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Cluster Headache Help and Support >> Medications, Treatments, Therapies >> RC seeds no help!! http://www.clusterheadaches.com/cgi-bin/yabb2/YaBB.pl?num=1228745762 Message started by kentucky chuck on Dec 8th, 2008 at 9:16am |
Title: RC seeds no help!! Post by kentucky chuck on Dec 8th, 2008 at 9:16am
Any suggestions for next steps? The RC seeds have not worked for me at all. I started with 20 seeds with zero effect. Then I waited and tried 50 seeds still zero effect? I'm at a loss and really need advise on next steps!
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Title: Re: RC seeds no help!! Post by seasonalboomer on Dec 8th, 2008 at 9:46am
How have you been preparing the seeds?
Did you come off of other preventive meds? |
Title: Re: RC seeds no help!! Post by kentucky chuck on Dec 8th, 2008 at 9:55am
I crushed them in mortar and yes I did detox for 5 days.
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Title: Re: RC seeds no help!! Post by Rolomatic on Dec 8th, 2008 at 10:04am
I found soaking in white dry wine for 3 hours to be best, if a little alcohol won’t trigger for you… Grinding in the pepper mill gave me a much stronger dose compared to mashing… Make sure its on an empty stomach also. Add; you are drinking it seeds and all right?
Roland. ;) |
Title: Re: RC seeds no help!! Post by kentucky chuck on Dec 8th, 2008 at 10:27am
Yep drinking it all and I tried the wine (2 oz) the first try and absolutely zero effect! I don't get it?? Are the woodrose seeds stronger?? Help please!!
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Title: Re: RC seeds no help!! Post by Rolomatic on Dec 8th, 2008 at 10:32am
Chuck, the wood rose seeds are extremely potent! Read all, and I mean all the advice and tips at clusterbusters first! I am confident that you have but feel compelled to pass it on again. The husks are poisonous and will make you sick… I believe I remember the 20X number used to describe your question.
Best, Roland. ;) |
Title: Re: RC seeds no help!! Post by kentucky chuck on Dec 8th, 2008 at 10:35am
Roland thanks but not sure what you mean....20X number??
Chuck |
Title: Re: RC seeds no help!! Post by Rolomatic on Dec 8th, 2008 at 10:36am
1 wood rose seed = 20 rc...
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Title: Re: RC seeds no help!! Post by kentucky chuck on Dec 8th, 2008 at 10:40am
OK yeah I did read that. I think I read you tried 5 the first time with success. I'll start with 4 and go from there. Appreciate your help Roland!!
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Title: Re: RC seeds no help!! Post by AussieBrian on Dec 8th, 2008 at 10:52am
A few more details about yourself would be nice, KC. None of us here are doctors and we don't dispense medical advice, but we'll help any CHead that we can.
Firstly, and very importantly, have you been diagnosed as a ClusterHead? The CT scans and MRIs are painless and a pain in the bum (if you'll excuse the expression). Nevertheless, they'll rule out many of the really horrible things that can mimic CH but are far more serious. Have you yet to visit a neurologist familiar with the various headache types, or are you still battling the GP battle? There's many medications available variably as preventatives or some that that might even stop a headache after it's started. Some are even entirely 'natural'. An interesting one that springs to mind is just good ol' oxygen. Much easier to buy/grow/procure than some of the more unusual fungi. The more you tell us, the more we can try to help. Back to you, B. |
Title: Re: RC seeds no help!! Post by kentucky chuck on Dec 8th, 2008 at 11:06am
Hi Brian,
Oh yeah I've been a cluster head for nearly 20 years and have gone to the Diamond Headache clinic in Chicago for 11 years. Been through two histinine treatments there for 11 day stretches. Been on every drug ever recommended for clusters through the clinic. While living in Chicago, an angel sent me the shrooms to try and it was the first thing that ever worked for an extended period other than the histamine treatment. Now in KY and trying the seed treatment with no luck yet. Headed back to Diamond for a shot of depomedral to break this cycle but I am cronic so it will not last long! I've been cronic for over 10 years and imitrex injection has been my main treatment but now insurance has limited me to just 4 boxes per month and I'm running very low. |
Title: Re: RC seeds no help!! Post by AussieBrian on Dec 8th, 2008 at 12:44pm
That's bloody awful, KC, and I don't blame you for a moment for reaching toward something that may help.
Keep us up-dated because we care. |
Title: Re: RC seeds no help!! Post by thebbz on Dec 8th, 2008 at 1:28pm
Get out the big hammer...shrooms. Hope you get some relief.
the bb |
Title: Re: RC seeds no help!! Post by MrsT on Dec 8th, 2008 at 11:35pm
Chuck, many spend weeks and weeks to find the effective dose..... If your stomach can handle it, you might need more for seeds to be effective.
Also bad news is that seed's LSA content can vary as much as ten-fold, according to Dr. Sewell. Until somebody comes up with a pill, unfortunately a lot of patience and experimentation is it....... |
Title: Re: RC seeds no help!! Post by UnderTheRadar on Dec 9th, 2008 at 1:12am
And with my recent experience I can say ditto to MrsT- also, if you are trying to break a cycle vs. prevent a cycle, you may have to dose 3 or 4 times for it to work- and wait 5 days between doses or it won't work. Good luck! It DID work for me! (50 seeds)
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Title: Re: RC seeds no help!! Post by kentucky chuck on Dec 11th, 2008 at 1:16pm
Many thanks all! I'm gonna try the Wood Rose seeds and see if that will work!
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Title: Re: RC seeds no help!! Post by Jeannie on Dec 11th, 2008 at 1:24pm
Hi guys,
Don't want to hijack the thread but...... If use RC seeds to PREVENT my next cycle, when should I dose? How much should I take? My cycle usually starts in March. I hope you have better success with the Wood Rose seeds, Chuck. Be Well, Jeannie |
Title: Re: RC seeds no help!! Post by vietvet2tours on Dec 11th, 2008 at 1:26pm
I've read your posts and all you mention is the drugs.Try oxygen it's the best stuff goin.
Kinder gentler Potter |
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