Hello, I was wondering if any of you have any input on what I am going through atm, my usual cycles are in april every 2 years, though this year my cycle despite starting on april, was also accompanied all the time by shadow like pressure-pain behind eye thingies.
I thought it is normal since I red about it on boards, but even when my cycle was gone in half of may since it lasts around 2-3 weeks, I still have been getting constant shadows, sometimes even going on for 3 days or week, only switching sides at times, as in left side pressure/low pain backs off and then suddenly I feel tingling in right eye and the same happens on right eyeball, and so on and so on, also at times I feel my teeth are hyper-sensitive and generaly I feel bad, it is like that since april till now (September) and I am not sure if it is some new diseases? Since Oxygen and Redbull does not work for it, perhaps some input?

Hi Matty

I know from talking to you over the last few months that these constant shadows are causing you considerable stress.

5 months seems a long time to be experiencing shadows after what should be the end of your cycle. Maybe the beast has just morphed or it could be another underlying condition.

It sucks that the 02 & red bull are not doing their job, because you really don't want to be taking pain killers all the time, if indeed you are.

I'm sure the guys will be along shortly to offer their experiences and hopefully a few tips on how to combat these long constant shadows...!


Lefty..!

Had an MRI yesterday got pictures to my home but the description will be done by medical technician next week, I compared to some thing on wikipedia I seen and I think I have similar thingie that it is shown here:

START PRINTPAGEMultimedia File Viewing and Clickable Links are available for Registered Members only!!  You need to or END PRINTPAGE

Had anyone have MRI done and seen this space behind cerebellum that is pointed in the picture on the right side on wikipedia?

Also these shadows, it seems Oxygen makes it worse, and it switches sides when I sit and then stand up sometimes, sometimes crying and being stressed stops them as I cannot hold the pressure and constant KIP 2-3, I say its 2-3 because its very mild pain but Cluster-like, you know, the pressure-pushing on eyeball thing, though I can lay down without rocking, but it is annoying, sometimes it breaks, sometimes it lasts forever, and 2 weeks later it stops and I have break for few days, then it happens again, and so on, and so on, sometimes I am thinking of Hemicrania Continua but I am no specialist, it is driving me mad although...

To add more, my history of diseases I had is: when I was child at around 7 years old, I was had Obsessive Compulsive Disorder, for example I had to cough or shake or nod head in different directions and so on, I took Dipromal medication for long, until I was maybe 17 old, I even remember still took it when I got my first CH. First CH happened when I was I think 15 years old in april, had it for 1week or 2 weeks around, 1 hit per day, usually waking up me in the morning.

Prior to that I had also youth rheumathism, you know joint pains and so on, due to auto-agression, I also remember I had very frequently pinkeye, then my join pain attacked my left eyeball, I remember doctor was happy that she detected it early otherwise I would lose my eye due to my pupil stopping to stretch and making for example vision impossible in bright places or dark places, so I had injection done under my left eyeball, it worked I guess, but I remember it was done one year before first CH attack on april.

Then I also remember I had a fight outdoors with some guy and I got smashed in face(cheek-bone) 2 or 3 times very hard with cleched fists, perhaps it could cause my headaches too due to the head-trauma.

Additionaly I think in before I also had a fight and got hit in my nose, and it got broken though I did not go to hospital with it, and it healed itself, but my nose is now curved downsides like the roman-nose eagle thing.

On the other hand what happens to me at the moment is that I also at times feel that my muscles in legs spasm and tingle, then on my head, back and so on, at times I feel my occipital nerve hurts too, it is different pain than cluster, it is more like sore-pain we feel in back or legs after hardwork.

I have been to two doctors since I cured myself with NSAID Diclofenum and I think it worked or maybe not, but both neurologists said it cannot be CH, then what it is? One said it is depression or some tics, other said I am imagining it... since cluster cannot change sides and my eye does not go red and I dont have runny nose usually, and I dont tear from eye.

Please, please, help me someone, if you can somehow assist me I would be greatful.

Subject: Chronic Disease; Hernia complications; Humans; Palatine Tonsil; Pharyngeal Diseases complications; Arnold-Chiari Malformation complications; Headache etiology

Abstract :This article briefly reviews the spectrum of headaches associated with Chiari type I malformation and specifically analyzes current data on the possibility of this malformation as an etiology for some cases of chronic daily headache (CDH). Chiari type I malformation is definitely associated with cough headache and not with primary episodic headaches, with the rare exception of basilar migraine-like cases.

With regard to CDH, there is no clear evidence supporting an association with this malformation. An MRI study would be justified only in patients showing either a Valsalva-aggravating component or cervicogenic features. Hydrocephalus and low intracranial pressure syndrome should be ruled out in patients showing tonsillar herniation in an MRI study and consulting due to daily headache.

Matty, as regards to Arnold-Chiari Malformation this may indeed be related to chronic daily headache. This may be worth futher investigation by your neurologist.


Lefty..!