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Cluster Headache Help and Support >> Getting to Know Ya >> something is different this time http://www.clusterheadaches.com/cgi-bin/yabb2/YaBB.pl?num=1249930398 Message started by red ryder on Aug 10th, 2009 at 2:53pm |
Title: something is different this time Post by red ryder on Aug 10th, 2009 at 2:53pm
Hi all, I am a 15 year clusterhead who found this site last year towards the end of my cycle, this is truely an awesome site with the best knowledge possible. I am a 35 year old male and as stated have dealt with the beast for 15 years. Usualy starting in June-July and going for 6 weeks. Well this year it started on the summer solstice June 21st (imagine that). But it is different it is dull and only seems to go up to about kip 3 - 4. Didn't do anything different in between cycles. I can even have a beer or two and it just stuffs me up but does not slam me like usual. Just feels like bad sinus type pressure with the tender scalp issue. I am into the 7th week here and like I said I am not complaining by all means I am familiar with kip 9 -10, I've put my fist through drywall! Just wanted to know if any of you vets out there have had a cycle like this. Just worried that it is lasting longer than the others. Thanks. Jay
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Title: Re: something is different this time Post by Bob_Johnson on Aug 10th, 2009 at 4:58pm
"...worried..."
Why? You can't do anything about it; you don't know what will be the outcome. Just appreciate that you're back among buds!....... |
Title: Re: something is different this time Post by jim murphy on Aug 10th, 2009 at 6:04pm
It's interesting to find someone going through the same sort of episode that I am. I've danced with the beast for over 40 years but started my current cycle 5 weeks ago after a break of 10 years.
I've had a couple of KIP 6 or 7's in that time but the majority have, like you been 3 and 4's that are more a pain in the ass than anything else. Previous episodes always included at least one 8 or 9 a day so I'm not complaining. Beer is my poison of choice but I've laid off since the clusters returned because I remember what used to happen if I had one. I'd get an 8 or 9 within 10 minutes of having one so I'm not tempting fate. You mention tender scalp and that's interesting because I'm having that but I don't honestly recall ever having it before this episode. I guess that's what makes clusters so great. They always find a way to surprise you. Hang in there. |
Title: Re: something is different this time Post by red ryder on Aug 10th, 2009 at 6:10pm
True, I guess I should listen to my wife and not worry about the future. I guess what I am wondering is if I should temp the beast and try my migranol spray to try and be done with these kip 3-4 or just ride it out. God knows I don't want the usual kip 7-8 that wake me up from sleep like the last cycles. All I am doing right now is redbull, coffee, I have O2 but it is only at a flow rate of 8lpm and I suck it straight from the hose basicly to not let in any other air in. Jay
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Title: Re: something is different this time Post by Skyhawk5 on Aug 10th, 2009 at 10:07pm
At one time most of us could set our Calenders and watches by our CH. Most often it will at some point change the game plan.
I have had at least one mild cycle. And I have used O2 @ 8lpm. Today we've found this to be too low for most of us. 15lpm with a NON-REBREATHER (with the bag) is the new minimum. If less works you can turn it down. Most of us need even more, 25lpm+. Read the "oxygen info" link on the left of this screen for up to date O2 use. I know you may not need it now but being prepared is just wise. Enjoy the PF time and good luck. Don |
Title: Re: something is different this time Post by Callico on Aug 10th, 2009 at 11:32pm
What Don (Skyhawk) said.
Jerry |
Title: Re: something is different this time Post by red ryder on Aug 11th, 2009 at 9:03am
Thanks for the advice guys its nice to know that some of you have gone through similar cycles. I guess what I wanted to hear was (yeah thats what mine did before my cycles stopped for 5 -10 years) :) I will just be glad it has been an overall very mild cycle and just hope it comes to an end soon. Much PF vibes out to you guys. Jay
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