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		<title>50 most Recent Topics - New CH.com Forum</title>
		<link>http://www.clusterheadaches.com/cgi-bin/yabb2/YaBB.pl?catselect=newmain</link>
		<description>New CH.com Forum</description>
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		<copyright>New CH.com Forum</copyright>
		<lastBuildDate>Mon, 20 May 2013 16:05:29 GMT</lastBuildDate>
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		<ttl>30</ttl>
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			<title>Medications,  Treatments,  Therapies - Any new treatments that are working? Been 1.5 yrs</title>
			<link>http://www.clusterheadaches.com/cgi-bin/yabb2/YaBB.pl?num=1369055378/8#8</link>
			<category>New CH.com Forum/Medications,  Treatments,  Therapies</category>
			<guid>http://www.clusterheadaches.com/cgi-bin/yabb2/YaBB.pl?num=1369055378/8#8</guid>
			<pubDate>Mon, 20 May 2013 15:08:44 GMT</pubDate>
			<description>&#60;b&#62;&#60;a href=&#34;http://www.clusterheadaches.com/cgi-bin/yabb2/YaBB.pl?num=1369055378/6#6&#34;&#62;Brew wrote&#60;/a&#62; on &#60;b&#62;Today&#60;/b&#62; at 10:49am:&#60;/b&#62;&#60;br /&#62;&#60;div&#62;You don&#39;t list any dosages or adjuncts that were taken with the D3.&#60;br /&#62;&#60;br /&#62;Sorry, I can&#39;t be of much help. &#60;/div&#62;&#60;br /&#62;&#60;br /&#62;&#60;br /&#62;Exactly! &#160;Chances are he was not taking the vitamin regimen EXACTLY as Batch suggested. &#160;It&#39;s certainly worth giving it another try. &#160;Might even get himself a test of his 25(OH)D levels just to confirm where he&#39;s at on the D scale. &#160;&#60;br /&#62;&#60;br /&#62;I&#39;ve learned the hard way, that a slight deviation of co-factors may prevent one from achieving success with this regimen. &#160;Example would be taking all of the ingredients of this vitamin regimen not just D3. &#160;Or taking Citrate form of Calcium or Magnesium opposed to Oxide form due to the bioavailability issue. &#160;Again, trial and error.&#60;br /&#62;&#60;br /&#62;Hang in there Lori, we&#39;ll educate you soon enough so you can get your husband hopefully feeling better soon.&#60;br /&#62;&#60;br /&#62;-Gregg in Las Vegas</description>
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			<title>Medications,  Treatments,  Therapies - 123 Days PF And I Think I know Why</title>
			<link>http://www.clusterheadaches.com/cgi-bin/yabb2/YaBB.pl?num=1291969416/1421#1421</link>
			<category>New CH.com Forum/Medications,  Treatments,  Therapies</category>
			<guid>http://www.clusterheadaches.com/cgi-bin/yabb2/YaBB.pl?num=1291969416/1421#1421</guid>
			<pubDate>Mon, 20 May 2013 13:59:36 GMT</pubDate>
			<description>I find it frustrating not knowing the true potency of the vitamins considering FDA does not regulate. &#160; &#60;br /&#62;&#60;br /&#62;Unless one gets repeat tested, it&#39;s all speculation how good it truly is. &#160;With that stated, I prefer to pay a bit extra for reputable name brands that have been around for 20+ years. &#160; &#60;br /&#62;&#60;br /&#62;-Gregg in Las Vegas</description>
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		<item>
			<title>Getting to Know Ya - Hello from new member</title>
			<link>http://www.clusterheadaches.com/cgi-bin/yabb2/YaBB.pl?num=1368392478/2#2</link>
			<category>New CH.com Forum/Getting to Know Ya</category>
			<guid>http://www.clusterheadaches.com/cgi-bin/yabb2/YaBB.pl?num=1368392478/2#2</guid>
			<pubDate>Mon, 20 May 2013 11:14:21 GMT</pubDate>
			<description>Welcome to the board, what part of this world you hail from? You have a decent doc who understands headaches? An effective treatment regimen? Glad you stuck your head in hope we can help ya &#160;abit.&#60;br /&#62;&#60;br /&#62;Joe</description>
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			<title>Cluster Headache Specific - Cluster Headaches.... They KNOW!</title>
			<link>http://www.clusterheadaches.com/cgi-bin/yabb2/YaBB.pl?num=1368354307/5#5</link>
			<category>New CH.com Forum/Cluster Headache Specific</category>
			<guid>http://www.clusterheadaches.com/cgi-bin/yabb2/YaBB.pl?num=1368354307/5#5</guid>
			<pubDate>Mon, 20 May 2013 10:01:47 GMT</pubDate>
			<description>If I miss a dose of verapamil, I&#39;m sure to pay in pain. It doesn&#39;t happen very often, maybe once or twice a year because the consequences are so severe.</description>
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		<item>
			<title>Cluster Headache Specific - shadows? and pain perception</title>
			<link>http://www.clusterheadaches.com/cgi-bin/yabb2/YaBB.pl?num=1363214830/13#13</link>
			<category>New CH.com Forum/Cluster Headache Specific</category>
			<guid>http://www.clusterheadaches.com/cgi-bin/yabb2/YaBB.pl?num=1363214830/13#13</guid>
			<pubDate>Mon, 20 May 2013 08:26:58 GMT</pubDate>
			<description>In Nigel&#39;s post he gives a very good description of a shadow. It&#39;s more a warning of what&#39;s to come without the full intensity of the pain. There are also a lot of us lefties out there, although for some it changes from cycle to cycle. I&#39;ve been a member of the sinister gang for about 30 years. There is a post on the site with the results of a headache survey that will give you a lot of information, too. Good luck taming the beast.</description>
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			<title>Cluster Headache Specific - A Discription of Shadows</title>
			<link>http://www.clusterheadaches.com/cgi-bin/yabb2/YaBB.pl?num=1311476333/15#15</link>
			<category>New CH.com Forum/Cluster Headache Specific</category>
			<guid>http://www.clusterheadaches.com/cgi-bin/yabb2/YaBB.pl?num=1311476333/15#15</guid>
			<pubDate>Mon, 20 May 2013 08:20:53 GMT</pubDate>
			<description>Who knows what evil lurks within the hearts of men? The Shadow knows! He also knows what evil he can inflict on the heads of men (and women). Your description is right on, and its meaning is all too clear -- here comes trouble. Sorry to hear about the door incident. It seems sometimes one pain doesn&#39;t distract from another, but adds to the aggravation.</description>
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			<title>Getting to Know Ya - Cervicogenic headache, Cluster, both? opinions</title>
			<link>http://www.clusterheadaches.com/cgi-bin/yabb2/YaBB.pl?num=1369016857/2#2</link>
			<category>New CH.com Forum/Getting to Know Ya</category>
			<guid>http://www.clusterheadaches.com/cgi-bin/yabb2/YaBB.pl?num=1369016857/2#2</guid>
			<pubDate>Mon, 20 May 2013 05:38:34 GMT</pubDate>
			<description>Hi and welcome&#60;br /&#62;&#60;br /&#62;Trying to answer the questions I can...&#60;br /&#62;&#60;br /&#62;What you describe does sound like it could be CH, but as always, we can not give you a diagnosis as this needs an experienced medical professional to do the diagnosis based on medical tests to rule out other causes.&#60;br /&#62;&#60;br /&#62;It is perfectly possible that you have more than one headache type with quite a few people here collecting them. The CH / migraine combination is the most common (including me) but others are possible. Factors like this can make it hard to get a diagnosis as the multiple different symptoms can confuse doctors not experienced in this area (which is why we suggest people see a headache specialist).&#60;br /&#62;&#60;br /&#62;You&#39;ve been waiting forever to see a neurologist. What I would do is to call them often to see if you can get a cancellation instead of the endless waiting for your scheduled appointment. You might just get lucky and get one sooner.&#60;br /&#62;&#60;br /&#62;It also amazes me that neurologists who know how painful CH can be can let CH / probable CH patients wait so long.&#60;br /&#62;&#60;br /&#62;The help from a massage confuses things as it isn&#39;t something which normally helps a CH. But if you have multiple headache types or another headache type other than CH it might explain things (see how it can get confusing).&#60;br /&#62;&#60;br /&#62;CH triggers tend to be things like alcohol (for most), seasonal (spring / fall are popular times for cycles to start), solvents, with some also finding things like being tired, hungry, changes in stress, nitrates also triggering CHs.&#60;br /&#62;&#60;br /&#62;Cigarettes are interesting in relation to CH. The majority of people with CH smoke (I&#39;ve heard figures of around 70%) but it is unknown if smoking causes CH or people with CH are more likely to smoke or something else.&#60;br /&#62;&#60;br /&#62;I can&#39;t really answer anything on cervicogenic headaches as I&#39;ve no experience of them.&#60;br /&#62;&#60;br /&#62;Hope this helps...</description>
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		<item>
			<title>Getting to Know Ya - Trying to do as much research as possible...</title>
			<link>http://www.clusterheadaches.com/cgi-bin/yabb2/YaBB.pl?num=1368973653/8#8</link>
			<category>New CH.com Forum/Getting to Know Ya</category>
			<guid>http://www.clusterheadaches.com/cgi-bin/yabb2/YaBB.pl?num=1368973653/8#8</guid>
			<pubDate>Mon, 20 May 2013 03:08:52 GMT</pubDate>
			<description>Hi Joe,&#60;br /&#62;Thanks for that link. After reading that, i must be one of the odd&#60;br /&#62;ones out. My eyes are green and my attacks were always at the&#60;br /&#62;same time, in the morning then in the afternoon, with the odd&#60;br /&#62;one waking me during the night,and are always on the right.&#60;br /&#62;They are certainly right on alcohol. Beer and red wine are two&#60;br /&#62;of the main culprits in triggering CH episodes.&#60;br /&#62;</description>
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			<title>Medications,  Treatments,  Therapies - &#160;D3 Whooo Hoooo!</title>
			<link>http://www.clusterheadaches.com/cgi-bin/yabb2/YaBB.pl?num=1351967224/71#71</link>
			<category>New CH.com Forum/Medications,  Treatments,  Therapies</category>
			<guid>http://www.clusterheadaches.com/cgi-bin/yabb2/YaBB.pl?num=1351967224/71#71</guid>
			<pubDate>Sun, 19 May 2013 15:40:23 GMT</pubDate>
			<description>Just went through a week where I got hit 5 days in a row after switching D3 brands to a cheaper discount brand and paid for it after 191 days CH free on the regimen.&#60;br /&#62; I have seen that there have been some tests done in Europe on different brands of D3 and some are grossly deficient in the actual amount of D3 in them. My recommendation is to use a reputable brand such as Batches recommended &#34;Kirkland&#34; brand from Costco or I take &#34;Natures Made&#34; brand and &#34;GNC&#34; is another good one that comes to mind as i know several folks using it with good results. &#60;br /&#62;The brand I switched to that was obviously deficient was &#34;Rite aid&#34; brand but may have just been a fluke?? I don&#39;t know for sure but about 8 days after switching from Natures made to the Rite aid brand is when I got hit.&#60;br /&#62; I had the opportunity to bust so i did and have been CH free for a week now and have not restarted the D3 regimen to see if it was the busting that worked and it appears that the busting has worked and I am going to give it some time to see if the CH free effects will continue but have all intentions to continue the D3 regimen for the great benefits that it has regardless of being CH free as I have no doubt that the regimen will continue to keep me CH free and feeling good!...&#60;img src=&#34;http://www.clusterheadaches.com/yabbfiles/Templates/Forum/default/wink.gif&#34; border=&#34;0&#34; alt=&#34;Wink&#34; title=&#34;Wink&#34; /&#62;</description>
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			<title>Getting to Know Ya - I&#39;m Back...</title>
			<link>http://www.clusterheadaches.com/cgi-bin/yabb2/YaBB.pl?num=1368927561/3#3</link>
			<category>New CH.com Forum/Getting to Know Ya</category>
			<guid>http://www.clusterheadaches.com/cgi-bin/yabb2/YaBB.pl?num=1368927561/3#3</guid>
			<pubDate>Sun, 19 May 2013 14:41:29 GMT</pubDate>
			<description>1. Are you seeing a qualified doc, one who has experience in treating complex headache disorders? If not, relying on our guesses is not the route to relief.&#60;br /&#62;&#60;br /&#62;2. It&#39;s possible that an increase in Verap would help but, again a decision to be made my a competent doc.&#60;br /&#62;&#60;br /&#62;3. The nasal spray version is the least reliable form and, if you delay using it until the attack has fully developed and/or gone on for some time before using it, will assure failure.&#60;br /&#62;&#60;br /&#62;4. Until you are using your present treatments effectively, changing treatments may only be walking away from meds which have been partly effective. Reconsidering your dosing and technique would be a wiser firs step.</description>
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			<title>Cluster Headache Specific - What could CH&#39;s be similar to?</title>
			<link>http://www.clusterheadaches.com/cgi-bin/yabb2/YaBB.pl?num=1368778466/5#5</link>
			<category>New CH.com Forum/Cluster Headache Specific</category>
			<guid>http://www.clusterheadaches.com/cgi-bin/yabb2/YaBB.pl?num=1368778466/5#5</guid>
			<pubDate>Sun, 19 May 2013 14:10:46 GMT</pubDate>
			<description>You could very well be experiencing a form of cluster-lite, if there is such a thing. Do know this, however- you will know if you get hit with a K-9 or K-10. Here&#39;s hoping that you never do &#60;img src=&#34;http://www.clusterheadaches.com/yabbfiles/Templates/Forum/default/wink.gif&#34; border=&#34;0&#34; alt=&#34;Wink&#34; title=&#34;Wink&#34; /&#62;</description>
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			<title>Getting to Know Ya - Hi all!</title>
			<link>http://www.clusterheadaches.com/cgi-bin/yabb2/YaBB.pl?num=1368899574/3#3</link>
			<category>New CH.com Forum/Getting to Know Ya</category>
			<guid>http://www.clusterheadaches.com/cgi-bin/yabb2/YaBB.pl?num=1368899574/3#3</guid>
			<pubDate>Sun, 19 May 2013 13:35:45 GMT</pubDate>
			<description>Welcome to the board Kemi. Is your husband working with a headache specialist neuro yet? We have seen the best results from doing so. As Bob mentioned, there are hundreds of headache types, some which mimic CH, and it’s important to eliminate those before arriving at a firm diagnosis. I’ve had CH for over 35years, they haven’t killed me yet! You need an organized approach to managing them so they don’t manage your life. I use a 3 pronged approach, many use a similar approach. But first and MOST IMPORTANTLY&#60;br /&#62;&#60;br /&#62;Follow this link to the medications section of this board and read the post &#160;&#60;br /&#62;&#60;br /&#62;Multimedia File Viewing and Clickable Links are available for Registered Members only!! &#160;You need to &#60;a href=&#34;http://www.clusterheadaches.com/cgi-bin/yabb2/YaBB.pl?action=login;sesredir=num~1368899574&#34;&#62;&#60;img src=&#34;http://www.clusterheadaches.com/yabbfiles/Buttons/English/login.png&#34; alt=&#34;Login&#34; title=&#34;Login&#34; border=&#34;0&#34; /&#62;&#60;/a&#62; or &#60;a href=&#34;http://www.clusterheadaches.com/cgi-bin/yabb2/YaBB.pl?action=register&#34;&#62;&#60;img src=&#34;http://www.clusterheadaches.com/yabbfiles/Buttons/English/register.png&#34; alt=&#34;Register&#34; title=&#34;Register&#34; border=&#34;0&#34; /&#62;&#60;/a&#62;&#60;br /&#62;&#60;br /&#62; It’s a vitamin/mineral/fish oil supplement, all over the counter stuff. It’s up to an 81% success rate of those who try it and respond to the survey so you’re just shooting yourself in the foot if you don’t give it a shot. I’m 3 years pain free on it after a 35 plus year track record with episodic CH. Best of all, it’s healthy for you even without CH!&#60;br /&#62;&#60;br /&#62;&#60;i&#62;As of January 20, 2013, the compiled raw data indicates an efficacy of 80%. 240 out of the 300 CH&#39;ers who have started this regimen and stayed on it for a month or more have experienced a significant reduction in the frequency and severity of their CH... 78% of the 300 CH&#39;ers experienced a pain free response and 60% of the 300 have remained essentially pain free. Episodic and chronic CH&#39;ers respond to this regimen at roughly the same rate.&#60;br /&#62;&#60;br /&#62;Preliminary survey results indicate most of these CH&#39;ers were pain free before the end of the third week with some responding in a little as 12 to 24 hours. The average time to respond is five days&#60;/i&#62;&#60;br /&#62;&#60;br /&#62;So all that follows will be worthless I hope……….but still…&#60;br /&#62;&#60;br /&#62;1: A good prevent med. A med I take daily, while on cycle, to reduce the number and intensity of my attacks. I use lithium, it blocks 60-70% of my attack. Verapamil is the most common first line prevent, topomax also has a loyal following. Some have to combine lithium and verapamil together to get relief.&#60;br /&#62;&#60;br /&#62;2: A transitional med. Most prevents will take up to 2 weeks to become effective. I go on a prednisone taper, from 80 mg to zero over a two week period to give me a break while my prevent builds up. Prednisone will provide up to 100% relief for many CH’ers but is harsh on the system and should only be used for short periods of time. &#60;br /&#62;&#60;br /&#62;3: An abortive therapy, the attack starts, now what? Oxygen should be your first line abortive. Breathing pure 02 will abort an attack for me in less then 10 minutes, that’s completely pain free. Read this link as it must be used correctly or it will not work&#60;br /&#62;&#60;br /&#62;Multimedia File Viewing and Clickable Links are available for Registered Members only!! &#160;You need to &#60;a href=&#34;http://www.clusterheadaches.com/cgi-bin/yabb2/YaBB.pl?action=login;sesredir=num~1368899574&#34;&#62;&#60;img src=&#34;http://www.clusterheadaches.com/yabbfiles/Buttons/English/login.png&#34; alt=&#34;Login&#34; title=&#34;Login&#34; border=&#34;0&#34; /&#62;&#60;/a&#62; or &#60;a href=&#34;http://www.clusterheadaches.com/cgi-bin/yabb2/YaBB.pl?action=register&#34;&#62;&#60;img src=&#34;http://www.clusterheadaches.com/yabbfiles/Buttons/English/register.png&#34; alt=&#34;Register&#34; title=&#34;Register&#34; border=&#34;0&#34; /&#62;&#60;/a&#62;&#60;br /&#62;&#60;br /&#62;This link will show you how to get set up with welding oxygen:&#60;br /&#62;&#60;br /&#62;Multimedia File Viewing and Clickable Links are available for Registered Members only!! &#160;You need to &#60;a href=&#34;http://www.clusterheadaches.com/cgi-bin/yabb2/YaBB.pl?action=login;sesredir=num~1368899574&#34;&#62;&#60;img src=&#34;http://www.clusterheadaches.com/yabbfiles/Buttons/English/login.png&#34; alt=&#34;Login&#34; title=&#34;Login&#34; border=&#34;0&#34; /&#62;&#60;/a&#62; or &#60;a href=&#34;http://www.clusterheadaches.com/cgi-bin/yabb2/YaBB.pl?action=register&#34;&#62;&#60;img src=&#34;http://www.clusterheadaches.com/yabbfiles/Buttons/English/register.png&#34; alt=&#34;Register&#34; title=&#34;Register&#34; border=&#34;0&#34; /&#62;&#60;/a&#62;&#60;br /&#62;&#60;br /&#62;Imitrex nasal spray and injectables are very effective abortives. I use the injectables, they’re expensive, and I rarely use them, mostly just when I get caught away from the oxygen. The pill form generally works too slow to be effective for CH’ers. &#60;br /&#62;&#60;br /&#62;&#60;br /&#62;For now, get some energy drinks. Rock Star, Monster, any containing the combo of caffeine and taurine, have him chug it down as fast as he can when he feels an attack starting. Many can abort or at least really reduce an attack using these.&#60;br /&#62;&#60;br /&#62;Finally, visit our sister board for “alternative” treatment methods outside of mainstream medicine. As you’ll see from all the success stories on this board, there is something to it.&#60;br /&#62;&#60;br /&#62;clusterbusters.com&#60;br /&#62;&#60;br /&#62;&#60;br /&#62;Bless your heart for being a supporter. My wife found the original CH streaming board many many years ago and saved my sanity! You supporters have a special place in our hearts. Read everything you can on this board, if your husband is a CH’er, knowledge is your best ally. We’ll help you all we can.&#60;br /&#62;&#60;br /&#62;Joe&#60;br /&#62;</description>
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			<title>Cluster Headache Specific - Feel Hungover during day after headaches at night?</title>
			<link>http://www.clusterheadaches.com/cgi-bin/yabb2/YaBB.pl?num=1357234272/29#29</link>
			<category>New CH.com Forum/Cluster Headache Specific</category>
			<guid>http://www.clusterheadaches.com/cgi-bin/yabb2/YaBB.pl?num=1357234272/29#29</guid>
			<pubDate>Sun, 19 May 2013 10:12:48 GMT</pubDate>
			<description>The hung-over (or strung-out) feeling, as you can see from the numerous posts in this thread, is fairly common among CH sufferers. In addition to the fatigue and malaise I can get tenderness on the skin where the headache was. In a very severe hit, I can be tender for days after. These things are nasty business, as your long and hard experience tells you. They are physical and mentally exhausting, not matter what kind of physical condition you&#39;re in. The good news is there are some good tips to minimize the damage and even eliminate some hits. Good luck.</description>
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			<title>Getting to Know Ya - Hello Everyone - Thank God I&#39;m not alone!</title>
			<link>http://www.clusterheadaches.com/cgi-bin/yabb2/YaBB.pl?num=1368163983/7#7</link>
			<category>New CH.com Forum/Getting to Know Ya</category>
			<guid>http://www.clusterheadaches.com/cgi-bin/yabb2/YaBB.pl?num=1368163983/7#7</guid>
			<pubDate>Sun, 19 May 2013 09:33:31 GMT</pubDate>
			<description>Keep your head up Rod, your journey with the Beast is just beginning. for some it&#39;s easier than others. Sounds like you&#39;re having a really rough time. I hope it eases off for you sooner, rather than later. You are most definitely not alone. There are tens of us. lol We&#39;re a rare breed, but we fight hard. There is always new information coming to light and even though not a lot of resources get expended trying to solve our condition, there are some out there working to end the dance. It seems like you have some good support and that is worth a lot. Good luck and God bless.</description>
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			<title>Cluster Headache Specific - New Cycle After Experience</title>
			<link>http://www.clusterheadaches.com/cgi-bin/yabb2/YaBB.pl?num=1368734515/3#3</link>
			<category>New CH.com Forum/Cluster Headache Specific</category>
			<guid>http://www.clusterheadaches.com/cgi-bin/yabb2/YaBB.pl?num=1368734515/3#3</guid>
			<pubDate>Sun, 19 May 2013 00:01:38 GMT</pubDate>
			<description>Hi Elizabeth&#60;br /&#62;&#60;br /&#62;I agree with what Joe and Bob have posted.&#60;br /&#62;&#60;br /&#62;CH can change with some people having sides switch or even the position on one side change. I know it freaked me out the first time that happened as it took me out of my comfort zone. Similarly it isn&#39;t unusual to find what worked one cycle doesn&#39;t work as well the next.&#60;br /&#62;&#60;br /&#62;However any time there is a significant change it is always best to seek expert advice. It is probably nothing, but well worth validating that.&#60;br /&#62;</description>
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			<title>Medications,  Treatments,  Therapies - How to hack a prefilled Imitrex injector?</title>
			<link>http://www.clusterheadaches.com/cgi-bin/yabb2/YaBB.pl?num=1368904379/0#0</link>
			<category>New CH.com Forum/Medications,  Treatments,  Therapies</category>
			<guid>http://www.clusterheadaches.com/cgi-bin/yabb2/YaBB.pl?num=1368904379/0#0</guid>
			<pubDate>Sat, 18 May 2013 19:12:59 GMT</pubDate>
			<description>I haven&#39;t had a cluster cycle for over 2 years and 2 weeks ago super happy clustertime hit me like a grand piano from a hot air balloon. &#160;I&#39;m used to the Imitrex injections in that grey case that come 2 per cartridge where I can pull them out with my fingernails and inject half of it with a qtip (because you only really need half, and insurance only gives you a quarter of what you need at a time anyway).&#60;br /&#62;&#60;br /&#62;So I just filled my new prescription for Imitrex and Whiskey Tango FoxTrot, tower, what are these new pre-filled syringes from Caraco? &#160;The plastic shell looks solid, and I can&#39;t get at the little glass vial inside without somehow dismantling the plastic, and not having done this to this particular device before, I&#39;m a little afraid of breaking something I shouldn&#39;t. &#160;I don&#39;t exactly have an unlimited supply of this magic sauce.&#60;br /&#62;&#60;br /&#62;Has anyone hacked one of these magic wands open?&#60;br /&#62;&#60;br /&#62;- Barry&#60;br /&#62;&#60;br /&#62;</description>
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			<title>Getting to Know Ya - Hi, I&#39;m new. Thought I&#39;d start off this way.</title>
			<link>http://www.clusterheadaches.com/cgi-bin/yabb2/YaBB.pl?num=1368677815/12#12</link>
			<category>New CH.com Forum/Getting to Know Ya</category>
			<guid>http://www.clusterheadaches.com/cgi-bin/yabb2/YaBB.pl?num=1368677815/12#12</guid>
			<pubDate>Fri, 17 May 2013 21:43:30 GMT</pubDate>
			<description>Tornados... Hurricanes... oil spills... it&#39;s home though. &#160;Thanks</description>
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		<item>
			<title>Getting to Know Ya - Umm, hi :)</title>
			<link>http://www.clusterheadaches.com/cgi-bin/yabb2/YaBB.pl?num=1368731958/3#3</link>
			<category>New CH.com Forum/Getting to Know Ya</category>
			<guid>http://www.clusterheadaches.com/cgi-bin/yabb2/YaBB.pl?num=1368731958/3#3</guid>
			<pubDate>Fri, 17 May 2013 12:34:40 GMT</pubDate>
			<description>Okay, here we go: once more into the breach, dear friends! Have you been diagnosed by a &#60;u&#62;competent&#60;/u&#62; headache specialist? You do not say so. If you have, what meds were you given for prevention and abort? This might tell us a great deal about your doc and also steer us in a good direction for sharing methods and meds that do work. We might be able to help, we can certainly listen and empathize. But you and we both need more info. God bless. lance</description>
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			<title>Medications,  Treatments,  Therapies - Caffeine</title>
			<link>http://www.clusterheadaches.com/cgi-bin/yabb2/YaBB.pl?num=1367291218/11#11</link>
			<category>New CH.com Forum/Medications,  Treatments,  Therapies</category>
			<guid>http://www.clusterheadaches.com/cgi-bin/yabb2/YaBB.pl?num=1367291218/11#11</guid>
			<pubDate>Fri, 17 May 2013 11:46:18 GMT</pubDate>
			<description>&#60;b&#62;&#60;a href=&#34;http://www.clusterheadaches.com/cgi-bin/yabb2/YaBB.pl?num=1367291218/9#9&#34;&#62;JasonD wrote&#60;/a&#62; on May 8&#60;sup&#62;th&#60;/sup&#62;, 2013 at 11:46pm:&#60;/b&#62;&#60;br /&#62;&#60;div&#62;He said he has seen it be fairly common for people with CHS to also have RLS. &#160;&#60;/div&#62;&#60;br /&#62;&#60;br /&#62;I would ask him where he heard this...&#60;br /&#62;&#60;br /&#62;Multimedia File Viewing and Clickable Links are available for Registered Members only!! &#160;You need to &#60;a href=&#34;http://www.clusterheadaches.com/cgi-bin/yabb2/YaBB.pl?action=login;sesredir=num~1367291218&#34;&#62;&#60;img src=&#34;http://www.clusterheadaches.com/yabbfiles/Buttons/English/login.png&#34; alt=&#34;Login&#34; title=&#34;Login&#34; border=&#34;0&#34; /&#62;&#60;/a&#62; or &#60;a href=&#34;http://www.clusterheadaches.com/cgi-bin/yabb2/YaBB.pl?action=register&#34;&#62;&#60;img src=&#34;http://www.clusterheadaches.com/yabbfiles/Buttons/English/register.png&#34; alt=&#34;Register&#34; title=&#34;Register&#34; border=&#34;0&#34; /&#62;&#60;/a&#62;</description>
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			<title>Medications,  Treatments,  Therapies - SEX</title>
			<link>http://www.clusterheadaches.com/cgi-bin/yabb2/YaBB.pl?num=1362593001/42#42</link>
			<category>New CH.com Forum/Medications,  Treatments,  Therapies</category>
			<guid>http://www.clusterheadaches.com/cgi-bin/yabb2/YaBB.pl?num=1362593001/42#42</guid>
			<pubDate>Thu, 16 May 2013 13:58:50 GMT</pubDate>
			<description>Kinda what my wife said. Thats nice, glad your hand works and and don&#39;t shake the bed too much. &#160; &#60;img src=&#34;http://www.clusterheadaches.com/yabbfiles/Templates/Forum/default/grin.gif&#34; border=&#34;0&#34; alt=&#34;Grin&#34; title=&#34;Grin&#34; /&#62;</description>
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			<title>Cluster Headache Specific - Coconut and Coconut Butter/oil trigger?</title>
			<link>http://www.clusterheadaches.com/cgi-bin/yabb2/YaBB.pl?num=1368567723/4#4</link>
			<category>New CH.com Forum/Cluster Headache Specific</category>
			<guid>http://www.clusterheadaches.com/cgi-bin/yabb2/YaBB.pl?num=1368567723/4#4</guid>
			<pubDate>Thu, 16 May 2013 03:12:32 GMT</pubDate>
			<description>I use Coconut cream or milk when making a curry. Has never&#60;br /&#62;triggered a CH in me. After shave is no no for me when in a&#60;br /&#62;cycle. Also my wife has to stop wearing perfume.</description>
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			<title>Cluster Headache Specific - Questions About Cycle</title>
			<link>http://www.clusterheadaches.com/cgi-bin/yabb2/YaBB.pl?num=1366898115/9#9</link>
			<category>New CH.com Forum/Cluster Headache Specific</category>
			<guid>http://www.clusterheadaches.com/cgi-bin/yabb2/YaBB.pl?num=1366898115/9#9</guid>
			<pubDate>Thu, 16 May 2013 00:10:51 GMT</pubDate>
			<description>Hi Jamz,&#60;br /&#62;Having suffered from episodic CH, &#34;Spring &#38; Autumn&#34; for the&#60;br /&#62;past 43yrs they normally just stop at the end of the season.&#60;br /&#62;I&#39;m a great believer that our biological clock has a lot to answer&#60;br /&#62;for. Check out &#160;my thread it might be of some help to you.&#60;br /&#62;Hoppy.&#60;br /&#62;</description>
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			<title>Getting to Know Ya - Thunderclap Headaches</title>
			<link>http://www.clusterheadaches.com/cgi-bin/yabb2/YaBB.pl?num=1368512755/6#6</link>
			<category>New CH.com Forum/Getting to Know Ya</category>
			<guid>http://www.clusterheadaches.com/cgi-bin/yabb2/YaBB.pl?num=1368512755/6#6</guid>
			<pubDate>Wed, 15 May 2013 12:37:54 GMT</pubDate>
			<description>&#60;b&#62;&#60;a href=&#34;http://www.clusterheadaches.com/cgi-bin/yabb2/YaBB.pl?num=1368512755/2#2&#34;&#62;Mom of Two wrote&#60;/a&#62; on May 14&#60;sup&#62;th&#60;/sup&#62;, 2013 at 8:43am:&#60;/b&#62;&#60;br /&#62;&#60;div&#62; &#160;How does everyone deal with the horrible pain? Pain meds are a joke, they take way too long for any relief, in essence, they don&#39;t work.  &#160;&#60;/div&#62;&#60;br /&#62;&#60;br /&#62;This is the million dollar question, isn&#39;t it? I believe all of us deal with the pain by searching for, and employing, an effective abortive. For many of us that is O2, and Imitrex, and for some, Migranal. Others run, walk, pound their heads, drink energy drinks real fast, use frozen peas on their temples, or sit in blazing hot showers/poke their heads into a/c units. The point is, we deal by looking for ways to abort.&#60;br /&#62;&#60;br /&#62;Now, since aborting a CH is a hit or miss proposition, we do eventually learn its patterns and learn to anticipate the attack. Unlike thunderclap headaches, CHs are more or less brief...although a few minutes of a hit feels like an eternity.&#60;br /&#62;&#60;br /&#62;Keep looking for ways to intervene when your beast shows up. You might even try some of the stuff we&#39;re doing. Who knows? It wasn&#39;t all that long ago the collected wisdom of the medical community taught O2 was not good for migraines. Then, presto, somehow it turns O2 can be helpful for some. There ya go! blessings. lance</description>
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			<title>Cluster Headache Specific - Scam?</title>
			<link>http://www.clusterheadaches.com/cgi-bin/yabb2/YaBB.pl?num=1368046398/12#12</link>
			<category>New CH.com Forum/Cluster Headache Specific</category>
			<guid>http://www.clusterheadaches.com/cgi-bin/yabb2/YaBB.pl?num=1368046398/12#12</guid>
			<pubDate>Tue, 14 May 2013 18:20:17 GMT</pubDate>
			<description>D3 is my miracle cure</description>
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		<item>
			<title>Getting to Know Ya - continued</title>
			<link>http://www.clusterheadaches.com/cgi-bin/yabb2/YaBB.pl?num=1368397389/9#9</link>
			<category>New CH.com Forum/Getting to Know Ya</category>
			<guid>http://www.clusterheadaches.com/cgi-bin/yabb2/YaBB.pl?num=1368397389/9#9</guid>
			<pubDate>Mon, 13 May 2013 22:54:08 GMT</pubDate>
			<description>i dont think you&#39;re being harsh, i have been depressed n such. i know i&#39;ll feel better once im working again and can try the things yall have mentioned here. this site is truly invaluable and literally save lives and stop so much pain n loss. dont have much choice but to work with what i have at hand right now, but at least now i know there is stuff out there that has really helped, instead of just rolling the dice on another script with horrible side effects. i wont give up and again cant say thank you enough for all this info.</description>
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			<title>Cluster Headache Specific - Pointless post, extremely upset.</title>
			<link>http://www.clusterheadaches.com/cgi-bin/yabb2/YaBB.pl?num=1365800168/12#12</link>
			<category>New CH.com Forum/Cluster Headache Specific</category>
			<guid>http://www.clusterheadaches.com/cgi-bin/yabb2/YaBB.pl?num=1365800168/12#12</guid>
			<pubDate>Mon, 13 May 2013 21:20:05 GMT</pubDate>
			<description>Hey man. I don&#39;t go to NA or AA. I don&#39;t like the philosophy. It&#39;s my firm belief that forcing yourself to your knees and proclaiming &#34;I&#39;m powerless&#34; is a sure way to feel weak and defeated.&#60;br /&#62;&#60;br /&#62;You know how I finally worked up the courage to quit for good? I blew off my suboxone doc, threw all my medicine away, and wrote the following quotation from the Satanic Bible on my wall:&#60;br /&#62;&#60;br /&#62;&#34;...and all thy bones shall say pridefully: who is like unto me? have I not been too strong for my adversary? Have I not delivered myself by my own brain and body?&#34;&#60;br /&#62;&#60;br /&#62;whenever I felt like I couldn&#39;t handle it anymore I sat in front of the wall where I wrote it and stared at it. I wanted to be able to speak those words and mean them when I was done. I did. &#160;&#60;br /&#62;&#60;br /&#62;I&#39;m in danger of being dismissed from the university I attend. It&#39;s not my fault. I&#39;m trying. I&#39;m hoping this doesn&#39;t happen, as I&#39;m literally one semester away from graduation (2 if you count the classes I need to re-take). &#60;br /&#62;&#60;br /&#62;I am discouraged frequently. But it&#39;s getting better. I&#39;ve found situps and pushups to be excellent for both my headaches and my personal difficulties. I guess when you take care of your body, good things follow.&#60;br /&#62;&#60;br /&#62;Thanks everyone for your wonderful advice and replies. I really feel better when I come here. I &#60;i&#62;am&#60;/i&#62; gathering up all of the vitamins/minerals in that regimen. Gotta take care of myself.</description>
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			<title>Getting to Know Ya - WELCOME!</title>
			<link>http://www.clusterheadaches.com/cgi-bin/yabb2/YaBB.pl?num=1076441006/343#343</link>
			<category>New CH.com Forum/Getting to Know Ya</category>
			<guid>http://www.clusterheadaches.com/cgi-bin/yabb2/YaBB.pl?num=1076441006/343#343</guid>
			<pubDate>Mon, 13 May 2013 19:50:45 GMT</pubDate>
			<description>Hello Everyone, I am new to this site. I can&#39;t believe there are so many of you guys out there! I have always felt on my own! Wherever I try to explain my clusters to anyone else they always say &#34;yeah I get really bad headaches sometimes too&#34; but I know from reading other posts you guys really do know what I go through. I have been suffering from CH for about 12 yrs. I was misdiagnosed for the first 10 yrs with sinus headaches, migraines, stress etc... I was 16 when they started and I thought I was literally going to die from the pain, I still do sometimes. then I thought I was just insane bc they went away and I was fine. I was put on a lot of different meds that did not help the headaches at all. Every time they went away I thought they were gone for good, but they always come back at some point! Luckily during my last cycle I found my savior, a neurologist who diagnosed me with CH. He put me on verapamil and oxygen. The oxygen has been very effective for me if I can get to it fast enough. I honestly don&#39;t know how I made it without it before! I didn&#39;t have any CH for a 18 months, completely back to normal, then one hit me 2 weeks ago. I couldn&#39;t even believe it was happening and prayed it was just a fluke. Then a few days later 3 in one night, then 6 in a night and a few in the morning and before I went to bed. Now I am back in the hell that I hoped was gone forever. I am currently getting 2-3 while I am awake and 3-6 that wake me in my sleep. Thank God I had oxygen leftover from my last cycle, but sometimes I wake up too far in and it doesn&#39;t help. I am only getting a hr or so of actual sleep at night and now feel like I am going insane from fear of attacks and not sleeping. I am so glad I found this site. I can definitely relate to a lot of the stories I&#39;ve read so far and they make me cry bc I know exactly what you are going through! &#160; &#160; &#160;</description>
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			<title>Cluster Headache Specific - Are there cases of complete remission?</title>
			<link>http://www.clusterheadaches.com/cgi-bin/yabb2/YaBB.pl?num=1368227137/11#11</link>
			<category>New CH.com Forum/Cluster Headache Specific</category>
			<guid>http://www.clusterheadaches.com/cgi-bin/yabb2/YaBB.pl?num=1368227137/11#11</guid>
			<pubDate>Mon, 13 May 2013 17:19:07 GMT</pubDate>
			<description>&#60;b&#62;&#60;a href=&#34;http://www.clusterheadaches.com/cgi-bin/yabb2/YaBB.pl?num=1368227137/10#10&#34;&#62;Brew wrote&#60;/a&#62; on May 13&#60;sup&#62;th&#60;/sup&#62;, 2013 at 9:57am:&#60;/b&#62;&#60;br /&#62;&#60;div&#62;You realize that &#34;complete remission&#34; cannot be measured until after someone is dead, right? &#60;/div&#62;&#60;br /&#62;&#60;br /&#62;&#60;br /&#62;I was about to buy some comedy show tickets as I haven&#39;t had a real good laugh in a while, but you just saved me a small fortune, thanks Brew! &#160;&#60;br /&#62;&#60;br /&#62;-Gregg in Las Vegas</description>
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			<title>Medications,  Treatments,  Therapies - Cigarettes</title>
			<link>http://www.clusterheadaches.com/cgi-bin/yabb2/YaBB.pl?num=1344149471/12#12</link>
			<category>New CH.com Forum/Medications,  Treatments,  Therapies</category>
			<guid>http://www.clusterheadaches.com/cgi-bin/yabb2/YaBB.pl?num=1344149471/12#12</guid>
			<pubDate>Mon, 13 May 2013 13:26:10 GMT</pubDate>
			<description>Nicotine is a strong pesticide that works on the CNS/PNS!&#60;br /&#62;&#60;br /&#62;Note that the original poster mentions Using &#34;&#60;b&#62;American Spirit&#60;/b&#62;&#34; brand cigarettes, which are advertised as additive free, organic farmed. I know they&#39;re more expensive, but maybe worth the cost?? &#60;br /&#62;&#60;br /&#62;P.S. We&#39;ve been blessed with abundant rain this spring. Everything is so green. Hoping things are as beautiful in your part of the world as well... (and hoping the farmers didn&#39;t get too much rain)&#60;br /&#62;&#60;br /&#62;Peace Of Mind</description>
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			<title>Medications,  Treatments,  Therapies - Oxygen: Demand valve delivery system = economy(?)</title>
			<link>http://www.clusterheadaches.com/cgi-bin/yabb2/YaBB.pl?num=1367664049/2#2</link>
			<category>New CH.com Forum/Medications,  Treatments,  Therapies</category>
			<guid>http://www.clusterheadaches.com/cgi-bin/yabb2/YaBB.pl?num=1367664049/2#2</guid>
			<pubDate>Mon, 13 May 2013 11:52:13 GMT</pubDate>
			<description>Thanks, Bob. That&#39;s huge. If demand flow valve is shown to be that much superior to continuous flow, it would help explain why some do not feel O2 is all that helpful compared to those of us who insist it aborts and prevents. Good post. blessings. lance</description>
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			<title>Cluster Headache Specific - Something strange (i think?)</title>
			<link>http://www.clusterheadaches.com/cgi-bin/yabb2/YaBB.pl?num=1368314284/5#5</link>
			<category>New CH.com Forum/Cluster Headache Specific</category>
			<guid>http://www.clusterheadaches.com/cgi-bin/yabb2/YaBB.pl?num=1368314284/5#5</guid>
			<pubDate>Mon, 13 May 2013 11:27:33 GMT</pubDate>
			<description>Hey man, I&#39;m just curious...it appears the last time you wrote about O2 was April 6th, and then it was a question about whether or not you could use it if there was a smoker or incense burner around. Have you explored this further? Because I gotta tell ya, the value of O2 as an abortive far outweighs the benefit of burning incense or smoking in the house. It will, or can anyway, restore your confidence that the beast is manageable. blessings. lance</description>
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			<title>Getting to Know Ya - Legion, cont.</title>
			<link>http://www.clusterheadaches.com/cgi-bin/yabb2/YaBB.pl?num=1368400567/0#0</link>
			<category>New CH.com Forum/Getting to Know Ya</category>
			<guid>http://www.clusterheadaches.com/cgi-bin/yabb2/YaBB.pl?num=1368400567/0#0</guid>
			<pubDate>Sun, 12 May 2013 23:16:07 GMT</pubDate>
			<description>the ones that follow seem pissed off about it. specially if i have had the nerve to try to sleep or dozed off by accident. they will also come during the day if i try to nap. drinking alcohol is a surefire trip to hell almost immediately. which really kinda sucks, caused i sure would like to have a couple drinks or go out with friends. oh would i. coffee time bbl</description>
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			<title>Getting to Know Ya - my ch, Legion</title>
			<link>http://www.clusterheadaches.com/cgi-bin/yabb2/YaBB.pl?num=1368399924/0#0</link>
			<category>New CH.com Forum/Getting to Know Ya</category>
			<guid>http://www.clusterheadaches.com/cgi-bin/yabb2/YaBB.pl?num=1368399924/0#0</guid>
			<pubDate>Sun, 12 May 2013 23:05:24 GMT</pubDate>
			<description>mine are always on the right side, i try to stay awake so i can do O2 when i feel the shadow creeping up my neck to the back of my head. sometimes it helps with lots of coffee. soon as it starts to get dark outside i make sure a pot is ready. i have a big ole O2 generator, i call him r2d2, he only does up to 10 lpm, but life would be much worse without that bit of help. wish i had a more powerful one,but... Legion. when they wake me up or O2 is not working feels like an attack from demons. like they r sawing my head in half but they get stuck in the middle and just keep sawing away, while another is behind my eye with an ice pick pushing it through, while several stand and jump on the side of my head. tears literally squirt from that eye. even a bit of light seems blinding on that side and will wear sunglasses most of the night. i usually pass out wasted from the pain n exhaustion around 6 am and can finally sleep some. upwards of 10 attacks a night now every night. if i succeed in putting one down with O2</description>
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		<item>
			<title>Getting to Know Ya - umm a bit about me...</title>
			<link>http://www.clusterheadaches.com/cgi-bin/yabb2/YaBB.pl?num=1368396171/0#0</link>
			<category>New CH.com Forum/Getting to Know Ya</category>
			<guid>http://www.clusterheadaches.com/cgi-bin/yabb2/YaBB.pl?num=1368396171/0#0</guid>
			<pubDate>Sun, 12 May 2013 22:02:51 GMT</pubDate>
			<description>Legion is what i call &#39;them&#39;. they have been coming for me for about 8 years now. scince they began they have been with me everynight. last year i had a month pf and thought they finally had gone, but they just came back worse and now instead of them coming 5 or 6 a night its well over 10. just a blur really. wake up on the floor, O2 generator still going, turn it off, pass out, wake up full blast, O2 doesn&#39;t help then,just have to take it till they stop, pass out...over n over n over. i have no life n e more. i used to. i miss it, miss my family, my friends. this shits taken everything from me. the only thing that keeps me from putting a bullet through my head is just keep telling myself no fckin way can i do that to my kids. thoughts come, maybe a car crash fast as it will go right into a wall, tragic n unfortunate,but just a crash. my luck i&#39;d just wake up crippled with them still coming. i wasnt like this before, i had a normal life, considered myself a good dad,</description>
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		<item>
			<title>Getting to Know Ya - New Member sharing my story to help others</title>
			<link>http://www.clusterheadaches.com/cgi-bin/yabb2/YaBB.pl?num=1368362893/3#3</link>
			<category>New CH.com Forum/Getting to Know Ya</category>
			<guid>http://www.clusterheadaches.com/cgi-bin/yabb2/YaBB.pl?num=1368362893/3#3</guid>
			<pubDate>Sun, 12 May 2013 17:52:36 GMT</pubDate>
			<description>Welcome! Glad something works for you..&#60;br /&#62; &#60;img src=&#34;http://www.clusterheadaches.com/yabbfiles/Templates/Forum/default/smiley.gif&#34; border=&#34;0&#34; alt=&#34;Smiley&#34; title=&#34;Smiley&#34; /&#62;</description>
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			<title>Cluster Headache Specific - NA beer</title>
			<link>http://www.clusterheadaches.com/cgi-bin/yabb2/YaBB.pl?num=1367629173/5#5</link>
			<category>New CH.com Forum/Cluster Headache Specific</category>
			<guid>http://www.clusterheadaches.com/cgi-bin/yabb2/YaBB.pl?num=1367629173/5#5</guid>
			<pubDate>Sat, 11 May 2013 01:48:38 GMT</pubDate>
			<description>One of the worst kip hits I ever experienced (9-10) was after a few glasses of NA wine...I don&#39;t mess with any of that stuff anymore.... in cycle......&#60;br /&#62;&#60;br /&#62;Best,&#60;br /&#62;&#60;br /&#62;Jon</description>
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			<title>Cluster Headache Specific - CH, other rare syndromes and weird symptoms</title>
			<link>http://www.clusterheadaches.com/cgi-bin/yabb2/YaBB.pl?num=1367571641/13#13</link>
			<category>New CH.com Forum/Cluster Headache Specific</category>
			<guid>http://www.clusterheadaches.com/cgi-bin/yabb2/YaBB.pl?num=1367571641/13#13</guid>
			<pubDate>Fri, 10 May 2013 22:47:12 GMT</pubDate>
			<description>&#60;b&#62;&#60;a href=&#34;http://www.clusterheadaches.com/cgi-bin/yabb2/YaBB.pl?num=1367571641/12#12&#34;&#62;Kranskie wrote&#60;/a&#62; on May 8&#60;sup&#62;th&#60;/sup&#62;, 2013 at 11:13am:&#60;/b&#62;&#60;br /&#62;&#60;div&#62;&#60;b&#62;&#60;a href=&#34;http://www.clusterheadaches.com/cgi-bin/yabb2/YaBB.pl?num=1367571641/10#10&#34;&#62;Mike NZ wrote&#60;/a&#62; on May 8&#60;sup&#62;th&#60;/sup&#62;, 2013 at 5:38am:&#60;/b&#62;&#60;br /&#62;&#60;div&#62;Having been along that route, where all I had was codeine, I know how you will think that you need it, but the reality is that you don&#39;t. Once you&#39;ve got oxygen, you&#39;ll be able to kill off your CHs quicker than any narcotic can take effect. You will not need them.&#60;br /&#62; &#60;/div&#62;&#60;br /&#62;&#60;br /&#62;I think I wrote it a bit funny. I don&#39;t need them for the CH. I need them because of my spine and knees are fubared, and I can&#39;t get up somedays due to nervepain in my back.&#60;br /&#62; &#60;/div&#62;&#60;br /&#62;&#60;br /&#62;Ahh, I understand now.&#60;br /&#62;&#60;br /&#62;We frequently see people come here who have only been given a narcotic pain killer to deal with their CH by doctors who don&#39;t know much, if anything, about CH and they are convinced that that is the only way to deal with CH.</description>
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			<title>Getting to Know Ya - I&#39;m a clusterhead I gather</title>
			<link>http://www.clusterheadaches.com/cgi-bin/yabb2/YaBB.pl?num=1368209780/3#3</link>
			<category>New CH.com Forum/Getting to Know Ya</category>
			<guid>http://www.clusterheadaches.com/cgi-bin/yabb2/YaBB.pl?num=1368209780/3#3</guid>
			<pubDate>Fri, 10 May 2013 20:29:26 GMT</pubDate>
			<description>If you choose to use the vitamin approach suggested to you you, by all means, tell your doc. If he is working on one approach and he on another, the outcome becomes confusing for all. &#60;br /&#62;&#60;br /&#62;The doc&#39;s use of Top. has a modest track record. If the stomach problem continues, ask him about using Verapamil. Following and PDF file, beflow:&#60;br /&#62;---&#60;br /&#62;Headache. 2004 Nov;44(10):1013-8. &#160; &#60;br /&#62; &#60;br /&#62;&#60;br /&#62;Individualizing treatment with verapamil for cluster headache patients. &#60;br /&#62; &#60;br /&#62;Blau JN, Engel HO. &#60;br /&#62;&#60;br /&#62;&#60;br /&#62; &#160; &#160;Background.-Verapamil is currently the best available prophylactic drug for patients experiencing cluster headaches (CHs). Published papers usually state 240 to 480 mg taken in three divided doses give good results, ranging from 50% to 80%; others mention higher doses-720, even 1200 mg per day. In clinical practice we found we needed to adapt dosage to individual&#39;s time of attacks, in particular giving higher doses before going to bed to suppress severe nocturnal episodes. A few only required 120 mg daily. We therefore evolved a scheme for steady and progressive drug increase until satisfactory control had been achieved. Objective.-To find the minimum dose of verapamil required to prevent episodic and chronic cluster headaches by supervising each individual and adjusting the dosage accordingly. Methods.-Consecutive patients with episodic or chronic CH (satisfying International Headache Society (IHS) criteria) were started on verapamil 40 mg in the morning, 80 mg early afternoon, and 80 mg before going to bed. Patients kept a diary of all attacks, recording times of onset, duration, and severity. They were advised, verbally and in writing, to add 40 mg verapamil on alternate days, depending on their attack timing: with nocturnal episodes the first increase was the evening dose and next the afternoon one; when attacks occurred on or soon after waking, we advised setting an alarm clock 2 hours before the usual waking time and then taking the medication. Patients were followed-up at weekly intervals until attacks were controlled. They were also reviewed when a cluster period had ended, and advised to continue on the same dose for a further 2 weeks before starting systematic reduction. Chronic cluster patients were reviewed as often as necessary. Results.-Seventy consecutive patients, 52 with episodic CH during cluster periods and 18 with chronic CH, were all treated with verapamil as above. Complete relief from headaches was obtained in 49 (94%) of 52 with episodic, and 10 (55%) of 18 with chronic CH; the majority needed 200 to 480 mg, but 9 in the episodic, and 3 in the chronic group, needed 520 to 960 mg for control. Ten, 2 in the episodic and 8 in the chronic group, with incomplete relief, required additional therapy-lithium, sumatriptan, or sodium valproate. One patient withdrew because verapamil made her too tired, another developed Stevens-Johnson syndrome, and the drug was withdrawn. Conclusions.-Providing the dosage for each individual is adequate, preventing CH with verapamil is highly effective, taken three (occasionally with higher doses, four) times a day. In the majority (94%) with episodic CH steady dose increase under supervision, totally suppressed attacks. However in the chronic variety only 55% were completely relieved, 69% men, but only 20% women. In both groups, for those with partial attack suppression, additional prophylactic drugs or acute treatment was necessary. (Headache 2004;44:1013-1018).&#60;br /&#62;&#60;br /&#62;======================================= &#60;br /&#62;SLOW-RELEASE VERAPAMIL&#60;br /&#62;&#60;br /&#62;Dr. Sheftell applauded the protocol for verapamil used by Dr. Goadsby and colleagues, which entailed use of short-acting verapamil in increments of 80 mg. “This method was suggested by Lee Kudrow, MD, 20 years ago as an alternative to slow-release verapamil,” Dr. Sheftell noted.&#60;br /&#62;&#60;br /&#62;“I would agree with using short-acting verapamil, rather than the sustained-release formulation, in cluster headache,” he said. “I prefer the short-acting formulation with regard to ability to titrate more accurately and safely. My clinical experience anecdotally demonstrates improved responses when patients are switched from sustained-release verapamil to short-acting verapamil.”&#60;br /&#62;&#60;br /&#62;Dr. Goadsby agreed that his clinical experience was similar. “There are no well-controlled, placebo-controlled, dose-ranging studies to direct treatment. This is one of those areas where clinicians who treat cluster headache have to combine what modicum of evidence is available with their own clinical experience,” Dr. Sheftell commented.&#60;br /&#62;&#60;br /&#62;</description>
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			<title>Getting to Know Ya - Allow me to introduce myself...</title>
			<link>http://www.clusterheadaches.com/cgi-bin/yabb2/YaBB.pl?num=1367106360/11#11</link>
			<category>New CH.com Forum/Getting to Know Ya</category>
			<guid>http://www.clusterheadaches.com/cgi-bin/yabb2/YaBB.pl?num=1367106360/11#11</guid>
			<pubDate>Fri, 10 May 2013 01:35:54 GMT</pubDate>
			<description>you got lucky to have found a doctor that seems to have at least heard of CH, and seems to care about your pain. &#160;Believe me, thats hard to come by!!!</description>
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			<title>Getting to Know Ya - New here,</title>
			<link>http://www.clusterheadaches.com/cgi-bin/yabb2/YaBB.pl?num=1367887110/14#14</link>
			<category>New CH.com Forum/Getting to Know Ya</category>
			<guid>http://www.clusterheadaches.com/cgi-bin/yabb2/YaBB.pl?num=1367887110/14#14</guid>
			<pubDate>Thu, 9 May 2013 15:27:12 GMT</pubDate>
			<description>Thanks, Hoppy. I printed the list and struck it to the wall above the computer for future reference.&#60;br /&#62; &#60;img src=&#34;http://www.clusterheadaches.com/yabbfiles/Templates/Forum/default/grin.gif&#34; border=&#34;0&#34; alt=&#34;Grin&#34; title=&#34;Grin&#34; /&#62;</description>
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			<title>Medications,  Treatments,  Therapies - Help in getting OXYGEN prescribed</title>
			<link>http://www.clusterheadaches.com/cgi-bin/yabb2/YaBB.pl?num=1215491924/66#66</link>
			<category>New CH.com Forum/Medications,  Treatments,  Therapies</category>
			<guid>http://www.clusterheadaches.com/cgi-bin/yabb2/YaBB.pl?num=1215491924/66#66</guid>
			<pubDate>Wed, 8 May 2013 23:38:11 GMT</pubDate>
			<description>Thanks for the great information. &#160;I&#39;m located in southern California and my insurance is Health Net.&#60;br /&#62;&#60;br /&#62;I just received a phone call from a medical supply company that they are delivering my oxygen tank later today. &#160;I hadn&#39;t heard anything for a couple of weeks and was preparing for my fight and to get a phone call like this was such a relief. &#160;I&#39;m sure you all know what it&#39;s like to live in dread of these headaches. &#160;The slightest pain in my eye sends into such despair. &#160;&#60;br /&#62;&#60;br /&#62;Has anyone experienced oxygen no longer working for them? &#160;You know, how sometimes certain medications lose their effectiveness after awhile....</description>
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			<title>Medications,  Treatments,  Therapies - Started D3 last night</title>
			<link>http://www.clusterheadaches.com/cgi-bin/yabb2/YaBB.pl?num=1367436848/13#13</link>
			<category>New CH.com Forum/Medications,  Treatments,  Therapies</category>
			<guid>http://www.clusterheadaches.com/cgi-bin/yabb2/YaBB.pl?num=1367436848/13#13</guid>
			<pubDate>Wed, 8 May 2013 20:31:16 GMT</pubDate>
			<description>coming up on 3 years pain free after 30 plus years of episodic. I&#39;m NEVER going off the D-3 Regimen. &#160;&#60;img src=&#34;http://www.clusterheadaches.com/yabbfiles/Templates/Forum/default/cheesy.gif&#34; border=&#34;0&#34; alt=&#34;Cheesy&#34; title=&#34;Cheesy&#34; /&#62;&#60;br /&#62;&#60;br /&#62;Joe</description>
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		<item>
			<title>Getting to Know Ya - Hello</title>
			<link>http://www.clusterheadaches.com/cgi-bin/yabb2/YaBB.pl?num=1367685923/2#2</link>
			<category>New CH.com Forum/Getting to Know Ya</category>
			<guid>http://www.clusterheadaches.com/cgi-bin/yabb2/YaBB.pl?num=1367685923/2#2</guid>
			<pubDate>Wed, 8 May 2013 12:46:48 GMT</pubDate>
			<description>Hey Nick, and welcome. Here are some standard starting points for those learning to deal with the beast:&#60;br /&#62;&#60;br /&#62;1. Find a good headache specialist-this is imperative. You don&#39;t say if you are seeing your GP, a general neuro, or a specialist. In the long run, you want the specialist.&#60;br /&#62;&#60;br /&#62;2. Start a prednisone taper (starting around 80mg/day) You don&#39;t say you tried this but a bunch of us found good relief this way while waiting for a longer term preventative to kick in.&#60;br /&#62;&#60;br /&#62;3. Start a preventative working up to a high enough dose to be effective in treating CHs, like 240mg/day verapamil increasing as directed up to 960mg/day. Other preventatives include Topamax, carbomazapine, oxycarbomazapine, and more. Pay attention to the doses-often we hear I tried that but the dose was too low to be effective.&#60;br /&#62;&#60;br /&#62;4. Get an effective oxygen setup: a nonrebreather mask and a regulator that will go up to 25lpm along with a 3 liter bag. See optimask.&#60;br /&#62;&#60;br /&#62;5. Get effective abortives, like imitrex injectables-pills are too slow-or Migranal nasal spray, it&#39;s an alternative to triptans. I use both.&#60;br /&#62;&#60;br /&#62;6. Keep a log or journal of your attacks, and learn to use the KIP scale at left. This may help to identify some triggers for you. Some are fairly common to all of us, like alcohol, but even that isn&#39;t universal.&#60;br /&#62;&#60;br /&#62;It&#39;s a long list, but it returns to you the power needed to manage the beast. Good luck and God bless. lance&#60;br /&#62;</description>
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			<title>Cluster Headache Specific - Marijuana and Cluster Headaches</title>
			<link>http://www.clusterheadaches.com/cgi-bin/yabb2/YaBB.pl?num=1242417046/54#54</link>
			<category>New CH.com Forum/Cluster Headache Specific</category>
			<guid>http://www.clusterheadaches.com/cgi-bin/yabb2/YaBB.pl?num=1242417046/54#54</guid>
			<pubDate>Wed, 8 May 2013 12:25:21 GMT</pubDate>
			<description> &#60;i&#62;&#60;b&#62;I agree with Lydia, everyone is verrrry very different when it comes to CH&#39;s... which makes it very hard to treat.&#60;/b&#62;&#60;/i&#62;&#60;br /&#62;&#60;br /&#62;True dat!&#60;br /&#62;&#60;br /&#62;Joe</description>
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			<title>Medications,  Treatments,  Therapies - amerge</title>
			<link>http://www.clusterheadaches.com/cgi-bin/yabb2/YaBB.pl?num=1367841287/3#3</link>
			<category>New CH.com Forum/Medications,  Treatments,  Therapies</category>
			<guid>http://www.clusterheadaches.com/cgi-bin/yabb2/YaBB.pl?num=1367841287/3#3</guid>
			<pubDate>Tue, 7 May 2013 16:45:26 GMT</pubDate>
			<description>Yes.&#60;br /&#62;&#60;br /&#62;Back when I used Triptans, Amerge always gave me a much needed night or two off from the horror of waking to K8 or worse. Better in that respect than any other Triptan - yes, chronic for over 13 years gave me extensive experience with all of them -even blending them under medical supervision.&#60;br /&#62;&#60;br /&#62;Marc</description>
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			<title>Medications,  Treatments,  Therapies - Time for the 75-80% to stand up and be counted</title>
			<link>http://www.clusterheadaches.com/cgi-bin/yabb2/YaBB.pl?num=1212882305/725#725</link>
			<category>New CH.com Forum/Medications,  Treatments,  Therapies</category>
			<guid>http://www.clusterheadaches.com/cgi-bin/yabb2/YaBB.pl?num=1212882305/725#725</guid>
			<pubDate>Tue, 7 May 2013 15:39:41 GMT</pubDate>
			<description>&#60;b&#62;&#60;a href=&#34;http://www.clusterheadaches.com/cgi-bin/yabb2/YaBB.pl?num=1212882305/723#723&#34;&#62;Guiseppi wrote&#60;/a&#62; on Apr 30&#60;sup&#62;th&#60;/sup&#62;, 2013 at 6:39am:&#60;/b&#62;&#60;br /&#62;&#60;div&#62;It&#39;s good to keep the discussions and the research going strong in BOTH of these directions. &#160;&#60;/div&#62;&#60;br /&#62;&#60;br /&#62;I agree completely. &#160;The hallucinogens and the Vitamin D protocol seem to have a much higher success rate than just about anything else. &#160;It makes me think that there may be a common denominator...and the only thing I can find that they both do is lower Tumor Necrosis Factor levels pretty substantially...</description>
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			<title>Getting to Know Ya - New and Chronic (I Think)</title>
			<link>http://www.clusterheadaches.com/cgi-bin/yabb2/YaBB.pl?num=1367809533/2#2</link>
			<category>New CH.com Forum/Getting to Know Ya</category>
			<guid>http://www.clusterheadaches.com/cgi-bin/yabb2/YaBB.pl?num=1367809533/2#2</guid>
			<pubDate>Tue, 7 May 2013 12:10:42 GMT</pubDate>
			<description>Hey there, Alex, and welcome. I suppose I&#39;d be negligent if I didn&#39;t start off by saying it is sometimes dangerous to self diagnose even if all of the symptoms fit a generalized description of CHs. I know, you don&#39;t have insurance. So, having said that, check out the various posts here on the vitamin D3 regimen. I think you&#39;ll find it to your liking. I also want to add that I did read somewhere, and perhaps others can verify this or shoot it down, that taking Taurine regularly/daily can be a bad idea for CHs. We do find relief when taken in combination with caffeine, as in energy drinks, but not regularly. I could be wrong but it&#39;s worth investigating. God bless. lance</description>
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			<title>Getting to Know Ya - new, just diagnosed, question at end</title>
			<link>http://www.clusterheadaches.com/cgi-bin/yabb2/YaBB.pl?num=1367589301/5#5</link>
			<category>New CH.com Forum/Getting to Know Ya</category>
			<guid>http://www.clusterheadaches.com/cgi-bin/yabb2/YaBB.pl?num=1367589301/5#5</guid>
			<pubDate>Mon, 6 May 2013 23:23:02 GMT</pubDate>
			<description>Welcome to the board Wendy, spend a little time here and you&#39;ll realize quickly that women are NOT much of a minority around here. For way too long, woman=migraine. As a result, many women spent even longer then the men did trying to get an accurate diagnosis when it WAS CH! You&#39;ve been given some great advice already. As Bob mentions, if it is CH, it&#39;s a lifetime ailment, so the earlier you get a thorough workup and accurate diagnosis, the better.&#60;br /&#62;&#60;br /&#62;&#60;b&#62;PAY REAL CLOSE ATTENTION TO BATCH&#39;S POST!!!&#60;/b&#62;&#60;br /&#62;&#60;br /&#62;His posts are long and technical, read them anyways! &#60;img src=&#34;http://www.clusterheadaches.com/yabbfiles/Templates/Forum/default/grin.gif&#34; border=&#34;0&#34; alt=&#34;Grin&#34; title=&#34;Grin&#34; /&#62; I&#39;m coming up on my 3rd year pain free, after well over 30 years of episodic CH. The only thing I changed was starting Batch&#39;s D-3 regimen. I went pain free and have stayed on it religiously.&#60;br /&#62;&#60;br /&#62;Glad you found us, hope we can help you.&#60;br /&#62;&#60;br /&#62;Joe</description>
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			<title>Medications,  Treatments,  Therapies - D3 Survey</title>
			<link>http://www.clusterheadaches.com/cgi-bin/yabb2/YaBB.pl?num=1367854932/1#1</link>
			<category>New CH.com Forum/Medications,  Treatments,  Therapies</category>
			<guid>http://www.clusterheadaches.com/cgi-bin/yabb2/YaBB.pl?num=1367854932/1#1</guid>
			<pubDate>Mon, 6 May 2013 17:00:59 GMT</pubDate>
			<description>Click this link:&#60;br /&#62;&#60;br /&#62;Multimedia File Viewing and Clickable Links are available for Registered Members only!! &#160;You need to &#60;a href=&#34;http://www.clusterheadaches.com/cgi-bin/yabb2/YaBB.pl?action=login;sesredir=num~1367854932&#34;&#62;&#60;img src=&#34;http://www.clusterheadaches.com/yabbfiles/Buttons/English/login.png&#34; alt=&#34;Login&#34; title=&#34;Login&#34; border=&#34;0&#34; /&#62;&#60;/a&#62; or &#60;a href=&#34;http://www.clusterheadaches.com/cgi-bin/yabb2/YaBB.pl?action=register&#34;&#62;&#60;img src=&#34;http://www.clusterheadaches.com/yabbfiles/Buttons/English/register.png&#34; alt=&#34;Register&#34; title=&#34;Register&#34; border=&#34;0&#34; /&#62;&#60;/a&#62;</description>
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			<title>Medications,  Treatments,  Therapies - A New Cycle</title>
			<link>http://www.clusterheadaches.com/cgi-bin/yabb2/YaBB.pl?num=1367577999/3#3</link>
			<category>New CH.com Forum/Medications,  Treatments,  Therapies</category>
			<guid>http://www.clusterheadaches.com/cgi-bin/yabb2/YaBB.pl?num=1367577999/3#3</guid>
			<pubDate>Sat, 4 May 2013 21:12:37 GMT</pubDate>
			<description>Hi Zazzed, check out the d3 regimen on the link below, it works for 80% of people. I was in the middle of a bad cycle when i started the regimen and within 3 weeks i became pain free. my spring cycle usually lasts up to 3 months, however with the d3 regimen it stopped after 1 month and i am still pain free. Get on the regimen and you might never experience pain from CH again.&#60;br /&#62; &#60;img src=&#34;http://www.clusterheadaches.com/yabbfiles/Templates/Forum/default/smiley.gif&#34; border=&#34;0&#34; alt=&#34;Smiley&#34; title=&#34;Smiley&#34; /&#62;&#60;br /&#62;Multimedia File Viewing and Clickable Links are available for Registered Members only!! &#160;You need to &#60;a href=&#34;http://www.clusterheadaches.com/cgi-bin/yabb2/YaBB.pl?action=login;sesredir=num~1367577999&#34;&#62;&#60;img src=&#34;http://www.clusterheadaches.com/yabbfiles/Buttons/English/login.png&#34; alt=&#34;Login&#34; title=&#34;Login&#34; border=&#34;0&#34; /&#62;&#60;/a&#62; or &#60;a href=&#34;http://www.clusterheadaches.com/cgi-bin/yabb2/YaBB.pl?action=register&#34;&#62;&#60;img src=&#34;http://www.clusterheadaches.com/yabbfiles/Buttons/English/register.png&#34; alt=&#34;Register&#34; title=&#34;Register&#34; border=&#34;0&#34; /&#62;&#60;/a&#62;</description>
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