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Cluster Headache Help and Support >> Cluster Headache Specific >> have to get O2
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Message started by Lawrence on Aug 17th, 2009 at 1:32pm

Title: have to get O2
Post by Lawrence on Aug 17th, 2009 at 1:32pm
Hello all,

My name is Lawrence. I've been here before, but its been a long time since I posted here. I frequent this board weekly though.
I'm 31, been having CH since I was in middle school as a kid, so i'm familiar with the beast.
Right now I am in a cycle thats been going on since April.
My cycles usually last two months of every year, in the spring, with daily one-hit wonders of a KIP-10-- then they go away, but this year, the beast has stayed with me a little longer than normal.

Hate to say this, but i try not to come to this message board, sometimes it seems like just thinking about CH, or being reminded of them helps bring them back...
I take Verapamil, 480 to 600 mg a day when in cycle.
I take Imitrex injections to abort the beast at work.
I HAVE NO OXYGEN.
I see my neuro tomorrow being. I have to tell him that I need O2 for my home. Right now I have to abort all my big hits with triptans.

Title: Re: have to get O2
Post by lorac on Aug 17th, 2009 at 2:00pm
hi lawrence.

Good luck at the neuro's...Maybe if you print off some info about the O2,and take to the dr. you will get some.
    Read through the info here, and go armed with lots of good knowledge.
   I would rather use the air, than so many drugs.
            Lorac

Title: Re: have to get O2
Post by Aussie6330 on Aug 17th, 2009 at 9:20pm
Hello Lawrence.

Please see my post O2 for Aussies......there MUST be some similar setup in the USA for you......Very best of luck to ya mate   ;)

Title: Re: have to get O2
Post by BarbaraD on Aug 18th, 2009 at 6:53am
Check with Pete to see how the RX needs to be written so you get the RIGHT regulator and a nonrebreather mask. You'll need a regulator that goes to at least 15-25 liters per minute and the RIGHT mask (on the left at the ch.com store you can order the RIGHT one). That's the secret of the O2 working properly. It beats the heck out of trex and is SO much better for you.

Hope you get relief soon...

Hugs BD :-*

Title: Re: have to get O2
Post by Lawrence on Aug 21st, 2009 at 10:58pm
Well, I got my O2, the guys delivered me a nice big H tank a few days ago. I I also have an Optimask I ordered a few days ago from the CH store on here.
So far, i've been able to abort most of my incoming hits using 15 liters a minute with my optimask.

Title: Re: have to get O2
Post by Sandy_C on Aug 22nd, 2009 at 10:16am
Lawrence, that's great news!

Many of us rely on only O2 as an abortive.  It's cheap, and there aren't some of the awful side effects that prescribed triptans or other abortives can do to damage your body.

Best of luck - wishing you PF

Sandy

Title: Re: have to get O2
Post by Marc on Aug 22nd, 2009 at 7:08pm

Lawrence wrote on Aug 21st, 2009 at 10:58pm:
...............

So far, i've been able to abort most of my incoming hits using 15 liters a minute ..................


Great news!

Get yourself a higher flow rate regulator (and learn to breathe fast and deep) and just you may change your
"most" to "almost all" hits.

Marc

Title: Re: have to get O2
Post by Linda_Howell on Aug 22nd, 2009 at 9:09pm


Quote:
Hate to say this, but i try not to come to this message board, sometimes it seems like just thinking about CH, or being reminded of them helps bring them back...


Of course you KNOW that is nonsense...right?   ;)


Title: Re: have to get O2
Post by flyinfree on Aug 26th, 2009 at 2:45pm
omg

i cant figure out what "to the left is!!!!!!!"

where is the aussie link to swee what we have in the u.s.

ok... i am coming apart now.

it is sorta cool that you guys "know"

Todd

Title: Re: have to get O2
Post by Grinner62 on Aug 27th, 2009 at 12:01am

flyinfree wrote on Aug 26th, 2009 at 2:45pm:
i cant figure out what "to the left is!!!!!!!"

I assume you got here from a link without frames. Try START PRINTPAGEMultimedia File Viewing and Clickable Links are available for Registered Members only!!  You need to Login or RegisterEND PRINTPAGE
If that doesn't work, start from the home page START PRINTPAGEMultimedia File Viewing and Clickable Links are available for Registered Members only!!  You need to Login or RegisterEND PRINTPAGE and navigate through the user agreement etc.

Title: Re: have to get O2
Post by Lawrence on Aug 27th, 2009 at 12:08am

Linda_Howell wrote on Aug 22nd, 2009 at 9:09pm:

Quote:
Hate to say this, but i try not to come to this message board, sometimes it seems like just thinking about CH, or being reminded of them helps bring them back...


Of course you KNOW that is nonsense...right?   ;)

;D

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