Hi everyone.  I have been getting hits pretty steadily for over a year now.  I can keep them under control with verapamil (360mg a day) and topamax (75mg a day) - when I taper off of either of these they come back.  

I was episodic for years until this past year.  Has anyone here ever heard of anyone flipping BACK to episodic after going for longer than a year with hits steadily?  Hoping the answer is yes :-?

Thanks to everyone who reads this.  It's a wonderful site.

Yes. Anything can....and does happen with this mess.

Yes, but you can also learn to live with it either way.

Jerry

Predicting the future isn't possible but the attempt can make you crazy! Put our energy into learning how care for yourself and emotionally coping.....time will answer your question.
=============
J Headache Pain. 2005 Feb;6(1):3-9. Epub 2005 Jan 25.

Chronic cluster headache: a review.

Favier I, Haan J, Ferrari MD.

Department of Neurology, K5-Q Leiden University Medical Centre, 9600, 2300 RC Leiden, The Netherlands.

Cluster headache (CH) is a rare but severe headache disorder characterised by repeated unilateral head pain attacks accompanied by ipsilateral autonomic features. In episodic CH, there are periods of headache attacks with pain-free intervals of weeks, months or years in between. A minority of patients have the chronic form, without pain-free intervals between the headache attacks. Chronic CH can occur as primary or secondary chronic CH; the rarest form is episodic CH arising from chronic CH. In this article, we give a review of the chronic forms of CH and focus on demographics, clinical manifestations, social habits, predictive factors, head injury, genetics, neuroimaging and therapy. IT IS REMARKABLE THAT LITTLE IS KNOWN ABOUT RISK FACTORS THAT MAKE CH CHRONIC.

Publication Types:
Review

PMID: 16362185 [PubMed]  

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HMMM...interesting....maybe some diet factors play in here?
   As stated in the thread above, It is also interesting.

I hate it for you....I know it is one of my biggest fears.
  good luck                  .          lorac

Joshua wrote on Aug 14^th, 2009 at 2:53pm:

I was episodic for years until this past year.  Has anyone here ever heard of anyone flipping BACK to episodic after going for longer than a year with hits steadily?  Hoping the answer is yes :-? .

Yes!

I have done the flip a few times.