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New CH.com Forum
http://www.clusterheadaches.com/cgi-bin/yabb2/YaBB.pl Cluster Headache Help and Support >> Getting to Know Ya >> noob here... http://www.clusterheadaches.com/cgi-bin/yabb2/YaBB.pl?num=1230943339 Message started by JimCH on Jan 2^nd, 2009 at 7:42pm

Title: noob here...
Post by JimCH on Jan 2^nd, 2009 at 7:42pm

Hey guys. glad to be here, glad u are here, and introducing myself.
Im 52 yo live in central valley California and have been a sufferer of CH since my 20's. I was told at diagnosis that these incredible HA's would go away when i hit my late 30's... he ha he ha. Anyway here I am. My wife was here looking for answers many years back but thought I would rejoin cuz Im due another bout any day. I feel em coming...
:(

Title: Re: noob here...
Post by UnderTheRadar on Jan 2^nd, 2009 at 11:37pm

Welcome back home! ;)

Title: Re: noob here...
Post by Just Plain Carl on Jan 2^nd, 2009 at 11:39pm

Welcome to the club Jim.

I was told I would grow out of this also. I thought I did. Six year remission. I'm 62.

What kind of stuff are ya on?

PFD's
JPC

Title: Re: noob here...
Post by Guiseppi on Jan 3^rd, 2009 at 5:34pm

I'm almost 50, 30 years of these and still going strong. It would be a nice 50th birthday present if they just disappeared!

When you get a chance, let us know your routine. What do you take for an abortive, do you have a good preventative? You've got 10,000 years of CH experience on the board, maybe we can throw some suggestions your way!

Welcome to the board.

Joe

Title: Re: noob here...
Post by barry_sword on Jan 4^th, 2009 at 7:33am

Hi Jim and sorry you had to find us but now you are amongst others who can help a lot with advise.

As you have read then in so many posts that o2 is our main abortive for the majority here. Please talk to your doc about getting a script for it. You will need the following:

100% o2 with a high flow regulator of at least 15 LPM and a NON-Rebreather mask. Get on the o2 at the very first sign of an on-coming hit. By doing this I can stop a hit in a few minutes every time!

There are quite a few meds available to take as a prevent. I use Verapamil at 480mg daily and so far this dosage is working fairly well for me.

Pull up a chair and read all you can to the left, and let your wife know she is more than welcome to sign on in the supporters area, she will be welcomed with open arms.

Nice to meet you.

Barry :)

Title: Re: noob here...
Post by JimCH on Jan 4^th, 2009 at 7:53pm

have never had to o2.. imitrex imitrex imitrex. if i have no imitrex i sit in shower and scald the left side of my head. Think it may just be a different pain sensation. thanks for the inputs guys.

Title: Re: noob here...
Post by MITYRARE on Jan 4^th, 2009 at 8:31pm

Welcome Jim