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Message started by artonio7 on Nov 17th, 2008 at 3:26am

Title: Let's start over
Post by artonio7 on Nov 17th, 2008 at 3:26am
Hello,

My name is Tony and I am 52 years old. I am a chronic Cluster Headache sufferer. I can't tell you all what it felt like when I found this site it's truly a heaven send. I thought I was the only one who suffered from this thing.

It is such a joy to know that there is an oasis and safe haven I can come to with people who understand.

I would like to get to know a little bit about each of you. If you would be so kind please introduce yourself.

thanks in advance.

with warm regards,
Tony

Title: Re: Let's start over
Post by Dan on Nov 17th, 2008 at 4:20am
Hi tony, Sorry that you also have had to find this sight but welcome.
My name is Dan,i am 32 and i live in the u.k. and only found this sight a week ago.
I am an eposodic with a cylcle that starts in october and last's till march/april, I have suffferd with the beast for approx 8yrs and DX about 3 years back.

Just waiting indoor's at the moment for my first delivery of o2, and hoping that it brings some relief as it has done for so many on this sight.

pfd's my friend..

Dan

Title: Re: Let's start over
Post by The Mad Viking on Nov 17th, 2008 at 4:51am
Do i really have to be that nice to you bro?
Have been missing you both here and on skype

Svenn [smiley=hiya.gif] [smiley=hiya.gif] [smiley=hiya.gif]

Title: Re: Let's start over
Post by sandie99 on Nov 17th, 2008 at 5:19am
Hi Tony!

Welcome (back)! :)

I'm Sanna, episodic clusterhead from Finland. I currently live in Helsinki again. I'm 28 and newly single, so this site is all the support and supporters I have right now. Luckily for me, it seems that even with the new job stress, ch is in remission...

Wishing lots of PF days your way,
Sanna

Title: Re: Let's start over
Post by Em on Nov 17th, 2008 at 6:24am
Tony,

Great to see you back here and with a great post!

I'm Em, I'm 26 and am currently procrastinating as I should be packing up my house to move on Wednesday, but instead am here! Ooops! I currently live in South Wales but am moving to Guernsey with a new job.

I have had CH for almost 2 years and found this site a little over a year ago. Since then, I have had a new lease of life.

Thank you Tony.

Em
xx

Title: Re: Let's start over
Post by Broken on Nov 17th, 2008 at 6:39am
(Great idea Tony. Glad to see you again.)

Hey all. I'm Felicia aka Broken and I'm 16 living in New York with my chronic dad and also chronic stepmom(peachy combo right? but I love 'em ;)). Anyways, I've been a supporter since I was about 7 and have been supporting the best that I can on this board for about 2 or 3 years now. I've met my long lost "brother" on this site, my second "mum" and half a dozen friends(like Tony) that I will never forget. Welcome all and welcome home. May the powers bring pain free days as soon as they can come.

Broken

Title: Re: Let's start over
Post by BarbaraD on Nov 17th, 2008 at 7:17am
Hey there Tony,

I'm Barb D and I'm OLD. Been in Clusterville since it weren't nothing but a little old pile of dirt with nothing but a General Store and a few old Clusterheads sitting around talking about our "little headaches".

But then our Mayor (DJ) got us all stirred up and we got us a first class Library built here and our population started growing. People started coming here and this place really started to grow.

Some of old Chronics started the Chamber of Commerce to welcome visitors and Permanent Residents (other chronics). Most of the visitors were episodic and just dropped in a couple of times a year, but we welcomed them with open arms and they kept returning year after year and some of them even moved in permanently.

Course we got our share of "Town Characters" along with the "almost normal" folks. Had to build us a "home" on the outskirts of Clusterville for those "special cases" like Chuckles. Have nice rooms with soft walls and everything.

What you see today is 24/7 action around this place. Our library NEVER closes (just like Vegas) and there's always a resident around to help if someone has a question about something.

The C of C even came up with a slogan to welcome new-comers"
WELCOME TO CLUSTERVILLE - YOU ARE NOT ALONE ANYMORE

Can't think of a better place to live - can you?

Hugs BD

Title: Re: Let's start over
Post by AussieBrian on Nov 17th, 2008 at 7:27am
G'day. My name's Brian and I'm not sure I'm in the right place at all because I don't suffer from cluster headaches. I endure them.  

My life goes on and I live it to the fullest, happy in the knowlege that CH is just like time, tide, death and taxes.

I've heaps of little cures that work for me at different times and I'll happily pass them on to anyone interested, in the hope they'll help another CHead.

During the meanwhile I'll simply remain thankful we have ch.com where decent people can meet, talk, and perhaps help others who are doing it tough.

(And that includes Artonio, even though he's old and his feet smell.)

We're all here for the same reason so I'm having a beer for us all,

Brian down under.














Title: Re: Let's start over
Post by Melissa on Nov 17th, 2008 at 7:40am
Hello everyone!

My name is Melissa and I have episodic clusters (since I was 16 yrs old) that come (well, at least they used to) once every 18 months and last for 40 days/nights.  I have found what works best for me is O2 (with a Clustermasx) as an abortive and Kudzu as a preventative.

I cannot say how happy I am to have found this place 8 years and thank DJ SO MUCH for starting it!  I owe him my life as the night before I found you here, I wanted to commit suicide (and almost did).

I live in Wisconsin and am married to a wonderful workaholic and have 3 beautiful children aged 8 months, 5 years and 14 years.  

Don't anyone be afraid of PM'ing me with questions as I will try to answer them as best I can, or direct you to someone who can answer you.

:)mel

Title: Re: Let's start over
Post by DennisM1045 on Nov 17th, 2008 at 7:56am
Hi, my name is Dennis and I've been chronic since the beginning some 13 years ago.  It took 12 years for me to get diagnosed and then less than a week to find this oasis on the Internet.

I live in Massachusetts with my wife and a bunch of kids.  They are my main support and the force that gets me out of bed in the morning.  

No ... I mean it ... the wife has them trained to jump up and down on my head if I don't get up.  As they've grown that gets harder and harder to ignore  ;D

It's a pleasure to meet you Tony.  Welcome (back)  ;)

-Dennis-

Title: Re: Let's start over
Post by Angie on Nov 17th, 2008 at 8:14am
Welcome back Tony

My name is Angie and I am a supporter forever. Through good times and bad times. This site was a life saver for both of us. I do not suffer from Cluster's but I have learned through here on how to fight and live a life again with my life partner.

Angie

(PS, good to have you back Tony)


Title: Re: Let's start over
Post by Rolomatic on Nov 17th, 2008 at 8:35am
Hello Clusterville!

My name is Roland and I started episodic 6 years ago. In my first year I went from 1 hit a month to 3+ hits per day and have been a daily chronic for 5 years now.

One day while I was reading a suicide prevention web page because I was at the point of brainstorming ways to end it all, I searched up CH and found this site. It was amazing to find that I wasn’t the only one affected by this disorder. Just knowing I was not alone was half the battle and the O2 help along with finally giving lithium a try has dramatically improved my pain levels.

Thanks DJ for all you have done to help improve our lives!

LYG’s, Roland. 8-)

Title: Re: Let's start over
Post by maalstroom on Nov 17th, 2008 at 9:30am
Hi, and welcome back Tony.

I'm Pascal, turning 34 in december. I'm a episodically clusterheaded male from the southernmost part from the Netherlands, just a few kilometers from the German/Dutch border.
Found this site in may or june when I was in the midst of a cycle, looking for some online info on CH.

I've been diagnosed with the Beast when I was in my final year in highschool, so that must've been '92 or '93. I've endured them through the army, college and still.
Been on different medications, and tried everything I thought might help, just like most here.

Finding this site has helped me enormously with all the advice and support I got. The thing I can return, is trying to help a newbie with the same as all the wonderful people here have done for me. As Chuck once stated: pay it forward.

PFDs to all from the Netherlands.

Pascal.

Title: Re: Let's start over
Post by gizmo on Nov 17th, 2008 at 9:38am
Welcome back Tony, it's good to see/read you again!

I'm Oliver, a chronic clusterhead from Germany.

PFDANs to all of you,
Oliver

Title: Re: Let's start over
Post by superhawk2300 on Nov 17th, 2008 at 9:50am
OK, I'll bite (creativ ideas catch my attention), glad to see you again!

I'm Jamey, been here a few years. 38 year old episodic male since early 20's (to clarify I've always been male, it is the headaches that found me in my 20's).

My biggest blessing is my wonderful family. My wife is an absolute angel. Such a beautiful soul and one of the nicest people I and most people I know, have ever met. Quite often people compliment me on her physical beauty (she was a model), but I always tell them that her outward appearance pales in comparison to the radiant beauty she has on the inside.

Every day I draw breath I am blessed.

Title: Re: Let's start over
Post by jimmers on Nov 17th, 2008 at 10:03am
Bless me Father for I have sinned, my last confession was 3 years ago :D

Seriously though, My name is Jim. I am an episodic in remission with the exception of a few break-thru's and some shadowing as of late.

My supporters at home are my Wife of 25 years (Barb) and my two Sons Andrew (age 20) and Christopher (age 9). We are from the Milwaukee, Wi. area.

My other supporters are my CH Family on this site.

Did I mention I like beer? :D

My friends call me Jimmers

Title: Re: Let's start over
Post by Mat on Nov 17th, 2008 at 10:27am
Hi to all you new guys. Have you checked out the cluster links to your left?
Be well and I love you all.
Maffumatt

Title: Re: Let's start over
Post by mummymac on Nov 17th, 2008 at 10:36am
Tony it gladens my heart to see you back, you have beem missed

My name is Tanya  I am 46 from the island of Jersey in the Uk.

I have had Ch since I was 17   my cycles last 12 weeks which is the only pattern I have. I only  starred taking  Imitrix Injections last December - which was  due to this site , I had information to fight with my Doctor. So I owe a big thank you to you all here.

I was lucky enough to go to the OUCH convention in Texas this year and meet some of the good folks on this site.

This site saved me when I was most desprete and thought I could not keep doing this, I gained strenth and compassion from everyone here.

Thank you to you all

Title: Re: Let's start over
Post by FramCire on Nov 17th, 2008 at 10:44am
My name is Eric.  I live in Missouri with my wife and 3 kids.  I am episodic although my last cycle lasted 16 months (or maybe back to back cycles, who the heck knows anymore) but have been PF for a while now (I am not counting months because that almost assumes an end, which I obviously dont want).

I am a O2 pusher and I use Zyprexa as a last resort abortive.

I tend to get caught up in political debates and often make jokes that arent funny and often misinterpreted

Anyway, that's me.  Welcome aboard I feel like I have been posting here for years even though this is my first ;) post.

Title: Re: Let's start over
Post by George_J on Nov 17th, 2008 at 11:02am
W/B, Tony.  It's good to see you again.

I'm George.  I've been a clusterhead since I got my first attack in 1966 at the age of thirteen--episodic the whole time.  I used to cycle twice a year, spring and fall, for 6-8 weeks at a time.  The $%^& things have gotten farther and farther apart, though, and my last three cycles have been three years between.  

For whatever reason, it seems to be weakening as time goes by.  I'm hopeful that the thing may leave me in peace altogether one day.  We'll see.

I found this place in 2000, but didn't post much until 2006.  I live in Boise, Idaho, with my two best supporters--my wife, Liz, and my daughter, Ellen.

I've been on the 'net since the old message board/listserv days--before the web existed--and have participated in many online forums on different subjects.  What I've found here, though, I've found nowhere else--a strong sense of community, a shared purpose, people who understand completely what it means to fight a common enemy whose attacks are almost beyond measure, comprehension, or endurance.  A band of brothers and sisters.  A family.

Most of all, I've found a remarkable group of people who are willing to do almost anything for others like themselves--it never ceases to amaze me what the folks here will do to help their cluster brethren.  Ignore the occasional contentiousness and clash of (very different) personalities....  It's not important, and shouldn't be surprising, given that we have nothing more in common than a strange sort of head.  

I've often heard it said that any group that consists of more than seven people will inevitably divide into factions.  When you add to that the fact that half of this particular group at any one time is dealing with a relentless series of attacks that kill sleep, beat them senseless, and grind them down, our actual daily civility is even more remarkable.  

Clusterheads are tough people.  They've had to be tough to survive.  When strong-minded people disagree, it really doesn't shock me.   ;)

Here's the thing:  Every single group on the internet I've been involved with over the years that has managed to survive more than a couple of years eventually gets to the point where the old-timers begin to decry the loss of the "good old days" and ways that were somehow better, more civil, less contentious, and more supportive than the "bad new days".  Valued members who've been lost or who wandered away for this or that reason.  Etc, etc.

Well...things change.  It's the way of it.  People come and go from internet forums for whatever reasons just as they come and go from any group, anywhere.  

Besides--even a cursory examination of the archives will demonstrate that the "good old days" in any internet forum weren't any different than the "bad new days".  People fight sometimes, because they're people.  The fun thing about 'net forums is that you can actually go look at what was said--unlike real life, which fond memory suffuses with a rosy glow.   ;)

Look--much more good is done here than bad.  People have actually been helped.  Lives have been changed for the better, through the efforts of the people here.  How many cooperative efforts can that be said of?  

Come what may, I intend to remain here.  I'm not the most knowledgeable person around, nor am I the most supportive.  I say things that, in hindsight, I probably shouldn't have said.  I don't say things that I probably should have said.  Still...I may be able to say just the right thing to the right person at the right time.  I may be able to make a difference, however small, to someone.

Maybe I'm just thick-skinned, but the fact that people fight now and then doesn't really bother me all that much.  Juxtaposed against the good that is done here, it truly doesn't mean squat.  Let's just deal, patch things up, and move on.  

As clusterheads, that's what we do all the time, anyway.

Sorry this is so long--but in my long-winded fashion, it's the shortest way I could think to say what I wanted to say.   :-/

All the best,

George

       






Title: Re: Let's start over
Post by Charlie on Nov 17th, 2008 at 11:06am
START PRINTPAGEMultimedia File Viewing and Clickable Links are available for Registered Members only!!  You need to Login or RegisterEND PRINTPAGE

Hi. My name is Charlie and I come here looking only for sex.  :o

Here goes: I'm alone, (used to it) all of 62 and love my McDonalds senior coffee.....live in Jamestown, New York...south of Buffalo. I got this horror in 1969 when I was 23 and it ended in 1991 when I was 45. I've been a delight to be around ever since. I was lucky that my family believed my doctor when he told them that I wasn't going to die. I was "lucky" in that I was already seeing a neurologist for epilepsy and that I wasn't "kidding" about the pain and that my family should leave me alone. The technique I post here helped with that too.

Anyway, I found this place something like 7 years ago and got hooked. I was stunned that there were so many clusterheads and the many varieties. I broke down reading the guestbook for several days before I began to post. I've been a board PITA ever since but have made a lot of friends and bugged a few others. Fun though.

Charlie



Title: Re: Let's start over
Post by PollyPocket on Nov 17th, 2008 at 11:19am
I'm Jen.

I'm short.

I'm blonde.

I'm a clusterhead.


Title: Re: Let's start over
Post by chris420 on Nov 17th, 2008 at 11:20am
Hi my name is Chris. I live in Norolk, Va with my girlfriend and rottie. I was chronic in my teens and have been epasodic fo the last 6 years.  I started suffering at the age of 12. I found this place in 2002, but havent have a computer to get on the net. My ex-(married at the time)  found it for me. I go through periods of remission now that are 9-19 months. I spend my remission time to do the thing a normal 30 yr old does. But ehen Im in a cycle, I dont leave the house. If I can sittl count fight, my remission should be coming up in the next few weeks. My supported is Kelsey and she is the best thing to happen in my life (except for my sons birth). I thought after Mitzi left me that Id be alone for the rest of my life. I figured that no body would want to be with someone that has chonic pain. I was wrong, Ive got the best woman in the world. This site is a savior for me. Although some of the people on this site are rude and mean, I guess they mean well. Everyone has different ways of showing they care. I thank John for helping me and Chuck. He has been a support system by himself. He has helped me alot, we talk everyday and he is a good guy.

Title: Re: Let's start over
Post by Jimi on Nov 17th, 2008 at 11:33am

Quote:
Maybe I'm just thick-skinned, but the fact that people fight now and then doesn't really bother me all that much.  Juxtaposed against the good that is done here, it truly doesn't mean squat.  Let's just deal, patch things up, and move on.  


My thoughts as well George.

There probably are cliques here as with anywhere. Those with other things in common besides CH's are drawn to each other more.

Also those that make convention in the summer and meet for a reunion in January become closer. Once you meet these people on here in person, it makes you closer to them and more a part of their struggles. Not saying it is right, but that is just the way it is.

Title: Re: Let's start over
Post by Karla on Nov 17th, 2008 at 11:54am
Hi Tony, my name is Karla.  Welcome to your new home.  You will never be alone again.  I started out getting ch in 1998 with 8 attacks a day.  Ea 1 1/2 hrs long and unbearable in pain.  I suffered for a few years chronic and then found a medicine to put me in remission.  This site has saved my life on more than one occassion when I felt like ending it all before I found my medicine that works for me.  I just didn't think I could take the never ending pain.  You at ch.com gave me hope and a sense of purpose that pulled me through.  For that I am forever gratefull.  Thanks DJ and ch.com!!  

Title: Re: Let's start over
Post by Redd on Nov 17th, 2008 at 11:59am
Hi and WB Tony.  

I'm Pegg.  Been hanging out 'round these parts for 5 years come springtime.

I'm a managed chronic CH sufferer of some 20+ years.  I say managed, because without the information and support of the folks at clusterbusters.com I'd still be in a world of hurt.  I've been managed and mostly PF for just over 2 years now.  I have to stay on top of it though.  

I try not to get into the infighting here.  I'll hunt Ali and his kind of trolling ways any day of the week.  

The rest of the people I consider my family.  New or old.  

LYG's

Title: Re: Let's start over
Post by barry_sword on Nov 17th, 2008 at 12:07pm
Hi Tony, nice to meet you and all the other folks here.
My name is Barry and I am a Clusterhead. My wife Angie is my rock, and she is the best supporter anyone of us could ask for.

I am currently in cycle but I use o2 to abort and Verapamil as a preventative, which works well for me.

I check in here alot, so hope to get to know all of you a little better. :)

Title: Re: Let's start over
Post by mezza on Nov 17th, 2008 at 12:18pm
Hi everyone-

My name is kelly.   I am episodic  , usually about 3 years between cycles  ( hoping that luck continues.)  I am 38 yo, married and have two kids  ages 5 and 7.   My family are my best supporters.


I have CH since I was 25 but only found this site in March of this year.  Thank goodness.  This site and the great people on it provided me with the necessary information to get the right treatment

Title: Re: Let's start over
Post by Ray on Nov 17th, 2008 at 1:08pm
Hello Tony and Clusterville:

I'm a 50 year old chronic CH sufferer for over 21 years now.  I've been on this board for about a year and a half and try to keep things in a positive context.

Wishing you all well,

Ray

Title: Re: Let's start over
Post by Garys_Girl on Nov 17th, 2008 at 2:03pm
Thanks, Tony for starting this thread!  I see so many of you post but don't know anything about you, so thanks for this.   [smiley=heart.gif]

I'm Gary's supporter.  Thanks to CH.com we figured out what was happening to him in 2006.  Of course it dates back to 1999 - well - actually he can remember having had individual attacks as far back as when he was 17, but he's been chronic since March 2006, and has had no pain free time since around January or February of 2007.  Unless you count sleep, of which he gets about 2 1/2 hours a night - though many are sleepless  :( .

We work as partners in biz - we conduct equity research for a living, though Gary is the firm's Chief Strategist and he is also the firm's economist.

We were high school sweethearts in 79/80 and went our separate ways - me to a Quaker College and Gary to the army.   ;D  Got back together in 1993 and spend 24 hours a day together since.  We both left our jobs, we bought an RV and got rid of the apartments, and we lived full time on the road for 10 years.  The internet has made that marketing aspect of our work moot, which is great, because now with his clusters, we couldn't do it.  Thankfully we can telecommute, and as our customers are institutions, not individuals, they don't require much hand-holding - because getting into NYC is a pain in the butt.

Gary's got a bit of a medical mystery going on now, and we're working to figure it out under the co-ordination of his neuro at Montefiore.

We rescue cats, and have 7.

We adopted a daughter when she was a teen (and we'd moved into a house).  Different long story, but she's mentally ill, so she is very well cared for at a great institution.

Us in a nutshell.

Thank you, CH.com for being here. !! It's a great community for learning and sharing info, and I like helping newbies especially because I remember those days......

And I always write too much.

Laurie

Title: Re: Let's start over
Post by Lenny on Nov 17th, 2008 at 2:56pm
Great thread Tony.....My name is Lenny.....I am from the Los Angeles area.....I like my woman and cars fast "very-fast" ;D ;D ;D ;D ;D......On the serious side......It's good to see you posting Tony and i hope all is well.....

Title: Re: Let's start over
Post by Charlotte on Nov 17th, 2008 at 3:35pm
hello, Tony. It is good to see you.

My name is Charlotte.  I have been chroic since about 2001 an was episodic before that.  I have additional types of headaches, and find them very distracting - it's a stuggle, really.

I am a watercolor sketcher, and always carry some paint, water,  & paper with me in case I get hit with inspiration - and do small paintings on my lunch hour, before work, and other free time like waiting for someone to come out of surgery.

I have 5 grown children, a sweet husband, & 1 cat.  I am a dog person but hubby Joe is not, so I had to pick - him or a dog - i picked him.

I have met a number of people from the board, when i'm travelling or they are passing through my town.  It is very heart-warming, like an instant bond. It is nice to get together and speed talk meds & cycles, and get hugs.


We pray for each other.  Let us know and we will keep you in heart & mind & prayer.

I haven't been posting much as of late, due to a struggle with a different kind of headache, not ch.  My ch is doing ok right now with a med plan my neurologist helped work out.

I am looking forward to seeing you more often.

best regards,
Charlotte


Title: Re: Let's start over
Post by debOUCH on Nov 17th, 2008 at 5:25pm
Hi Tony..........I am Deb from Long Island NY, and I "think" I am chronic, since I am still in my first ever cycle since January of this year.....I diagnosed myself, with the help of this site, (and YOU also!), by around March, or April, I believe.............. ....The only preventive I take is ELAVIL, @ bedtime, and it still works for me, with increase in dosage a few times................I am 51, separated, with 2 children, Keith is 23, and Samantha is 19.......................if it weren't for the site, I really don't know where I would be...........DJ is our "angel".............My biggest supporters are "my family" on here.....................I am glad to formally meet you....................wishing you PFDAN, and health and happiness daily...............
deb

Title: Re: Let's start over
Post by KJ on Nov 17th, 2008 at 7:20pm
Hey Tony! Great to see you around, my friend.

My name is KJ, and I like to be spanked! I know, I know, that's really something to share, wow, but if Tony has the guts to start a thread called Let's bend over, then I'm all in!

What?
What is it?
Let's START over?


Oh my.  [smiley=embarassed.gif]

Well, anyway, I hope we all can lighten up.
Love ya. :-*

KJ

Title: Re: Let's start over
Post by DonnaH_again on Nov 17th, 2008 at 8:45pm
Hello All and Thanks Tony for opening this new door.

My name is Donna H. I think I am the third oldest person here, after Bob Johnson and perhaps Ueli.

I was an episodic sufferer for 28 years.  Cycles spring and fall for almost exactly 6 weeks each time.  Lots of 9's and a couple of 10's each cycle.  Lots of runs to the ER, only to have the ch stop before I could get to see the ER doc.  No one really knew what a cluster headache was back then when I first started although I was treated with Sansert (nasty drug), but it didn't help so I finally quit trying to find out what to do about the headaches. I just carried on the best I could, raising three children by myself. There were many times that I didn't think I could do it.  Sleeping in a chaise lounge trying to avoid the headaches didn't work...nothing did.  

In 1986 I had a hysterectomy and the headaches stopped dead in their tracks.   I was put on a testosterone hormone replacement therapy and the headaches never came back.

My son John started with clusters at age 17 and was treated with Inderal, and of course, it didn't help.  I was still naive about the fact that there were now meds for clusterheadaches.

In August of 1999, he had one of his worst cycles and I started searching the internet for info.........and that's when I found this wonderful second home.  We found an abortive for him here, and so far, it works every time.

Since I don't (can't) fly, I haven't been able to attend any conventions yet after being here almost 10 years, so I decided to have a couple of gatherings here in my home town.  About 12 people came. It was amazing.....to meet another cluster head is the 8th great wonder of the world.

So, there IS hope that your headaches will cease with time.  I'm still pain free since 1986.

I pray every day for a real breakthrough in research so that everyone can live pain free.

Love you all,
DonnaH.   :-*

Title: Re: Let's start over
Post by kayarr on Nov 17th, 2008 at 9:31pm
Hi Tony,  I missed you:)

My name is Kimberly and I am the wife and supporter to Jeff my chronic clusterheadache honey.

I remember one of our first dates, he had hidden his O2 tank from me at first and he was a little defensive when he had to pull out the hose in the car.  I may have said a little no-no too like "I have migranes..." :o  But, we made it past all the awkward beginnings and are going to celebrate our 5th wedding anniversary the 29th of this month.

I cried from relief when I found this site.  I hadn't realized the stress of being so strong for someone you love.  That is a little of our story.

Thank you DJ and all the others for being here and all the information available.

Kimberly and Jeff  

Title: Re: Let's start over
Post by cash5542 on Nov 17th, 2008 at 9:41pm
Hi! My name is Charlotte and I live outside Ocean City, Maryland with my daughter, wonderful husband and my adorable almost 2 yr old golden retreiver, Maddie. I am a supporter of a 23 year old daughter with CH. We have been dealing with severe asthma and a few migraines since Lisa was 12 so being a supporter wasn't new to me. She is chronic since July 2006 and was very quickly diagnosed. The first year was pure hell but with lots of various help from some great doctors, clusterbusters and this group, she has her life back.

I am an elementary art teacher and have taught 3 year olds to 6th grade for 28 years. I love my job (most of the time), swimming, and the beach.  I also have a 25 year old son who is living with his wife in Kauaii.

It's great to see you again Tony and am still waiting for a York trip someday!!

Charlotte (mamaswimchica)

Title: Re: Let's start over
Post by MPMIII on Nov 18th, 2008 at 9:33am
Tony,

Malcom here.  Diagnosed about three years ago.  Chronic.  I live in LA (lower Alabama) with my lovely wife and daughter(8.5 months).  My saving grace right now is Verapamil.  Keeps my hits somewhat manageable.  I stay busy with commercial real estate development, soccer, watching football(roll tide-go bronco's), fishing and my wonderful family.  

Regards,

Malcom

Title: Re: Let's start over
Post by Guiseppi on Nov 18th, 2008 at 10:43am
Caio my Italian friend...who makes AWESOME  biscotti....welcome (back) to the board.

I'm Joe, a 48 year old father of 2 beautiful girls, 24 and 22, who have both flown the coop. With a beautiful wife who has stuck with me for almost 29 years of the beast! I'm episodic, typically 2 cycles a year, spring and fall, 8-12 weeks in duration, with rogue 8  month cycles and occasional remissions of up to 2 years.

I use lithium as my primary prevent, 1200 mg a day while on cycle. Doesn't zombie me out just makes me pee a lot!!! Oxygen is my promary abortive, never far  from my lovely E-Tanks!

Glad you (re) found the board, looking forward to getting to know you. ;)

Guiseppi

Title: Re: Let's start over
Post by kevmd on Nov 18th, 2008 at 6:02pm
A fresh start? Awesome.  OK, I'm Kevin  33 years old from Philadelphia.  I have been episodic since I was 20.  First 5 years were undiagnosed.  I have been married for 7 years to the wackiest girl in Norteast Philly and I have a 3 year old terror, I mean boy.  And a 7 month terror, I mean little girl.  I love pizza, cheeseteaks, and beer.  

Title: Re: Let's start over
Post by jon019 on Nov 19th, 2008 at 1:44am
Hiya Tony...welcome aboard ;)...grab an oar and row, there's this mule beatin the drum...I know, strange, but you'll get used to it.

It's a nutty family here at the Hotel Clusterville, it'll grow on you, this FAMILY... and, it's like "you can check out, but you can never leave"...just ask the Limey, she wouldn't even let a knothead like me go. She's currently in the lobby, a little verklempt, and lookin for her bags. The desk clerk is ignorin her tho, cuz she aint goin nowhere...not allowed!

Myself, my name is Jon (room 19, left wing, and that's my location, not necessarily my politics, we don't talk that, it pisses people off and makes them want to leave)...I'm 53 now and can't friggin believe it...beats the alternative tho. Half my life in clusterville so far (rumor is ya grow out of the ville, I'm STILL waitin, til then I'm fine and might even stay anyway)...used to be an on again off again stay..now I'm a "chronic" guest, but damned if I'm not always welcome!...you'll see.

Strangest thing, first time I checked in I couldn't stop crying...I think it was the sign in the lobby. Kinda made me feel like I was home! There's another guest, nama Simon...he wrote this incredible flyer you can show folks as to why you're here. He's got a penthouse room cuz, well, he deserves it. Lots of other folks here that I can't begin to name...come sit in the lobby and you'll meet them all...classy bunch, I'm tellin ya...

Hotel magnate is a fella named DJ...built the place from scratch...with NO scratch...can ya believe that shit? Never ceases to amaze me...no place like it in the WHOLE world. Concierge is a gal named Steph...DJ thinks he's still runnin the place, but we all know that the hand that rocks the cradle...

Anyways...stick around...you'll like it...warm regards?...oh my...oh yessssss...

Jon

Title: Re: Let's start over
Post by Mastifflvr28 on Nov 19th, 2008 at 3:21am
Yeah, what Jon said...here's proof :)

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I'm Mast...been hanging round here for about 9 years...been pf for 6.  Just can't quite get rid of me :)
Mast

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