I took 25 mg/day of Topomax for 14 days & my CH cycle seems to be gone. This was the first time I've used it.

Side Effects: minor  bleeding in diarreha but this could have been caused by a couple Frova pills I took during the first few days of the 14 days.

Please add your successes & side effects to this thread so we can have a handy compilation of what works.

Im just wondering as I often do,when someone states they're pain free after taking any type of med is...How long were you in your cycle BEFORE you started the meds?

Topomax is a popular preventative med for CH, also referred to as "dopeymax" due to some experiencing the "dopeys" as one of its side effects. ;) Hadn't seen it used to abort a cycle before. I'm guessing you may have been near the end of a cycle, the topomax did it's job of holding them off until your cycle ended.

Either way, you're pain free and that's always cause for celebrating. May your remission last an entire lifetime!

Guiseppi

Nearly all the conventional medications I've seen discussed here at CH.com seem to be more-or-less effective at suppressing symptoms until an episodic cycle goes away.  As far as I'm aware, none of them will actually shorten or end the cycle itself.  The claim is made that some unconventional treatments will do this, however.

I'm happy to hear that your treatment regimen has been successful.  There is no better news around here.   :)

Best wishes,

George    

Good news. Glad it worked. Be careful, what works now may not work next time. Keep the CH tool box handy.


Quote:

Please add your successes & side effects to this thread so we can have a handy compilation of what works.

RC seeds rock. Shrooms Rock. Kills the demon in his tracks. The whole episode.......side effects include: pain free time, saving money from not buying pharmacuticals.
all the best
thebb

wrote on Aug 21^st, 2008 at 11:15am:

Good news. Glad it worked. Be careful, what works now may not work next time. Keep the CH tool box handy. Quote: Please add your successes & side effects to this thread so we can have a handy compilation of what works. RC seeds rock. Shrooms Rock. Kills the demon in his tracks. The whole episode.......side effects include: pain free time, saving money from not buying pharmacuticals. all the best thebb

never tried the rc seeds but everything else bb mentioned worked for me too. can't say that it stopped ch dead in it's tracks but it did phase out rather quickly.  [smiley=wink.gif]

Tx all for the support.
In answer to a few of the questions/comments  above:
a)I was about 6 weeks into my cycle when I started taking Topomax

b)my doctor(who is also a CH'r) prescribed Topomax as a preventative & Frova to treat specific attacks. I had 2 mild attacks when I first started taking Topomax then a few days of shadows which was followed by pain free days.

c)I'm surprised that the low dosage (25 mg/day) of Topomax worked when I read that others take over 400mg/day. Maybe its due to the fact that this was my first usage of the drug and my body wasn't yet immuned to it.

Here's to wishing you all success in ending your CH cycle!

geosailor wrote on Aug 21^st, 2008 at 11:15pm:

b)my doctor(who is also a CH'r)

It must be great to have a doctor who has CH. Would he or she mind if we all dropped by some day?

Some folks have been IN CYCLE for more than 30 years, what say you to them?  

[/quote]


never tried the rc seeds but everything else bb mentioned worked for me too. can't say that it stopped ch dead in it's tracks but it did phase out rather quickly.  [smiley=wink.gif][/quote]


rc seeds - dead in it's tracks.

Sandy

geosailor wrote on Aug 21^st, 2008 at 11:15pm:

a CH'r)  Frova to treat specific attacks.

I have used Frova too.  I can't use it to treat 'attacks'  because Frova usually takes 2 hours or so to kick in.  I've used it to prevent attacks along with my verapamil dosage.  I would take the Frova about mid morning  and it would keep an hit at bay til the next morning.

Where can you get RC seeds in the US???

me too, me too...is it the clusterbuster website i've heard about?

angela

The clusterbuster website has links where you can buy RC seeds in the US.

I killed mine off with IV depakote - in cycle for 3 months, on 1500 mgs/day oral, and 500mgs IV once a week for 4 weeks - timing of IV is 2 HA's within 36 hours, get another IV, mine worked out to about 1 per week. After 4 IV's, pain free. A fter 1 month pain free tapered off all meds (was combining depakote with lithium as well). Off all meds for 4 months, but I seem to feel like I'm going to start an episode soon - shadows, a HA woke me up last night, so I'm going to hit the depakote early, see if I can stave it off.

Seeds at:ethnobotanicals.com
Iamshaman.com

clusterbusters.com
all the best
thebb

Also seeds at ethnogarden.com  They actually have a special going on right now buy 1 get 2 free. 5g $35 but you would get 15g for $35.  These are seeds for planting of course, not injesting.  ;D

Nobody eats those seeds Ernie. ;) Flowers are too pretty.
all the best 8-)
thebb

Those considering RC seeds should note the following from Wikipedia:

"The seeds of many species of morning glory contain ergot alkaloids such as the hallucinogenic ergonovine and ergine (LSA). Seeds of I. tricolor and I. corymbosa (syn. R. corymbosa) are used as hallucinogens. The seeds can produce similar effect to LSD when taken in the hundreds. Though the chemical LSA is illegal to possess in pure form, the seeds are found in many gardening stores, however, the seeds from gardening stores may be coated in some form of mild poison in order to prevent ingestion or methylmercury to retard spoilage.[3] They should not be taken by people with a history of liver disorders or hepatitis. They should not be taken by pregnant women as they can cause uterine contraction which can lead to miscarriage. Individuals with a history of cardiovascular disease (Heart attack, blood clot, and stroke) or a family history of such problems, and the elderly should avoid consuming these seeds due to their vasoconstrictive effects.["

Alos more good info at: START PRINTPAGEMultimedia File Viewing and Clickable Links are available for Registered Members only!!  You need to or END PRINTPAGE

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