New CH.com Forum
http://www.clusterheadaches.com/cgi-bin/yabb2/YaBB.pl
Daily Chat >> General Posts >> DBS - Ryan Stockdale update
http://www.clusterheadaches.com/cgi-bin/yabb2/YaBB.pl?num=1250008798

Message started by Val_ on Aug 11th, 2009 at 12:39pm

Title: DBS - Ryan Stockdale update
Post by Val_ on Aug 11th, 2009 at 12:39pm
for those of you who were following---

Ryan Stockdale Home
START PRINTPAGEMultimedia File Viewing and Clickable Links are available for Registered Members only!!  You need to Login or RegisterEND PRINTPAGE

Ryan Stockdale is home from San Francisco.

Ryan's wife, Karia Stockdale, tells Today's Channel 6 anchor Michelle Edmonds Ryan flew home Sunday.  They had been in San Francisco since mid-July in preparation of Ryan's brain surgery to treat his cluster headaches.

During the surgery, doctors implanted a device in his brain, which was activiated at a low level last Friday.  Doctors will gradually raise the level to determine if the surgery was successful.

Karia tells Today's Channel 6 News since the device was activated, Ryan suffered a total of two peaks from his cluster headaches.  Before the surgery, Ryan experienced 8-10 peaks per day.

Karia also says Ryan is out of bed and able to walk around the house for the first time in months.
- - -

The article states Ryan was having 8-10 'peaks' per day, though Karia, his wife, told me it got to be "at an 8 all day peaking to a 10 nearly 20 times a day." - article seems to be an understatement.? oh well - DBS seems to be helping immensely so far!!  SO glad for Ryan, and as long as they can tweak it to help him even further, what a good deal!!!   [smiley=grin2.gif]

Val

Title: Re: DBS - Ryan Stockdale update
Post by QnHeartMM on Aug 11th, 2009 at 2:58pm
Wow, that's fantastic! Hope it proves to be 100% successful!

Title: Re: DBS - Ryan Stockdale update
Post by Val_ on Aug 14th, 2009 at 2:54am
a note Karia posted today - just more affirmation things are going well for them.  I like good news.
- - - - - -
Karia Lee Stockdale - - 4/13/09 (FB)
"I am grateful tonight! Grateful to be home, Grateful for a community that rallied around us, and mostly Grateful that Ryan is home and doing so well! He was up today and even sat outside what a miracle, he hasn't been able to do that in months.... Thank you all, you will never know. You have given me my husband, my children their father and Ryan his life."

Title: Re: DBS - Ryan Stockdale update
Post by ClusterChuck on Aug 14th, 2009 at 3:40am
Thanks for the update, Val!

I was waiting a few days, once they got home, before I called them.  I guess your update shows that they are ready for a phone call!

I will call them tomorrow!

Thanks again, Dahlink!

Chuck

Title: Re: DBS - Ryan Stockdale update
Post by George on Aug 25th, 2009 at 1:29am
Updated information on Ryan Stockdale's DBS procedure.

START PRINTPAGEMultimedia File Viewing and Clickable Links are available for Registered Members only!!  You need to Login or RegisterEND PRINTPAGE

Apparently, they've had to remove the wires due to infection.

Best,

George

Title: Re: DBS - Ryan Stockdale update
Post by ClusterChuck on Aug 25th, 2009 at 1:41am
Thanks for the update, George!  Maybe that is why I have not been able to reach Karia on the phone.  I will have to keep trying.

DAYUM!!  Ryan NEEDS a good break, for once!  My prayers and vibes are still heading out their way.

Thanks again, George!

Chuck

Title: Re: DBS - Ryan Stockdale update
Post by Val_ on Aug 25th, 2009 at 6:30pm
oh yes - they are at UCSF again - a frontal lobe infection.  It would have been fatal had they not learned of it when they did.  They will have to come up with another chunk of change for another surgery in about 4 months if all goes well with the infection - but they are hopeful.  At least they know DBS worked and was working better and better as time went on... 

As soon as they took out the stimulators Sat, of course the beast was baaack.   >:(

Val

New CH.com Forum » Powered by YaBB 2.4!
YaBB © 2000-2009. All Rights Reserved.