I've noticed in a few posts mention of 'kip#'
First let me excuse myself for asking this one as it seems common knowledge amongst you all. I just learned this B&^ch is CH last week.

How do you gauge your kip levels? I'm guessing that it is a level of intensity of the pain?

There's a rown of buttons on the left side of your screen, one of which is marked Kip Scale and makes for terrific reading.

There is a list of links on the left hand side of your screen.  One of them is labeled "the kip scale".  

-Dennis-

I'm getting no links on the side, just an ad at the bottom and an ad at the top. Must be this foreign made computer. I knew I should have just gotten a deck of cards instead.

I remember seeing links on the side before I registered but since then I just have the forum headings/topics.

This is what is posted on the left hand side.  Sorry you can't access it but maybe this will help.

"For quite some time, people have been posting numbers to describe the amount of pain that their headaches cause them.  There was no real "guideline" so that we were all on the same page....  until now.

Our friend Mr. Bob Kipple was up late with the demon late one night and put the pain that we had been speaking of into what has affectionately been named The Kip Scale.  I think you'll agree that what he's written down is right on the money.

Thanks for letting me put it up here Kip!

Pain level 0
No pain, life is beautiful
Pain level 1
Very minor, shadow's come and go. Life is still beautiful

Pain level 2
More persitent shadow's

Pain level 3
Shadow's are getting constant but can deal with it

Pain level 4
Starting to get bad, want to be left alone

Pain level 5
Still not a "pacer" but need space

Pain level 6
Wake up grumbling, curse a bit, but can get back to sleep with out "dancing"

Pain level 7
Wake up, sleep not an option, take the beast for a walk and finally fall into bed exhausted

Pain level 8
Time to scream, yell, curse, head bang, rock, whatever work's

Pain level 9
The "Why me?" syndrome starts to set in

Pain level 10
Major pain, screaming, head banging, ER trip. Depressed. Suicidal."

Perhaps the moderater can help you access the tabs on the left?

Carol

Thank you Carol. May have something to do with my firewall, but I ok'd all incoming. I'll check up on this.
Thanks again,
Andy

Found the same problem in the tech area and copied a new link for the favorites...... working like a charm now.
Thanks again Carol

Andy, it is a shame that you did not get to meet Bob Kipple at one of the conventions.  He and his lovely wife, Judy, were an AMAZING couple!  Bob could keep you in stitches all night long, and bowed to NOBODY, except Judy!  LOL!  How they had fun!

Unfortunately, Bob died about two years ago, and Judy followed, two days (I think) later.  They were such a joy to meet and know.  They are now in heaven, together, as they were always wanted meant to be.

What a GREAT couple, whom I miss dearly!

Bob is the one who wrote up the KIP scale.  He will be remembered forever due to his scale that is used, even in the medical community, now.  It is a fitting tribute, to a remarkable man.

Chuck

The most important thing about the Kip scale, I think, is that it gives us a quantity rather than a just a quality.  This can just as easily work against us.

I had to visit the hospital just recently with cracked ribs and nursey-poos asks me the standard question, "On a scale of zero to ten, how bad is your pain. Zero being no pain at all and ten being the most serious pain you've ever suffered". I answered honestly that it was around a four or five.

She then asked me the follow-up "What's the worst pain you've endured" and I told her it was 30 years of CH.

So she tells me that she's suffered migraines for years and, if my pain is less than half that, I must be feeling fairly comfortable and don't need any medical follow-up.

My reply was short and mostly mono-syllabic but I did get to see a doctor that night.

That just kills me Brian, it seem that half the nurses I have told about my CH come back with the migraine comparison also. I don’t belittle migraine pain at all and I have had a few puke sessions myself. It’s just that there is no comparison between the two. To me a migraine is just a bad nuisance HA with a concussion bucket in hand compared to the blinding, splitting, burning, and eminently overpowering pain of a real K10 CH slobber knocker.

Just my [smiley=twocents.gif].........

Roland. [smiley=hammer.gif]

Add; Instead of even trying to explain CH pain, we should just carry a card in the wallet with the Kip scale on one side and an explanation like Mark was talking about in the airplane thread. I think I’ll make some up for the ST. Louis jamboree. I’ll have to PM Mark and see if he can give me something to start with.

8-)