just saying hello to all.I am overwhelmed at the amount of sufferers here..will post more when i have calmed down..i have just come out of a mild CH but still fckn pissed me off very happy to be here..gonna try get some sleep.Andy P

Hi Andy, nice to meet you  :)

Hey Andy,

     Welcome to Painville. You will learn a great deal here. The more you read the more you can educate your doctor. Cause lets face it most of us can teach most doctors a thing or two about CHs.
       Anyway welcome to your new home and your new family. Do lots of reading and don't be afraid to ask questions.




Dave

Be sure to make contact with your most excellent source of support:

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A big state side welcome to you, hoping we can help you out. Looking forward to getting to know you!

;)Guiseppi

Welcome bro ... from the local Troll.  I do wish you pf man!

Hi Andy,

  We all look forward to hearing your story and what works for you and what doesn't. What kind of Dr.s you've seen etc.

  In the meantime,  a very big welcome to this family.



(Please ignore anything the guy in neon green has to say.  He's here ONLY to cause trouble and is NOT a part of this family)


         Linda

 

Welcome, Andy.   :)  

Best wishes,

George

Hi Andy-   [smiley=wave.gif]

Just wanted to say hi and welcome-

Kelly

Hiya, I started having CH 2 years ago.The first one scared the shit out of me.I didn't know what was happening,thought maybe i was having a brain heammorage (spelling isnt my strong point).My wife called an ambulance and they took me to hospital thinking i had meningitis,i passed out on route to hospital. I came to in hospital very confused and the CH had subsided but there was still a bad pain, i was asked all sorts of questions Re: drug taking,migraine and bangs to the head etc they gave me pethadin injection in leg then was left alone for about 3 hours in a cubicle..thats when it started to kick in again.I was kicking and shouting and pressing my face and head with both hands and crying out as loud as i could..i was slurring my words when someone came(finally) i find it hard to speak when these things kick in and it probably sounds like i have had a stroke to some.Basiclly i was taken to a ward and put on Morphine and slept the night away.The next day i had head xray and facial scan which revealed nothing.I was discharged later that day after being visited by a doctor who told me i was suffering from CH and gave me advice Re: diet,smoking,alcohol..  basically the same as migraine he told me but a lot worse.Thats it i've been on my own ever since.I've been to GP and they know fck all about it telling me about preventative medication , but when they are telling me they are either going online or reading info from a book etc.In the years since my first i have had only 11 attacks usually lasting between 1-2 hours.I have been told recently to avoid caffeine but on here people swear by it as a first line of attack.I am confused,angry at my doctors..i mean they say they don't know what causes them and then they try to offer me a preventative medicine which causes undesirable side effects and affects your heart! I had resided myself to the fact i was on my own till i found this website.The only meds which btake the edge of it is Immigran and this does not always work.But as i read in a post on here last night.."i would eat shit if i thought it wouldhelp" People at work say "oh yes i have migraines too" and this makes me so angry..no they are not fckn migraines ,old ladies have migraines and toddle off to the chemist and get a pain killer.I explain what CH do and make you feel like but they just don't get it..Well thats me sorry for the rant..i look forward to getting to know you all.

Please don't put down people with migraines. Their pain is just as real as ours. It may not be as intense, but it's still pain.

Print out a few copies of the following letter. Read it, and have a few copies on you to give to friends and colleagues.

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i wasnt putting down people with migraines.I was trying to get my point across about the misunderstanding and degree of pain we go through..you cant blame me for getting frustrated and i do especially when people compare what i go through with a migraine and they say things like ..ohh i had to lie down for an hour and i had flashing lights behind my eyes...i understand that this is very very painful but what i am saying is that i am frustrated that people i tell think this is a comparison and they do not believe me when i tell them what the pain is like...hence my frustrations with migraine sufferers..don't forget i have only just joined this site and up until last night i was completely on my own,the closest thing i could relate to was migraine sufferers..i have had time off work and my boss has said..well i get bad migraines and they dont keep me off work....hope this clarifies things and nice to meet you. ;)

Print the letter and give it to him.

I will ,Thanks Brew the letter is brilliant

andyphillips wrote on Sep 13^th, 2008 at 9:00am:

...the letter is brilliant

Isn't it though? I've handed out at least a hundred copies.

[quote author=5545524054455240370 link=1221251013/0#10 date=1221309324]Please don't put down people with migraines. Their pain is just as real as ours. It may not be as intense, but it's still pain.

Print out a few copies of the following letter. Read it, and have a few copies on you to give to friends and colleagues.

START PRINTPAGEMultimedia File Viewing and Clickable Links are available for Registered Members only!!  You need to or END PRINTPAGE
That letter says it all. Perfect !

Hello Andy,

Sorry that you had to find us but glad as the info in here will help as it helped me!!
I started roughly 3yrs ago and my first attack i was taken in as an emergency doctor said it could b menigitus!!
Anyway after a year trying tablets (maxalt) and beta blockers with no relenting on the pain i began to research and found this site.
What ive learnt from this site has changed my life for the better, i 2 was told caffeine would aggravate my condition but everyone is different and so i tried a redbull, got rid of a few shadows i was having!!
I am now on Oxygen and imigran injectables, if the oxygen doesnt work i take an injection, since i started oxygen in Feb i am still yet to use any imigran, demand it from your gp, hopefully it will work but if not the veterans on here will have other methods to find ur Silver bullett.

Good Luck and PFD to all

(good to see another Northern lad on here) ;)