2012 14:37:49 GMT</pubDate>
			<description>For those that are new...this place use to be like the WILD-WILD-WEST...there was so much entertainment,you never knew what to expect...and it was FUN (boy do i miss it...BIG-TIME)...i doubt that it will ever be the same...in regards of people leaving and going to FB (this is something i have NEVER considered and most likely never will) &#160;CH.com and CB.com are the only 2-sites for me...as the theme song goes to that TV sitcom &#34;all in the family&#34;.....THOSE WERE THE DAYS.....Lenny</description>
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			<title>General Posts - What ya.....</title>
			<link>http://www.clusterheadaches.com/cgi-bin/yabb2/YaBB.pl?num=1337059287/1#1</link>
			<category>New CH.com Forum/General Posts</category>
			<guid>http://www.clusterheadaches.com/cgi-bin/yabb2/YaBB.pl?num=1337059287/1#1</guid>
			<pubDate>Tue, 15 May 2012 13:30:30 GMT</pubDate>
			<description>Multimedia File Viewing and Clickable Links are available for Registered Members only!! &#160;You need to &#60;a href=&#34;http://www.clusterheadaches.com/cgi-bin/yabb2/YaBB.pl?action=login;sesredir=num~1337059287&#34;&#62;&#60;img src=&#34;http://www.clusterheadaches.com/yabbfiles/Buttons/English/login.png&#34; alt=&#34;Login&#34; title=&#34;Login&#34; border=&#34;0&#34; /&#62;&#60;/a&#62; or &#60;a href=&#34;http://www.clusterheadaches.com/cgi-bin/yabb2/YaBB.pl?action=register&#34;&#62;&#60;img src=&#34;http://www.clusterheadaches.com/yabbfiles/Buttons/English/register.png&#34; alt=&#34;Register&#34; title=&#34;Register&#34; border=&#34;0&#34; /&#62;&#60;/a&#62;&#60;br /&#62;&#60;br /&#62;Forgive me this but this has created an ear worm of epic proportions!!! &#60;img src=&#34;http://www.clusterheadaches.com/yabbfiles/Templates/Forum/default/grin.gif&#34; border=&#34;0&#34; alt=&#34;Grin&#34; title=&#34;Grin&#34; /&#62;&#60;br /&#62;&#60;br /&#62;Joe</description>
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			<title>Cluster Headache Specific - Lots and lots of shadows</title>
			<link>http://www.clusterheadaches.com/cgi-bin/yabb2/YaBB.pl?num=1335982857/7#7</link>
			<category>New CH.com Forum/Cluster Headache Specific</category>
			<guid>http://www.clusterheadaches.com/cgi-bin/yabb2/YaBB.pl?num=1335982857/7#7</guid>
			<pubDate>Tue, 15 May 2012 12:49:35 GMT</pubDate>
			<description>I have been using the energy drinks or energy strips and it seems to help. I was right though it did turn into a kip 6 or 7 I had weird feeling it would after awhile,&#60;br /&#62;After that no more shadows and no other bad episodes so far. </description>
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			<title>Medications,  Treatments,  Therapies - Neurostimulator Implant Unsuccessful!!</title>
			<link>http://www.clusterheadaches.com/cgi-bin/yabb2/YaBB.pl?num=1336444352/8#8</link>
			<category>New CH.com Forum/Medications,  Treatments,  Therapies</category>
			<guid>http://www.clusterheadaches.com/cgi-bin/yabb2/YaBB.pl?num=1336444352/8#8</guid>
			<pubDate>Mon, 14 May 2012 20:38:40 GMT</pubDate>
			<description>&#60;div&#62;Evan,&#60;br /&#62;&#60;br /&#62;The 25(OH)D level is very important if you&#39;re trying to prevent your CH with vitamin D3 therapy...  You should be able to call your doctor&#39;s receptionist and ask for the results of your 25(OH)D lab test.&#60;br /&#62;&#60;br /&#62;10,000 IU/day vitamin D3 may not be enough, but again, you need the 25(OH)D results to know for sure if you&#39;re in the CH therapeutic range of 60-110 ng/mL.  &#60;br /&#62;&#60;br /&#62;We&#39;ve a growing number of CH&#39;ers who needed 15,000 to 20,000 IU/day vitamin D3 to have a favorable response.  Some of them were also using a weekly loading dose of 50,000 IU one day a week to speed up the process of elevating their 25(OH)D concentration...&#60;br /&#62;&#60;br /&#62;Calcium levels are only important if they&#39;re higher than normal indicating a possible vitamin D3 intoxication.  &#60;br /&#62;&#60;br /&#62;99% of the body&#39;s Ca2+ is present in bones&#60;br /&#62;1% is required for fertilization, vision, muscle contraction, nerve conduction, blood clotting, exocytosis, cell division and the activity of&#60;br /&#62;many enzymes and hormones.&#60;br /&#62;&#60;br /&#62;Accordingly, the biological processes behind calcium homeostasis are among the most powerful we have.  They maintain serum ionized calcium concentrations in a very narrow range of 4.1 to 5.2 mg/dL.  &#60;br /&#62;&#60;br /&#62;Any concentration out of that range, and our nerves cease to function properly.  Every else thing listed above fails to work properly or at all.  As long as there&#39;s sufficient calcium in the gut, all is well...  If there isn&#39;t enough, these processes take calcium from the bones...&#60;br /&#62;&#60;br /&#62;Low Plasma Calcium: stimulates PTH release, and PTH acts to resorb Ca2+ from the pool in bone and to enhance renal re-absorption of Ca2+&#60;br /&#62;&#60;br /&#62;High Plasma Calcium: stimulates calcitonin secretion from the thyroid which lowers plasma calcium by inhibiting bone resorption&#60;br /&#62;&#60;br /&#62;Parathyroid Hormone:&#60;br /&#62;  i) functions to raise plasma calcium via bone   &#60;br /&#62;  resorption and renal calcium reabsorption&#60;br /&#62;  ii) stimulates the metabolism of Vitamin D to its&#60;br /&#62;  active hormonal form,1,25(OH)2D3.&#60;br /&#62;&#60;br /&#62;The bottom line is endocrinologists and homeopathic physicians are better equipped to handle a vitamin D3 deficiency and interpret the associated lab results...  They&#39;re also a lot easier to see on short notice without a referral consult.&#60;br /&#62;&#60;br /&#62;Take care and please keep us posted.&#60;br /&#62;&#60;br /&#62;V/R, Batch&#60;/div&#62;</description>
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			<title>General Posts - Pharms</title>
			<link>http://www.clusterheadaches.com/cgi-bin/yabb2/YaBB.pl?num=1336664646/4#4</link>
			<category>New CH.com Forum/General Posts</category>
			<guid>http://www.clusterheadaches.com/cgi-bin/yabb2/YaBB.pl?num=1336664646/4#4</guid>
			<pubDate>Mon, 14 May 2012 15:28:16 GMT</pubDate>
			<description> &#60;b&#62;Quote:&#60;/b&#62;&#60;br /&#62;&#60;div&#62;Anyone else out there have good pharm experiences? &#60;/div&#62;&#60;br /&#62;&#60;br /&#62;NEVER. &#160;I am super happy that you did though. &#160;&#60;img src=&#34;http://www.clusterheadaches.com/yabbfiles/Templates/Forum/default/smiley.gif&#34; border=&#34;0&#34; alt=&#34;Smiley&#34; title=&#34;Smiley&#34; /&#62;</description>
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			<title>Cluster Headache Specific - Do you ever just tell people</title>
			<link>http://www.clusterheadaches.com/cgi-bin/yabb2/YaBB.pl?num=1336868204/11#11</link>
			<category>New CH.com Forum/Cluster Headache Specific</category>
			<guid>http://www.clusterheadaches.com/cgi-bin/yabb2/YaBB.pl?num=1336868204/11#11</guid>
			<pubDate>Mon, 14 May 2012 15:24:11 GMT</pubDate>
			<description>I&#39;d just like to add something to Jerry&#39;s slushie anaolgy. After he has that brain freeze...tell him the pain isn&#39;t going to go away in a few short mins. &#160;It will last anywhere from 1/2 hr. to 3 hours with an average durastion of 1 and a half hrs. &#160;Jerry put it at a KIP 4 or 5. &#160;A KIP 9 or 10...well, lets just say he&#39;ll be rolling on the floor begging &#160;you to put him out of his misery.</description>
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			<title>Medications,  Treatments,  Therapies - new here</title>
			<link>http://www.clusterheadaches.com/cgi-bin/yabb2/YaBB.pl?num=1336689418/6#6</link>
			<category>New CH.com Forum/Medications,  Treatments,  Therapies</category>
			<guid>http://www.clusterheadaches.com/cgi-bin/yabb2/YaBB.pl?num=1336689418/6#6</guid>
			<pubDate>Mon, 14 May 2012 14:07:29 GMT</pubDate>
			<description>I&#39;m more than a little concerned that the dr prescribed pills as an abortive for CHs. Pills are way too slow for us. Zomig comes in a nasal spray form, as does Migranal. And the injectable form of sumatriptan is the fastest of the drug abortives. The best abortive though hasn&#39;t been mentioned and that&#39;s Oxygen in 100% high flow (15lpm+) form. It is a safe and natural abortive that has saved my life. Coupled with an energy drink (Monster, Red Bull) it is extremely effective. Check out the link at the left. And I concur with getting your brother online himself. It&#39;s great you are trying to help him. God bless. lance</description>
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			<title>Getting to Know Ya - new to this site</title>
			<link>http://www.clusterheadaches.com/cgi-bin/yabb2/YaBB.pl?num=1336744765/2#2</link>
			<category>New CH.com Forum/Getting to Know Ya</category>
			<guid>http://www.clusterheadaches.com/cgi-bin/yabb2/YaBB.pl?num=1336744765/2#2</guid>
			<pubDate>Mon, 14 May 2012 13:59:13 GMT</pubDate>
			<description>Greetings! And welcome! &#160;You didn&#39;t mention how you were diagnosed and by whom. Was it a headache specialist? Usually a prevent is also prescribed but you only say you were given sumatripatans. There are other abortives out there to substitute, as Bob says, but I would encourage you to read the O2 link at the left. So many of us have found it not only reduces CH hits, it dramatically reduces the time it takes to abort a hit. Mine went from 45 minutes down to 2-3 minutes. And coupled with a Monster (or Red Bull) it often will last for several hours before I get hit again. If you have any questions about the above, just ask. Blessings. lance</description>
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			<title>Cluster Headache Specific - Tired</title>
			<link>http://www.clusterheadaches.com/cgi-bin/yabb2/YaBB.pl?num=1336448151/4#4</link>
			<category>New CH.com Forum/Cluster Headache Specific</category>
			<guid>http://www.clusterheadaches.com/cgi-bin/yabb2/YaBB.pl?num=1336448151/4#4</guid>
			<pubDate>Mon, 14 May 2012 05:28:07 GMT</pubDate>
			<description>Fatigue is a trigger..what a bitch.&#60;br /&#62;bb &#60;img src=&#34;http://www.clusterheadaches.com/yabbfiles/Templates/Forum/default/sad.gif&#34; border=&#34;0&#34; alt=&#34;Sad&#34; title=&#34;Sad&#34; /&#62;</description>
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			<title>Cluster Headache Specific - Sheets energy strips</title>
			<link>http://www.clusterheadaches.com/cgi-bin/yabb2/YaBB.pl?num=1334194477/55#55</link>
			<category>New CH.com Forum/Cluster Headache Specific</category>
			<guid>http://www.clusterheadaches.com/cgi-bin/yabb2/YaBB.pl?num=1334194477/55#55</guid>
			<pubDate>Sun, 13 May 2012 07:13:42 GMT</pubDate>
			<description>i have used caffiene alone for a long time before i got diagnosed. &#160;when i went to SFAS, i knew i couldnt bring my energy drinks or coffee with me, so i made a past out of guarana pills and caffiene pills. &#160;i got a tube of baby toothpaste, emptied it, and filled it with the paste i made from the pills. &#160;whenever i would go to sleep, i would act like i was brushing my teeth with my &#34;no-spit baby toothpaste&#34; and then try to quickly go to sleep before it started to kick in. &#160;since i was only getting a couple hours of sleep a night, i was usually tired enough to still fall asleep. &#160;&#60;br /&#62;&#60;br /&#62;after i got diagnosed, right before i went to iraq, i remembered the crushed pill paste thing working a lot faster than just taking a tablet as they are. &#160;i stocked up on taurine pills, caffiene pills, and guarana pills. &#160;before each mission, i would dissolve them in a small bottle and have that on my kit, just in case. &#160;it usually did the trick.&#60;br /&#62;&#60;br /&#62;what point am i getting at? &#160;&#60;br /&#62;i just found pills at walmart called &#34;stress tabs&#34;. &#160;they have about the same ingredients you would find in an energy drink, and you get 75 pills for about 6 dollars. &#160;im going to try dissolving a couple into some Kool Aid and see if i can make my own energy drink. &#160;&#60;br /&#62;&#60;br /&#62;for the cost, it might just be worth it. &#160;it would be far cheaper than Sheets, shots, or drinks.</description>
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			<title>Cluster Headache Specific - clusters AND migraines?</title>
			<link>http://www.clusterheadaches.com/cgi-bin/yabb2/YaBB.pl?num=1335361679/18#18</link>
			<category>New CH.com Forum/Cluster Headache Specific</category>
			<guid>http://www.clusterheadaches.com/cgi-bin/yabb2/YaBB.pl?num=1335361679/18#18</guid>
			<pubDate>Sat, 12 May 2012 16:27:19 GMT</pubDate>
			<description>&#60;b&#62;&#60;a href=&#34;http://www.clusterheadaches.com/cgi-bin/yabb2/YaBB.pl?num=1335361679/15#15&#34;&#62;E-Double wrote&#60;/a&#62; on May 7&#60;sup&#62;th&#60;/sup&#62;, 2012 at 10:34pm:&#60;/b&#62;&#60;br /&#62;&#60;div&#62;Chronic clusters, migraine, idiopathic stabbing HA, a variant of that and good old fashioned tensions.&#60;br /&#62;&#60;br /&#62;One can have multiple headache types and sometimes get them all at once.&#60;br /&#62;&#60;br /&#62;Grand old party in the brain &#60;/div&#62;&#60;br /&#62;Yep fun stuff &#60;img src=&#34;http://www.clusterheadaches.com/yabbfiles/Templates/Forum/default/cool.gif&#34; border=&#34;0&#34; alt=&#34;Cool&#34; title=&#34;Cool&#34; /&#62;</description>
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			<title>Cluster Headache Specific - Drunk</title>
			<link>http://www.clusterheadaches.com/cgi-bin/yabb2/YaBB.pl?num=1333809364/11#11</link>
			<category>New CH.com Forum/Cluster Headache Specific</category>
			<guid>http://www.clusterheadaches.com/cgi-bin/yabb2/YaBB.pl?num=1333809364/11#11</guid>
			<pubDate>Sat, 12 May 2012 16:24:17 GMT</pubDate>
			<description>It SUCKS! &#160;&#60;img src=&#34;http://www.clusterheadaches.com/yabbfiles/Templates/Forum/default/smiley.gif&#34; border=&#34;0&#34; alt=&#34;Smiley&#34; title=&#34;Smiley&#34; /&#62;</description>
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			<title>General Posts - Just one.....</title>
			<link>http://www.clusterheadaches.com/cgi-bin/yabb2/YaBB.pl?num=1336363743/6#6</link>
			<category>New CH.com Forum/General Posts</category>
			<guid>http://www.clusterheadaches.com/cgi-bin/yabb2/YaBB.pl?num=1336363743/6#6</guid>
			<pubDate>Sat, 12 May 2012 16:18:10 GMT</pubDate>
			<description> &#60;img src=&#34;http://www.clusterheadaches.com/yabbfiles/Templates/Forum/default/kiss.gif&#34; border=&#34;0&#34; alt=&#34;Kiss&#34; title=&#34;Kiss&#34; /&#62; next time neighbors</description>
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			<title>General Posts - Great weekend with a Clusterbud...</title>
			<link>http://www.clusterheadaches.com/cgi-bin/yabb2/YaBB.pl?num=1334583184/3#3</link>
			<category>New CH.com Forum/General Posts</category>
			<guid>http://www.clusterheadaches.com/cgi-bin/yabb2/YaBB.pl?num=1334583184/3#3</guid>
			<pubDate>Sat, 12 May 2012 16:16:24 GMT</pubDate>
			<description>Yay!</description>
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			<title>Cluster Headache Specific - Triggers during Prednisone time</title>
			<link>http://www.clusterheadaches.com/cgi-bin/yabb2/YaBB.pl?num=1336589978/4#4</link>
			<category>New CH.com Forum/Cluster Headache Specific</category>
			<guid>http://www.clusterheadaches.com/cgi-bin/yabb2/YaBB.pl?num=1336589978/4#4</guid>
			<pubDate>Sat, 12 May 2012 14:18:50 GMT</pubDate>
			<description>Thats for the data guys. &#60;br /&#62;&#60;br /&#62;Had an event last night and with my taper being 50mg currently I figured I&#39;d give it a try and have some drinks. I don&#39;t like explaining to people who know I drink, why I am not drinking. Not that it is any of anyone&#39;s business, but people make polite conversation so then I have to either answer politely the truth and go into it all and by now I&#39;m sick of it all and don&#39;t want to talk about it, or lie and I&#39;m not good at that.&#60;br /&#62;&#60;br /&#62;Anyways, I had a pretty good amount to drink and the beast stayed asleep! I must admit Joe that I &#160;was pretty nervous though as I started drinking that first drink!&#60;br /&#62;&#60;br /&#62;I also havce been doing the Batch D3 thingy for a week or so now and I had a little extra of that today, spaced out as well, for full disclosure.&#60;br /&#62;&#60;br /&#62;Now I know I can do like you do Lance and give myself a taper for a important event.</description>
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		<item>
			<title>Cluster Headache Specific - Problem getting O2</title>
			<link>http://www.clusterheadaches.com/cgi-bin/yabb2/YaBB.pl?num=1336777893/1#1</link>
			<category>New CH.com Forum/Cluster Headache Specific</category>
			<guid>http://www.clusterheadaches.com/cgi-bin/yabb2/YaBB.pl?num=1336777893/1#1</guid>
			<pubDate>Sat, 12 May 2012 04:54:47 GMT</pubDate>
			<description>Yes I have.What they are asking for is not uncommon. Your doc should have them or the insurance company. Here&#39;s an example for medicaid. They will approve it, the doc has to fill it out though. &#60;img src=&#34;http://www.clusterheadaches.com/yabbfiles/Templates/Forum/default/wink.gif&#34; border=&#34;0&#34; alt=&#34;Wink&#34; title=&#34;Wink&#34; /&#62;&#60;br /&#62;Multimedia File Viewing and Clickable Links are available for Registered Members only!! &#160;You need to &#60;a href=&#34;http://www.clusterheadaches.com/cgi-bin/yabb2/YaBB.pl?action=login;sesredir=num~1336777893&#34;&#62;&#60;img src=&#34;http://www.clusterheadaches.com/yabbfiles/Buttons/English/login.png&#34; alt=&#34;Login&#34; title=&#34;Login&#34; border=&#34;0&#34; /&#62;&#60;/a&#62; or &#60;a href=&#34;http://www.clusterheadaches.com/cgi-bin/yabb2/YaBB.pl?action=register&#34;&#62;&#60;img src=&#34;http://www.clusterheadaches.com/yabbfiles/Buttons/English/register.png&#34; alt=&#34;Register&#34; title=&#34;Register&#34; border=&#34;0&#34; /&#62;&#60;/a&#62;&#60;br /&#62;tachead</description>
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			<title>Medications,  Treatments,  Therapies - NEUROSTIMULATION: overview, 2012</title>
			<link>http://www.clusterheadaches.com/cgi-bin/yabb2/YaBB.pl?num=1336223681/2#2</link>
			<category>New CH.com Forum/Medications,  Treatments,  Therapies</category>
			<guid>http://www.clusterheadaches.com/cgi-bin/yabb2/YaBB.pl?num=1336223681/2#2</guid>
			<pubDate>Fri, 11 May 2012 20:30:20 GMT</pubDate>
			<description>Montefiore Headache Center in the Bronx, NY should be conducting trials for sphenopalatine ganglion neurostimulation this year. I chose to go for a less invasive procedure which has been unsuccessful so far.</description>
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			<title>Cluster Headache Specific - Two Cycles in quick succession</title>
			<link>http://www.clusterheadaches.com/cgi-bin/yabb2/YaBB.pl?num=1336757908/3#3</link>
			<category>New CH.com Forum/Cluster Headache Specific</category>
			<guid>http://www.clusterheadaches.com/cgi-bin/yabb2/YaBB.pl?num=1336757908/3#3</guid>
			<pubDate>Fri, 11 May 2012 19:59:50 GMT</pubDate>
			<description>Sorry, but we both walked into this one by surprise:&#60;br /&#62;&#60;br /&#62;J Headache Pain. 2005 Feb;6(1):3-9. Epub 2005 Jan 25. &#60;br /&#62; &#60;br /&#62;Chronic cluster headache: a review.&#60;br /&#62;&#60;br /&#62;Favier I, Haan J, Ferrari MD.&#60;br /&#62;&#60;br /&#62;&#60;br /&#62;Department of Neurology, K5-Q Leiden University Medical Centre, 9600, 2300 RC Leiden, The Netherlands.&#60;br /&#62;&#60;br /&#62;Cluster headache (CH) is a rare but severe headache disorder characterised by repeated unilateral head pain attacks accompanied by ipsilateral autonomic features. In episodic CH, there are periods of headache attacks with pain-free intervals of weeks, months or years in between. A minority of patients have the chronic form, without pain-free intervals between the headache attacks. Chronic CH can occur as primary or secondary chronic CH; the rarest form is episodic CH arising from chronic CH. In this article, we give a review of the chronic forms of CH and focus on demographics, clinical manifestations, social habits, predictive factors, head injury, genetics, neuroimaging and therapy. IT IS REMARKABLE THAT LITTLE IS KNOWN ABOUT RISK FACTORS THAT MAKE CH CHRONIC.&#60;br /&#62;&#60;br /&#62;Publication Types: &#60;br /&#62;Review&#60;br /&#62;&#60;br /&#62;PMID: 16362185 [PubMed] &#160;&#60;br /&#62;====&#60;br /&#62;&#60;br /&#62;More of the great unknown &#60;bg&#62;!</description>
		</item>
		<item>
			<title>Meetings and Gatherings - 1st Annual Choctaw Casino Meet n Greet</title>
			<link>http://www.clusterheadaches.com/cgi-bin/yabb2/YaBB.pl?num=1329705921/11#11</link>
			<category>New CH.com Forum/Meetings and Gatherings</category>
			<guid>http://www.clusterheadaches.com/cgi-bin/yabb2/YaBB.pl?num=1329705921/11#11</guid>
			<pubDate>Fri, 11 May 2012 19:40:14 GMT</pubDate>
			<description>Okay, so who actually showed up and how much fun did ya have???&#60;br /&#62;&#60;br /&#62;I probably would have driven over for the 18th, but just found out it was moved up and up. &#160;I was going to visit my brother in Dallas and my sister in Wichita. &#160;Oh well, maybe next time.&#60;br /&#62;&#60;br /&#62;Louise</description>
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			<title>Cluster Headache Specific - European Cluster Headache Survey</title>
			<link>http://www.clusterheadaches.com/cgi-bin/yabb2/YaBB.pl?num=1335899691/2#2</link>
			<category>New CH.com Forum/Cluster Headache Specific</category>
			<guid>http://www.clusterheadaches.com/cgi-bin/yabb2/YaBB.pl?num=1335899691/2#2</guid>
			<pubDate>Fri, 11 May 2012 17:49:29 GMT</pubDate>
			<description>What is the purpose of the study?&#60;br /&#62;&#60;br /&#62;Your participation in this Cluster Headache survey is for the benefit of yourself and other cluster headache patients. The study aims to evaluate the physical, emotional, socio-economic impact of cluster headaches as well as the disease-management satisfaction. The results will help to have a better understanding of cluster headache as a serious health problem and to assess the burden of cluster headache. The obtained information will contribute to evaluating the needs for an optimal disease management and ultimately improving cluster headache services and quality of life. The data will be used for publications in lay and scientific literature as well as reports to the European Commission&#60;br /&#62;&#60;br /&#62;More: Multimedia File Viewing and Clickable Links are available for Registered Members only!! &#160;You need to &#60;a href=&#34;http://www.clusterheadaches.com/cgi-bin/yabb2/YaBB.pl?action=login;sesredir=num~1335899691&#34;&#62;&#60;img src=&#34;http://www.clusterheadaches.com/yabbfiles/Buttons/English/login.png&#34; alt=&#34;Login&#34; title=&#34;Login&#34; border=&#34;0&#34; /&#62;&#60;/a&#62; or &#60;a href=&#34;http://www.clusterheadaches.com/cgi-bin/yabb2/YaBB.pl?action=register&#34;&#62;&#60;img src=&#34;http://www.clusterheadaches.com/yabbfiles/Buttons/English/register.png&#34; alt=&#34;Register&#34; title=&#34;Register&#34; border=&#34;0&#34; /&#62;&#60;/a&#62;&#60;br /&#62;</description>
		</item>
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			<title>Cluster Headache Specific - Cluster Headaches and Menopause</title>
			<link>http://www.clusterheadaches.com/cgi-bin/yabb2/YaBB.pl?num=1330397602/6#6</link>
			<category>New CH.com Forum/Cluster Headache Specific</category>
			<guid>http://www.clusterheadaches.com/cgi-bin/yabb2/YaBB.pl?num=1330397602/6#6</guid>
			<pubDate>Fri, 11 May 2012 14:32:24 GMT</pubDate>
			<description>I am in surgical menopause. TLH/RSO in Dec 2009. Before surgery my cycle had lasted from I think March 09-till surgery. My migraines AND CH have gotten worse. Now I had a LONG remission ok well 5 months? Then ended up in the ER &#160;05/2010 with a CH AND Migraine, they broke the Migraine but not the CH and sent me on my way to a Neuro in so much pain I could not walk oh but I had a sinus infection...NO NO NO...ug. &#60;br /&#62;&#60;br /&#62;I am not on HRT and am now 38. Now my mama. See she had surgery when she was 25 and the last ovary removed 7 yrs later. She was so suicidal she &#160;opted for that invasive surgery back in the 90&#39;s that packed you up with a 10% solution of cocaine, it worked for her. CH&#39;s gone/Migraines too. She stopped HRT a few years ago and is reaching natural menopause age and guess what? CH are back for her. So I don&#39;t understand the studies I read because I should be OUT of cycle and why is she BACK in cycle after &#160;almost 15 yrs?? Her Asthma came back too &#160;as she reached her natural menopausal time. &#60;br /&#62;&#60;br /&#62;&#60;br /&#62;For me as my reproductive system was dying the CH&#39;s got worse. The CH&#39;s were the herald that I was getting sicker back in 2008-09. In 2001 I had several cycles when they FIRST wanted to do the hysterectomy but I declined like a fool hoping I missed the genetic bullet. Nope. I remember my first cycle being in my early 20&#39;s like 21-22. I suddenly was unable to consume alcohol and I was like wtf I had no clue those headaches were CH&#39;s back then. That was my first concrete sign. All of these episodes coincided with reproductive issues. Surgery on ovaries(first surgery at age 19) and cysts and so forth. &#60;br /&#62;&#60;br /&#62;None of us ever had Endo. One side of the family has horrible cysts and necrosis and the other had major fibroids, some cancer as well. I got everything and something new. A Dermoid, no one on either side had one that we know of. &#60;br /&#62;&#60;br /&#62;I would like to see more studies on the link, if there is one. I am not even sure my grandma&#39;s had CH&#39;s or not. Migraines apparently but that&#39;s all I know. Every woman on both sides of my family loses their reproductive system. I lasted the longest at &#160;36 yrs old. I also didn&#39;t have any kids and should have had the surgery 6-8 yrs prior. </description>
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			<title>Cluster Headache Specific - Eyesight and CH?</title>
			<link>http://www.clusterheadaches.com/cgi-bin/yabb2/YaBB.pl?num=1336716786/3#3</link>
			<category>New CH.com Forum/Cluster Headache Specific</category>
			<guid>http://www.clusterheadaches.com/cgi-bin/yabb2/YaBB.pl?num=1336716786/3#3</guid>
			<pubDate>Fri, 11 May 2012 13:32:07 GMT</pubDate>
			<description>There is strikingly little medical literature on your question, surely no suggestion that Cluster is in a causal relationship with the eye.&#60;br /&#62;&#60;br /&#62;That Cluster pain so regularly presents as affecting the eye is associated with the complex of nerves which link the hypothalamus and the head, hence Cluster pain expeienced in the eyes, teeth, temple. But the hypothalamus is now accepted as the causal center of Cluster. &#60;br /&#62;&#60;br /&#62;This is the only article I have on file. Note the date.&#60;br /&#62;&#60;br /&#62;Med Clin North Am. 1991 May;75(3):693-706. &#160; &#60;br /&#62;&#60;br /&#62;&#60;br /&#62;Ophthalmologic aspects of headache.&#60;br /&#62;&#60;br /&#62;Tomsak RL.&#60;br /&#62;&#60;br /&#62;Case Western Reserve University School of Medicine, Cleveland, Ohio.&#60;br /&#62;&#60;br /&#62;Pain around the eye can be caused by local ophthalmic disorders or by disease of other structures sharing trigeminal nerve sensory innervation. In general, most ocular causes for pain also cause the eye to be red, thus alerting the examiner to the focality of the problem. However, conditions like eyestrain, intermittent angleclosure glaucoma or neovascular glaucoma, and low-grade intraocular inflammation can be painful and not be associated with obvious redness. Ocular signs and symptoms also occur with numerous other causes of headache. Double vision in association with periocular pain can result from orbital lesions, isolated cranial neuropathies, and cavernous sinus lesions. Pupillary abnormalities like Horner&#39;s syndrome may result from a variety of painful conditions, including cluster headache, parasellar neoplasms or aneurysms, internal carotid dissection or occlusion, and Tolosa-Hunt syndrome. Pain with a dilated and unreactive pupil may reflect a benign condition like Adie&#39;s syndrome or ophthalmoplegic migraine, or it may herald the presence of a life-threatening posterior communicating artery aneurysm. Headache and transient visual loss can be manifestations of classic migraine, or be symptoms of ocular hypoperfusion from ipsilateral internal carotid occlusion or increased intracranial pressure from pseudotumor cerebri. In a young patient, head pain with a fixed visual deficit may result from optic neuritis, in an older adult, temporal arteritis may be the culprit. &#60;br /&#62;&#60;br /&#62;OPHTHALMOLOGIC ASPECTS OF HEADACHE THUS ENCOMPASS PROBLEMS THAT RANGE FROM SIMPLE AND BENIGN TO COMPLEX AND FORMIDABLE.&#60;br /&#62;&#60;br /&#62;Publication Types: &#60;br /&#62;Review&#60;br /&#62;&#60;br /&#62;PMID: 2020223 [PubMed]&#60;br /&#62;</description>
		</item>
		<item>
			<title>Medications,  Treatments,  Therapies - Time for the 75-80% to stand up and be counted</title>
			<link>http://www.clusterheadaches.com/cgi-bin/yabb2/YaBB.pl?num=1212882305/691#691</link>
			<category>New CH.com Forum/Medications,  Treatments,  Therapies</category>
			<guid>http://www.clusterheadaches.com/cgi-bin/yabb2/YaBB.pl?num=1212882305/691#691</guid>
			<pubDate>Thu, 10 May 2012 19:39:00 GMT</pubDate>
			<description>It wont.&#60;br /&#62;tachead</description>
		</item>
		<item>
			<title>Medications,  Treatments,  Therapies - WHY don&#39;t we pay attention to this?</title>
			<link>http://www.clusterheadaches.com/cgi-bin/yabb2/YaBB.pl?num=1228226896/431#431</link>
			<category>New CH.com Forum/Medications,  Treatments,  Therapies</category>
			<guid>http://www.clusterheadaches.com/cgi-bin/yabb2/YaBB.pl?num=1228226896/431#431</guid>
			<pubDate>Thu, 10 May 2012 04:07:53 GMT</pubDate>
			<description>Hey Dennis. Interesting. So how much to you attribute to the gel? I&#39;ve got some experience with the gel and shots and I can say for sure to get the same effect from the gel as the shots you&#39;d have to bathe in the stuff, but I got some lying around so if you say it works in a fairly certain way I&#39;d start rubbin it back on.&#60;br /&#62;&#60;br /&#62;If its the gel you use you probably rub it on your shoulders, back of your arms, and other hairless areas. How do you get it so your shirt goest stick to it!?!?!?!? &#160;&#60;img src=&#34;http://www.clusterheadaches.com/yabbfiles/Templates/Forum/default/angry.gif&#34; border=&#34;0&#34; alt=&#34;Angry&#34; title=&#34;Angry&#34; /&#62; &#60;img src=&#34;http://www.clusterheadaches.com/yabbfiles/Templates/Forum/default/cheesy.gif&#34; border=&#34;0&#34; alt=&#34;Cheesy&#34; title=&#34;Cheesy&#34; /&#62;</description>
		</item>
		<item>
			<title>Medications,  Treatments,  Therapies - My pharmacist ordered viles of imitrex...</title>
			<link>http://www.clusterheadaches.com/cgi-bin/yabb2/YaBB.pl?num=1333330296/5#5</link>
			<category>New CH.com Forum/Medications,  Treatments,  Therapies</category>
			<guid>http://www.clusterheadaches.com/cgi-bin/yabb2/YaBB.pl?num=1333330296/5#5</guid>
			<pubDate>Thu, 10 May 2012 01:01:14 GMT</pubDate>
			<description>My pharmacy switched from StatDose to vials on request without having to call my Neuro. &#160;Now when I get refills they automatically order vials &#160;&#60;img src=&#34;http://www.clusterheadaches.com/yabbfiles/Templates/Forum/default/cool.gif&#34; border=&#34;0&#34; alt=&#34;Cool&#34; title=&#34;Cool&#34; /&#62;&#60;br /&#62;&#60;br /&#62;-Dennis-&#60;br /&#62;</description>
		</item>
		<item>
			<title>Cluster Headache Specific - Out of cycle prevents.</title>
			<link>http://www.clusterheadaches.com/cgi-bin/yabb2/YaBB.pl?num=1336438485/7#7</link>
			<category>New CH.com Forum/Cluster Headache Specific</category>
			<guid>http://www.clusterheadaches.com/cgi-bin/yabb2/YaBB.pl?num=1336438485/7#7</guid>
			<pubDate>Thu, 10 May 2012 00:35:17 GMT</pubDate>
			<description>I have been staying on the verapamipil and topamax all the time. Seems like if I don&#39;t the headaches come back so I guess I am chronic. </description>
		</item>
		<item>
			<title>Meetings and Gatherings - CH Conference in Vegas - Registration Now Open</title>
			<link>http://www.clusterheadaches.com/cgi-bin/yabb2/YaBB.pl?num=1336431466/1#1</link>
			<category>New CH.com Forum/Meetings and Gatherings</category>
			<guid>http://www.clusterheadaches.com/cgi-bin/yabb2/YaBB.pl?num=1336431466/1#1</guid>
			<pubDate>Wed, 9 May 2012 23:41:56 GMT</pubDate>
			<description>All set. &#160;Flight, Hotel &#38; Registration.&#60;br /&#62;In Thursday, Out Sunday.</description>
		</item>
		<item>
			<title>Technical Problems for the Webmaster - After posting messages, they disappear!</title>
			<link>http://www.clusterheadaches.com/cgi-bin/yabb2/YaBB.pl?num=1336499447/3#3</link>
			<category>New CH.com Forum/Technical Problems for the Webmaster</category>
			<guid>http://www.clusterheadaches.com/cgi-bin/yabb2/YaBB.pl?num=1336499447/3#3</guid>
			<pubDate>Wed, 9 May 2012 22:27:23 GMT</pubDate>
			<description>Hey Mike, it&#39;s just happening here, although it hasn&#39;t happened today.  It&#39;s entirely possible I was doing something wrong and just didn&#39;t notice.   &#60;img src=&#34;http://www.clusterheadaches.com/yabbfiles/Templates/Forum/default/rolleyes.gif&#34; border=&#34;0&#34; alt=&#34;Roll Eyes&#34; title=&#34;Roll Eyes&#34; /&#62;  I mean, just because I work for Apple doesn&#39;t mean I&#39;m immune to doing dumb things occasionally. LOL.  I&#39;ll keep ya posted if the issue persists, and thanks for the response!</description>
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