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Cluster Headache Help and Support >> Cluster Headache Specific >> 5 days this time
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Message started by Bob Greenwood on Aug 2nd, 2009 at 10:34am

Title: 5 days this time
Post by Bob Greenwood on Aug 2nd, 2009 at 10:34am
It's been 5 days without a CH. I hope this time it's for good.
If my cycle is over I'll still check from time to time. This site is a great way to learn how to cope with these damn things, and you guy's are great.
Thank you for all your help, it is GREATLY appreciated.

Title: Re: 5 days this time
Post by MattyAA on Aug 2nd, 2009 at 11:07am
How long are your cycles?

Title: Re: 5 days this time
Post by Guiseppi on Aug 2nd, 2009 at 11:13am
That'd be great news Bob, keeping my fingers crossed for you. On or off cycle please keep checking in. We love to hear about long remissions, gives us all hope. It's also important to stay up on the latest and greatest treatments for one %^%$^$ comes back to visit again! ;)

Hoping this remission lasts a lifetime.

Joe

Title: Re: 5 days this time
Post by Bob Greenwood on Aug 2nd, 2009 at 12:25pm

MattyAA wrote on Aug 2nd, 2009 at 11:07am:
How long are your cycles?



Usually 3 months, but this on was 2 months.

I'll be around Guiseppi. Like I said you guy's are a great bunch.  ;)

Title: Re: 5 days this time
Post by campergal on Aug 2nd, 2009 at 1:02pm
Congrats on going out of cycle! May it stay that way.

I was 10 yr remission this time. Disappointed >:( :( :o :'(

The last two cycles, one was 6 months and the last was 1 year. Always went to a Kip 8. 02 did help alot tho! :)

Title: Re: 5 days this time
Post by campergal on Aug 2nd, 2009 at 1:04pm
I used to be every 3 yrs.

Title: Re: 5 days this time
Post by Joeytastic on Aug 2nd, 2009 at 1:05pm
I'm jealous as hell, although pretty proud of my PF day and a half :)

What got you out of it hun? x

Title: Re: 5 days this time
Post by Bob Greenwood on Aug 2nd, 2009 at 5:00pm

Joeytastic wrote on Aug 2nd, 2009 at 1:05pm:
What got you out of it hun? x


I can't say for sure that ANYTHING got me out of it. I mostly got them at night for some reason.
The last few nights of getting them I would just hit off the O2 and when I got my normal 4 AM CH I took a Trexamit and got the extra sleep I needed.
I also take Verapomil.
I would have been lost without the O2, that's for sure.

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