Hey gang I want to update from my last post about my Dr. appt yesterday. I was seen by a very good Neurologist at the Cleveland Clinic and now I have a new plan of treatment. My doctor put me back on O2 with the correct type of mask recommended to me by several of you; my meds are Depakote 500 ER, Zomig 5MG nasal spray and Melatonin OTC. I go for a MRI next Tuesday and have a follow up appt with my Dr. The Clinic has a research trial that is going very well with stimulators and I look like a good canidate for this study. I'll find out more after the MRI and follow up visit with the Dr. and I'll post again with an update.
Rick

I am  happy for you , a good doctor and a good supporter will make all the difference in the dance we all do.
would like to hear more about the stimulator study.

Best of luck in the coming days

Hope you have good and possitive things to post in your fight with the beast.

All the best, Iddy

Hi Rick,

I'm glad you found some Drs that know what they're doing.

For me, I'd only view the stimulator as an absolute last resort.  It is brain surgery after all.

If you really are in that place then you have my sympathy and support.  While we all share a funky hypothalamus, the road we each take to find relief is different.

Lizzie2 has gone through this procedure twice. Search for her threads and read about her experience.  The first surgery was unsuccessful due to lead site infection.  From what I understand the 2nd surgery went better.

-Dennis-

That's great news, sounds like you're on a good road now. 30 years of this and the 02 is still my best friend. Hope it works as well for you.

Joe

Rick,

You may want to read through wildhaus's (Michael Berger's) experiences with ONS at START PRINTPAGEMultimedia File Viewing and Clickable Links are available for Registered Members only!!  You need to or END PRINTPAGE

Take care,
V/R, Batch