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Cluster Headache Help and Support >> Cluster Headache Specific >> One hit wonder.
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Message started by maalstroom on Aug 27th, 2009 at 4:59pm

Title: One hit wonder.
Post by maalstroom on Aug 27th, 2009 at 4:59pm
Two nights ago I was awakened by a CH attack.
Clearly I was expecting more after that, but 48 hours orso later nothing else has happened.

What do you all make of this?

Title: Re: One hit wonder.
Post by Pixie-elf on Aug 27th, 2009 at 7:26pm
Well, if it's outside of your normal cycle, I've seen people post about having rogue hits... Some here and there between cycles.

Title: Re: One hit wonder.
Post by Skyhawk5 on Aug 27th, 2009 at 7:46pm
Same thing happened to me the morning of August 2. Nothing since. I've been out of cycle for 8 months.

Scared me a little and I did have to use the O2. Just a friendly reminder I guess.

Good Luck, Don

Title: Re: One hit wonder.
Post by ClusterChuck on Aug 27th, 2009 at 8:23pm
It is just the beast swinging by to remind you that he has not forgotten you ... The BA$TARD!!!

Title: Re: One hit wonder.
Post by George on Aug 28th, 2009 at 1:28am
Rogue hit, for sure.

I used to get them more often when I was younger.  Not so much anymore.

Best,

George

Title: Re: One hit wonder.
Post by Sandy_C on Aug 28th, 2009 at 11:48am
I've been pain free for over three years but have had four one-hit-wonders.

I ain't complainin! 

Just enjoy your PF time and don't worry about the next hit.  Live life!

Sandy

Title: Re: One hit wonder.
Post by Jeannie on Aug 28th, 2009 at 12:31pm
That happens to me now and then.  Once this summer, in fact.

Title: Re: One hit wonder.
Post by Lawrence on Aug 28th, 2009 at 12:38pm

ClusterChuck wrote on Aug 27th, 2009 at 8:23pm:
It is just the beast swinging by to remind you that he has not forgotten you ... The BA$TARD!!!

;D ;D ;D

Title: Re: One hit wonder.
Post by maalstroom on Aug 30th, 2009 at 5:14am
It has till now not developped into a cycle.
I guess you guys are right, it was a rogue hit.
Never experienced one before that wasn't part of a whole bunch.

Still scary, lol.

Title: Re: One hit wonder.
Post by bejeeber on Aug 30th, 2009 at 1:32pm
Have never experienced a rogue hit. Does sound pretty unnerving!

Have had plenty of rogue shadows though.....wondering how many of you rogue hit experiencers had it get to the point of being a high kip level attack, as opposed to it being more a case of feeling something coming on and having an abortive on hand to deal with it without waiting around to see whether it was destined to be more of a half or full intensity hit?

Title: Re: One hit wonder.
Post by Lawrence on Aug 30th, 2009 at 2:37pm

bejeeber wrote on Aug 30th, 2009 at 1:32pm:
Have never experienced a rogue hit. Does sound pretty unnerving!


Unnerving? thats NOTHING. I went the first 10 years of my cluster headache career with no meds.

Title: Re: One hit wonder.
Post by BobG on Aug 30th, 2009 at 3:06pm
Rogue hits are not uncommon for me. Happens about once a month. Been happening for years. Taking an afternoon nap is a sure way to trigger one.

Title: Re: One hit wonder.
Post by jon019 on Aug 30th, 2009 at 7:08pm
[/quote]

Unnerving? thats NOTHING. I went the first 10 years of my cluster headache career with no meds.[/quote]

Ok then....I went 3 yrs undiagnosed with no meds...and later 7 yrs no meds by choice...so, 10 yrs here too...

making a statement like the above REQUIRES more info...PLEASE. Sounds like you were undiagnosed...but we don't know that...

Best,

Jon

Title: Re: One hit wonder.
Post by bejeeber on Aug 30th, 2009 at 10:14pm

Lawrence wrote on Aug 30th, 2009 at 2:37pm:

bejeeber wrote on Aug 30th, 2009 at 1:32pm:
Have never experienced a rogue hit. Does sound pretty unnerving!


Unnerving? thats NOTHING. I went the first 10 years of my cluster headache career with no meds.


Clusters without meds or any other relief are much more than unnerving, there's no doubt about that!! :o My no meds "career"  :D lasted for my first 5 years or so, so you got twice as many points as me.  :)

Title: Re: One hit wonder.
Post by NickO on Sep 2nd, 2009 at 12:49pm
I was almost CH free for 5 years, till this summer I started a cycle. I do remember having one rogue attack once three or four summers ago. They are strange indeed.

Title: Re: One hit wonder.
Post by Jay F on Sep 2nd, 2009 at 8:48pm
I got a "rogue" hit back in April...my usual cycle was pre-Thanksgiving to just after New Years...so it was a complete shock.  Unfortunately, the shock has turned to horror, as I'm still in this "new cycle" four+ months later...  I'm fearful that I've gone "chronic".  Doc now has me on 480mg of Verapamil a day...  I have alternating battles with my insurance company over Imitrex vs Zomig nasal...although now there's a NEW Imitrex generic that's a WHOLE lot cheaper.
No, I haven't gotten the O2 yet...but if this keeps up, I surely will.
And to share in everyone's historic agony, went 7 years with no meds...how did I, how did WE survive?

Posted earlier....would a Facebook group make sense to attract more sufferers and to help the world know and understand? 

Title: Re: One hit wonder.
Post by Lefty on Sep 3rd, 2009 at 6:06am

Lawrence wrote on Aug 30th, 2009 at 2:37pm:

bejeeber wrote on Aug 30th, 2009 at 1:32pm:
Have never experienced a rogue hit. Does sound pretty unnerving!



Quote:
Unnerving? thats NOTHING. I went the first 10 years of my cluster headache career with no meds.


10 years? thats NOTHING....! You want to try 20.. :P  I suppose being a hobo didn't help my cause. Try locating a headaches specialistist when you can barely locate yourself.. :D 

Lefty..!

Title: Re: One hit wonder.
Post by Weatherman on Sep 4th, 2009 at 3:45pm
This is interesting. I just returned to this site yesterday after 3 CH free years. I got hit hard yesterday with a 7-8 and thought, hell! Here we go again. Just when I thought I might be done with these things. Well now, 24 hours later I have not had another hit. Very strange to me. Never had a rogue hit before but I'm hoping that's all it was. I guess we'll see!  :-/

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