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Cluster Headache Help and Support >> Cluster Headache Specific >> cant sleep ?? http://www.clusterheadaches.com/cgi-bin/yabb2/YaBB.pl?num=1221502329 Message started by BrianJ on Sep 15th, 2008 at 2:12pm |
Title: cant sleep ?? Post by BrianJ on Sep 15th, 2008 at 2:12pm
Hi all anyone else experianced this, since my cycle ended i cant sleep im awake till 3 or 4 am then im up for work at 7am i have try taking the melatonin to help me sleep but i just cant switch off anyone else experianced this and any advice would be greatfully recieved thanks
Brian |
Title: Re: cant sleep ?? Post by midwestbeth on Sep 15th, 2008 at 3:15pm
Hi Brian,
Sorry to hear you are having a hard time sleeping. I go through periods of insomnia and I can relate. Unfortunatly, I don't have any advice other than the common sense things like avoiding caffeine and waking at the same time every morning. If it becomes a problem that does not go away, you may want to give your Dr. a call. Beth |
Title: Re: cant sleep ?? Post by BrianJ on Sep 15th, 2008 at 4:54pm
thanks beth i think thats what ima have to do its effecting work they reluctantly accept my cycles but not sure if they will accept this it would not be that much of a problem but i have to drive for a living
thanks for your support beth PF wishes to you Brian |
Title: Re: cant sleep ?? Post by tuck on Sep 15th, 2008 at 5:15pm
brian, sorry to hear you are having troubles. I have worked shift work my entire life,(well, since 1984 anyway), talk about crazy sleep paterns!!! there is NO way I could EVER regulate my paterns, which everyone says is a key factor in controling your CH. I have found in the past during shift changes that the only way to "bust" a goofy patern, such as insomnia, is to just bite the bullet and DONT sleep. For example, pick say, a thursday, assuming you work friday and are off sat. Thursday night dont even TRY to sleep. Rent yourself a handful of movies, buy a bunch of munchies and simply commit yourself to staying up all night! Yes,, Friday you will be in shitty shape, but,,, Friday night you should sleep like a log. DONT over sleep saturday! get up at a decent time, and maybe that will "bust" your insomnia. This remedy has worked for me. Well,,, just a suggestion. Good luck,,,Tuck
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Title: Re: cant sleep ?? Post by Agostino Leyre on Sep 15th, 2008 at 5:38pm
How long before you go to bed, do you take the melatonin? Sometimes you have to take it 1.5 - 2 hours before you go to bed.
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Title: Re: cant sleep ?? Post by BrianJ on Sep 16th, 2008 at 2:45am
thanks tuck i will try that if nothing else works its a little hard with me having to drive for work to stay awake for 24 hours but i will try
Agostino Leyre i tke it about 1.5 befor bed it makes me sleepy just does not make me sleep i just cant switch off for some reason gonna go the doctors today see what he says thanks guys Brian |
Title: Re: cant sleep ?? Post by George_J on Sep 16th, 2008 at 3:27am
Sounds like you have a bit of what happens to me going on, Brian. A cycle really disrupts my sleep cycle, and it always takes a few months after the thing has ended to re-enter a "normal" pattern. For me. Which doesn't involve a lot of sleep, true... ::)
It's not so much that I'm insomniac. It's more like I'm gunshy about sleeping for a while after I go out of cycle. Best, George |
Title: Re: cant sleep ?? Post by darknight on Sep 16th, 2008 at 8:49am
Hi Brian,
Sorry to hear that ur not sleeping well. One of my favourite past times is sleeping but since being diagnosed i find it hard to sleep. My only help has been via my doctor who gave me some sleeping tablets that i use sparringly to catch up or just to knock me out after an attack, please be aware i am given 1 months perscription that i use over a period of 5-6 months. May help but sorry to hear!!! PFD TO ALL |
Title: Re: cant sleep ?? Post by BrianJ on Sep 16th, 2008 at 11:46am
Hi guys mabey that is it George i dont know i just cant switch off i hope it dont take a few months to get backto normal 2 cycles a year lasting 6 weeks each dont leave me that many months between cycles :) fingers crossed for 10 year remission but wont hold my breath :(
the doc said he can and would give me some heavy sleeping pills but i cant take em, drive all week and on 24 hour call the week end i think i will try upping my melatonin dose tonight from 6mg to 12mg see if that knocks me out lol thanks for the support guys just knowing you guys are here helps me relax PF wishes to all Brian |
Title: Re: cant sleep ?? Post by darknight on Sep 16th, 2008 at 12:42pm
Why dont you ask the doctor for a mild sleeping tablet (effects last up to 4hrs). They are used as a sleeping aid to stop your mind from racing and relax you into a natural sleep!!
It should not effect your driving provided you take them at a reasonable hour!! Good luck SI |
Title: Re: cant sleep ?? Post by BrianJ on Sep 16th, 2008 at 2:35pm
thanks darknight if the melatonin at a higher dose dont work i will speak to the doctor again my doctor is the type that gives you anything you ask for but will not suggest anything its like he does not listen he just says yes he is good in that i dont have to argue but he really cant be arsed otherwise
Brian |
Title: Re: cant sleep ?? Post by AlienSpaceGuy on Sep 16th, 2008 at 5:22pm |
Title: Re: cant sleep ?? Post by ClusterChuck on Sep 16th, 2008 at 5:26pm
Hot, kinky, adventurous, and energetic sex, before going to sleep used to work ... (If I am remembering correctly, all those years ago)
Chuck P.S. Try using both hands at once, and see if that helps. |
Title: Re: cant sleep ?? Post by darknight on Sep 18th, 2008 at 4:44am
I do think Alien spaceguy is onto summit lol!!!
My Doc is quite similar if i ask for something i will useually get it. knowing more about the condition than them he is probably more willing just to accept what you say, maybe thats a good thing and you may not be understanding his actions!! CLuster chuck you got the wrong site u want clustersexheads.com!! lol |
Title: Re: cant sleep ?? Post by Karl on Sep 18th, 2008 at 9:51am
i am thinking of you buddy, please be careful driving if sleep deprived i wouldnt want anything bad to happen.
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Title: Re: cant sleep ?? Post by Guiseppi on Sep 18th, 2008 at 11:31pm
I guess I'm lucky, the cafergot will keep me awake a day or two but once the cycle ends I'm good. Probably time to see the doc and see if he can do something to reset the old clock. Good luck, sleep deprivation sucks!
Guiseppi |
Title: Re: cant sleep ?? Post by BrianJ on Sep 21st, 2008 at 3:27pm
Thanks Guys
You are all wonderful i think im finally cracking it 9mg of melatonin and cut out the cafine and im geting 5 hours or so, i can defo live with 5 hours a night. A special thanks to chuck i can always cound on your for the best advice lol PF wishes to all Brian |
Title: Re: cant sleep ?? Post by Kilowatt3 on Sep 22nd, 2008 at 12:16pm BrianJ wrote on Sep 16th, 2008 at 11:46am:
Brian, Instead of increasing your melatonin dose, try REDUCING it! Believe it or not, with melatonin a smaller dose is usually more effective at helping you sleep than a larger dose. One study showed the optimum to be about 300 mcg (that's 0.3 mg), and a side effect of too much melatonin is insomnia! Go figure! Hope this helps, Jim |
Title: Re: cant sleep ?? Post by BrianJ on Sep 22nd, 2008 at 5:00pm
Thanks kilowatt3 i will try that :)
Brian |
Title: Re: cant sleep ?? Post by CH-HELL on Sep 22nd, 2008 at 6:59pm
Hi everyone has given great advise I think most of use with ch have had this happen before, broken biological clocks. I know I cant get to sleep 90% of the time and it gets frustraighting I dont know if Im scared to go to sleep or what but even if I only slept two hours the night before I still seem to have a hard time getting to sleep. I dont know if any one had recommended benidryl (Diphenhydramine hydrochloride) not sure if thats spelled right. Its an otc antihistamine. Im sure others here are more educated than I am on this med but it doesn't seem to interact with my other meds and it helps me get to sleep, I dont recommend talking it daily but once in awhile just to get caught up on your sleep. Good luck Phil
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