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Message started by Mrs Deej on Oct 23rd, 2008 at 11:28pm

Title: An inspiration for everyone!
Post by Mrs Deej on Oct 23rd, 2008 at 11:28pm
Some of you here may not know, but DJ suffers from a very rare cerebral vascular disease called Moyamoya.  He was diagnosed after having a stroke which lead to two brain surgeries to revascularize his brain.  In a recent study published the odds of this are 1:2 million (as if it wasn't bad enough to have clusters).  DJ started START PRINTPAGEMultimedia File Viewing and Clickable Links are available for Registered Members only!!  You need to Login or RegisterEND PRINTPAGE after being diagnosed and not being able to find sufficent information on the internet.  Then and there (like ch.com) he dedicated his life to reaching out to people who had been affected by this rare disease, giving them all the information they needed to make an informed decision about surgery.

This article is about a young woman who is a survivor of MM disease because of DJ.  I am so proud to know her personally, and the accomplishment she has achieved.  I hope you enjoy this article.  

She is inspiration to me that nothing should ever get in your way!

START PRINTPAGEMultimedia File Viewing and Clickable Links are available for Registered Members only!!  You need to Login or RegisterEND PRINTPAGE

Here's to DJ and the others (including yourselves) that haven't let the adversity in their lives hold them back!

[smiley=headbanger.gif]

Title: Re: An inspiration for everyone!
Post by George_J on Oct 23rd, 2008 at 11:47pm
Wonderful article, Steph.  Many thanks for bringing this to our attention.   :)

I'm sure that only some of us are aware of what DJ has done for sufferers of Moyamoya disease...creating the community at moyamoya.com, in the same way he has created this--our home.

It's an honor to "know" DJ (although we have never actually met).  He's proof that one person truly can make a difference in this world.

All the best,

George

Title: Re: An inspiration for everyone!
Post by Melissa on Oct 23rd, 2008 at 11:54pm
DJ: Saving peoples lives since... (when in the hell were you born?)



just like on the commercials!

:) :) :) :) :) :) :) :) :) :)


Title: Re: An inspiration for everyone!
Post by Callico on Oct 24th, 2008 at 12:08am
Kewl!

Thanks for posting this Steph.  Thanks once again to DJ.  He is changing lives all over the world.

Jerry

Title: Re: An inspiration for everyone!
Post by Mastifflvr28 on Oct 24th, 2008 at 12:15am
As much as DJ hates it when we all praise worship him for finding this place for us, I bet he gets it DOUBLE from the moyamoya folks :)

He deserves every bit of "praise" from both!!
Mast

Title: Re: An inspiration for everyone!
Post by Guiseppi on Oct 24th, 2008 at 2:24am
The day my wife found that clunky old streaming CH board...what a light coming on moment it was! Those are TWO awesome lamps you've lit on the mountain tops DJ, thank you. [smiley=hug.gif]

Guiseppi

Title: Re: An inspiration for everyone!
Post by BarbaraD on Oct 24th, 2008 at 7:01am
Yeah and he's a purtty good kid to boot... Luv ya DJ - BTW Steph -- we all think he's a  keeper....

Hugs BD

Title: Re: An inspiration for everyone!
Post by Ray on Oct 24th, 2008 at 8:34am
[smiley=thumbsup.gif]

Ray

Title: Re: An inspiration for everyone!
Post by flipperlips on Oct 24th, 2008 at 8:50am
Great post!!!!!

DJ thanks for all that you do, you are a true blessing to so many people.

Hugs,

Jen

Title: Re: An inspiration for everyone!
Post by AussieBrian on Oct 24th, 2008 at 9:09am
            DJ for President!!!

Title: Re: An inspiration for everyone!
Post by Marc on Oct 24th, 2008 at 9:36am
I remember when he started the Moyamoya site and I read some of the testimonials way back then, even posted once. DJ was telling folks about the successes he had at Stanford and encouraging people to seek proper treatment. From what I could see, his efforts helped several people avoid death. Zipper head indeed.

Title: Re: An inspiration for everyone!
Post by Em on Oct 24th, 2008 at 3:32pm
DJ - You are amazing. What you have done gives people strength and courage to keep fighting. To know one is not alone is so empowering.

You really are the shining light at the end of a dark tunnel.

Em

Title: Re: An inspiration for everyone!
Post by Jonny on Oct 24th, 2008 at 6:41pm
I will end up kicking someones ass if DJ doesnt get a set of wings. Man, just think about how many people he has helped in their time of need!

I know I am one of them!

Thanks man!  [smiley=bow.gif]

Title: Re: An inspiration for everyone!
Post by thebbz on Oct 24th, 2008 at 7:17pm
START PRINTPAGEMultimedia File Viewing and Clickable Links are available for Registered Members only!!  You need to Login or RegisterEND PRINTPAGE START PRINTPAGEMultimedia File Viewing and Clickable Links are available for Registered Members only!!  You need to Login or RegisterEND PRINTPAGE START PRINTPAGEMultimedia File Viewing and Clickable Links are available for Registered Members only!!  You need to Login or RegisterEND PRINTPAGE
You rock DJ  
all the best
the bb

Title: Re: An inspiration for everyone!
Post by Linda_Howell on Oct 24th, 2008 at 7:31pm
I remember the 1st. convention in Atlanta and Elaine presented him with a plaque and he shyly got up to accept it.  He said,  I just started this site.   The rest of you "RAN" with it.   He has said something similar at every single convention.

With Moya-Moya being a life-threatening condition and CH isn't...he has more to be applauded for.


And as a side-note, I get to see him in a week or two at Standford..so neener-neener.   ;D

Title: Re: An inspiration for everyone!
Post by Jackie on Oct 24th, 2008 at 7:32pm
Another life saved.  I wonder how many there have been over the years.  Heartwarming!!!!

DJ is an angel for sure.....so is our precious Steph :)

Love ya both,
Jackie

Title: Re: An inspiration for everyone!
Post by Redd on Oct 24th, 2008 at 7:50pm
DJ found a way to bring both CHeads and Moyamoya sufferers together to share their pain and their triumphs.

The numbers of lives he has saved are unmeasureable.  Steph, you and your boys are so very blessed.  We share him through the forums, but his huge heart and generosity are what you live every day, and you all deserve each other, because you took us all under your wing,  proving your heart is just a huge and as generous.

This young gal is truely a survivor in the greatest sense.  thank you for sharing her dream with the rest of us.  




Title: Re: An inspiration for everyone!
Post by barry_sword on Oct 24th, 2008 at 8:02pm
Wiping a tear away, Thank-You!! :'(

Title: Re: An inspiration for everyone!
Post by Charlie on Oct 24th, 2008 at 10:13pm
START PRINTPAGEMultimedia File Viewing and Clickable Links are available for Registered Members only!!  You need to Login or RegisterEND PRINTPAGE

He never quits......thank God.

Charlie

Title: Re: An inspiration for everyone!
Post by Rosybabe on Oct 24th, 2008 at 10:46pm
A very nice and inspiring post...DJ you are the best!!!

                                                           Hugs   :-*

                                                                      Rosy

Title: Re: An inspiration for everyone!
Post by midwestbeth on Oct 25th, 2008 at 12:01am
A true inspiration!  Thanks for posting that Steph.

Oh, and DJ rocks!

Beth

Title: Re: An inspiration for everyone!
Post by sandie99 on Oct 26th, 2008 at 9:02am
Thank you so much for sharing this, Steph!

This just proves me right: DJ is one of those special people who we can call 'everyday hero'.

Sanna

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