Hi,

I was just reading some information about cluster headaches and was surprised to read of a connection with duodenal ulcer.  I was diagnosed with 'duodenal scarring' when I was about 13 (4 yrs before my CH started).

Just curious to know if anyone else has a duodenal ulcer??


Kate

Could you post a link? O:

I've had regular ulcers caused by the h-pylori bacteria. And a crapload of other stomach problems.

no ulcers but I've had hyperactive intestines.  The only things I could eat were white bean soup, mashed potatoes, and soda crackers, for awhile.

Charlotte

Hi,

Here is the link START PRINTPAGEMultimedia File Viewing and Clickable Links are available for Registered Members only!!  You need to or END PRINTPAGE

And here is a little of what was said...

The possibility that histamine may be involved is supported by the reportedly higher incidence of duodenal ulceration in patients with cluster headache (Ekbom, 1970b) as well as by the precipitation of attacks with small amounts of this substance.


K

Charlotte wrote on Sep 7^th, 2008 at 3:25pm:

no ulcers but I've had hyperactive intestines.  The only things I could eat were white bean soup, mashed potatoes, and soda crackers, for awhile. Charlotte

:-/ As much as I love mash potatoe, that does not sound like fun!!


Whilst I was trying to refind the link I noticed there were similar links (from google) that mention peptic ulcers and CH.     ??????    

I don't know if its ever been done on here but I imagine it would be interesting to see what other kind of disorders people with CH suffer from.  If there are any standout conditions or just a whole bunch of different stuffs that we humans deal with.   Personally I suffer from fibromyalgia and remember a guy on here a while ago called Carl who also suffered from this.  I wonder because of the role of the hypothalamus in both conditions if there is a link or perhaps we're just unlucky  ;)

K

Developed one during a cluster cycle about 23 years ago.  The doc asked me if I was taking any asprin.  I answered, "about 150 a week".  His response, "that'll do it."  I've not taken any more asprin and never had another ulcer.

Kate in Oz wrote on Sep 8^th, 2008 at 6:38am:

Charlotte wrote on Sep 7th, 2008 at 3:25pm: no ulcers but I've had hyperactive intestines.  The only things I could eat were white bean soup, mashed potatoes, and soda crackers, for awhile. Charlotte :-/ As much as I love mash potatoe, that does not sound like fun!! Whilst I was trying to refind the link I noticed there were similar links (from google) that mention peptic ulcers and CH.     ??????     I don't know if its ever been done on here but I imagine it would be interesting to see what other kind of disorders people with CH suffer from.  If there are any standout conditions or just a whole bunch of different stuffs that we humans deal with.   Personally I suffer from fibromyalgia and remember a guy on here a while ago called Carl who also suffered from this.  I wonder because of the role of the hypothalamus in both conditions if there is a link or perhaps we're just unlucky  ;) K

I have not had any ulcers either, but have always had problems with my guts, even before the onset of CH and all of the differing meds that go along with fighting the beast.  Maybe there is more of a connection to CH and GI problems beyond eating so many different meds, whoda thunk it!

I also have, what my pediatrician called some 30 years ago, familial tremors.  I have shakey/unsteady hands.  It is also a neurological problem.  It does not affect me, so I don't see it as a problem. I am still able to  do everything I want and don't notice it for the most part, but others do...  Does anyone else have anything like this?

Kate in Oz wrote on Sep 8^th, 2008 at 6:33am:

Hi, Here is the link START PRINTPAGEMultimedia File Viewing and Clickable Links are available for Registered Members only!!  You need to or END PRINTPAGE And here is a little of what was said... The possibility that histamine may be involved is supported by the reportedly higher incidence of duodenal ulceration in patients with cluster headache (Ekbom, 1970b) as well as by the precipitation of attacks with small amounts of this substance. K

This is a bit off topic, but the histamine part interests me because I have histamine intolerance syndrome.

My stomach problems have been, gall bladder disease, appendicitis, pancreatitis, IBS, abdominal migraine, stomach ulcers, and a few other things.

And the bland diet is NOT fun. I was on that for 2 and a half years before they removed my gallbladder. >_<

Same, I can't handle histamine!!!    I've also got IBS - it just gets lumped in with the fibromyalgia diagnoses.

2.5 yrs of white bean soup  :-X  

parp  :-[  

pardon  ;)



Kate

I was diagnosed with Fobromyalgia four years ago. As well as IBS. I also have had some trouble with depression since I was a teen.   I've  always felt that if I could just get my seretonin levels to be right all of this and my CH would get better.  Just a theory.

Jeannie  

A strange topic to make a first post but it did get my attention...

I have only had one episode of CH in summer 2005. It lasted for about two months and from what I head was quite a typical episode. I havent had any other episodes since then, only a few shadows 2-3 times a year. I hope it stays this way :)

I also have duodenal and oesophagic (spelling?) scarring and really bad acid reflux from a hereditarily faulty stomach valve.

I never thought the two might be connected but your post got me thinking.

The funny thing is my gastrologists do not seem to know why my case is as it is. The biopsies show symptoms consistent with heavy use of NSAI drugs (aspirin,nurofen etc.) but I never use such products. Another doctor attributed my symptoms to heavy smoking and/or drinking but I do not smoke and have less than  1-2 bottles of beer or  1-2 glasses of wine per month.

I wonder if there are more people with similar symptoms.