...it might have worked last night. I slept on the couch, had 1 hit, went to the freezer(cuz I have no O2 yet) inhaled the cold air and aborted in 10-15 min. NO MORPHINE!!!! and went back to sleep. only 1 hit, i can't believe it. and when i did have the 1 hit, my body just got up and walked into the kitchen and so on. i didn't realize what i was doing until my rottie came up and started to  likck me. I am truly amazed!! no i need the O2. Kels was supposed to have today off, but late last night she informed me she had to fill in today and will be taking thursday off this week. (she alwayls has sun & mon off). Thanx for all the help and advice ive gotten this week! :) I 'm gonna beat this beast, I'm gonna knock him the fuck out! its my turn to dish out the ass kickicking and the beast is gonna get it! can't wait for that! Thanx again everyone!
chris

Glad sleeping on the couch worked. It works more often than not for me, to sleep somewhere other than the bed I so adore!  My own bed is a promise to get hit in the first REM phase.

And please refrain from excessive vulgarities.  While this board has a long history and its own culture, it's still a publicly viewable board with variety of people participating.  I feel bad enough from exhaustion and the fear of the next attack, and I don't wish to be offended here.  What we need is mental strength which doesn't equate to verbal (written) profanity.  

MrsT wrote on Nov 10^th, 2008 at 9:52am:

And please refrain from excessive vulgarities.  While this board has a long history and its own culture, it's still a publicly viewable board with variety of people participating.  I feel bad enough from exhaustion and the fear of the next attack, and I don't wish to be offended here.  What we need is mental strength which doesn't equate to verbal (written) profanity.

Unless Chris was personally attacking you directly, he has the freedom here to express himself with whatever words he wants.

Melissa wrote on Nov 10^th, 2008 at 11:28am:

[quote author=556A6B4C180 link=1226325714/1#1 date=1226328739]And please refrain from excessive vulgarities.  While this board has a long history and its own culture, it's still a publicly viewable board with variety of people participating.  I feel bad enough from exhaustion and the fear of the next attack, and I don't wish to be offended here.  What we need is mental strength which doesn't equate to verbal (written) profanity.  [/quote Unless Chris was personally attacking you directly, he has the freedom here to express himself with whatever words he wants.

     Couldn't agree with you more Mel.

                  Potter

Chris, congratulations on getting through a hit without the use of morphine!

I can't wait to see what happens when you finally have O2. :)

yeah, its nice to have gotten away from the beast with a lil bit of cold air. I got back to sleep and now, today im not feeling any side affects from it. NICE!!! :) (meaning means no 12 hr drug induced blah.)
just walked the dog. i haven't done that in weeks because of fear of when and if the beast will come to kick my ass. it was soooo nice. 60 degreese out, clear, and no wind.with the ease ao aborting that HA, maybe, just maybe this episode is drawing to a close. please God let this be the shortest episode yet!!im gonna go read some stuff i was told will help me somemore.
thanx yall for the support. its nice.
chris

Reconsider the caffeine or enegy drinks for the daytime hits Chris.
the bb
OH ya.....do what Chuck say's. He may contact you directly. ;)

MrsT wrote on Nov 10^th, 2008 at 9:52am:

And please refrain from excessive vulgarities.  While this board has a long history and its own culture, it's still a publicly viewable board with variety of people participating.  I feel bad enough from exhaustion and the fear of the next attack, and I don't wish to be offended here.  What we need is mental strength which doesn't equate to verbal (written) profanity.

Do yourself a favor, do not ever open one of my posts, because you will be offended by probably every single one of them. ;)

Having been chronic for 31 years I tend to let my feelings known!

Consider yourself warned! ::)

yeah, i thought this site was about coming some place you can post to people who are going through what you are. so you can express how you are feeling at that time, and your brothers and sisters can relate to you. therefore making it a little bit easier to deal with the pain and everything else that goes with this fucking illness we are so blessed to have. that was the impression i got. if i am wrong please let me know, i dont want to hurt any feelings.

Hey Chris,
tomato,,,tomato
Fuc#^%in NO good demon bast#^d fuc%Wer.
that was for you
the bb ;)
Jump on the crap thread and let'er fly.

Glad that you had a good day Chris.  Keep on kickn' the fucker's a$$  ;)

Jen

Got the message, everybody.  If the freedom of speech and support only works one way, I shall refrain myself from further participation.

I did not re-join this community for handholding (have had CH for long enough for that) but to share experiences and information with fellow sufferers, the only people who truly know the pain and frustration.  While I wholeheartedly believe in venting and relieving the stress, I have a sense of public decency.  Some need to curse, some need gentle support, and some only need information.  There should be some kind of a "middle ground", but it is my opinion which you guys gave a "finger" to.

I also believe in raising the public and professional awareness through community building, to gain support and interest in research to further understand this cursed disorder, as well as helping the undiagnosed, newly diagnosed, and long-term fellow sufferers.

I might "appear" to be a tight-ass, but my CH attacks are just as painful as anybody else's, I curse probably as much as others in real life, and I am as angry, frustrated, stressed, and depressed as anybody else over this.  I am disappointed to learn that the "freedom of expression" and support only applied in a certain way.  I certainly don't need "you vs. us" in dealing with CH.

We are all adults here. I dont use profanity as a rule. I dont however tell others they cant. I respect your desire for civility. I also respect Chris's right to express himself.
We are helping others, Chris included. I would think that you, being a clusterhead, would understand using profanity to vent when dealing with CH. Please dont go anywhere, if you find profanity you dont have to read it. Simply click on another thread and read there.
I wish all the best to all the best
the bb

sorry to have offended you or made your eyes hurt more by me expresing, the only way i know how, what im feeling. im truly sorrry. i guess its my youth. that i can not control. so forgive me.
chris

You've done nothing to be forgiven. I think you have apologized enough. Your welcome here as she is. You did'nt direct it at anyone as Mel said. Drive on my friend.
the bb

i will. some of that reading scared the shit out of me. scary stuff. i don't think i know how severe this thing is. ive known it was bad, but not as severe as the reading says it is.

The illustrations show you more about what we were talking about huh?
:o
the more you know the better to fight [smiley=bigguns.gif]

MrsT wrote on Nov 10^th, 2008 at 10:13pm:

Got the message, everybody.  If the freedom of speech and support only works one way, I shall refrain myself from further participation. I am disappointed to learn that the "freedom of expression" and support only applied in a certain way.  I certainly don't need "you vs. us" in dealing with CH.

I think you misunderstood, Ma'am.  You have just as much freedom to express as anyone else.  You can express anything you want, in whatever way you want, so long as it doesn't upset Mrs. Deej and her sidekick.

;)

Quote:

I might "appear" to be a tight-ass

Yes you do..now having said that, you have been here 1 month, many of us have been here daily for 9-10 years. Many of us have met many times. You are just as welcome as anyone here, but if cursing offends you on a message board then unfortumetly you will be offended quite alot.

PS.....I hardly ever curse, but to tell those who come on here and are in pain and venting not to..... sounds condescending.

No need to apologize, Chris, and thank you for understanding.  All I'm asking is mutual respect (note, that I said "excessive").  No matter how our lives differ from each other's, we all share the same pain.  If sharing little tricks and tips might help you or anybody in any way, my whole CH life is wide open.  I just don't believe in "if it's offensive, go to another thread or stay away" is the answer as a support community.  Otherwise I wouldn't have told you in your thread about my experience with different sleeping spots.

Clusterheadaches.com is the place we all come to to:

Rant about the pain
Wail
Get support when we are on our knees
Give support when we are back on our feet
Get friends in the same situation
Share thoughts, hopes and beliefs

Clusterheadaches.com is not the place to come to if:

You want to sell "magic powder"
you want cuddly caring talk
You are offended by hard words by people in pain similar to amputation without painrelief.

Awoken at 5 in the morning for the 4th time by a k10, I say fuck the fucking fuckers! And to hell with courtesy!

MaxPayne wrote on Nov 11^th, 2008 at 6:39am:

I say fuck the fucking fuckers! And to hell with courtesy!

Are you trying to make a point?...... or?

Michael

it is rather nice to see im not along in cursin this fuckning beast, as i come away from that bastard. i did so good yset. and this morning he came and kicked my ass big time. the deamon made up for missing a day. why is it like that, if you are able to abort the pain, or go a day without a visit, the next time is so much worse than it would have been if you you just opened the door, let him in , and do his deed? God this such misarible, unneeded pain. this is bullshit. sorry, the beast is leaving, and he beat me down. looks like a bad start to the day. although i slept GREAT lastnight, maybe thats my punishment, i got to sleep. why isnt there a way to just make this baeast happy. insted his happiness comes from making you feel like shit. grrrrrrr......im so over this.....all the pain and needless suffering. i hate this fuckind disease. i hate it. why cant i have a lisp, or a speach problem, why cant that be my problem. something that doesnt cause pain.
chris

ChefChris wrote on Nov 11^th, 2008 at 9:57am:

it  i hate it. why cant i have a lisp, or a speach problem, why cant that be my problem. something that doesnt cause pain. chris

Cursing....ok, lots of us do that. But the insensitivity of the above remark is unbelievable. NOBODY around here will defend that stupid fucking remark. >:(

One thing no one has mentioned thus far is this:

    Fuck is DJ's favorite word.   DJ runs this site...not you nor me.  If he says it's o.k. then dang it...IT'S O.K.!


I also don't believe in swearing just for swearings sake... but Mrs. T you really need to get a hang of where you are at.  This pain can cause the most church-going person to swear.  Sometimes I believe it's even cathartic.

You have no right here to tell us what to say or not to say. This is NOT your site.  It's DJ's.  and this site has saved more lives than you will ever realize.  I think "MY" God kind of likes that!!!!!!!!!(the saving lives part)

Take what you need and leave the rest, m'dear.

Dear Clusterville:

I feel that many of the comments are spot on.  I am not one to like profanity, but when I bust a toe on the bed frame in the middle of the night, I'm likely to utter some!  I am "church going folk", in fact, I'm a deacon at my church.

A couple of points...

1) The profanity was not directed at anyone here, rather it was "the beast"

2) The last perfect person lived nearly 2000 years ago, and we killed Him.  (Chew on that one for a while.)

Wishing you all well,

Ray

Quote:

1) The profanity was not directed at anyone here, rather it was "the beast" 2) The last perfect person lived nearly 2000 years ago, and we killed Him.  (Chew on that one for a while.)

Well said Ray.  Very well said.  


(as an aside...now where are my products I ordered?  ;))

havent gotten en' yet. and i have been home all day. i guess tomorrow.

KJ wrote on Nov 11^th, 2008 at 8:48pm:

ChefChris wrote on Nov 11th, 2008 at 9:57am: it  i hate it. why cant i have a lisp, or a speach problem, why cant that be my problem. something that doesnt cause pain. chris Cursing....ok, lots of us do that. But the insensitivity of the above remark is unbelievable. NOBODY around here will defend that stupid fucking remark. >:(

WTF???  Who wouldn't trade this crap we live with for a ingrown toenail, or the like??? Get off your soap box and be real. No harm no was bestowed and the guy was just venting for God's sake. ::)

My Mom and I have had the discussion on my dirty mouth since I was about 15. I have continued to cuss, and it's continued to bug her that I do.

She's realized now that I'm going to express myself however I please, excessive cussing or not. Mind you, I do not cuss in front of doctors, nurses, or children. Or at churches, funerals, etc.

However, I can see where she was coming from due to what Mom and I went through. MrsT didn't mean any harm I don't think. I think she's gotten the message : Everyone will express themselves however they please.

Now, I'm off to tell the beast to go fuck himself because he obviously wants to get an earfull tonight

Mystina

wrote on Nov 11^th, 2008 at 11:43pm:

KJ wrote on Nov 11th, 2008 at 8:48pm: ChefChris wrote on Nov 11th, 2008 at 9:57am: it  i hate it. why cant i have a lisp, or a speach problem, why cant that be my problem. something that doesnt cause pain. chris Cursing....ok, lots of us do that. But the insensitivity of the above remark is unbelievable. NOBODY around here will defend that stupid fucking remark. >:( WTF???  Who wouldn't trade this crap we live with for a ingrown toenail, or the like??? Get off your soap box and be real. No harm no was bestowed and the guy was just venting for God's sake. ::)

I think maybe you are missing the point, Rolo.  Not talking about an ingrown toenail.  Having a speech problem might not cause physical pain, but i am sure it could cause heart pain.  

Just like being a CH supporter causes heart pain.  I would not trade being a sufferer for being a supporter in a million years.  I think the physical pain is probably easier to bear.

Where is Jackie's thread, anyway?  It used to be stickied.

Jackie's thread is stickied in Supporters Corner.

all i was trying to say was, why cant i have something wrong with me insted of the terrible physical pain. thats all. i wasnt directing any comments towards anybody. i just pulled those examples out of thin air. i wasnt trying to sound in sensitive towards anybody and their problems. they were just examples. no harm intended.
chris

ChefChris wrote on Nov 12^th, 2008 at 11:26pm:

all i was trying to say was, why cant i have something wrong with me insted of the terrible physical pain. thats all. i wasnt directing any comments towards anybody. i just pulled those examples out of thin air. i wasnt trying to sound in sensitive towards anybody and their problems. they were just examples. no harm intended. chris

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