Having had the Kip 10 from hell the other night, even after continually swallowing tegretol at 200mg per day and Verapamil at 480 mg per day for months with a 1 off 6ml injection of Imigran last night, I broke my hand after punching my bedroom wall due to the pain.

Anyhoo, I went to "a" doctor, as in the UK you dont get your own doctor next day, you tend to get some clueless locum, filling in for doctors that know what they are doing.

Unfortunately, the only GP at my practice who recognised my symptoms is away having an operation.

Besides all that, I thought, "enough", I want some O2, and I'm entitled to it. The Imigran injections throw me into severe panic attacks and as disfunctional as the clusters, only longer.

Therefore off I attempted to pre-analyse all the information I have gleaned from this site and OUCH.ORG in th UK and duly set off to get some help.

PS: The HOOF in the UK.  ( Home Oxygen Order Form ) is now out of date and a new form has been introduced.  Also, a HOCF ( Home Order Consent Form ) is a new addition to the pen pushers.

This "GP" advised that I could not get O2 on the NHS, to which I handed her all of the web info from the BNF ( British National Formulatory ), further info from NICE (  National Institute of Clinical Excellence ) and all the data I could find from Professor Goadsby.

This was not enough for this alleged caring professional.

To whit, I advised that the Prescription Advisor at my local Primary Care Trust, whom I contacted also advised that prescribed O2 was the cheapest and long term safest method of treating CH.

But this idiot GP is sending me off for respitory evaluation, before I can even be considered for O2.

Anybody got a gun.     I give In.

Hang in there Derek. We're all here at the OUCH Gathering in St. Louis. LeLimey, from UK is here, I'll alert her to your post and perhaps she can give you some advice.

This problem is coming to United States CH sufferers disguised as "free health coverage for everyone."

Derek I feel for you, hope you can get the red tape worked out.

I'm not happy about this new health care till I see the representatives have the same plan...oh, and the same SS. :-/

That's not likely going to happen. As it is now, they've written themselves out of it.

Many thanks -  QnHeartMM