Sometimes nothing works. I had to stop 02 to get some air. There is a limit to everything, except is seems, the number of hits per day. Frustration and anger are the words for today to me. This is just the third month and already I am losing focus. I can hardly look at the puter screen.
This relentless and seemingly never ending pain does get to ones spirit. Hang on and hold on. It will end I know, however that does not alleviate the pain. It does help knowing you all are here. Support from my family here means so much. As I get the knife to the temple I grunt and cuss. I keep going because there is no other choice. It is easier to some extent because I know that Potter will call, Linda is with me at every hit, and Karl is fighting in Idaho. There are so many more I cannot mention all of you but you are all with me.I have friends that have to go through this same thing and they are fighting with their all.
So will I.
I hate this condition so much. Gotta go, I have an appointment with my 02 tank.
Fight on fight on. Go away you no good demon sombitch. >:(
the bb
I feel better now ;)

hang on Bro.  Praying for you.  

Jerry

damn , hate hearing that someone is getting slammed like this..............i am forwarding everything i have in the way of positive vibes so you can "fight the good fight".....................have a nice candle lit for all my CH family who is hurting right now
deb [smiley=hug.gif]

I hate this for you.....I hate it for all of you. >:(

Yes,  you know it will end and you know what you have to do to survive, but it still SUCKS!!!!!!!!!!!!!!!!!  It SUCKS big time!!!!

Kick that SOB to the curb, Sweetie...kick his a$$!

Hugs to ya,  thebbz

Jackie

Giving you some long distance [smiley=hug.gif].


:-*mel

wrote on Dec 6^th, 2008 at 1:29pm:

Sometimes nothing works...  This relentless and seemingly never ending pain does get to ones spirit.

And yet we endure bb, rock on brother! I have been getting the clockwork 2 hr traumas too… I hope ya get a break! Roland… ;)

You bet your sweet bippy I'm with you John.  I wish I could take some hits for you, so you can get some rest.  I'd do it in a hearbeat.

 Please consider that this rampage your head is on.. could be the beginning of the end of this cycle.  

Bless your heart for fighting this so well.

  (gee, I sound like Jackie)  ;D

To bbz and Rolo

I want to throw this out. Guisippi and I and also BobP and I believe Barb all take or have taken cafergot along with our 02. I took suppositories (cut in half but I know others took the pill. What it did for us was give us hours in between hits. We feel one coming on, take a cafergot and jump on the 02. For me it kept them away all day until I woke up in the middle of the night and huffed the 02 again.

It is an old drug and not prescribed much anymore but I know it has cut down on the number of ha's a day for some.

Give it your best bro, I know you will.

I still use that combo Jimi.  For the next go round I'll try seeds (but probably do it wrong) then it will be O2, cafergot and maybe some lithium this time.

Be well soon John.

Hang on.  

We're right here when you get back.

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Sorry man! I wish there was something I could do to help you, but all I can do is keep you in my prayers that you catch a break and keep supporting you. Hang in there!!

By all means try the cafergot (ergotomine). The suppostories work faster, but the pills are handier..  Been my abort for about 10 years along with O2

Wishing you PF time soon...

Hugs BD

Brother:

Keep fighting the good fight.  Every moment is a victory over the beast.  I'm praying for you.

Ray

I'm sorry to hear you're still getting hit so badly.  Hang in there buddy - this too must end.  Please God - sooner rather than later.

Sending you hugs and all the PF wishes I have.

Carol

If you're taking Verap check if you can take the Cafergot.  I'm not sure they can be taken in combination. I don't know. Memory telling me no but that's been slipping fast. Talk to Dr.

Hope the best for you.

Steve G

Keep your chin up... i know how bad it is... and I know it will get better... knowing this, keeps me going one more minute.

with warm regards,
Tony

Love you John...damnit.......you're a whisker overdue for a break. Give that cafergot a shot, like Jimi, it'll buy me 8-12 hours when I'm in a hard cycle. :'(

Guiseppi

Mentally give the pain to us, I can take some for you too.

Hang in there bro, here is pulling and praying for you.

It will cease, you know that so hang on to that.

[smiley=hug.gif]

Keep fighting, my friend.  We're with you every step of the way.

If I can do it, so can you.  Stay strong and know that we are all with you fighting every step of the way.

Wish I could take some hits for you so you could get some rest.  If I could, I would. :'(

Keep on keeping on, brother.  I know you've been getting nailed relentlessly--hope you get a break soon.

All the best,

George

I hope he's loosened his grip a bit tonight.  I'm pulling for you brother.  You are one tough sombitch yourself.  Don't every forget that...

-Dennis-

John,

Hang in there Pal!

I sent you a PM - Please read!

All the best,
Jim

 Buck up or lay there and bleed.  I'm workin on that thing we talked about last night.

       Kinder gentler Potter

I wish I could help, I really do.

Strength coming your way.

Carolyn~aja 'darlin

John you know we're with you.  I've used something more when being oxygen dependent brought just a short span between time after time.  What else has helped before?  

Keep working on it, keep knocking it down.  We hear you.

Dam bbz, don’t ya got any sharp pointed weapons in the war chest?? I have 5 boxes of Trex that I don’t use often but the DHE is awesome when the clock keeps tolling and tolling and you are in crappersville…

Put a blackjack up side Mr. Kickasses head and let him have it!

I only got hit twice today (like it is a blessing) but I know as soon as 1 am comes, my friend will want to argue his point in me eye…

Best to ya,
Give em hell!

Roland. [smiley=hug.gif]

:(, hope its easier today, and passes soon. andrew.

Damn! Wish I had something new for you but I can suggest you try my technique. Can't hurt.....you anyway.

Hang on receive some vibes.

Charlie

So horrible hearing about someone getting hit so hard-

Just hoping that this means it is about to lose its strength and back off a bit as sometimes when you think you can't take any more it gives you a breather.

I don't know all of what you are taking or have taken but is a pred. taper worth considered to maybe give you a break or lessen the attacks??

Sending you painfree wishes from the UK

W

  Get a grip and never let go of it. The pain ahead of you is no worse then the pain behind you, never retreat. Never lose.

John, when you get a chance please check in with us and let us know how you are. Been thinking and praying for you since your post yesterday. Hang in there my friend! [smiley=hug.gif]

Crap,  BB

Hang in there bud.   Thinkin of Ya
   
               JPC

You guys all rock!!! I hate it when these become intractable like that. Being pushed to the point of despair sucks the big one. I am finally getting a break. I dosed with 3g of mushrooms yesterday. Havent been hit since. [smiley=bigguns.gif] I had to wait for days off to do this. I dont think dosing with shrooms and going to work would be a doable. ;D  
 I am truly grateful for all the responses on the board and the PM's from family members here. It means so much when I am in battle on the floor. It brings to light just what we are all here for. You all deserve bigs hugs from the bbz...even Bob P ;)
 I am sorry that I havent been here as much, but it's hard banging my head and staying online when they are one after another. Thank you all as well for the treatment suggestions. The Cafergot didn't work in the 80's, I dont handle ergotamine tartrate well at all. DHE either. The beta and calcium channel blockers only aggrivate things for me. I guess I am one of them that has been through all of the traditional treatments with no success. The fact that I have no insurance or a big pile of money is ruling the day. We spent our Christmas money on 02.
I only have a couple of doses left of the shrooms....anybody want some Maca Root?, it didn't do anything for me.  :-?
As always I remain in battle with my family behind me.
Take that demon bastard.
the bb :D

Aww, John! I didn't even see this till now! YOU are one of my Cluster heroes! Someone who NEVER lets the beast get you down, and here you are, on the verge, and I didn't even notice! I would gladly take qa couple of days so you could get some rest and regain your fight....wish it were possible.........
I am soo glad you are finding some pf time!
BTW-I'm pretty certtain Joan's Christmas wish is for you to be PF......

Cathi :-*

Thanks again Cathi!! Your not a bad demon fighter yourself. Me I fall down I get up. It helps to have a hand,,,or many. Take one dose of friendship and call me in the morning. ;) You can never overdose on that treatment and the side effects are pleasant. 8-)
the bb

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I'm so sorry I missed this.   Thinking of you............... [smiley=hug.gif]

Jeannie

i'm a little late but i was going to say that the end of my cycle is the most severe.

glad you won the fight!

you kick ass! [smiley=thumbsup.gif]