Just introducing myself! I suffered from CH for two years, Finally got insurance, went to doctor and was diagnosed. 2 years later this abomanation is back.  While I'm new to the medical information, I am an old hand at suffering.

welcome to the group.

sounds like you got your shit together to battle the beast

                      PFD's
                       JPC

You found the right place for medicinal and non-traditional healings. I just wish more doctors would read this forum and educate themselves.

Good Luck

Hi Mungk & Welcome to Clusteville

 I'll be the first to ask .  .  . do you have 02 available?  It's a miracle abortive for most of us.

 As you've been diagnosed, what meds are you on?  There's not a preventative or abortive known that hasn't been used and discussed on this forum.

 Most important, the info/caring/sharing you will get here comes from folks who truly know your pain.

 Be Safe,   PFDANs

    Richard

Welcome to the board Monkey! The strength of this board is its collective knowledge. Let us know what you've used that has and hasn't worked, what you're using now. Maybe you'll drop a pearl on us, maybe we can tweak your routine. You won't find a more comprehensive collection of knowledge on CH anywhere!

Welcome home.

Joe

Welcome to the family....and A-f'n-MEN, Rodeopig!!

  I am on prednasone for preventive and was givin Maxalt for rescue. Maxalt doesn't help.

No o2 but going back to doctor soon. I use benzacane (oragel) to take the edge off attacks(applied in nostril and highest point of gumline).
Wish I had lydacane



   

Read the 02 link on the left, print out the info and get real pushy with your doc if you have to. It's about 80% effective for men so a good, cheap, high percentage abortive. Good luck.

Joe

Mungk wrote on Jan 31^st, 2009 at 5:36pm:

I am on prednasone for preventive

That is it?  You need to educate your doctor (don't feel bad about doing that, most of us have had to do it) about proper preventative medications.  Pred. is used as a stop-gap medication, because you cannot be on it for very long.  Are you on a continuous dose of pred. or on a pred. taper?  A pred. taper is when you are on a high dose to begin with, and then after a length of time (sometimes three days and others for longer) you start to taper off it.

The pred. usually works fairly quickly to prevent hits.  When you start the pred. taper, you also start another medication, such as verapamil, and while the pred. stops (or cuts way down) the hits, it allows the other medication to build up to sufficient levels to take over, once the pred. taper is done.  Verapamil takes 10 to 14 days to start to be effective.


Mungk wrote on Jan 31^st, 2009 at 5:36pm:

was givin Maxalt for rescue. Maxalt doesn't help.

Maxalt is not the best abortive out there.  Imitrex injections or Zomig nasal spray are much more efficient!



Mungk wrote on Jan 31^st, 2009 at 5:36pm:

No o2 but going back to doctor soon.

Push your doctor HARD to get the oxygen prescription!  Check out, and maybe even print out, the information on the left side of your screen, under the tab oxygen info.  If you print it out, drop it off at your doctor's office a few days prior to your visit, so the he/she will have time to read it.

Some people do not see the tabs on the left side of your screen, so here is the link to go to that section: START PRINTPAGEMultimedia File Viewing and Clickable Links are available for Registered Members only!!  You need to or END PRINTPAGE

Good luck, and keep us informed!

Chuck

I am thinking might try to go to New england headache institute.  If Doctor doesn't help gonna ask for a referal

 ? does insurance cover o2 and other treatments?
I have Bluecross blueshield.

Blue Cross partially covered my O2.  My supplier was Binson's Medical Supply.  They didn't charge for refils but did charge a rental fee.  My portion was $28.00 a month.

                                         PFD's
                                          JPC