Kinda pissed me off a little bit.
To tell you the truth. I been having these things for 20 years.
For the love of everything good, whats the freaking hold-up then man? ::) ::) ::) :-X

Then my wife told me I dont have enough FAITH.

OH, OK.....like now, its MY OWN FAULT :D :D :D :D :D that I haven't been healed.


WHATEVER DUDE

Any religious folk in here, or what?

Or am in even allowed to talk about this stuff in here?

Cloister headaches?

ROFLMAO  [smiley=crackup.gif]  Brian!!!

If that's the case we are all cloister f@cked

I completely understand where you are coming from Lawrence.  We have all been told some really stupid chit over the years with regards to CH.

I was once told "You just need to learn to control them"  OMG next you'll want me to control the weather while you're at it!   

Some people just don't get it Lawrence and there isn't much you can do about it.  You may want to have your wife come here and read up some on CH. Maybe ... just maybe then she'll change her tune.

I've been praying for years for God to take them away.  All I can say is maybe God has a plan for us that we are unaware of yet. 

Or on the other hand...

Maybe the devil is just f-ing around with us, because we're all so GOOD!!   ;D

I look forward to the day when seemingly rational people will stop religionizing stupid shit that just happens.

Brew wrote on Aug 28^th, 2009 at 9:37pm:

I look forward to the day when seemingly rational people will stop religionizing stupid shit that just happens.

aint that the truth

JustNotRight wrote on Aug 28^th, 2009 at 9:27pm:

ROFLMAO  [smiley=crackup.gif]  I've been praying for years for God to take them away.  All I can say is maybe God has a plan for us that we are unaware of yet.

I stopped praying that God end these clusters.....because I had done this sooo much It felt....redundant.
it felt.....not good.

I tend to get quite bitter about this.

I've got family members who believe in THE SECRET.

I can't, I can't even listen to that stuff due to the shit I've been through.

When I was 11, and first got ill... I went into complete denial.

I convinced myself that I was not sick. I did not have a disease that controlled what my body did. I was going to continue to go to school, and could succeed. I didn't have to admit to the constant headache I had.

It didn't fucking work.

I prayed more than enough. I had more than enough faith.

The only thing prayer and faith did was get me through it. It has not cured me.

It's kept me going, but so has medication to control my conditions.

It's a tool for coping with things for me. Nothing more. I believe that everything happens for a reason (most of my problems have at least helped me ease someone elses suffering in the end...) but that doesn't mean to me that God will cure me.

I put my hope and faith in researchers, In doctors,  In my family and in the other sufferers of my conditions, as those are people who may be able to do something about it, and if not, at least share my plight.

Lawrence,

I guess you could say I'm "religious" although I don't consider my beliefs "religion", but rather a personal faith and relationship with God.

To answer your questions about what your wife said, First of all, she has a faulty understanding of what the Scriptures teach about healing.  Nowhere does it say that all will be healed if they "have enough faith".  I have seen healing take place in a number of cases, have experienced it in a couple of instances myself, (the day before surgery once).  I have full faith that God is able and often willing to heal, but it is for HIS purposes not ours.  It is HIS choice as to when and where, and not ours to demand.  If I could demand it of Him then I would be God and not He. 

I used to ask repeatedly for healing and for them to go away also, but have come to understand as did the apostle Paul that "My grace is sufficient for thee", and that "My strength is made perfect (complete) in weakness."  Once I was willing to accept that He has a purpose in my life that includes CH I've also learned to live with them instead of constantly fighting them.  Doesn't mean I don't still feel the pain as intensely, but I have peace of mind knowing that He knows the end from the beginning and that I can trust Him.  I've also learned a real appreciation for the book of Job, as you can see from my signature line.

PM me if I can help.  Anything beyond this needs to be private.

Jerry

chronic clusterhead=Doomed.devil's son.Lucifer.666
episodic clusterhead=he recieves absolution but after a while he falls in temptation and takes a bath in pool of sins until he regrets once again and recieves absolution but after a while.... ;D


Quote:

All I can say is maybe God has a plan for us that we are unaware of yet.

God:You will get on that cross.stay for three days.And then i ll call you near me and humans will have a chance to salvation!alright?
Jesus:huh?

trust in george carlin :)

I wish I'd known this before,  but I gotta run...
See if I can find a sat. service.

I will shorten this story:

Man trapped in flood on his roof...water is rising, prays to God to save him...a guy in a canoe shows up says get in, man refuses says God will save me...a boat shows up to rescue him..man refuses the help says God will save me.....a helicopter shows up...man refuses says God will save me...water rises...man drowns...gets to heaven, asks God why didn't you save me? God said for heavens sake I sent a canoe, a boat and a Helicopter.....

you get the point. Don't wait for a miraculous cure, use the people God sends you. I'm sure she meant well! ;)

Joe

We all have the right to beleive in what we want to, I do not peronaly believe (why would any CH suffer!)

But also the law gives you thye right to choice divorice or not!

Pixie-elf wrote on Aug 29^th, 2009 at 12:09am:

I tend to get quite bitter about this. I've got family members who believe in THE SECRET. I can't, I can't even listen to that stuff due to the shit I've been through. When I was 11, and first got ill... I went into complete denial. I convinced myself that I was not sick. I did not have a disease that controlled what my body did. I was going to continue to go to school, and could succeed. I didn't have to admit to the constant headache I had. It didn't fucking work. I prayed more than enough. I had more than enough faith. The only thing prayer and faith did was get me through it. It has not cured me. It's kept me going, but so has medication to control my conditions. It's a tool for coping with things for me. Nothing more. I believe that everything happens for a reason (most of my problems have at least helped me ease someone elses suffering in the end...) but that doesn't mean to me that God will cure me. I put my hope and faith in researchers, In doctors,  In my family and in the other sufferers of my conditions, as those are people who may be able to do something about it, and if not, at least share my plight.

i hear ya. i guess i feel the same way you do.

Callico wrote on Aug 29^th, 2009 at 1:45am:

I have full faith that God is able and often willing to heal, but it is for HIS purposes not ours.  It is HIS choice as to when and where, and not ours

Seems awfully.....anti-selfless to me. 

So.....if God gets something out of it, then he'll help out?  Damn. 

Now I know what the collection plate stuff is all about.......

BMoneeTheMoneeMan wrote on Aug 29^th, 2009 at 1:57pm:

Callico wrote on Aug 29th, 2009 at 1:45am: I have full faith that God is able and often willing to heal, but it is for HIS purposes not ours.  It is HIS choice as to when and where, and not ours Seems awfully.....anti-selfless to me.  So.....if God gets something out of it, then he'll help out?  Damn.  Now I know what the collection plate stuff is all about.......

I was thinking the same thing.

Guiseppi wrote on Aug 29^th, 2009 at 10:00am:

I will shorten this story: Man trapped in flood on his roof...water is rising, prays to God to save him...a guy in a canoe shows up says get in, man refuses says God will save me...a boat shows up to rescue him..man refuses the help says God will save me.....a helicopter shows up...man refuses says God will save me...water rises...man drowns...gets to heaven, asks God why didn't you save me? God said for heavens sake I sent a canoe, a boat and a Helicopter..... you get the point. Don't wait for a miraculous cure, use the people God sends you. I'm sure she meant well! ;) Joe

The pursuit of Happiness (Happyness)

I agree with everything Jerry posted.  I feel the same way.  I had epilepsy for 28 years.  I had over 30 seizures a day.  The drs could do nothing for me.  I was allergic to all meds on the market.  I had my pastor and a visiting evangelist lay hands on me and pray for me for a healing.  I was healed on the spot and have been siezure free for 17 years now.  I had torn my rotator cuff and needed surgery.  God healed me the day before surgery so I didn't need surgery any more.  I have been part of, seen and heard about many miricles being preformed.  God is able!  However, it is in His time and according to His purpose.  I pray that I am healed of ch but I am not stupid.  God may choose not to heal me like he didn't heal Paul of his afflictions.  I take medication and let drs help me.  But I will say that God performs his best miricles when we are up against all odds and the drs just cant do anything.  That is my opinion based on my relationship with God.  I am sorry that your wife is shoving this belief on you to a point where it sounds like you are getting angry.  Please keep seeking medical help and read the boards there is lots of good advice here like oxygen, imitrex, verapamil, lithium, etc.  I hope you find relief one way or another.

Quote:

I look forward to the day when seemingly rational people will stop religionizing stupid shit that just happens.

i am with you Brew on this.But it seems one needs more than guts to see the truth when it does not serve him.
so this day will come around..midnight? :D

Well, my faith in God is strong. I've read The Secret and plenty of other self help books for other interests.

But I'm still a clusterhead and don't count on it to end because of God's miracle or something like that.

However, I do believe that I did become a clusterhead for a reason, and that is part of my path in this life. if I'd be in remission for the rest of my life, that would be a blessing...but I'm still prepared for hits and cycles. What's true for others, is true to others, that's how I see it myself.

Sanna

Lawrence wrote on Aug 28^th, 2009 at 9:06pm:

....My wife told me God would heal me ....I been having these things for 20 years.

Well if you've been attending church and adding to the collection plate I think you may have grounds for a refund!  :D

I'm reasonably certain God doesn't like the things I call him when I'm getting hit so I don't expect a lot of assitance from him.

i have a prayer that i say, "let me have tonight" i'll say it hundreds of times before i go to bed, it's never worked, but when in the war, i can't help it. maybe it is brain damage

When I pray, it's usually along the lines of, "Thank you for my wife, thank you for my son, thank you for my health, and thank you for the opportunity to provide for my family."

And then it's usually something like "Thy will be done." I stopped asking for anything a long time ago.

i feel ya

asking god to get rid of your headaches is like asking god for a million dollars. instead of getting a direct result it opens doors of opportunity. god gives you the tools and you have to figure out how to use them.

Guiseppi wrote on Aug 29^th, 2009 at 10:00am:

I will shorten this story: use the people God sends you. I'm sure she meant well! ;) Joe

You mean GOD is a WOMAN !!!!!! :)

-johnny- wrote on Aug 30^th, 2009 at 7:19pm:

asking god to get rid of your headaches is like asking god for a million dollars. instead of getting a direct result it opens doors of opportunity. god gives you the tools and you have to figure out how to use them.

yeah i see

-johnny- wrote on Aug 30^th, 2009 at 7:19pm:

asking god to get rid of your headaches is like asking god for a million dollars. instead of getting a direct result it opens doors of opportunity. god gives you the tools and you have to figure out how to use them.

God giveth and the insurance company taketh away.

Oh Man!!!! I sure feel your frustration dude! I have an entire family and a husband that is doing similar things and if misery loves company you have lots. I am currently in therapy over crap like that because I am so angry I actually have made myself worse. Try to relax, take it one day at a time (or 5 min at a time) and try not to choke the life out of the next person who annoys you like that. I hear the health care in prison sucks! Iffen ya wanna vent, just lemme know. I have had lots and lots of support here when I need to vent, I would love to return the favor. Big gentle supporting hugs from Denmark, Sophia :)

I am a religious/spiritual person who believes in the Bible.  I need to say that so that those who wish to make fun of my beliefs can get their zingers ready.

My wife told me before this last cycle that she was praying to God that the headaches wouldn't come this time.  She told me she KNEW they would not be bad this time and maybe might not come at all.  I told her that while I prayed the same, i didn't expect anything.  (you have to understand that she has only a few times ever KNOWN something this strongly)

She was right.  This past cycle was extremely tame.  Only had to use O2 a half dozen or fewer times and never went to anything else. 

Now, we all know that CH aint exact so those who wish not to attribute it to God, that is your right but I do attribute it to Him.  For whatever reason, he wished to relieve this pain this time and I thank Him for it.  It was not a my strong faith or me deserving it that made it happen, it was His plan for me for whatever reason.

I have had kidney stones, gallstones, and CH.  Despite the pain, I am thankful for all God has done for me, but never did he cure me just through prayer.

Do I think those who believe God can help or cure them are crazy?  Nope.  Do I believe that anyone who asks can miss out on a cure due to lack of faith..... nope.  It comes down to His plan for our lives.  Mine has included pain which had me begging Him to take me many times.

Now, I can say that He has done many things for me through my CH that may be part of the reason I have had them.

1.  He has brought me many friends who I love dearly.
2.  He has showed me that my irrational lack of comfort around homosexual men was something in me that I needed to get rid of.  Through my CH I can honestly say that I no longer have this problem.
3.  He has helped me realize how important the health of my children is.

Now, He might have more reasons for my suffering through CH, but I can honestly say that I am blessed to have had CH because of these reasons.  I wish to never have another cluster headache again, but if I do, I believe there is a purpose for them (in MY life) and after cursing and saying a bunch of things I will not be proud of, I know He will forgive me.

Anyway, sorry for the rambling but I hope people realize that people who belittle people for their beliefs are no better than those who misuse their beliefs to belittle others.

Brew, my friend, I guess I am just one of those idiots who "religionize" too much.  Sorry.

Eric - This is a far different thing than telling one's spouse that he still has CH because he doesn't have enough faith.

"Religionize" it all you want, as long as you don't attempt to stuff it down anyone else's throat. I'm sure you see the difference.

Nice Post FramCire ! :)

Brew wrote on Aug 31^st, 2009 at 9:03pm:

Eric - This is a far different thing than telling one's spouse that he still has CH because he doesn't have enough faith. "Religionize" it all you want, as long as you don't attempt to stuff it down anyone else's throat. I'm sure you see the difference.

I do see the difference.  However, I do "religionize" most things.  Shoot, I think God even put you and your family in my life for a reason...... maybe I need to rethink that  :P  (jk)

this post got really interesting

It always does when religion is brought into it.

Great post Eric.

i have prayed for almost 31/2 yrs wit CH. I alsop have prayed to my mother asking why what did I deserve to have such a painful headaches. So I pray please make it stop. Please talk to God do something. And nothing happens . I still go thru the motions. I haven't been on this web page for almost 3 months I have had a break. Well htere are back with vegence. Last one I pased out 3 times. To the point i cant breath. I'm Currently weauting to be approve fpr disability. Hopefull soon .i have been wating for almost 3 yrs. . if I get approved I will go straighet to a Dr tp perscribe O2. I'am on Vepermil and seenms to help alot. Sorry I abandoned you for a while. Won't happen again Love you people :o

I have prayed for almost 31/2 yrs wit CH. I all so have prayed to my mother who is in heaven asking why what did I deserve to have such a painful headaches. So I pray please make it stop. Please talk to God do something. And nothing happens . I still go thru the motions. I haven't been on this web page for almost 3 months I have had a break. Well there are back with vegence. Last one I passed out 3 times. To the point I couldn't breath. I'm Currently waiting to be approve fpr disability. Hopefull soon .I  have been waiting for almost 3 yrs. . if I get approved I will go streight to a Dr toperscribe O2. I'am on Vepermil and seenm to help alot. Sorry I abandoned you for a while. Won't happen again Love you people :o

You should consider sticking around during those pain-free times - to help those who could use it.

Brew wrote on Aug 31^st, 2009 at 11:06pm:

You should consider sticking around during those pain-free times - to help those who could use it.

thats what im gonna do

I've always believed that God helps those who help themselves..... in other words, teamwork......along with Drs, spouses, supporters.  It takes ALL of you, overturning rocks, trying new things till...ZING!  One day, it all falls into place......it's not just a prayer, nor is it just a pill....
Lawrence, please remind your wife of this, and ask for her help, rather than her pontification, please?
Cathi :D

Dear OP,

I am so sorry, but your wife needs to be much more educated on CH.

God and faith have nothing to do with the beast. Here's an advice that I hope you may find better than faith over CH attacks, it was originally presented by my neurologist who is the dean of faculty of medicine - Alexandria University (Dr. Farouk Talaat):

1- This combination of meds may be very helpful:

A- With Breakfast:

1 tablet of Pryanil + half tablet of Inderal 40 mgms.

B- With Lunch:

1 Tablet of Depakin + half tablet of Inderal 40 mgms.

C- With Dinner:

1 Tablet of Pryanil (Lithium Blocker) + 1 tablet of Isopten (verapamil).


2- AVOID ALCOHOL TOTALLY DURING THE CH BOUT!!!

3- Regulate your sleep. Regulating your sleep HELPS!

4- Best thing to take during an attack is Imigran injection, otherwise use 100% oxygen ( 10 liters - for 20 minutes), or Zomig (Zolmitriptan). Imigran tablets are entirely worthless.

5- When you wake up, drinking heavy coffee is not bad AT ALL.

Best luck to you, and to all of us.

AussieBrian wrote on Aug 28^th, 2009 at 9:08pm:

Cloister headaches?

;D.

andrewjb wrote on Sep 2^nd, 2009 at 7:03pm:

AussieBrian wrote on Aug 28th, 2009 at 9:08pm: Cloister headaches? ;D.

That was a good one wasn't it !!   ;D   ;D

Faith is all nice and good if it works for you. Nothing wrong with it although it is not my cup of tea.

Having people giving you guilt trips of the style 'you have CH because you dont have enough faith' or 'you dont get cured because you lack in faith' is uncalled for. In general people offering you healing tips (like: you are not eating enough vegetables) while you are busy banging your head on the wall, is uncalled for. However it is good to remember that most of these people mean well.

Anyhows, being an atheist, the closest thing I had to a metaphysical experience is the moment the imigran starts to work  ;D Oh, the elation!

Long story short (for me), the is only one God (GlaxoSmithKline) and Sumatriptan is His Prophet.  ;D

I think God has a weird sense of humor. I present for your meditation today the platypus. A mammal that lays eggs. Erm, uh, does God also smoke hash? ROFLMAO!!! Sorry just had to get that in here. I think its the tumor. I hope its the tumor. I would hate to think I am always this twisted. Sophia ;D