New CH.com Forum | |
http://www.clusterheadaches.com/cgi-bin/yabb2/YaBB.pl
Cluster Headache Help and Support >> Cluster Headache Specific >> Not this again http://www.clusterheadaches.com/cgi-bin/yabb2/YaBB.pl?num=1251334753 Message started by tigerman on Aug 26th, 2009 at 8:59pm |
Title: Not this again Post by tigerman on Aug 26th, 2009 at 8:59pm
Well its been almost 2 years and the bitch is back >:(
I still have some Verap and prednisone(8 months out of date) Been taking for 1.5 weeks It has only woke me up a few times once I fall asleep :) I am getting hit between 600pm and 1000 pm. The last 3 days my head has not stopped throbbing in between the hits.My jaw is killing me too. All this is on the same side of my head. I almost forgot how annoying this CH is I am off work Friday and will go to the neuro to get some up to date meds. Only 3 of the hits have been a 9 and the rest a 6 or 7. I know I am having Chs but it seems weird this time.The severity not as bad and the not getting hit 2 hours after I fall asleep. Any feedback is much appreciated . |
Title: Re: Not this again Post by Ginger S. on Aug 26th, 2009 at 9:05pm
Sorry to hear the B--itch is back.
Hope your doc appointment goes well. You may be ramping up on the CH hits, I've heard some people say that after a remission period they start out less intense then go for broke on them. I hope they stay mild until you can get them under control as much as that is possible anyway. ;) |
Title: Re: Not this again Post by JeffB on Aug 26th, 2009 at 9:15pm
Watch how you take the prednisone. As a matter of I wouldn't take it myself with talking to a Dr.
And for the Verapamil, it's a preventative, I made sure I never ran out and I never would stop taking it. |
Title: Re: Not this again Post by tigerman on Aug 26th, 2009 at 9:16pm
The last time Dec 2007 was the 1st time to go to the doc for this problem and I had been in cycle for I think 5 weeks .Then she told me I would be in no more pain and I had a few shadows and it was over.
Up till then I just suffered with the cold and hot compress which I could deal with unless it went on for more than an hour. As the years have gone by I think my cycles have been longer and the pain worse I know the cycle will end along with the debilitating pain and I always try not to get to excited that surely makes it worse |
Title: Re: Not this again Post by JeffB on Aug 26th, 2009 at 9:38pm
My first time at the Dr. with this, they gave me Indocin, Pred, and some other bullshit. The Dr. said it "should shorten the cycle" which I was in for about 5 weeks also.
The pred has to be tapered down, the indocin made me crap like a dog at a chili eating contest. The other stuff, to be honest, I can't remember. But my cycle was ALWAYS 3-4 hits a day and at 2am, without fail. I went thru this for about 5-8 weeks 3 times a year for about 5 years. Then a few years PF, then it started all over again. Since I've been on verap constantly, I haven't been hit since fall of 05. Go to your Dr. and ask questions and see about a second opinion also. Now, everyone may not be the same and have different lengths and times of hits so really make an effort to ask Dr's and the folks here! |
Title: Re: Not this again Post by Brew on Aug 26th, 2009 at 10:03pm Quote:
Dude. Too much information. |
Title: Re: Not this again Post by flyinfree on Aug 27th, 2009 at 10:47am JustNotRight wrote on Aug 26th, 2009 at 9:05pm:
that is just not right! to the OP- mine just came back too. For me it has been years of no attack from the @%%@$^E&#$%%T^@T% dont even get me started. feeling yer pain. and if Ginger is right we will have to pinch her - really hard :) Todd |
Title: Re: Not this again Post by tigerman on Aug 27th, 2009 at 6:48pm
I slept through another night with no hits just that same pain that will not go away.I did get hit at 10:00 when I was out surveying and took a Zomig nasal spray and it was gone within 15 minutes.
You should have seen me holding the rod in 1 hand and pushing on my temple with the other.The spray was 1 1/2 years out of date and still worked. Sleeping through the night without a hit seems odd and I believe the Verap is helping that?? Its like I have a combo of cluster,The flu,and a tension headache Not sure what in the world is going on I don't know why taking the pred is any different than the Verap without the doc knowing.They are only 10mg pills at 3 a day for a week.I am on 2 a day now,but will be at the doc tomorrow and get some up 2 date meds. Pred is nothing new to me.I get bad poison ivy every summer and the doc will put me on it if I go in to get that cortisone shot Hope all is well with my fellow sufferers :o |
New CH.com Forum » Powered by YaBB 2.4! YaBB © 2000-2009. All Rights Reserved. |