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Cluster Headache Help and Support >> Getting to Know Ya >> I didn't miss you and hope you didn't miss me... http://www.clusterheadaches.com/cgi-bin/yabb2/YaBB.pl?num=1235409971 Message started by De_Minimis on Feb 23rd, 2009 at 12:26pm |
Title: I didn't miss you and hope you didn't miss me... Post by De_Minimis on Feb 23rd, 2009 at 12:26pm
...but I'm back. Hi all! Well my three-year cycle is off by a year (its year four), but I have little doubt the CH monster is going to pass me by this time. Getting the shadows, serious changes in sleep patterns, right eye twitching, little flames, etc. Basically, the CH monster is letting me know what's just around the corner, it seems. So, with that, I regret to inform you that we'll be seeing more of each other over the next eight weeks or so. Guess I need to go get some O2 tanks to stash at work and home. Geeszch. Had I never had the misfortune of having to sign back onto this site, it would have been too soon. Anyway, its not good to be back, but glad you guys are here (well, wish you guys weren't here, but you know what I mean).
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Title: Re: I didn't miss you and hope you didn't miss me... Post by arcticspirals on Feb 23rd, 2009 at 1:13pm
Oh my do I know that sayin~ I work at a small hospital and often when discharging patients is not "see you again" its hope to never see you again~ all in lighthearted joy.
Sorry to hear of your cycles are back. Mine returned as well after a nice long break. Right now I am just trying to be hopeful as I have gone over a week free. But staying this time, even cycle free. The warmest post I had ever seen in my life is when I returned here and someone said : welcome home. |
Title: Re: I didn't miss you and hope you didn't miss me... Post by ClusterChuck on Feb 23rd, 2009 at 8:02pm Quote:
I don't know, maybe it is just me, but I take offense at that comment. There are many on this site that stay here, regardless if they are in cycle or not. We have several who are here, even though they have been out of cycle for MANY years. There is always support and help that can be given out. When people from this site, drop out, and disappear, many times they are dearly missed. Virtually everyone is an asset to the community. Even if I was to never have another hit, I would stay here. If, for some reason, I could not get on here, I would miss the people here. These people, here, have helped me like no others, and I would never desert them. They are family. I am VERY glad that you had a nice long break from the beast, and I am quite sorry you are back in cycle. I just wish you had come back without such an infuriating and demeaning statement, such as your title is. Or at least it is to me. Chuck |
Title: Re: I didn't miss you and hope you didn't miss me... Post by Linda_Howell on Feb 23rd, 2009 at 9:11pm
You're not the only one Chuck. Pretty insulting way to start if you ask me.
Quote:
Yep, we're here trying to help each other every single day. Hopefully we'll be able to help you too. :-/ |
Title: Re: I didn't miss you and hope you didn't miss me... Post by Charlotte on Feb 23rd, 2009 at 9:21pm
Hi, De Minimis. I personally couldn't live without the place, but I know what you mean and I appreciate the humor. Welcome back.
However, when your episode is over, maybe stick around next time and help us support each other during your good times :) Charlotte |
Title: Re: I didn't miss you and hope you didn't miss me... Post by Guiseppi on Feb 23rd, 2009 at 10:06pm
Yeah I was like you for many years. Off cycle, I was afraid that even thinking about CH could bring on a cycle. Visiting the board was outta the question!!!
2 reasons to stick around out of cycle. You stay up on the latest and greatest treatments so when he comes back....and the bastard always does!!!....you're ready to do battle. And just as important, all of the new, scared people who just need to know they're not alone and there is hope. Damn sorry he didn't lose your address. Hoping it's a short cycle for you. Joe |
Title: Re: I didn't miss you and hope you didn't miss me... Post by PollyPocket on Feb 23rd, 2009 at 10:40pm De_Minimis wrote on Feb 23rd, 2009 at 12:26pm:
..... here for what? :-/ |
Title: Re: I didn't miss you and hope you didn't miss me... Post by Jeannie on Feb 24th, 2009 at 1:03pm
I've been out of cycle since around this time last year. Just a few rouge hits now and then. I'm soooooo glad I stuck around! I try to be helpful but, even out of cycle, I'm afraid that I get more than I give around here. I'm proud to call the
I'm sorry you're back in cycle. We're here to help you any way we can. ;) Jeannie |
Title: Re: I didn't miss you and hope you didn't miss me... Post by kevmd on Feb 24th, 2009 at 10:29pm
Glad your back. get yourself some good info and prepare yourself. I Spent years visiting this site only while in cycle. Last years cycle brought me back and kept me here for good. It may take a few times but most of the people here, I would do whatever I could for. I hope you feel the same some day
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Title: Re: I didn't miss you and hope you didn't miss me... Post by ski2k on Feb 25th, 2009 at 7:14am
I understand the whole not wanting to be here thing, but please understand, that for our own sanity, we all NEED to be here!
I, too, wasn't one to come around much while out of cycle, but these crazy folks here have a way of drawing you in!!! To those of you keeping track, I don't post a whole lot, but I DO still come in and look around while outta cycle. Just reading up on treatments, and to see how everyone's doing. I'd reccommend you do the same, De. There's always new things to try out to help in AND out of cycle! Take care, and hope you get more PF time soon!! Adam |
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