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http://www.clusterheadaches.com/cgi-bin/yabb2/YaBB.pl Daily Chat >> General Posts >> 365 Days http://www.clusterheadaches.com/cgi-bin/yabb2/YaBB.pl?num=1248390675 Message started by Barry_T_Coles on Jul 23^rd, 2009 at 7:11pm

Title: 365 Days
Post by Barry_T_Coles on Jul 23^rd, 2009 at 7:11pm

I’ve just managed 365 days without going into a high cycle & to say I’m stoked is an understatement.

Not prepared to say I’m back to being episodic again as I still get daily shadows along with RLS,EHS & my wonderful nights laying in bed wide awake (Melatonin doesn’t work for me).

Since going chronic back in 2004 this is the longest break so far & if the demon decides to stay away from the door for another year I won’t miss it.

Cheers & PF times
Barry

Ps You lot behave at the convention ;)

Title: Re: 365 Days
Post by Grandma_Sweet_Boy on Jul 23^rd, 2009 at 7:20pm

That's awesome news. May you stay out of cycle until at least the 12th of Never!!!!!

Carol

Title: Re: 365 Days
Post by barry_sword on Jul 23^rd, 2009 at 9:40pm

Barry, I am so happy to hear this! PF wishes forever my friend!
Wooooooooo-Hooooooooo! [smiley=bigguns.gif]

Cheers from the other Barry 8-) [smiley=beer.gif]

Title: Re: 365 Days
Post by Charlie on Jul 24^th, 2009 at 12:39am

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Nice going Barry!

Charlie

Title: Re: 365 Days
Post by Lefty on Jul 24^th, 2009 at 8:30am

Happy Daze Barry.... :)

Lefty...!

Title: Re: 365 Days
Post by E-Double on Jul 24^th, 2009 at 8:33am

awesome!!!

Title: Re: 365 Days
Post by Melissa on Jul 24^th, 2009 at 10:25am

That's fantastic Brry! So happy for you. :)

Title: Re: 365 Days
Post by Jeannie on Jul 24^th, 2009 at 10:50am

That's wonderful, Barry! My it last forever!

Jeannie

Title: Re: 365 Days
Post by McGee on Jul 24^th, 2009 at 11:04am

absolutelly fantastic more of them ;D ;D ;D ;D

Mark

Title: Re: 365 Days
Post by lionsound on Jul 24^th, 2009 at 11:22am

YAY !!!!! :)

Title: Re: 365 Days
Post by Cathi_Pierce on Jul 24^th, 2009 at 1:39pm

365 days! That is SOO cool, Barry!
I hope the beast loses your address......... forever!!!!

Happydancing for you!

cathi :D

Title: Re: 365 Days
Post by ClusterChuck on Jul 24^th, 2009 at 3:29pm

Well, I guess I am not as nice as some of the other people who left comments.

I DO think that it is awesome that you have had 365 days painfree! BUT, (this is where I differ from the others) I don't wish it to last forever ... I have a finite period. You have gone 365 days, I want you to go 365 years before your next cycle. THEN (being the meany that I am) I want you to have another cycle.

Deal?

Chuck

Title: Re: 365 Days
Post by Karla on Jul 24^th, 2009 at 4:54pm

Congradulations! This is just wonderful news. May you have many more pain free days in your future.

Title: Re: 365 Days
Post by Kevin_M on Jul 24^th, 2009 at 5:26pm

Keep up the good work. Enjoy the summer, or I guess winter on the unther side.

Title: Re: 365 Days
Post by AussieBrian on Jul 24^th, 2009 at 7:58pm

That's bloody terrific, Baz, and may it continue long time. Do you think you can put it down to the work you've done with taurine? Really interested to hear more about it.

All the best to you and yours and we're killing a coldie for you this very minute.

Title: Re: 365 Days
Post by Barry_T_Coles on Jul 25^th, 2009 at 8:33pm

ClusterChuck wrote on Jul 24^th, 2009 at 3:29pm:

You've got a deal brother.
Barry

Title: Re: 365 Days
Post by Barry_T_Coles on Jul 25^th, 2009 at 8:40pm

AussieBrian wrote on Jul 24^th, 2009 at 7:58pm:

That’s what I’m hoping; the magnesium/calcium combo with Zink thrown in a couple of time a week & using the Taurine as a promoter.
There has been dietary changes as well that I think has helped, I now have oily fish about three times a week for the omega 3 component & bananas for the potassium.

There has been times that I’ve though that my persistence down this road wasn’t worth it but with the pain free periods getting longer each time & no other real option I thought what the heck.
It isn’t perfect but its better than where I was & I realize fully that CH will morph and maybe that’s all that is happening but I’m not about to stop the regime to prove either way.

Cheers
Barry

Title: Re: 365 Days
Post by Callico on Jul 27^th, 2009 at 9:27pm

Good start. Now finish the job! ;)

Please keep us posted with your continued PF news.

Jerry

Title: Re: 365 Days
Post by BarbaraD on Jul 28^th, 2009 at 10:06am

Now, if you were REALLY a nice man, you'd send some of that PF stuff down TEXAS way..... ;)

But what Chuckles wished you -- I'll double (we always do things BIGGER in TX)... Great going... keep it up...

Hugs BD :-*

Title: Re: 365 Days
Post by FramCire on Jul 28^th, 2009 at 10:33am

ClusterChuck wrote on Jul 24^th, 2009 at 3:29pm:

NO DEAL!!!!! What if in the next 10 years they find a way for people to live 500 years healthy and happy and now you have wished him more CH! SHAME ON YOU!!!! If I had some gin (maybe its water), I would throw it on you for wishing this!

Here to a LIFETIME of more PF days Barry!!!

Title: Re: 365 Days
Post by MITYRARE on Jul 29^th, 2009 at 10:21pm

Truly a milestone most of us someday hope to experience....good for you and make the most of every day! congrats!

Paul

Title: Re: 365 Days
Post by Barry_T_Coles on Jul 29^th, 2009 at 11:30pm

Thought I should drop some dates in so you can how this has progressed over time.

Went chronic October 2004 & didn’t get a break for more than a couple of days; although 02 works well for me I really needed to find something that wasn’t pharmaceutical medicine dependent, & when Taurine was first discussed on this site that set me on the road to where I am now.

Started the regime with Taurine April 14 2006 & gradually added the other supplements as I became aware of the benefits.

First big break Oct 2 2006 through to June 20 2007 = 261 days

High cycle June 20 2007 to August 9 2007 = 50 days

Low cycle August 9 2007 to June 1 2008 = 297 days

High cycle June 1 2008 to July 24 2008 = 53 days

Current low cycle July 24 2008 to today July 30 2009 = 371 ( ;)not that I’m counting)

Cheers & PF times

Barry

Title: Re: 365 Days
Post by LadyLuv on Jul 30^th, 2009 at 10:29am

Barry that is great....

I am so very thrilled 4 you... I Pray that your pf days will continue .... :)