Bloody good to find you folks.  I pretty much gave up telling people about my headaches straight away, I guess thats why women rarely tell blokes about the pain of childbirth, you'll just get met with a thousand yard stare or all of a sudden the floor and ceiling become very interesting.

I FINALLY got diagnosed by a Consultant Neurologist a month back, bloody hell doctors (GP's) are clueless eh.  Its actually good to have a diagnosis...and now I've got a forum, things are on the up and up  :D

Welcome aboard. Glad you found us. Lots of info lots of great people.

Take advantage of all the info available on the site start to help yourself.Dig in. Ask all the questions you want,they will be answered.

All the best Iddy :)

Danged glad you found us! When you get a chance, let us know what kind of regimen you're on. The strength of this board is the combined experiences of hundreds of us! Maybe we can make a suggestion or two to discuss with your doc.

02......you'll hear/read this a lot on the board. If you're not already using oxygen to stop your attacks, read the "oxygen info" link on the left and PLEASE give it a try. I can stop an attack in 6-8 minutes using oxygen. MANY on the board have posted similar results. Definitely worth a try!

Welcome home! ;)

Joe

Cheers for the welcome words and the advice.  I'm defo going to look into the oxygen if for no other reason than to get high free on the NHS  :D
Thats a point...screw having this shit without free healthcare  :-/

hi, welcome from another NHS user  ;)

I'm still trying to get oxygen out of my GP, tried the upfront approach, now trying to gently coax him into it........

waiting to hear back from my neuro......... be good to hear how you get on with trying to get oxygen.... maybe we can swap GP intimidation tips!


Fran

Hiya,

Another NHS user.

Top tips.
Join OUCH Uk
[yes I know still on my to do list along with five essays and a heap of other paperwork thats been on hold for nearly six weeks.]

Get a pre-payment certificate for 12 months- saves a fortune in repeat prescriptions if you have Eddie Stobbart deliver your headache prescriptions like I seem to. ::)
START PRINTPAGEMultimedia File Viewing and Clickable Links are available for Registered Members only!!  You need to or END PRINTPAGE

If your GP will NOT budge on the HOOF forms contact OUCH UK and also contact your consultant neurologist- if they fill in the HOOF you can usually get the O2 in three working days.
Try taking the UKs BASH guidelines on treating CH to the GP. You may be the only person they have meet who has this and will not know about the O2.
START PRINTPAGEMultimedia File Viewing and Clickable Links are available for Registered Members only!!  You need to or END PRINTPAGE

Please tell me the GP has at least handed over some sumatriptain auto-injectors or imigran or zomig nasal sprays at least! If not get on the phone to OUCHs UK helpline toute suite.

deBauch wrote on Mar 17^th, 2009 at 1:01am:

I'm defo going to look into the oxygen if for no other reason than to get high free on the NHS  :D

I believe you are suffering from a misconception. You'd need more than O2 to get high, if that's what your goal is.


Quote:

Thats a point...screw having this shit without free healthcare.

Many people do it, myself included.

Brew wrote on Mar 17^th, 2009 at 10:00am:

I believe you are suffering from a misconception. You'd need more than O2 to get high, if that's what your goal is.

I dunno, a couple of bong hits with oxygen chaser should do the trick, and I thoroughly recommend really good weed.

Cheers Katie, I got prescribed a couple of those sumatrip injector affairs, I've been CH free for a few months and in answer to Steambug...I'll have no problems getting the oxygen from my doctor as I intend to ask the bugger mid cluster headache, that should swing it  :)

think I said in another post I was going to give that a go! (asking my GP mid cluster headache about the O2 - I do think its impossible for them to get an idea of what its like unless they see it - shouldnt stop them prescribing the appropriate stuff though!) - mind you he rang me this afternoon and said thanks for the info! (I gave him a headache diary and a printout from the BNF) seeing him in the morning anyway - will see what he says and does!

Quote:

I dunno, a couple of bong hits with oxygen chaser should do the trick, and I thoroughly recommend really good weed.

Are you at all familiar with exactly what is going on during a cluster headache?  Weed is a vasodialtor and what we need is a vasoconstrictor.  If you think weed should do the rick you're in for more pain than you need to be in.  It's a trigger, same as alcohol.

Oxygen is a good abortive...please try that.

Deleting posts now eh, how thoroughly facist :-X I can guarantee that it will have been a Yank.

Yes, they were deleted. And they were deleted by a Yank. They were ugly and way out of hand.

A couple of mine were deleted as well. They, too, were ugly and way out of hand. And they were deleted by a Yank.

Brew wrote on Mar 26^th, 2009 at 2:50pm:

Yes, they were deleted. And they were deleted by a Yank. They were ugly and way out of hand. A couple of mine were deleted as well. They, too, were ugly and way out of hand. And they were deleted by a Yank.

Is that your way of apologising, is this the dawning of a new era of trans Atlantic joie de vivre.

deBauch wrote on Mar 27^th, 2009 at 4:42pm:

Brew wrote on Mar 26th, 2009 at 2:50pm: Yes, they were deleted. And they were deleted by a Yank. They were ugly and way out of hand. A couple of mine were deleted as well. They, too, were ugly and way out of hand. And they were deleted by a Yank. Is that your way of apologising, is this the dawning of a new era of trans Atlantic joie de vivre.

No apologies necessary. From either party.

deBauch wrote on Mar 26^th, 2009 at 2:10pm:

Deleting posts now eh, how thoroughly facist :-X I can guarantee that it will have been a Yank.

Yep, and that Yank would be me.  Your little "tat" with Brew had no place up here.  Better the posts than your profile.  No?

DJ

Frenchy broke the rules Deej  [smiley=grin2.gif]

DJ wrote on Mar 27^th, 2009 at 9:24pm:

Yep, and that Yank would be me.  Your little "tat" with Brew had no place up here.

Its all good, the fruitbat has taken to abusive PM's now  ::)

Real nice.

deBauch,

I am forced to wonder why you are here. Your words lead me to believe that you are simply looking for a place to play.

If I am incorrect, may I respectfully suggest: START PRINTPAGEMultimedia File Viewing and Clickable Links are available for Registered Members only!!  You need to or END PRINTPAGE

However, I suspect that you will find them to be less tolerant of rude behavior than we are here. I would further suggest posting there while not under the influence would go a long way in establishing a reasonable amount of credibility for you.

Marc

I would further suggest posting there while not under the influence would go a long way in establishing a reasonable amount of credibility for you.

Excellent advice.

Joe

So let me get this right.

I'm perfectly civil in my posting...I mention that I smoke weed...completely unsolicited somebody is bloody rude...I stick up for myself, I then get a nasty PM (which is the slyest of the sly) and now my motives are questioned, my behaviour called rude and yet more patronising crappy assumptions are made about the state that I post in.

Quite unbelievable considering that I've hardly even gotten out of my own hello thread and I'm only here to gain knowledge and support for a thingy of a condition that I've got.

What I find particularly astounding is the bitterness that I have been subjected to over a simple lifestyle choice.  What if I had mentioned that I was gay ?  I'm guessing that I would most likely have been subject to similar attacks.  Personally I'm a live and let live kind of guy and even if I did have objections to other peoples lifestyles I'd have the common decency to keep it to myself rather than be downright bitter and nasty.

All that being said I won't let you lot drive me away which seems to be the game plan but if this is the kind of welcome that you give to people that suffer from this bitch of a condition I suggest that you take a good hard look at yourselves.  Carry on deleting my posts, carry on casting nasty aspertions, I have Cluster Headaches so I've had worse things happen to me  ;D

...damn....did I just stick up for myself again...there's gonna be hell to pay now  :-X

Quote:

but if this is the kind of welcome that you give to people that suffer from this bitch of a condition I suggest that you take a good hard look at yourselves.  Carry on deleting my posts, carry on casting nasty aspertions,

Shaun,
   I just went back and read this thread from the beginning. It looked pretty cordial to me . We look at 02 as the holy grail for preventatives in slamming a HA back where it came from. You commented that taking a couple of bong hits and chasing it with 02 will do the trick and someone called you on it. It got nasty and DJ deleted the posts.

Your next comment was that a "yank" had deleted it and and how "facist" that was.

The thread was going downhill fast and the OWNER of the site deleted a couple of threads. Thats it.

I hope you stick around. There is a lot to learn here and share as well. We have been here for 10 years.  I think we welcome new members pretty well after all this time unless you have an agenda. In that case you WILL get slammed. I am assuming that you don't so.....

Welcome to ch.com. :)

Linda H gave me some sound advice on something that I was unaware of and that was appreciated, thats not the issue, that has absolutely nothing to do Brew sticking her oar in about my lifestyle choice, me giving the nosey thingy a slap and then getting dogpiled by the holier than thou crew.

 Posting private PM's from someone for everyone to see , is a VERY un-classy thing to do around here and it really says a LOT  about people who do that.

:-X

deBauch wrote on Mar 29^th, 2009 at 3:05pm:

What if I had mentioned that I was gay ?  I'm guessing that I would most likely have been subject to similar attacks.

I am a cluster headache sufferer, AND I am gay ... OPENLY gay.  I believe anyone who has been on this site for any length of time, knows that I am gay.  Other than good natured teasing, I have never been attacked, because I am gay.

HOWEVER, I HAVE been attacked for some of the things that I have said, and usually, RIGHTFULLY attacked.  If I say something mean or stupid, I get attacked.  NEVER for being gay!

From my experience (over six years of it) on this site, lifestyles are not attacked.  Most are pretty much ambivalent about a certain lifestyle one chooses, or does NOT choose to be part of.  (FWIW, being gay is NOT a choice!)

Meanness, cruelty, abusiveness, deception, and fraud ARE attacked.  There are PLENTY of people on this site that partake in whacky tobbacky ... Just the use of it for clusters is found to be very destructive, for 99% of the users.

YOU be considerate, and polite, and we will be too.  Be nasty, cruel and abusive, towards anyone and you WILL be slapped down.  Plain and simple.

Chuck

As always Chuck, I stand in awe of your ability to put my thoughts into words!

Joe

ClusterChuck wrote on Mar 29^th, 2009 at 5:50pm:

Meanness, cruelty, abusiveness, deception, and fraud ARE attacked.  There are PLENTY of people on this site that partake in whacky tobbacky ... Just the use of it for clusters is found to be very destructive, for 99% of the users. YOU be considerate, and polite, and we will be too.  Be nasty, cruel and abusive, towards anyone and you WILL be slapped down.  Plain and simple.

Couldn't have said it any better!   :)

edit to add:  Hit the ignore button!!!   ::)

Oh Chuck....I am not just saying this because I HAVE to be nice to you for another 5 months....THAT was beautiful.  I think I really MUST echo this:

 
Quote:

YOU be considerate, and polite, and we will be too.  Be nasty, cruel and abusive, towards anyone and you WILL be slapped down.  Plain and simple.

I am with Linda posting a PM isnt cool!!!!!

Chuck's gay???????????? :question [smiley=confused.gif] [smiley=JAW_DROP.gif]

Joe

Guiseppi wrote on Mar 29^th, 2009 at 11:13pm:

Chuck's gay???????????? :question [smiley=confused.gif] [smiley=JAW_DROP.gif]

Oi, no name-calling or I'll tell a moderator!

Guiseppi wrote on Mar 29^th, 2009 at 11:13pm:

Chuck's gay???????????? :question [smiley=confused.gif] [smiley=JAW_DROP.gif] Joe

Do you mean he likes kissing other BOYS?! *gasp*

No..............he's just happy.

Jimi wrote on Mar 30^th, 2009 at 12:39am:

No..............he's just happy.

as a lark!  Damn, I had no idea that Chuck was *that* happy  ;D!

Maybe Dj ought to add one more *rule*~no posting of private messages.

Linda_Howell wrote on Mar 29^th, 2009 at 4:42pm:

Posting private PM's from someone for everyone to see , is a VERY un-classy thing to do around here and it really says a LOT  about people who do that.

Agreed, its the lowest of the low, well except for being cowardly enough not to say your piece on open forum but hey, its backs against the wall here so I fight dirty  ::)

Anyway, the weathers picking up very nicely isn't it, I sense a quite beautiful spring don't you love ?

deBauch wrote on Mar 30^th, 2009 at 8:54pm:

but hey, its backs against the wall here so I fight dirty  ::)

Ummm...in case you haven't noticed, nobody's chasing you anymore.

Can we move on?   ::)

George

Is that post ironic humour  :-/