Friggin hot head and fire eyes. The occaisional sharp jab behind the eye. I am lucky, nothing above a 2 or 3 on the Kip scale. I have a tool box full of demon beating weapons. Just refilled the Etanks. Coffee pot at the ready. Shrooms,seeds, a battery of herbal stuff on the way to try. Of course the tried and true, prednisone, imitrex, lithium combo.
A treatment plan from the neuro that includes, 02, a battery of prevents, and a local GP with a script pad and is not afraid to use it.
The ER staff all know me as the headache guy.(I tore up their waiting room once so they know to get me in quick.)
It's early this year the demon bastard. The alternatives are still holding their own. NO full blown CH episode yet. I have to say if it weren't for the alternatives,02, and caffeine I would be in alot more pain. So all things considered, I am a lucky man.
The CH is a bit different. I am on new ice here though. I haven't had to fight shadows like this before. I would be in a full blown episode for sure if not for the tools I have.He's back and he wants to make up for lost time. So sorry Demon from Hell, your in for a fight. I will win one way or the other.
all the best
the bb

Quote:

I will win one way or the other

Too damn right you will!

Keep battling. Sounds like you've got all the ammo you need there. Sending vibes for the beast to leave you the hell alone sharpish.

Em
x

Great

Sounds like you got the twelve gauge loaded with slugs and at the ready
Hope you get the relief you are seeking.
Wishing you PF days and nights :)

i know i am lucky too not just cause i am prepared but all the great people that write me and encourage me to hang on.
John i am with you man whatever you need you can count on me.
prayers and vibes going your way.

Now kick his demon ass to the curb!  8-)

We're all behind you if it gets "interesting".  Sounds like you have your ducks in order though.

Good luck...

-Dennis-

Nope. .  You're a lucky man because you have Joan.   ;)


   Glad you have what you need.  We're here for you just as you've been here for others John.   Kick a$$ !!!!!!!!!

Never get in the way of a man with tools.

Good luck BBz, I'm sure you can fix it..

kick a$$  john!

wrote on Oct 6^th, 2008 at 4:59pm:

Friggin hot head and fire eyes. The occaisional sharp jab behind the eye. I am lucky, nothing above a 2 or 3 on the Kip scale. I have a tool box full of demon beating weapons. Just refilled the Etanks. Coffee pot at the ready. Shrooms,seeds, a battery of herbal stuff on the way to try... It's early this year the demon bastard. The alternatives are still holding their own. NO full blown CH episode yet. I have to say if it weren't for the alternatives,02, and caffeine I would be in alot more pain. So all things considered, I am a lucky man... The CH is a bit different. I am on new ice here though. I haven't had to fight shadows like this before. I would be in a full blown episode for sure if not for the tools I have. He's back and he wants to make up for lost time... all the best the bb

Uh-oh!!!

Well John,  looks like we'll have a chance (maybe) to make a believer of you!  Hope so...  I think I'm a day or so behind you on the "Aw $hit" schedule - had my worst jab yet this morning, but not a genuine hit just yet.  I'm VERY confident I'll beat it, though! 8-)

Good luck, and see you on the other side  ;)

Regards,
Jim

Well, that's just rotten, John.  Sorry to hear that the Black Dog has come sniffing around.

Hope your arsenal proves effective once again, and that this one is short, mild, and uneventful.

Stay frosty, and stay strong.  I know you will.

All the best,

George

John, sounds like you are well prepared to stand up and do battle once again with the beast. We are all here for you. Strength in numbers! ;)

Hang in there John.  I know you'll give it your all.

You guys are so COOL. I hate this condition with a passion. You can be relatively PF for as long as it lasts....you still have CH. I am so relieved to have to have the support only you guys can give. Of course Joan is #1 supporter. But if I told anyone else I was battling CH, I would get that deer in the headlights look and, Oh I get migraines. There is no one else that could even relate. Kilowatt, I have your ingredients on the way...hope I dont need to use'em.
Bend over Demon I got a little somethin, somethin for ya.!!! [smiley=bloos.gif]
all the best
thebb
Good to see ya posting again Edub.

stay on top of it ' thebb ', good times are coming. andrew.

wrote on Oct 7^th, 2008 at 1:48pm:

You guys are so COOL. I hate this condition with a passion. You can be relatively PF for as long as it lasts....you still have CH. I am so relieved to have to have the support only you guys can give. Of course Joan is #1 supporter. But if I told anyone else I was battling CH, I would get that deer in the headlights look and, Oh I get migraines. There is no one else that could even relate. Kilowatt, I have your ingredients on the way...hope I dont need to use'em. Bend over Demon I got a little somethin, somethin for ya.!!! [smiley=bloos.gif] all the best thebb Good to see ya posting again Edub.

That is one GREAT post on SO many levels...I'm smilin' while looking at my etank...good on ya man, good on ya...

THANK YOU,

Jon

Keep her goin' there thebbz, I'm with you all the way.

This is my worst time of the year as a rule but, for the first time, I've got meds.

I'd a brute in work last week (had to go outside and cry till it went), but I'm surviving better than I've ever survived before.

Went to the doc today to stock up on the meds to see me through (this babe normally lasts until December).

Loads of shadows, a few KIP 5's (one 7 - above), but nothing on the scale of past clusters. I'm even planning a holiday at a time when I would never have dreamt of doing so in the past.

Yeah, I've still got CH and I know it can still brutalise me but I'm taking comfort from the fact that this time last year my house was littered with damp facecloths - when my face wasn't in the fridge.


Quote:

Bend over Demon I got a little somethin, somethin for ya.!!!

Whatever ya got, stick it up the demon...and stick it well hard up that bag of scum.

Love all you guys.

Beat his ass.  Wishing you luck.

Regards,

Malcom

Quote:

Whatever ya got, stick it up the demon...and stick it well hard up that bag of scum.

Right now I'm thinking pineapples....big ones. :P
Hee.he..he
thebb

Make 'em fresh and make 'em big. Let him know he's the one lying down!

Good luck man.

Aidh, and don't take those spikey leaves off. They're the bit he'll enjoy least of all.  ;D

Damn John sorry to hear he found your forwarding. :( Hugs to you and Joan from Christy and I, miss you guys.

Guiseppi

Buck up or lay there and bleed.

           Potter

Monkeyman,you SOOO have the attitude! Nothing breaks you, does it?  
I'm sorry you're needing the artillery, John. I hope the cycle is short lived and full of nothing!
Hugs to Joan!

cathi :-*

Aw, the beast broke me many years ago. Now it is just not an option.
Too many ways to stay ahead of it. Like Potter said, Buck up, or lay there and bleed. I prefer fighting hard. Laying down is unbecoming of my character. There is always something that you can do. It should be noted that all the study about this condition and the information garnered here has made it much easier. The support means more that I can say.  [smiley=vrolijk_26.gif] [smiley=thumbsup.gif]We have a wonderful thing here, Thanks Deej
Oh, I love 02 and seeds, it keeps the expiration date on the trex in the old and getting older aisle.
thebb

[quote author=3E232422250925390931393932560 link=1223326791/0#15 date=1223431948]


Yeah, I've still got CH and I know it can still brutalise me but I'm taking comfort from the fact that this time last year my house was littered with damp facecloths - when my face wasn't in the fridge.
____

Had to *lol*; just because of this morning at 3:30am...there we were, me sitting on the counter & Jonny trying to stuff his whole body in the freezer of the fridge. I'm so glad we found people who "get" it. No, it's not a migraine. I would freaking just dance for absolute relief if he said to me "Don't worry, it's just a migraine." Migraines are bad, I'm not trying to debunk that...but that kind of pain is like...a broken arm being compared to an amputation without anesthetic!

Bless & hope you get releif soon!