I am starting to hate everyyone I know and see.  I look around and see people complaining about stupid bullshit and all I can think of, is that none of them know what real suffering is>  I am becoming a miserable, tired cranky bitch.  Nobody understands the pain we have, and if I hear one more person say they have migraines too, or why dont I try to go take a nap if Im so tired,I am going to really blow my top.

I hate what these damn things are turning me into.  I am not like this at all.  I wouldnt wish CH on anyone, but I really do sometimes wish that everyone around me could feel just for five minutes a kip 10.  Maybe then people wouldnt think that I am just a crybaby.

Ohwell,  I guess that after only two weeks, I just aint used to things yet.  I feel that I can go on CH.com and let loose because only the people who have felt this pain and misery can maybe understand my hateful feelings.  

Whew,  I think I feel a little better already!!!!!!
Chris

Pity party over....now kick some demon arse! ;)

It gets all of us down at some point or another. then you get back up again. Ch is NOT who you are, it's a little boil on the arse of life that we get to deal with. Come here, say all those things you've wanted to say to those clueless people...remembering they're not malicious just uterly clueless on CH....and then move on. You're going to be okay! [smiley=hug.gif]

Joe

For heaven's sake...it's just a headache! ;D

One of the worst things about CH, other than the pain is the fact that our family and friends can not understand what we deal with.

When I really thought deeply about it I realized that they can't understand, they have no reference of this horrible pain. It's in your head.

For near all sufferers of CH this is true, at one point during our suffering, someone has made us feel small because they COULD NOT understand.....

Don

Guiseppi wrote on Apr 10^th, 2009 at 11:46pm:

For heaven's sake...it's just a headache!

WHACK!!!!

There, Chris!

I got him for you!

NOW, when someone says something like that to you, in real life, think of the image of this wimpy sissy smacking a big hunky law enforcement dude up the side of the head.  THAT should put a grin on your face!

Chuck

chrisw wrote on Apr 10^th, 2009 at 11:39pm:

I am starting to hate everyyone I know and see.  I look around and see people complaining about stupid bullshit and all I can think of, is that none of them know what real suffering is>  I am becoming a miserable, tired cranky bitch.  Nobody understands the pain we have, and if I hear one more person say they have migraines too, or why dont I try to go take a nap if Im so tired,I am going to really blow my top. I hate what these damn things are turning me into.  I am not like this at all.  I wouldnt wish CH on anyone, but I really do sometimes wish that everyone around me could feel just for five minutes a kip 10.  Maybe then people wouldnt think that I am just a crybaby. Ohwell,  I guess that after only two weeks, I just aint used to things yet.  I feel that I can go on CH.com and let loose because only the people who have felt this pain and misery can maybe understand my hateful feelings.   Whew,  I think I feel a little better already!!!!!! Chris

why can't you just take some ibuprofen? ;D it is nice to vent to a group of people that don't compare your headaches to meegraines

On a day when life is a bit calmer read this little "essay" and take a look at the catalog linked at then end.

This approach to CH takes some practice and self-discipline but it really can change your feelings and, therefore, reactions.

START PRINTPAGEMultimedia File Viewing and Clickable Links are available for Registered Members only!!  You need to or END PRINTPAGE

I struggled with this my last cycle (ended on Feb. 28th).  Taking heed in this website, plus just hanging around those who I live with, was my only salvation from smacking heads together. :-/  

chrisw wrote on Apr 10^th, 2009 at 11:39pm:

I wouldnt wish CH on anyone, but I really do sometimes wish that everyone around me could feel just for five minutes a kip 10.  Maybe then people wouldnt think that I am just a crybaby.

Hi Chris,

I often see this sentiment here.  

I won't say I've never felt the same way, because I have--but if I literally had the power to confer an attack on someone else, I don't think I could bear to do so.  I doubt that you, or anyone else here could actually go through with it.  I understand that it's simply a way of emphasizing how isolated we feel at times.  

Those who've never experienced a CH attack are on the other side of a wall--we can speak to them about it, but we can't make them comprehend it.  That's why we talk to one another, after all.  We get it.  They don't.   ;)  Can't think how we'll ever change that basic fact.

In one way at least, it's a good thing that this happy ignorance in the non-clusterhead population continues.  If some fanatic monster ever figured out how to induce attacks in "normal" individuals, I hate to think what the consequences might be.  

Only one of us can comprehend what a nightmare that would be.

Best wishes,

George

This might sound a little harsh, but it's said with the utmost of love and concern:

Other people understanding your pain is something over which you have ZERO control. Start worrying about the shit over which you DO have some control.

"I was just driving along, and out of nowhere this rusty steel horseshoe spike came right through the windshield and buryed itself in my skull."

"Oh, I know. I hate it when that happens."

You are in a position where the thoughts, feelings, actions of others are controlling your life. Stop it. Those of us here know what you're going through - vent away. It feels good to get it off your chest. But when you're done venting, get busy and do two things: battle the beast with everything you've got, and look for opportunites to do some good.

Then, if your friends, family, and colleagues still need some help "understanding," go to this link, print it off, and hand it to them:

START PRINTPAGEMultimedia File Viewing and Clickable Links are available for Registered Members only!!  You need to or END PRINTPAGE

This doesn't have to change who you are.

Brew wrote on Apr 11^th, 2009 at 9:11am:

This might sound a little harsh, but it's said with the utmost of love and concern: Other people understanding your pain is something over which you have ZERO control. Start worrying about the shit over which you DO have some control.

thats good advice. once you accept the fact that people around you aren't going to be as understanding as your mom or your spouse you can move ahead.

Take a deep breathe my friend.

the fact it that if one has only experienced the pain of a paper cut then that is the ultimate pain.

Pain happens to be individualized

Good luck

The basic fact IS either the Beast controls YOU, or YOU control it!
It won't change the pain, or the fact that you get hit, but it will most definitely change the way you deal with it.
Vent here, yell, scream, whatever it takes, because these are the people who will ALWAYS understand (and give you a whack on the head when you need it, too!)
I hope you never get another hit, BUT, should it happen, I hope you will have read all the info available to you here, and you have found some new ways to cope.
If you want to SHOW these hits to your 'loved ones/coworkers', go to YouTube and type in Clusterheadaches.......

Npw get out there and LIVE!

Wishing you PF times and health,
Cathi :D

If it makes YOU feel better that everyone you come in contact with, understand...tell them to type in cluster headaches on 'You Tube'.

Yesterday, I might have commiserated with you about this.  Today, I don't just don't care about stuff like that.

I spent all day today doing volunteer work at a local Special Olympics event today.  It's good to get my priorities realigned now and then.......

Marc

thanks everyone,  boy, let me tell you,  PMS+CH=1 bitchy girl.  I dont know what came over me, but its great to come on here and vent a little, and know that the people here will understand.   Have had a little sleep in the last couple days, and I feel much better.

I hope one day I can offer the support to one of you , that you have offered to me.

love and hugs
Chris 8-) 8-)

Glad to hear you were able to catch up on soem much needed sleep and are feeling better Chris.  Keep up the fight and know that we will always be here for you.

Hugs,
Beth

[smiley=hug.gif]  Sometimes a hug helps.  Hang in there, sweetie!

Jeannie

Jeannie wrote on Apr 13^th, 2009 at 9:33am:

[smiley=hug.gif]  Sometimes a hug helps.  Hang in there, sweetie! Jeannie

Hugs ALWAYS help....your family has your back! ;) [smiley=hug.gif]

Joe

TIMEOUT UMP!!!

              Alright, here we are in the bottom of the 9th. 2 outs and the string is out on ya, The team needs a hit and your the one we want up there swinging, but you cant be listening to all the hecklers in the crowd. They can get pretty nasty over there in the peanut gallory. Now take a deep breath, Be ready for the curveball and CRUSH anything that comes over the plate. Now get back in the game.


                            PLAY BALL !!!!

                                                  COACH BILL

             

you guys really are the best.  The most caring supportive people a girl could have on her side during stress.  

thanks again :-* :-* :-* :-*

ClusterChuck wrote on Apr 11^th, 2009 at 12:32am:

Guiseppi wrote on Apr 10th, 2009 at 11:46pm: For heaven's sake...it's just a headache! WHACK!!!! There, Chris! I got him for you! NOW, when someone says something like that to you, in real life, think of the image of this wimpy sissy smacking a big hunky law enforcement dude up the side of the head.  THAT should put a grin on your face! Chuck

thank you Chuckie.  I may need this visual.

Charlotte

No--people will not understand the pain of CH or what it means to have these headaches--this amounts to--you and we will stay humble.
At one point you will think "geez I wish so and so could get one just ONCE"--and then you will quickly take back that thought and realize that you actually wouldn't wish it on anyone even ONCE.  That is a result of kindness and character.

So...see what we have here:
Cluster Headaches--1 point (painful)
You--3 points (humility, kindness, character)
You win in the end.

Linda and Cathi both had my suggestion.  Along with that I'm with Brew.  I know it is hard, but I've had to learn to deal with the pain and go on with life anyway.  I work in a school, and have a bunch of preschoolers that are my friends.  They don't understand when I get grouchy and upset easily.  I've had to learn to control my emotions until the hit just gets to bad, or the Horner's gets to pronounced.  (Three year olds come up with some wild questions when my face gets all screwed up)  I then retreat to the office for a little while, then paste a smile on my face and go back out to deal with the kids.  The emotional price is high, and sometimes I take it out on the wife when I get home :-[ and I try to come on here and read others experiences to put mine in perspective.  I also try to spend some time praying for others here, and a couple of friends who have cancer.  That does wonders for my perspective.

Use us to vent, then get back out there and LIVE life to the fullest.

Jerry

Hang in there Chris.  We all get crabby after a while from these stupid headaches.  I typically get one CH cycle every 10 months-year.  Well, wouldn't you know it, like 2006, due to our nice weird Wisconsin weather (weeks of alternating temps - a few days in the 50s, 60s, & 70s, and then temps dropping down into to the 20s, 30s & 40s in less than a day [Saturday it was 70 degress - this morning it was snowing!]), I've been in another CH cycle for the past 3 1/2 weeks (yippee!).  Of course with my sleep being wrecked (even taking the Migranol to stop the headaches, I still end up with interrupted and lost sleep), I get kind of cranky myself.  It's just the anture of the beast with CH.  OH yeah, and it doesn't help, when ask about your "migraines", or insist that migraines are worse than CH.  Grrrrr!

The only thing I c 8-)an do is to walk away from the ignorant people who don't understand.  I work with mostly great people who do understand.  I wink at people when mine are hitting since my left eye droops and twitches, so the running gag is who is going to buy me the pirates patch first...LOL  8-)

Laughter is trully the best medicine.  Pain drugs don't work for me so I have to find releif anywhere I can, and educate as many people as I can along the way.  This year is my worst in the 12+ years I have suffered and I don't know if the day break I have now will last until tommorrow, but I'll rejoice in it today.

Much Metta Starlight!

chris, just an observation but you seem to be doing better. ;)

Yeah, one youre over the intial disappointment that the mf is back and here to stay for a while,  the only thing to do is throw your energy into fighting the battle.   like they say,  "get busy living, or get busy dying".  well,  I thought about dying, but changed my mind.

thanx everyone 8-) 8-) 8-) 8-)

chrisw wrote on May 3^rd, 2009 at 4:45pm:

Yeah, one youre over the intial disappointment that the mf is back and here to stay for a while,  the only thing to do is throw your energy into fighting the battle.   like they say,  "get busy living, or get busy dying".  well,  I thought about dying, but changed my mind. thanx everyone 8-) 8-) 8-) 8-)

hell yeah [smiley=headbanger.gif] [smiley=headbanger.gif] [smiley=headbanger.gif]