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Cluster Headache Help and Support >> Cluster Headache Specific >> I am angry
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Message started by Linda_Howell on Aug 25th, 2008 at 11:09pm

Title: I am angry
Post by Linda_Howell on Aug 25th, 2008 at 11:09pm
It's been a while since I viewed Chuck getting an attack on "you-tube"  and I may have missed that before,  but when I scrolled down.....guess who's there under cluster headache attack?   Ali, our resident troll.

Does anyone know a way to alert the powers that be, that Ali is a troll extraordinaire?    I just hate it that this guys link is there.

Title: Re: I am angry
Post by Guiseppi on Aug 26th, 2008 at 10:25am
If Linda is angry, there will be hell to pay.  ;)Wish I knew the internet better, I don't know how to get a decent warning out on such a general place as You Tube!

Guiseppi

Title: Re: I am angry
Post by monty on Aug 26th, 2008 at 11:14am

Linda_Howell wrote on Aug 25th, 2008 at 11:09pm:
It's been a while since I viewed Chuck getting an attack on "you-tube"  and I may have missed that before,  but when I scrolled down.....guess who's there under cluster headache attack?   Ali, our resident troll.

Does anyone know a way to alert the powers that be, that Ali is a troll extraordinaire?   I just hate it that this guys link is there.


I don't know that You-Tube or Google wants to purge every nut with a cracked theory from their index.   They may rank the videos based on popularity, which can be adjusted by voting for the good videos and linking to them.  But they are much more of an open forum without evaluation ... as long as it meets the Youtube TOS, freedom of speech is the rule.

Title: Re: I am angry
Post by thebbz on Aug 26th, 2008 at 12:17pm
I am too.............
Nothing like self mutilation. Go ALI!
all the best
thebb

Title: Re: I am angry
Post by Linda_Howell on Aug 26th, 2008 at 12:37pm

Quote:
as long as it meets the Youtube TOS, freedom of speech is the rule.


 SIGH...that's what I was afraid of.  Thanks Monty.

Title: Re: I am angry
Post by midwestbeth on Aug 26th, 2008 at 1:03pm
If you are signed up on youtube you can leave comments to videos posted.  Doesn't cost a thing.

Beth

Title: Re: I am angry
Post by BrianJ on Aug 26th, 2008 at 5:46pm
Chucks video upsets me so much and for someone like ali to be using it for his gain pisses me off im gonna sign up to you tube and post a comment about it

Title: Re: I am angry
Post by pubgirl on Aug 27th, 2008 at 10:13pm
Hi Linda

I've been gone a long time and I only saw Chuck's video today for the very first time via clusterbusters.

I am not ashamed to say I really sobbed and could barely watch. I have sent the New You site cluster video links of an attack to family and close friends to help explain things but there is no way I want my Mum to see what I thankfully very rarely have- an attack at Chuck's level which won't abort.

If Ali has piggybacked this himself, then damn him to hell


W the B

Title: Re: I am angry
Post by Linda_Howell on Aug 28th, 2008 at 12:59am
Yep, and that's why I am angry.  He has done exactly that.   Piggy-backed his ridiculous surgery video onto Chuck and and Tonys.


Title: Re: I am angry
Post by BrianJ on Aug 28th, 2008 at 12:11pm
i never thought i would wish our beast on anyone but i would wish ali to suffer from it just one kip10

Title: Re: I am angry
Post by ClusterChuck on Aug 29th, 2008 at 12:25am

Linda_Howell wrote on Aug 28th, 2008 at 12:59am:
Yep, and that's why I am angry.  He has done exactly that.   Piggy-backed his ridiculous surgery video onto Chuck and and Tonys.


OK, I never claimed to be the brightest bulb in the box, but I looked at both of the copies of the video of me, and did not see what you are talking about ...

Geeze I guess I really am a dumb shit!!! (NO comments needed, Svenn, Barb, LeLimey, Linda, CathiP, or any of you OTHER smart asses!  LOL)

Chuck

Title: Re: I am angry
Post by Sandy_C on Aug 29th, 2008 at 5:20pm

ClusterChuck wrote on Aug 29th, 2008 at 12:25am:

Linda_Howell wrote on Aug 28th, 2008 at 12:59am:
Yep, and that's why I am angry.  He has done exactly that.   Piggy-backed his ridiculous surgery video onto Chuck and and Tonys.


OK, I never claimed to be the brightest bulb in the box, but I looked at both of the copies of the video of me, and did not see what you are talking about ...

Geeze I guess I really am a dumb shit!!! (NO comments needed, Svenn, Barb, LeLimey, Linda, CathiP, or any of you OTHER smart asses!  LOL)

Chuck


Chuck, I would be honored if you would add me to your list  ;)

I try very hard to not go to U-tube often, so I'm unfamiliar with the searching and finding thingys there.  Linda, how do I get to Ali's video?  I want to see it and then I want to search the powers that be and get that little pr*ck off the tube.

Sandy

Title: Re: I am angry
Post by Linda_Howell on Aug 29th, 2008 at 9:26pm

  O.K.   go here Sandy and the 1st one is Chuck.   Someone from Italy and a few others including Tony.   Scroll all the way to the bottom and you'll see Ali's Migraine surgery.


START PRINTPAGEMultimedia File Viewing and Clickable Links are available for Registered Members only!!  You need to Login or RegisterEND PRINTPAGE


I have seen Chuck get hit more often than I care to.  It hurts to see him in pain  when I am not.  The only reason I was looking again was for someone from Family Services who needed validation for her husband that she is in fact... not nuts.   And then I find that.   >:(


Linda


Title: Re: I am angry
Post by Cathi_Pierce on Aug 29th, 2008 at 9:54pm
Linda,
may I qualify that?
It hurts to see ANYONE here in that kind of pain!
From my soles to my soul........I watched Tony's once, Chuck's once. Anyone who is with Chuckles for more  than 15 mins has seen him, live and in person, as he gets hit
I cannot watch them ...........
BUT-
I would LOVE to see Ali have his OWN surgery, and THEN get a k10!

Now, if someone would tell me why my delete button is not working, I will gladly step off my soapbox.........
Please disregard these spare letters.........hksannotwas....they mean nothing.......something my puter won't let me delete!

PF to all.......c'ept one   >:(

Oh, and Chuck, bite me, ya lily-livered, crossdressing hippy freak! !

Cathi :D

Title: Re: I am angry
Post by Linda_Howell on Aug 29th, 2008 at 10:33pm
I wouldn't dare delete one word of what you wrote cathi.

  Including this:   ;)

Oh, and Chuck, bite me, ya lily-livered, crossdressing hippy freak! !


I didn't say it...just copied and pasted.   ;D

Title: Re: I am angry
Post by George_J on Aug 30th, 2008 at 12:18am

Linda_Howell wrote on Aug 29th, 2008 at 10:33pm:
I wouldn't dare delete one word of what you wrote cathi.

  Including this:   ;)

Oh, and Chuck, bite me, ya lily-livered, crossdressing hippy freak! !


I didn't say it...just copied and pasted.   ;D


How very....jesuitical....of you, Linda.   ;)

Best,

George

Title: Re: I am angry
Post by [johnny] on Sep 1st, 2008 at 9:48pm
i still have trouble watching somebody have an attack. i guess i'm out of the loop. what's the deal with ali?

Title: Re:Video clips of CH and attacks
Post by pubgirl on Sep 1st, 2008 at 9:56pm
Linda

I can't bear to watch Chuck's agony either so here are the links below which are perhaps a bit "easier" for the average person to watch: They also include a very good summary of what CH is by a doctor (it only has one minor sex-bias arguable error in it which is miraculous as most stuff I see from Doctors like the one on You Tube are rubbish) as well as some real sufferers explaining the pain and what it means to them. You can also see a clustermasx and an Imi pen in use.

I sent them to my family and close friends to try and help them understand so it may be useful for others too?

START PRINTPAGEMultimedia File Viewing and Clickable Links are available for Registered Members only!!  You need to Login or RegisterEND PRINTPAGE

START PRINTPAGEMultimedia File Viewing and Clickable Links are available for Registered Members only!!  You need to Login or RegisterEND PRINTPAGE

START PRINTPAGEMultimedia File Viewing and Clickable Links are available for Registered Members only!!  You need to Login or RegisterEND PRINTPAGE

Added: Just in case everyone thinks they are as good and useful as I do, I will post them on a separate thread. Perhaps when people have had a chance to see them we could have them here on a fixed thread or a link of some kind??


Wendy

Title: Re: I am angry
Post by Kirk on Sep 2nd, 2008 at 12:24am
  Chuck and I both posted negative comments about his video. And I gave it a negative rating. Which is about all I could do about the phony dirt bag. Atleast he's at the bottom of all the videos about CH. And the only one with negative feedback.
[smiley=smokin.gif]

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