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http://www.clusterheadaches.com/cgi-bin/yabb2/YaBB.pl Cluster Headache Help and Support >> Cluster Headache Specific >> Found a good combo FINALLY http://www.clusterheadaches.com/cgi-bin/yabb2/YaBB.pl?num=1248091954 Message started by Bob Greenwood on Jul 20^th, 2009 at 8:12am

Title: Found a good combo FINALLY
Post by Bob Greenwood on Jul 20^th, 2009 at 8:12am

I know we all have different combination's, and I hope I FINALLY found mine.
I was getting attacks all day, and all night but then I started taking 40 mg. of verapamil 3 times a day and it wasn't doing anything so my neuro uped it to 80 mg. 3 times a day. I stopped having them during the day, but I still get 3-5 attacks a night.
The O2 helps a LOT, but I am really tired during the day because I'm up at night.
The last few nights I took a treximet just before I hit the O2 and I actually slept in. I usually get woken up at 4 with an attack and just stay up, but this morning I slept till 7, and I feel great.
I know these sucker aren't predictable and can change at any given moment, but I'm happy TODAY :)

Title: Re: Found a good combo FINALLY
Post by JoeKen on Jul 20^th, 2009 at 2:35pm

Great to hear - let's hope it continues - keep us posted.
JoeKen.

Title: Re: Found a good combo FINALLY
Post by Bob Greenwood on Jul 20^th, 2009 at 3:01pm

I will. ;)

Title: Re: Found a good combo FINALLY
Post by Brew on Jul 20^th, 2009 at 3:34pm

Two things to inquire about:

1. Think about trying melatonin at night. In the US, you don't need a prescription.

2. Most clusterheads don't get relief from verapamil until they get to the 360-480mg/day range. Some need to go as high as 920mg/day.

Title: Re: Found a good combo FINALLY
Post by Bob Greenwood on Jul 20^th, 2009 at 5:21pm

Ya, I plan on getting the melatonin and I have an appointment with my neuro on the 3rd to talk about upping my dose on the verapomil. We'll see how that goes. But until then I've been kinda doing my own experimenting to see what I can do myself.

Title: Re: Found a good combo FINALLY
Post by Brew on Jul 20^th, 2009 at 5:25pm

Whatever you do, do NOT mix that treximet with any other triptan without first getting your doctor's express approval.

Title: Re: Found a good combo FINALLY
Post by Bob Greenwood on Jul 20^th, 2009 at 5:33pm

My neuro told me not to take it with Ibuprofin. All I'm taking right now is the verapomil and trex. Nothing else besides O2.

Title: Re: Found a good combo FINALLY
Post by on my knees on Jul 20^th, 2009 at 5:52pm

treximet is imitrex and naprosyn (aleve) i believe , i have tried it and it helped a little with shadows but aborting or reducing hits.
however if it works for you YEA!!!!!!! i am with you.
dido on mixing triptans without doc approval

Title: Re: Found a good combo FINALLY
Post by Bob Greenwood on Jul 20^th, 2009 at 6:13pm

My insurance only covers one refill a month on the Imetrix, but he gives me samples of trexamet. He did explain to me that they are the same thing.
I'll ask him before taking anything else though. Thanks for the heads up.

Title: Re: Found a good combo FINALLY
Post by Barry_T_Coles on Jul 20^th, 2009 at 7:02pm

Good to hear your getting some effect.

I've been doing much the same with Imigran (Migrane meds) 20mg half way through killing a hit with o2 & I can get 6-8 hours reprieve & some much needed sleep, if i dont use the Imigran I'll continue to get hit all night.
I'm not in high cycle now but keep o2 & Imigran on standby at all times.

Cheers
Barry

Title: Re: Found a good combo FINALLY
Post by Bob Greenwood on Jul 21^st, 2009 at 9:40am

Last night went well so I didn't need to take trex. I had a small attack at 9 and with the O2 it was gone in 5 minutes, and I didn't have another one until 6:30 this morning that was the same...5 minutes on O2 and it was gone.
I'm just happy I'm getting the sleep I needed.

Title: Re: Found a good combo FINALLY
Post by Brew on Jul 21^st, 2009 at 11:05am

Makes a world of difference, doesn't it?

Title: Re: Found a good combo FINALLY
Post by Bob Greenwood on Jul 21^st, 2009 at 11:31am

It sure does. Even if I got a real bad attack right now I could handle it better than if I could being tired. Not that I want a bad one right now lol

Title: Re: Found a good combo FINALLY
Post by Bob Greenwood on Jul 23^rd, 2009 at 7:07am

Well, not much to report. I went all day yesterday, and all night without a CH. I know tonight could be hell, but :D

Title: Re: Found a good combo FINALLY
Post by BarbaraD on Jul 28^th, 2009 at 3:47pm

Just checked in on you ... Glad to see you're getting some rest. Have you tried the melatonin at night? I've been on it for years and the rest at night I've been getting helps with the days.

Wish you could have made convention -- lots of help there.

Give me an update...

Hugs BD :-*