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Cluster Headache Help and Support >> Cluster Headache Specific >> Just starting topamax...any advice?? http://www.clusterheadaches.com/cgi-bin/yabb2/YaBB.pl?num=1244152318 Message started by brenda182 on Jun 4th, 2009 at 5:51pm |
Title: Just starting topamax...any advice?? Post by brenda182 on Jun 4th, 2009 at 5:51pm
I have dealt with the beast for 24 years now, but new to this site. So thankful I found it. Now I can get advice from real people who know what I am talking about and what I am going through!!! They just started coming back again this month after 1 1/2 years of almost complete freedom!!! Tried soooo many different things for preventers that didn't work or stopped working. Lithium was the latest but caused me way too many problems in other areas...thyroid condition, HUGE weight gain, tremors, continously sick, but it did help keep the beast at bay for a while. Now I just started topamax last night...one of the only ones I havent tried in the past. Does anyone out there have any experience with this one that you can share with me please?? dosage, side effects, DOES IT WORK??? I read all about it including reviews but most have nothing to do with our issues...PLEASE HELP!!!
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Title: Re: Just starting topamax...any advice?? Post by FrankF on Jun 4th, 2009 at 6:29pm
I used it for a few weeks then discontiuned because of side effects. For me Topomax caused memory loss and inability to concentrate. I am an electrical engineer so the nature of my work requires me to have a functioning brain. Some here call it "Dopeymax".
It works different for some people so good luck. |
Title: Re: Just starting topamax...any advice?? Post by BarbaraD on Jun 6th, 2009 at 7:29am
O2 is a great abort and I swear by what Batch said.
I take topamax and have since 99. My regular dose is 100mg at night (but during a "high cycle" I sometimes up the dosage). I've not had the side effects that others have had. A little memory loss (but I'm old) - I write post it notes. I'm an accountant and it hasn't really affected my work. I take the whole dose at night and nothing in the daytime, so if I have any side effects - I guess I sleep them off. When I started taking it, I was a basket case and the effects were almost immeidate. My headaches just stopped for a while. I still get hit, but NOT anything like I was getting hit when I started taking it. A few years ago I decided to get med free and quit taking it and things went good for a few months and then WHAM! So I don't think I'll be getting off it for a long time to come.... in fact my neuro has a written statement from me to use a BASEBALL bat if I ever decide to do something like that again. For me it works. Hugs BD :-* |
Title: Re: Just starting topamax...any advice?? Post by brenda182 on Jun 6th, 2009 at 1:54pm
thanks so much for that. so far no major side effects...only on it for 3 nights though!! a little nervous from some things I've been reading because I am going to school now for accounting...just made the deans list for the spring semester...definitely want to do it again in the fall!! I see my doc again in 1 1/2 weeks to check on progress of this med so I'll talk to her about O2. Thanks to you, Batch and others for info.
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Title: Re: Just starting topamax...any advice?? Post by FrankF on Jun 6th, 2009 at 2:01pm
It works fine for many people. But if you feel yourself feeling "dopey", at least it wears off fast. :)
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Title: Re: Just starting topamax...any advice?? Post by brenda182 on Jun 6th, 2009 at 2:06pm
Thanks...so far so good...I'm trying to be as hopeful as possible...not too many combinations I haven't tried in the past 28 years!!! Hopefully I'll find some good advice here!! So far, finding great tips...love this place!!
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Title: Re: Just starting topamax...any advice?? Post by E-Double on Jun 6th, 2009 at 6:21pm
notepads and sticky's lol
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Title: Re: Just starting topamax...any advice?? Post by Guiseppi on Jun 6th, 2009 at 7:16pm
Congratulations on making the Deans list, no small accomplishment! [smiley=thumbsup.gif] The thing with side effects is they're not universal! Hoping it continues to help without any of the "annoying" side effects. And do check out the 02 info. 31 years of the beast and it's still my front line and most effective abortive.
Welcome to theboard. Joe |
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