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Cluster Headache Help and Support >> Getting to Know Ya >> New but not new
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Message started by Jrcox on Mar 12th, 2009 at 8:15pm

Title: New but not new
Post by Jrcox on Mar 12th, 2009 at 8:15pm
I have been a sufferer for going on 12 years now. I have know of this and usually visit it now and again. It seems like when ever my cycle starts I get all my meds and tanks together. Visit my doctor. Do research online the whole 9 yards. Then finally my cycle ends and I just stop. Not sure why. The 6 to 8 weeks my cycle last wears me out and it's like  I want to forget about it and move on for the next year. Then I scramble  to get everyhing in place as soon as they start again. Now that I am going through a divorce. I am actually going to have to deal with this alone. For the first time in 8 years. Very scared.  

Title: Re: New but not new
Post by B.Baer on Mar 12th, 2009 at 8:49pm
I certainly can relate, I went in cycle for the first time about 15 years ago, while going through a divorce. I was already alone and then hit with these cursed things. I was probably as down as I have ever been in my life.

6 years ago, I meet the woman I am married to now. She is the one who found this site and made me aware of all it had to offer. I have made great strides in learning to deal with our medical rarity. She has comforted me and supported me, and believe me, as you know, we can be a handful when in cycle. She dealt with me pushing her away and not letting her near me, but through it all she helped. She researched and joined this site a number of years ago.

I just joined this site during this cycle. I, like you, would research read and then not come back till next cycle. I aim to remedy that this time.

The point is, it will turn around for you, if I've learned one thing, it's that the people who have these are some of the strongest people on earth. You have to be to cope with it.

You're never really alone, just look around this site, we all share a common bond. You'll find caring and compassionate sufferers and supporters. We are only a keyboard away, and I can attest to the fact sometimes a phone call away. It will get better and it starts now.

I know it'll be a rough ride for a while, these damn things are hard enough without the additional stress of divorce. You'll come out the other side, a wiser and stornger person. I know I did.

Best of luck and feel free to PM me if you need to.

Baer

Title: Re: New but not new
Post by Iddy on Mar 12th, 2009 at 10:48pm
That's the wonderful thing about this site.

I think it is only natural to want to forget and put behind you the pain of your cycle.

The support is always here,all you have to do is crank up the keyboard.  :)

Wishing you all the best and PFD. Iddy

Title: Re: New but not new
Post by Mrs Deej on Mar 13th, 2009 at 2:27am

Jrcox wrote on Mar 12th, 2009 at 8:15pm:
I am actually going to have to deal with this alone. For the first time in 8 years. Very scared.


But you're not actually gonna have to go through this alone...you have all of us.


Title: Re: New but not new
Post by Guiseppi on Mar 13th, 2009 at 2:36am
Stef's right. Sorry about the big D, that sucks. But you don't need to be alone with this. I used to hide from the board off cycle, afraid even thnking of it...much less POSTING about it would start a new cycle. Jump on in and allow us to lend you a hand. ;)

joe

Title: Re: New but not new
Post by DennisM1045 on Mar 13th, 2009 at 8:39am
I'll add my welcome to the list.  You'll never be alone around here  8-)

It sounds like you have a good plan in place for dealing with the beast.  Just let us know if we can help in some way.

-Dennis-

Title: Re: New but not new
Post by George on Mar 13th, 2009 at 9:44am
Welcome.   :)

I used to come to CH.com when I was in cycle (mostly lurking) and stayed away when I was out.  Did that for about six years.  I think a lot of episodics do that.

Sorry you're going through a divorce at the same time you're in active cycle.  It's like a perfect storm of suck.  

Come see us often--as Steph said, you won't have to go through this alone.

All the best,

George

Title: Re: New but not new
Post by midwestbeth on Mar 13th, 2009 at 9:49am
Hi and welcome!  Sorry to hear you are going through a tough time right now.  Hope the beast leaves you soon, but know that you will never be alone as long as this site exists.

Beth

Title: Re: New but not new
Post by Jeannie on Mar 13th, 2009 at 10:11am
Hi!

I too am sorry that you are having a rough time.    You aren't alone though!

Stick around .... we grow on ya!

Jeannie

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