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Message started by fiftyamp on Jan 21st, 2009 at 2:32am

Title: When's the next gathering?
Post by fiftyamp on Jan 21st, 2009 at 2:32am
Well, I want to meet the rest of you freaks! Never met another CHer in person.  Isn't there some sort of summer get together?  If anyone's around Philly. would love to meet up!

Title: Re: When's the next gathering?
Post by Guiseppi on Jan 21st, 2009 at 9:10am
As Lou-Con was breaking up, talk is building of a Las Vegas get together late September early October. Details to follow!!!! ;)

Joe

(PS: anyone can organize a quick fly in! My first meet and greet was 8 of us flying in and hanging out for a weekend. WOW! Well worth the effort!

Title: Re: When's the next gathering?
Post by Linda_Howell on Jan 21st, 2009 at 12:25pm
Our yearly OUCH convention is in mid-July.   ;)

Title: Re: When's the next gathering?
Post by kevmd on Jan 21st, 2009 at 3:07pm
Philly here!  There are a few us in the area.  Every attempt at getting a bunch of us together has fallen through.  Maybe this will regenerate the discussion.  Of course I'd rather due it when my cycle is over so I can indulge.  But whatever

Title: Re: When's the next gathering?
Post by FramCire on Jan 21st, 2009 at 4:06pm

kevmd wrote on Jan 21st, 2009 at 3:07pm:
Philly here!  There are a few us in the area.  Every attempt at getting a bunch of us together has fallen through.  Maybe this will regenerate the discussion.  Of course I'd rather due it when my cycle is over so I can indulge.  But whatever


Dont delay... someone will prob always be in cycle.   find a time and get it done!!!! post pictures!!!!!

Trust me, it is waaaaaaayyyyyyy worth it.

Title: Re: When's the next gathering?
Post by fiftyamp on Jan 21st, 2009 at 4:54pm

kevmd wrote on Jan 21st, 2009 at 3:07pm:
Philly here!  There are a few us in the area.  Every attempt at getting a bunch of us together has fallen through.  Maybe this will regenerate the discussion.  Of course I'd rather due it when my cycle is over so I can indulge.  But whatever


I'm in the Art Museum area, you?  I'm almost out of cycle, so I can relate to wanting to indulge!

Title: Re: When's the next gathering?
Post by kevmd on Jan 21st, 2009 at 10:35pm
Im in northeast philly near Holy Family University and NE airport.  My cycle is just starting but I plan on beating his ass this time.  Keep in touch.  chad up near allentown I think would be interested.  

I tend to bunker down while in cycle.  Already cancelled taking my dad out for his 60th b-day.  I just hate dealing with this shit in public.  But don't let me stop ya.  I'll absolutely do it when the Beast says I had enough

Title: Re: When's the next gathering?
Post by ClusterChuck on Jan 21st, 2009 at 10:52pm

kevmd wrote on Jan 21st, 2009 at 10:35pm:
II tend to bunker down while in cycle.  Already cancelled taking my dad out for his 60th b-day.  I just hate dealing with this shit in public.  But don't let me stop ya.  I'll absolutely do it when the Beast says I had enough

NEVER cancel plans, just because you are in cycle!  THAT is letting the beast win!

Once you have a good abortive, go and do what you normally do.  If you get hit, go off in private, kick the beast's ass, and then go back to what you were doing.  Life can still be lived, even in cycle.  Hell, look at all us chronics!  We don't disappear for life, just because we will get hit!

ESPECIALLY never cancel a gathering with other clusterheads!  Where else can you go, when no one will question you, or look at you strange, when you go off to deal with the beast?  Every one there will know exactly what you are going through.  GO TO THE GATHERING!

It is SO worth meeting up with fellow sufferers and supporters!  You will NEVER regret it!

Chuck


Title: Re: When's the next gathering?
Post by Callico on Jan 22nd, 2009 at 12:50am
What Chuck said!

Title: Re: When's the next gathering?
Post by George on Jan 22nd, 2009 at 1:10am
Will be watching for more information on Vegas in October.

El will be at school in Canada by then, and maybe I can persuade EJ to make the trek south with me.  That'd be cool.

Best,

George

Title: Re: When's the next gathering?
Post by ABarham on Jan 22nd, 2009 at 2:32pm
[size=14][/size][font=Courier New][/font]Also what Chuck said.  Chronics would be putting off the rest of their life if they waited for the beast to go away.

Louise

Title: Re: When's the next gathering?
Post by BarbaraD on Jan 22nd, 2009 at 4:02pm
Yeah, there's nothing like sharing an O2 tank with Chuckles... :)

Don't worry about the headaches at a gathering of CHers... there's always help and support all around you.

Hugs BD

Title: Re: When's the next gathering?
Post by kevmd on Jan 22nd, 2009 at 10:46pm
anybody comes near my o2 tank has a death wish.  Seriously....I have a neuro appt on tuesday.  H e will write me a script I am sure.  Right now I am using the big one's from the welding shop, thats it.  Its a pain in the ass lugging that thing around. The prob may be the insurance or med suplly place.  The supply place told me insurance co's don't cover o2 for cluster headaches.
So I think I have a fight ahead of me.  

I thought this thread was about a gathering.  

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