Hello all, I hope this intro finds you all doing well.  I just wanted to introduce myself.  I am 32 years old, and got my first CH back in 1992.  Yes I remember!  I have never thought of them as CH's because i always have them.  So I have never had a period of not having a headache.  Every day like clockwork.  That said, some days are worse than others.   Meaning some days just annoying, while others the whole world stops cause I ain't doing nada!!!

Very refreshing to find a site that everyone knows what I go through.  Especially the pins and needles feeling of waiting (avoiding) for the next one.  Well last year during the summer I had a strange thing happen, I forgot when I had my last headache.  I was so excited.  I would say june through Jan no headaches!!!  New Years eve, welcome back ye old friend.  I have had them every day, Last week was bad since New Years.  

I tried the O2 years ago via nasal cannula, will try with the mask, as soon as i get an appointment.  

For now, Coke, excedrin (about 3 or 4) and an ice patch will do.  

Glad there are more of us out there.

Welcome Mam. And make sure the regulator goes up to at least 15 LPM.

Yeah I'm afraid those nasal canulas are worthless. For the 02 to work the lungs must get only pure 02, no outside air, no exhaled air. That's why Jimi was saying make sure you get the high flow regulator and a non re breather mask.

Then get your hiney into a neuro! There are other great medications that offer a great deal of relief. I use lithium as a prevent when I'm on cycle, cuts 70-80% of my attacks. Verapamil is another popular prevent, many more to read about on the meds page and talk with your doc.

For now, welcome to the board. You have much reading to do. You have the bad luck to suffer from a rare problem very few doctors ever see. It's up to you to educate yourself and work with your doctor to find a routine which works for you.

Joe

Welcome Mam
Put on your suit and dive right in. There is an ocean of knowledge in these pages.
There is also an wealth of extrordinary people to lean on for help.
:) :)

Well yesterday was my first day doing research.  I have lived for so long with these dam things that for me it is just an every day afair.  I spent the better half of the day reading all the post on here and I have to admit a few things.  

1st, I cried with emotions on some of the post.  I can so relate.  Unlike most folks I run into, you guys/gals know exactly what I am going through.

2nd, I laughed at some of the things i have read.  

Thank you.

For those of you interested, here is a summary.  I have done most if not all the meds mentioned in the forum.  The only one that really has knocked it out for me is a shot og morphine in the ER.  

I am mostly a nite person, meaning I get them at night while I am sleeping but for the most part I get them in the AM.  Way to start the day.  I always reach for a can of coke, a smoke and go for a "walk" outside.  When I finally go inside I always find the need to go to the bathroom and have a bowel movement.  Weird!!!  

I have taken many drugs, and most recently am on loritabs.  Haven read this forum, I see that my gut is shot and most likely my liver 2.  

Well last night, like clock work one k5 at 2 am, lasted all of 5 minutes.  Once I went to the bowl, i went away.  And a k8 at 6 am.  What a birthday present.  I chugged a can of redbull as i saw on here that might work, and 15 minutes later it was gone.  

A few questions for all of you.  Any doctors in Indy anyone can recommend?  How long have most of you had them?  I was hoping they would go away with age.  Does your pain tolerance get stronger or weaker with time?

The most interesting thing I read on here was the "why me" comments.  They all brought me to tears.  I am one of 4 brothers, and none of them have them.  I don't wis this on noone, but I would love for a few folks to have just a 20 minute k7 or k8 to see what i go through when I get one.  Not to mention the k10 where I always find myself praying for god to take my life.  I'd rather die during those times.  

Any other advice you can through this way would be greatly appreciated.  

Regards,
Michael.

Yeah I'm one of 14 siblings...family now numbers over a hundred, and I'm the only "lucky" one! As far as growing out of them, some people do. Some don't. Haven't figured a rhyme or reason to it yet. I'm coming up on 30 years of CH. Hoping my 50th birthday they'll stop! Then there's people on the board in their 70's that still have them. :(

The BM thing during/after an attack, also very common. Do you have an oxygen set up at home?? It's still my number one abortive, seems to work for about 70% of those who try it.

Joe