Hi! ;-)
My name is Marjolein. I'm from Holland. I've had CH since I was 17. I am now 45 years old. I always had the Episode CH but this year it seems that the episode is not passing. For months already I've had an attack every two days.
Is there people here who changed form a Episodic CH to a Chronical CH?

Pardon my English, my Dutch is much beter ;-)
Thank you for reading this posting. Looking 4ward to your answer!
M :-/

The change to chronic is frustrating but not at all understood.
---------

J Headache Pain. 2005 Feb;6(1):3-9. Epub 2005 Jan 25.

Chronic cluster headache: a review.

Favier I, Haan J, Ferrari MD.

Department of Neurology, K5-Q Leiden University Medical Centre, 9600, 2300 RC Leiden, The Netherlands.

Cluster headache (CH) is a rare but severe headache disorder characterised by repeated unilateral head pain attacks accompanied by ipsilateral autonomic features. In episodic CH, there are periods of headache attacks with pain-free intervals of weeks, months or years in between. A minority of patients have the chronic form, without pain-free intervals between the headache attacks. Chronic CH can occur as primary or secondary chronic CH; the rarest form is episodic CH arising from chronic CH. In this article, we give a review of the chronic forms of CH and focus on demographics, clinical manifestations, social habits, predictive factors, head injury, genetics, neuroimaging and therapy. IT IS REMARKABLE THAT LITTLE IS KNOWN ABOUT RISK FACTORS THAT MAKE CH CHRONIC.

Publication Types:
Review

PMID: 16362185 [PubMed]  

Hi Marjolein and Welcome!

In a word, Yes, is the answer to your question.  They really don't know a lot when it comes to CH there needs to be more studies on it.  But it seems to get swept under the rug all too often because there aren't too awful many of us CH sufferers.

Good Luck keeping the Beast at bay and PDFAN to you!

Hi Marjolien,what a cool name never heard it before.

Welcome to the family. There is nothing wrong with your English, we share a common language! Clusters.

Stick around,ask your questions and those in the know will give you the best answers possible.

Tell us a little about how you have battled the Beast over the years.

All the best and wishing you PFD :)

Iddy

Hi Marjolien and welcome to the mad house, i live in germany and when i speak german they think im from holland  ::) your english is fine a lot better than mine (wife allways corrects me (shes german))

lots of info over to your left side <<<<<<<<< if your not on O2 then rush out today and get it. it really is a miracle worker, i kick myself for every hit, day, year ive gone through this without O2.

Mark (loves amsterdam, tulips and cheese)

Hi Marjolein & welcome.

It’s a strange beast we deal with; I had one cycle of clusters just before I turned 50 that lasted for 12 weeks & went away for 5 years before I had another, I went chronic at that cycle & have been that way since.

Cheers
Barry from down under

Welcome aboard!

Your English is fine.  It is as good or better than mine and I grew up on the US.

I wnet from episodic to chronic about 5 or 6 yrs ago after being episodic for over 20 yrs.  I don't bother keeping track anymore.  I could figure it out if needed, but it doesn't change the pain.  

If you have gone chronic you will find it has some advantages:
    1) You don't live in fear of its return.  You know it is coming and you can deal      with it.
    2) You can develope a pattern and plan your life around CH instead of it taking control with its randomness.

Jerry

Thank you all very much for your messages. It is a strange experience to actually be in contact with people who know what this is all about. This is new for me... getting emotional  :'(
Had so much pain in the last 20 years or more. Only recently (3 yeras) I got diagnosed with CH. When I would have an attack without medication I always thought there was something seriously wrong with me that I couldn't deal with a 'simple' headache-attack. Now, when I sometimes watch a YouTube video I recognize the enourmous amount of pain and agony and it makes me so sad that I had to deal with this shit for so many years by myself...
Yes. Well. Thank you, there's all of you out there...  ;)

Hallo Marjolein en welkom.
I'm from the Netherlands as well.

Pascal.

Hi Pascal, dank je ;-)