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Cluster Headache Help and Support >> Getting to Know Ya >> Javi from sunny Spain
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Message started by Javi on Jan 27th, 2009 at 4:54am

Title: Javi from sunny Spain
Post by Javi on Jan 27th, 2009 at 4:54am
Name is Javi, I am an episodic sufferer, normally getting up to 4 hits per day during daytime only (very seldom at nightime).

This thing started about ten years ago and I must have had maybe 5 cycles so far lasting one month each (I guess I am a lucky one). By the way I used to visit START PRINTPAGEMultimedia File Viewing and Clickable Links are available for Registered Members only!!  You need to Login or RegisterEND PRINTPAGE a few years ago, but I cannot find my old nickname (it used to be "javi spain", it must have been deleted)

I am very averse to taking meds, having a frightening family history of cardiac arrest I will only resort to Inmitrex (or other blood vessel constraining chemicals ) if absolutely everything else has failed.

I am currently in the middle of a cycle, I am using solely kudzu to attempt to control it (it seems to reduce the intensity of the attacks somewhat) and I am not planning to take anything else if I can manage.

For the rest, life is good, I am still young, married and otherwise healthy.

Thanks a lot for keeping this site alive!

Title: Re: Javi from sunny Spain
Post by Kevin_M on Jan 27th, 2009 at 8:41am
I believe I may have responded to your original post way back when because I remember you.  Glad the kudzu has helped.  Welcome again.



Quote:
For the rest, life is good, I am still young, married and otherwise healthy.


Alright!


Title: Re: Javi from sunny Spain
Post by Bob_Johnson on Jan 27th, 2009 at 9:49am
Two articles which outline current therapies. In the first one, look for "olanzapine" (Zyrexa is the brand name in the US).

A number of us have had excellent response using it to abort attacks and it does not, to my knowledge, have any effects which would make it a threat to your heart history.
----------------

HERE ARE TWO MAJOR DOCUMENTS WITH RECOMMENDED TREATMENTS FOR CLUSTER HEADACHE, ONE FROM A U.S. PHYSICIAN, THE SECOND FROM EUROPE.
_________________________________________
START PRINTPAGEMultimedia File Viewing and Clickable Links are available for Registered Members only!!  You need to Login or RegisterEND PRINTPAGE
Here is a link to read and print and take to your doctor.  It describes preventive, transitional, abortive and surgical treatments for CH. Written by one of the better headache docs in the U.S.  (2002. Rozen)
================
Treatment guidelines from Europe

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A. May, M. Leone, J. Áfra, M. Linde, P. S. Sándor, S. Evers, P. J. Goadsby:
EFNS guidelines on the treatment of cluster headache and other
trigeminalautonomic cephalalgias.
European Journal of Neurology. 2006; 13: 1066–1077.

Download free full text:
START PRINTPAGEMultimedia File Viewing and Clickable Links are available for Registered Members only!!  You need to Login or RegisterEND PRINTPAGE
(Thanks to "cluster" for link.)



Title: Re: Javi from sunny Spain
Post by Guiseppi on Jan 27th, 2009 at 9:53am
Welcome back Javi..........have you tried oxygen? Very effective and no risky side effects for your heart. Sorry you're back in cycle, glad you're back on the board.

Joe

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